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dore - 0.5 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
Hi Courtney , I am thinking of you and your baby !!!! And sending lots of love :0) ...


pintpot - 5.5 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
Hi all just got back from our 32 week growth scan, and OMG bubba is 2138 grams (4lb 7oz) already that means if they grow half a pound a week I'm looking at a 7 and a half to 9 and a half pounder, slighty scared at the thought of labour now. ...


babyoneisaboy - 6.1 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
i spent the second half of my pregnancy worried sick over the finding of two cysts much to my doctors disappointment as he told me everything would be fine and not even to worry about a second ultrasound. 2 weeks ago i gave birth to a beaut ...


lin - 14.8 hours ago - Posted in Spina-Bifida
I admire your decision NOT to terminate your pregnancy. Just to give you some encouragement.... I work as a social worker with families and children with disabilities. There is one mother I work with who has a daughter that was born with Sp ...


courtenay - 16.8 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
i just wanted to let everyone know my c-section has been scheduled due to her size (at 36 weeks she was est at 7.5lbs already and measured BIG for once, she has always measured within 3 days of the original dd) i still have nothing really ...


kelseewhite - 22 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
Well not much longer now is seems. Due around Dec. 8th and baby was weighing in small at last us. Have another scheduled for Oct. 22/08 and go the dr. this Wednesday for routine 3 week appt. Feeling good and trying not to stress. ...


mich - 25.1 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
when I was in the 20's of pregnancy they saw the cysts and fluid in kidney and I was a WRECK....I had the level 2 ultra sound...and everything was fine. next U/S the cysts were GONE thank GOD but the fluid in the right kidney is still the ...


louie8 - 28.7 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
I had to write an update in case someone else ends up in my previous boat. When I got to the level II ultrasound the doctor said, 'Why are you here'. He said so what there are two cyst your blood results are 1 in 3,000 for DS and 1 in 2,7 ...


AmberHope - 86.4 hours ago - Posted in Trisomy-21
there is another happening with 21 where it only comes in parcially. it is extremely rare and there isnt anything on here about it. my best friends mother just had a baby with it, its genetics that make it happen... the blood flows to th ...


moejuicy - 120.4 hours ago - Posted in Spina-Bifida
HI, I am 20 weeks and my doctor has told me that my baby has spina bifida.. I was told i should end my pregnancy by doctors. I told them no, im not terminating my pregnancy.. So if anyone has any helpful information I would really appreciat ...


charcharsuperstar - 169.1 hours ago - Posted in Spina-Bifida
hi! My niece has a mild case of spinal bifida.. it's low on her back and she had surgery a couple days after birth and seems to be doing GREAT ! -She is about 4 months old now, has full movement of her legs and everything ! :) ...


webb211 - 183.2 hours ago - Posted in Congenital-Heart-Defect
Natty 1982 - my 6 year old son has Tricuspid Atresia with a few other major heart defects thrown in the mix. He is doing really great so far and just recently had his 3rd open heart surgery. I am part of a support group specifically f ...


MedicMom - 235.5 hours ago - Posted in Spina-Bifida
I have a 13yr old that was born with a severe spina bifida. He is beautiful, and my pride and joy. I am glad you are so happy and positive with your new baby. My best to you. ...


natty1982 - 236 hours ago - Posted in Congenital-Heart-Defect
My son with just diagnosed with Tricuspid Atresia. Anyone know anything about that? ...


mummybigz - 236.8 hours ago - Posted in Spina-Bifida
I delivered a beautiful baby boy, Oscar on 19-09-08 he was 7lb 15oz by elective caeserean section and he was born with un-detected spina bifida. He is my precious little boy and we love him so much! ...


courtenay - 256.6 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
my doctor said the same thing, about never seeing an sua baby born with any problems. i dont think she has been doing it for 15 years but its still promising! all is still well over here after my last US on monday except she was breech ag ...


dore - 256.8 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
I just got back from the extra ultra sound to check Eliana's heart and her heart is PERFECT ! So happy ! Doc also said that in his 15 years of delivering baby's he never had a sua -baby born not healthy. Think this will give all o ...


louie8 - 262.1 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
I'm not sure it is a CPC...but the dr said I have two cyst on the brain of our little girl. I am 23 weeks along. All my blood work came back fine. The heart, bladder, kidneys look good. I have a level 2 ultrasound scheduled in four days ...


c4ff13 - 270.7 hours ago - Posted in Trisomy-18
My scan on 23rd showed that baby has markers for trisomy 18 ( strawberry shaped head, heart defect, clenched hand, club foot, extensive omphalocele) . We had an amnio done but this will confirm what could be seen on the scan. The consulta ...


courtenay - 335.6 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
hi ladies, i just wanted to let you know i have my final ultrasound today, i am just over 36 weeks and they are checking her position to make sure she is ready for labour, and giving her one last check over to make sure she is good to go (n ...


Angelia - 373.1 hours ago - Posted in Clubfoot
We are pretty sure for my son it's a genetic link. On my husband's side of the family he had a neice and a sister with club foot. His sister's was as severe as erin's. She's needed lots of surgeries over the years. My husband just recently ...


Kara.D - 421.7 hours ago - Posted in Gastroschisis
Hi, I am 18, and I am also 18 wks pregnant, Just yesterday I found out that my baby boy was had gastocshisis! At first it was a shock, but now I am at ease with it! The specialtist said that it was very fixable, and not uncommon! My Fiance ...


blackliner - 448.9 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
HOw are you ladys doing?? I am now 31 weeks and the doc says everything is a-ok! At 20 weeks they saw the cyst and at 28 weeks nothing so why do i still feel a little weiry?? she is so very active, im just anxious to meet her and cant wait ...


c4ff13 - 451.9 hours ago - Posted in Omphalocele
i am 43 and this is a totally unexpected pregnancy. it took me weeks to come to terms with the fact i was pregnant. at the 12 week scan we were told that the baby had 'something wrong with its tummy', a week later at a nuchal translucency s ...


mamabritt - 452 hours ago - Posted in Cleft-Lip,-Cleft-Palate
Iam new to this site but Iam really worried that my baby may be born with cleft lip or cleft pallet or maybe even both :(....The father to my baby was born with simple cleft lip and cleft pallet, you cant really tell that he had it now. But ...


pintpot - 479.6 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
Hi all, just to let you know I had my scan at 28w5d and everything was fine he was spot on for his dates which I'm glad about as he was a week behind at 20 weeks. We've got another scan at 32 weeks to make sure everything is still on track. ...


pr3gojenn - 483.3 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
My baby has it too, however she is doing just fine, she is a little small but they say its normal so everything looks good! ...


allyson - 495.7 hours ago - Posted in Trisomy-13
I had twin boys who were fraternal on July 3, 2008. Sadly, one of my boys was diagnosed with T-13. He lived for 21 days, and I miss him terribly. I declined the amnio, so the only clue I had that there might be something wrong with him was ...


tarakm - 523.2 hours ago - Posted in Meckel`s-Diverticulum
I had this but it was not taking care of until I was 12 years old, because their was no sign of it, I pray that Natalie will never have b/c its rare.. ...


mum4eva - 547.6 hours ago - Posted in Ventricular-Septal-Defect
susanc, i can imagine that this is very scary for you. But be assured that VSD's are a very simple congenital heart defect and if surgery is ever required that outcomes are great. But more often then not surgery is not needed and if it is i ...


ctouch - 566.9 hours ago - Posted in Trisomy-21
Found out a few days ago the amnio came back negative. so releaved. I hope evryone else has the same results, i will be praying for you. ...


mum4eva - 568.4 hours ago - Posted in Omphalocele
Hi, i do not have a child with an omphalocele, but i have 2 friends who do. Both children are doing fine. It was very scary for them, both had very different experiences, one was only in the hopital for a month after birth, but the other wa ...


erin b - 569.9 hours ago - Posted in Clubfoot
lin - Well my sister didn't have one, and I did. I'm the first in my family to be born with one. And the doc said theres no way of even predicting a percentage chance for my baby of being born with the defect. I suppose it could be diffe ...


lin - 590.8 hours ago - Posted in Clubfoot
I agree erin, also things have progressed so much since you were a baby that its usually as simple as casting and a foot brace now! My son has had no surgery and his foot is completly corrected. It can be stressful at time dealing with the ...


nicstyler - 592.2 hours ago - Posted in Omphalocele
I had my 19 week appointment yesterday. The doctor found an omphalocele with the bowel and liver out. They did an amniocentesis today and tomorrow we meet with a perinatalogist. I've never been so scared in my life. If anybody can leave ...


erin b - 594 hours ago - Posted in Clubfoot
It's sort of a hit-and-miss kind of thing. Just because you have one baby with a clubfoot doesn't mean that the next will have one. I myself was born with a very severe club right foot. But that doesn't necessarilly mean that my baby wil ...


maggiedee1002 - 597.3 hours ago - Posted in Clubfoot
i guess the chances might be rare.. it all depends cus we really dont even know what is the real reason for club feet.. i found out on my 20 week sono when they did the anatomy scan. ...


bwest - 623.2 hours ago - Posted in Trisomy-21
With my first child I was told at 21 weeks that my screening come back positive for my baby to have Downs. I was really upset. They give me the option to have an amnio done or just an ultra sound. I chose the ultra sound becuase of the r ...


bwest - 623.3 hours ago - Posted in Cystic-Fibrosis
My little cousin who is 8 has got CF. She has it pretty bad, but with help from doctors and family you can't even tell she is sick. She goes once a year to a hospital and stay for 10-15 days. They call it her tune up. She has to take ab ...


Dad2B2-22-09 - 628.8 hours ago - Posted in Undescended-Testicles
I had this problem as a baby, neither of mine dropped. I had to have the surgery, but I was not an infant because I remember of having the surgery. My surgery went well, but recently within the past two years I had complications and had ...


Trisha909 - 691.5 hours ago - Posted in Trisomy-18
My sister lost her baby boy Ellis to this and my heart goes out to you xxxxx ...


mumof3girls1boy - 723.1 hours ago - Posted in Beckwith-Wiedemann-Syndrome
my middle daughter who is now 5yrs old was diagnosed with this when she was born it was very hard at first as she also had other problems with supar ventricular tachicardia and omphecele she as had quite a lot of surgery s never thou ...


dore - 737.7 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
So glad to hear so much good news regarding sua ! My baby and I have sua,too. I heard already from 3 women in my area they had the same and they and their baby's are doing fine !!! Don't be too afraid !! Courtenay ; I am thinking of you ! ...


flame3 - 748.1 hours ago - Posted in Craniosynostosis
Hi, my youngest son had metopic synestosis. He had surgery at 10 months. He had anpther when he was 3, the openings they created were not closing. Now we have ear infections, asthma. We are going in November for genetic testing. hoping our ...


courtenay - 786.5 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
hi ladies, i just wanted to let you all know that i had my first NST today at 33.5 weeks due to SUA we are starting early, but while i was on the labour and delivery floor doing this the nurse was telling me that another lady just delivered ...


catbertie - 814 hours ago - Posted in Cleft-Lip,-Cleft-Palate
My now 2.5 year old was born with a simple cleft lip and avelolar cleft in her gum line. She was adopted and we received her at 13 months old - no surgery. She had her lip repair at 16 months and has no speech problems and is talking in ...


cosmicsecret21@yahoo.com - 829.4 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
Hey Guys. Im new here. I recently just hit my 20 week mark, I had my anoatomy u/s at 18w4d and they told me the baby looked great, good growth, no abnormalities, but the baby had one CPC (soft marker for tri 18) and a small calcium deposit ...


mum2b3rdtime - 835.4 hours ago - Posted in Gastroschisis
hix I am 22 weeks pregnant with my baby girl ,and found out 6 weeks ago, that she has gastrocshisis, it was a big shock, the last 6 weeks has been very very hard, but as time is passing, with the hospital appointments , and just yes ...


chloemamma - 865.2 hours ago - Posted in Trisomy-21
My brother is 22, now, and he has Downs. He lives with my husband and I and he's doing really well. When he was very young-under a year- he had a ventrical heart defect and had some scary times. But now he's very healthy and functioning at ...


susanc - 868.3 hours ago - Posted in Ventricular-Septal-Defect
Hi, i'm 35 weeks pregnant and my daughter has a small VSD. We have been told not to worry too much because it' very little and might close on it's own after she's born, still it's very scary... ...

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