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Craniosynostosis


Craniosynostosis Craniosynostosis is a birth defect that affects the appearance of the head and development of the brain. Approximately one out of every 2,000 babies is affected with the condition.

There are sutures, or connections, on the head that separate individual skull bones-almost like a puzzle. With craniosynostosis, one or more of the sutures will close prematurely and give the head an abnormal shape. There are four types of craniosynostosis.

Placiocephaly occurs when the suture that runs from ear to ear over the top of the head closes early. Their foreheads will often look flattened or pushed backwards.

Brachycephaly occurs when the right and left coronal sutures close too early, leaving the child with a high forehead and very broad head.

Trigonocephaly occurs when the suture that runs from the top of the head down to the nose closes too early. The head will have a wedged appearance and the eyes will be close to one another.

Scaphocephaly occurs when the suture that runs from the front to the back of the skull, on top of the head, closes early. This type will leave the child with a long, narrow skull. Infant's with this condition usually have an abnormal head shape, poor head growth, a raised ridge on the sutures and the soft spot seems to be missing. A doctor will diagnose the condition through a physical examination with head measurements, x-ray or CT scan of the head.

Surgery is generally performed to relieve pressure on the brain, fix the misshapen head and allow for brain growth.





Comments: Craniosynostosis

Comments 1 to 8 of about 8.


vtotino@yourlawyer.com - 1183 days ago.
The use of certain drugs has been linked to craniosynostosis and other birth defects. This is a great resource: http://www.yourlawyer.com/topics/overview/craniosynostosis-side-effects-birth-defects-lawsuit

mummy-tonya - 1197 days ago.
my youngest was born with coronal synostosis (saethre-chotzen syndrome). we are waiting for tests on our other children. my daughter had her skull reconstruction at 1 yrs old in feb 11. the results are amazing & im well chuffed..im now pregnant with our 6th baby & we have to wait till my 28 weeks scan to see if this baby has it {:0( our chances went from 1in4 to 50/50. my husband has 3 soft spots never closed & my daughter has a large soft in the same place that will also never close {:0( the surgeons actually halfed it when they did the surgery. this is something i will never get over & with this surprise pregnancy im scared we'll have to face surgery again {:0(. im here for anyone who wants to ask me anything or who wishes to talk about anything. take care all xxx

rde79 - 2229 days ago.
Hi, My daughter was born with cranio as well. She had the endo scopic surgery at 11 weeks of age. Was in the helmet for 13 months after surgery and thought that did the trick. Now we are facing the CVR surgery in December. She has had some delays in fine motor skills and has left side weakness. If anyone has any questions. Feel free to contact me. :)

flame3 - 2273 days ago.
Hi, my youngest son had metopic synestosis. He had surgery at 10 months. He had anpther when he was 3, the openings they created were not closing. Now we have ear infections, asthma. We are going in November for genetic testing. hoping our new baby will not have to go thru all of this!! Good luck ladies, feel free to ask me anything.

3rdtimemama80 - 2284 days ago.
My oldest daughter was born with craniosynostosis. Her soft spot closed in utero causing her head to elongate in the back. The specialists stated that other than performing surgery for cosmetic purposes only...there would be no danger with her continuing through life normally. The back of her head curves out a little more than normal, but she has long hair which makes it barely noticible. She does not experience headaches or any side effects what so ever. She excels in school , speaks 2 languages fluently and has been deemed gifted by all of her teachers=)

3rdXMommy - 2327 days ago.
My son when through surgery to have his skull corrected on June 17. I am more than willing to share any information or answer any questions about the procedure.

heavymetalmama - 2403 days ago.
Hi, My son also had cranio (metopic) and had surgery about 3-1/2 years ago. Anyone is welcome to contact me. There's lots of support out there for families going thru this!

mum to maizie - 2407 days ago.
hi my little girl was born with this condition, would like to hear from familys who have children with this.


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