Cystic-Fibrosis (Birth defects & disorders)

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Cystic Fibrosis

Cystic fibrosis is an inherited disease that affects about 70,000 individuals worldwide.

In cystic fibrosis, a defective gene will cause the body to make a thick and sticky substance that clogs the lungs and causes lung infections. This mucus also obstructs the pancreas, which will not allow the body to break down food properly. The symptoms of cystic fibrosis are wheezing and shortness of breath, poor weight gain, coughing, lung infections, salty-tasting skin and bowel movement difficulty.

A couple can obtain prenatal genetic testing to rule out the condition. Newborns can be screened for the disease after birth. Cystic fibrosis can be treated with antibiotics and diet therapy. It is also very important to drain the excess mucus by coughing it out.

Comments: Cystic-Fibrosis

Comments 1 to 7 of about 7.

meesemommy - 23 days ago.
i found out today that I'm a carrier too. no one in my family or my husband's family has ever had cystic fibrosis so I was completely shocked when we found out. His blood was drawn today so we will wait and see if he's a carrier. PLEASE PRAY FOR US!

simone-nelson - 116 days ago.
cystic fibrosis isn't so scary anymore, my mother was told my brother had it at 6 weeks and would not live to see 2 well he lived to see 23 and sadly passed away on march 08 2007 it's not such the death sentence anymore!! Have faith because they are always bringing out new drugs and 1 day there will be a cure :)

bwest - 438 days ago.
My little cousin who is 8 has got CF. She has it pretty bad, but with help from doctors and family you can't even tell she is sick. She goes once a year to a hospital and stay for 10-15 days. They call it her tune up. She has to take about 15 different medicines everyday and has to wear a special vest that beats her. It's a lot of work and you need family support but with today's technology you can beat it and live an old age. The doctor's can't believe the way she looks and her health. SO if any of you ladies find out that your precious baby has CF, i know it's scary but DONT let that put you down! You CAN fight it. Good Luck!!!

firstlilschlegel - 451 days ago.
My daughter is 8 weeks old, and on her nb heel prick came back with a mutation for CF. We have had 2 sweat tests done and she has failed both coming back in the 'grey' area each time. She is gaining weight and growing great, I know that is a concern. Is there anything else I should be looking for, we are going to test her again at 6 months.

blessed with baby - 459 days ago.
I wanted to send a little bit of encouragement to both of you. I had a child four years ago. His name is Conner. I found out i was a carrier as well as my husband, well into our pregnancy. As you know, its the scaries thought to imagine this little blessing being given something we can't control. My uncle died of it when he was 6- so i had a pretty good idea i was a carrier. However, we never imagined my husbaand was a carrier. I refused to even do the amnio in fear of losing a healthy child. My husband talked me into it as we had very opposing views of bringing an unhealthy child into the world. I have to tell you it was one of the biggest challenges my marriage has ever faced. Though faced with it all and all the things that, sure, could go wrong- you must have faith. They scare you with all the statistics, and yes there are some. However, my uncle died of it at 6- my grandmother had 3 more children and two more are carriers- one isn't. My son, Conner ISN'T EVEN A CARRIER. Keep the faith guys. Its ok to be educated with the genes we are given, but it doesn't mean its over. I am pregnant again, I actually go in for my CVS test tomorrow. Keep the faith. Know that its not so bad to be a carrier nor your child to be, and yes though there are statistics saying you probably could have a child with CF, the chances you won't are MUCH GREATER! I lost a baby in my last pregnancy as I was doing the ultrasound minutes before my cvs test. I saw a still fetus- i have to tell you, you have higher risks at other things going wrong. But don't fret. Keep positive. We've been blessed with this amazing child growing inside of us. Don't lose faith. Embrace the special uniqueness that we have and just educate yourself. Don't give up hope that this may be your last child either due to it. There are options out there. There's a cvs test early on you can do, and there's also an a PGD invitro fertilization procedure to ensure you don't even have a carrier as a child if you decide for future. Enjoy what you have and I'll be praying for you and crossing my fingers that all is well! Have fun with baby!

Lou24 - 475 days ago.
I am also a carrier of Cystic fibrosis my little sister has it we have jst had tests to see if my partner carries it jst waitin for the results to see what happens next

1st-time-mommy08 - 538 days ago.
JUST FAUND OUT THAT I CARRY CYSTIC FIBROSIS AND I AM SCARE FOR MY BABY TO HAVE IT TO!!!

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