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frenchie23 - 1398.9 hours ago - Posted in Stork-Bites
:) I don't think its a birth defect either! I thought it was a birth mark... My daughter has one on the back of her neck by the hair line and yes it turns dark red when she cries and just is a dark pink ,'normally':p it doesn't bother me on ...


frenchie23 - 1399.8 hours ago - Posted in Hemangioma
Heeey ladies, when I was a baby I had an Hemangioma on my neck, it was actually pretty big ( size of a quarter or nickel maybe ) and thick... My parents got it surgically removed when I was 4 and honestly, I think it would look better with ...


dolly2boyz - 3809.1 hours ago - Posted in Hemangioma
hi,my daughter was born in june totally perfect.at 2 weeks old she developed a very small red blemish on her jaw line.we thought it would go away at 1st but our health visitor said it was an hemangioma.it has gone slightly bigger and bubble ...


bedrestingmum - 3899.9 hours ago - Posted in Branchial-Cleft-Cyst
New to this site and not sure if I'm posting in the right location but I just wanted to share the situation bubs and I are in right now. I'm 23 and a half weeks pregnant. This is my first pregnancy. I have been having fortnightly ultraso ...


vtotino@yourlawyer.com - 4005.3 hours ago - Posted in Craniosynostosis
The use of certain drugs has been linked to craniosynostosis and other birth defects. This is a great resource: http://www.yourlawyer.com/topics/overview/craniosynostosis-side-effects-birth-defects-lawsuit ...


brittanys-2nd - 4078.4 hours ago - Posted in Gastroschisis
My son was born with gastroschisis, he had 3 surgeries during his stay in the childrens hospital. There were alot of ups and downs but he is now a happy and healthy 14 month old who I wouldnt change a thing about! The only thing different a ...


lauralou - 4155.6 hours ago - Posted in Clubfoot
hi everyone, my little boy was born with talipes (clubfoot).... hes now almost 3 and part way through his treatment, Ponsetti method. If anyone wants to ask anything please feel free to message me, i am more than happy to share experience e ...


nervous1st :) - 4202.8 hours ago - Posted in Omphalocele
my son Landon Tyler spent 5 n a half weeks in the hospital and is 8 months old and a very healthy and strong little boy! he still hasnt had his surgery and we have to wrap his belly daily, the skin is all grown around his belly so it looks ...


mummy-tonya - 4341.8 hours ago - Posted in Craniosynostosis
my youngest was born with coronal synostosis (saethre-chotzen syndrome). we are waiting for tests on our other children. my daughter had her skull reconstruction at 1 yrs old in feb 11. the results are amazing & im well chuffed..im now p ...


kissbeth17 - 4394.2 hours ago - Posted in Gastroschisis
I had a daughter who was born with gastroschisis, and she spent a good part of her first year of life in the hospital. The other baby's that I seen with this condition pulled through, and I was very happy for them. My daughter was a very ha ...


AshLaney - 4484 hours ago - Posted in Congenital-Heart-Defect
I was just at my doctors and had an ultrasound done. The dr believes the baby CHF. Has anyone else been through this? ...


jilljill8886 - 4535.6 hours ago - Posted in L1-Syndrome
just a friendly member that wants to say there is an awsome group on facebook called L1 cam.... everyone in that group has a son that is effected by this mutated gene, which cause x-linked hydrocephalus. in this group you can find caring pe ...


robbal@aol.com - 4644.9 hours ago - Posted in Cleft-Lip,-Cleft-Palate
Hi, I am a 46 year old woman, who was born with a total cleft palate, heart disease, congenital vaginal agenesis, and club feet. Regarding my palate surgery, I was operated on when I was 18 months old. I don't remember it but because p ...


robbal@aol.com - 4645.2 hours ago - Posted in Vaginal-Agenesis
This article is technically incorrect. Vaginal Agenesis is the absence or partial absence of a vagina. Most often, women who are born with congenital vagina agenesis are often born without a functioning uterus. Some women are able to conce ...


lin - 4915.6 hours ago - Posted in Clubfoot
I think that in most cases this is a very minor correction and now a days with new procedures the chances of living in constant pain or any discomfort caused from a clubbed foot at all is very rare. I realize some cases are way worse than o ...


sunshn1122 - 4919.4 hours ago - Posted in Trisomy-21
Just wanted to share a good news story about DS. For the past 13 years I have been legal guardian for my 36 year old sister who has DS. She has been living with me since our mother passed at 46 years old from breast cancer. I share this inf ...


gessgoose - 4982.7 hours ago - Posted in Trisomy-21
Hi, I am 24 weeks pregnanty, my husband is 50 years old, I am 27 ... I been reading about the father age is also a risk for birth defcts and DS... I did my ultrasound and they say Was normal... But I been very concern, because I also read ...


luvbugs - 4999.5 hours ago - Posted in Clubfoot
My sister had clubfeet-both were affected. They started out with casting, which helped in 1 foot but the other foot eventually needed surgery to correct. At 19 she had to have another surgery on the same foot, due to the bones in her foot c ...


raindrop0208 - 5055 hours ago - Posted in Clubfoot
I had a clubbed foot as a baby. There is a cute picture of me wearing my dad's military beret and a little cast on my foot. I don't remember a thing about it and have had no problems with my foot. Running, gymnastics...you name it =) ...


~Tammy~ - 5178.8 hours ago - Posted in Clubfoot
Hi mommies, Im 32 weeks pregnant and its confirmed that this baby definitely has one clubbed foot and the other foot could possibly be fine. ...


charmara - 5217.7 hours ago - Posted in Arthrogryposis
If anyone else ever needs this info I have been blessed to find a support group about the syndrome. AMCsupport.org Wonderful group of people!!!! ...


1blessedmom - 5529.1 hours ago - Posted in Cystic-Fibrosis
@dee25 .. we were both tested but sorry couldn't tell ya..We live in Canada and these test are covered by government. I am thinking of all of you who are dealing with health issues in your baby. We have had our share and can well relate ...


dee25 - 5632.3 hours ago - Posted in Cystic-Fibrosis
im 13wks and about two weeks ago i found out im a carrier of cystic fibrosis but i was covered by medicaid but tha bby farther is not ... for tha ladies and there partners who both got tested was it costly for there ur partner to get tested ...


cheeser212002 - 5667.5 hours ago - Posted in Cystic-Fibrosis
Ok So we just found out yesterday that our 3 1/2 week old baby girl has cystic fibrosis :(. Is anyone here dealing with the same thing? ...


micks - 5816 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
Nervousforfirst, Wow! I am so happy for you! Such a relief that he looked good. Boys are wonderful - and he will still play with his dad He won't know any different, so tell your husband not to worry! Congratulations to you. Hopefull ...


nervousforfirst - 5817.4 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
Hi Micks, I think we have good news in our situation too. Both my husband and are at least much relieved. Went for an u/s and the cysts are gone....Yeah. We noticed that the hands were open so we could see fingers and the head was very r ...


1blessedmom - 5843.5 hours ago - Posted in Cystic-Fibrosis
Our Dr's office called us this morning concerning our blood work to see if my husband and I carry the cystic fibrosis gene. It turns out we are both not carriers, which mean it is not possible for our baby to have it! One major concerned ru ...


1blessedmom - 5843.6 hours ago - Posted in Cystic-Fibrosis
Our Dr's office called us this morning concerning our blood work to see if my husband and I carry the cystic fibrosis gene. It turns out we are both not carriers, which mean it is not possible for our baby to have it! One major concerned ru ...


micks - 5852.3 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
Hi nervousforfirst, Just checking in to see how you are doing. Yes, my baby's cysts were gone...apparently they had ragged edges which meant they were draining out, so they had resolved themselves. I sort of think they are a normal part ...


nervousforfirst - 5887.7 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
Yeah Micks, So happy for you and your family. Did the baby still have cpc's, if so had they gotten smaller? I hope I will be relieved too. Glad to hear such great odds and you opped out of the amnio. Congrats. Glad all is well! ...


micks - 5892.4 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
Hi Nervousforfirst, Great News! They examined the baby very closely on u/s and she looks fine. I guess what they were looking for specifically was Trisomy 18. They saw no other markers for that or Downs. Afterwards, I spoke with a gene ...


nervousforfirst - 5900.8 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
Micks, good luck today. I will be thinking of you. I am feeling the same way about the amnio. Will you do that today then? How does your partner feel about the amnio? Keep in touch. My big day is Thursday. ...


micks - 5919.4 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
Hi nervousforfirst, My appt. for the u/s is tomorrow morning...I'm feeling pretty nervous & hope I get some sleep tonight. I spoke to another mother who went to the same clinic. A genetics counsellor talked to her about the u/s afterward ...


Mummylove - 5943.2 hours ago - Posted in Holt-Oram-Syndrome
9 Month's ago My daughter passed away from A mix of Holt Oram syndrome/Vectryl and 1A1V and Oligohydramnious..... I was 13 weeks pregnant and At my ultrasound they found missing radial bones, hydrocephalus and heart issue's. One kidney ha ...


nervousforfirst - 5945 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
Hi Micks, I keep going back and forth on the amnio too. I know it is the only sure way to know. My research has been mixed on the Downs and/or T 18 too. I have had a hard week when it rains it pours. My 13 year old dog has to be put dow ...


micks - 5998.7 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
Hi nervousforfirst, I believe it is a Level II that I will be getting. Its at a centre that specializes in genetics testing. So far, I had a triple screen, a nuchal u/s and my 18 week detailed (which is when they saw the cysts). My Dr. ...


joannamarr@yahoo.co.uk - 6039.7 hours ago - Posted in Anencephaly
We found out last July at the 12 week scan that our baby had anencephaly, i had a termination. I think the worst thing was seeing the baby moving on the scan which is upsetting to think about now. I wish the hospital had given me a scan pho ...


nervousforfirst - 6044.3 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
Hi micks, just checking in with you. Hope your worrying has decreased some. I have been trying really hard to stay positive too. I did not get the nt scan but blood work looked good. Is your next u/s a level 2 or just a regular one? Mi ...


1blessedmom - 6061.3 hours ago - Posted in Cystic-Fibrosis
Signs of improvement on the ultrasound today. There is a good start and though things might not seem completely normal yet, this gave us a lot of hope and we're happy to have gotten some good news! Dr. seemed a lot less concerned now about ...


mommykeisha - 6105.3 hours ago - Posted in Trisomy-13
I Had my ameo done on wed and found out thurs that my lil boy that im carrying has T13. All i can do now is pray. I cant wait to hold him and love on him and show him how much he is already loved. ...


micks - 6106 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
Hi Nervousforfirst, I have also just been told that my baby has CPC on her brain. She is my third baby and a girl! I was so excited to know I was having a girl (my other 2 are boys) and am now very worried. I have another u/s on June 13 ...


nervousforfirst - 6179 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
Sarasponda....Thank you for your reply, I've been anxious to hear other similar stories. One more question..During my research I found that clenched fists was another marker and looking at my u/s pic's my baby has clenched fists. Is this ...


sarasponda - 6197.7 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
My happy and healthy 4-month-old had two CPCs found during her amnio ultrasound. The doctor said that having them was common enough that they were considered within the range of normal. The rest of her ultrasound was fine and there was no f ...


nervousforfirst - 6257.8 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
At my 20 week u/s I was told my baby has two 7mm CPC's one on each side. I did the two AFP tests with results of 1:13000 for downs and 1:100000 for Tri 18 but still very scared. I was just starting too really enjoy the pregnancy too, now ...


xxbabbyxx - 6289.5 hours ago - Posted in Triple-X-Syndrome
Our little girl was diagnosed with xxx syndrome via amnio when I was 15 weeks pregnant. I am now 26 weeks and I cant wait to meet my precious baby. ...


1blessedmom - 6407.3 hours ago - Posted in Cystic-Fibrosis
We are suppose to go do the blood work to see if we are carriers at a clinic near us. (I'm at a high risk clinic an hour away from us) The other day we went to do that and couldn't because my Dr.s office gave us the wrong paper work. Now I ...


gretch - 6425 hours ago - Posted in Cystic-Fibrosis
Blessedmom- have you and your husband been tested to see if both of you are carriers? You both have to be to pass it along to baby. ...


1blessedmom - 6442.6 hours ago - Posted in Cystic-Fibrosis
The reason the Dr. thinks our baby has cystic fibrosis is because of Fetal echogenic bowel. Has anyone heard of this sort of diagnosis before and is my Dr. assuming too much too soon? ...


m896e - 6589.7 hours ago - Posted in Spina-Bifida
Hi Guys and Gals, I am 39 years old, insulin dependant diabetic, and about 9 and half weeks pregnant from time of conception. I had an ultra sound little over a week ago, they said it started out as a twin pregnancy however one stopped grow ...


lil.pigz - 6622.8 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
hoping-3-become-4- My Dr said it was a slim chance of ever recurring,. This is the same diagnosis our baby girl just had at 18 weeks when we lost her. It was the only abnormality noted in her autopsy, but they told us it was not her direct ...

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