Latest comments: Birth defects & disorders All sections Trying to conceive Pregnancy & Birth Birth defects Babies

About 200 birth defects have their own forum topic. Read the latest comments below or pick a specific topic from the right column.

Showing the latest comments, from 0 to 50.


grammyluvu - 33.4 hours ago - Posted in Hydrocephalus
Hello We just found out that my 18 year old granddaughter was born with hydrocephelis. We were very shocked. She started having headaches, blurred vision and vomiting. We thought she needed glasses. They did surgery on her without the shun ...


turtlemom - 493.9 hours ago - Posted in Hydrocephalus
Hi Katie, this board is very quiet. I replied to your comment on the VM board. ...


Katielynn13 - 496.9 hours ago - Posted in Hydrocephalus
Hello I am new here. I have read most the comments and thought I would share our experience so far. Received a call after our 19 week anatomy scan that our little boy's ventricles were measuring in the 15mm range Went back yesterday ...


ashley.mace5@yahoo.com - 836.6 hours ago - Posted in Congenital-Heart-Defect
Hello all my son was born on 9-10-11. We was expecting a healthy baby boy but after he was born we noticed his left rib cage was deformed. After a week a Childrens hospital in Columbus. He had been diagnosed with dextrocardia (where his hea ...


MummyPanda - 1432.1 hours ago - Posted in Hirschsprung`s-Disease
My 11 month old son was diagnosed at 5 days old after a failed pull through a stoma a cecostomy tube and a mic key button and 3 major operations my son is finely on Botox an doing great .. Anyone with hd or family or children with hd that a ...


MummyPanda - 1432.2 hours ago - Posted in Spina-Bifida
@ stewiehewit .. i have a mild form of SB wether its the same as yours I don't know but i have a hole through the bottom of my back through to my spine i get back aches but my spine doesn't stop me from doing anything. I have two children a ...


xEricaLynn - 1673.3 hours ago - Posted in Cystic-Hygroma
This past Tuesday, I went in for an ultrasound, only to see that my baby no longer had a heartbeat. This was my sixth pregnancy. (My husband and I don't have any children.) The doctor diagnosed me as having a cystic hygroma, or Turner's Syn ...


kelli2008 - 2626.4 hours ago - Posted in Trisomy-13
my baby has trisomy 13 im 34 weeks ...


dizzyden - 2969 hours ago - Posted in Gastroschisis
Hi I had my scan at 10 weeks any think our baby has this we were going back in a week now to see if there is any change. I just like to know what happens if the baby has this problem please. If your in the UK that would be great too. I know ...


Kaykayjenn - 3083.1 hours ago - Posted in Trisomy-18
Hello fells mothers, my quad results came back today and DR said that I have elevated levels of T- 18 I am and have been a mess all day I am currently 19 weeks and can't imagine loosing this child. I have to go see a specialist for high res ...


lore - 4545.2 hours ago - Posted in Trisomy-21
Can't believe am actually writing about my experience. well at my first ultrasound they notice signs of baby with Downsyndrome. She had the cleft Feet the body measurements weren't the same as a normal baby. I remember that day doctor told ...


lovely26 - 4556.8 hours ago - Posted in Ventricular-Septal-Defect
My daughter was just diagnosised with VSD . its a Medium size hole. she is only 2 weeks and 2 daysold . The thing that the doctor said that there is tissue that is starting to cover it so she has to see him back in about a month. Shes eatt ...


turtlemom - 4606.8 hours ago - Posted in Hydrocephalus
Hi! My daughter has severe Hydro. I typically check the Ventriculomegaly board as it is more active. Feel free to click on my name and send me a message if you have questions. I've been there and know what it is like. Many blessings to you ...


hinterlandhome@gmail.com - 5580.7 hours ago - Posted in Hydrocephalus
Hello ChrissyMarie...check out the Ventriculomegaly forum here...Look for turtlemom or LD Musgrave...both have (had) daughters with Hydro.....you may get much better helpful info there..Recent post had a son with 1.8cm which has now come d ...


ChrissyMarie - 5582.8 hours ago - Posted in Hydrocephalus
I had my 28 wk u/s last wednesday and they said the lateral ventricles were enlarged to 1.5cm. I had a 2nd u/s with a genetic counselor and she confirmed it. At my 20 week u/s everything was normal. Also everything else is measuring fine ...


alleycia - 5846.3 hours ago - Posted in Trisomy-18
He had T-18 and he did not make it :( ...


Angela Dawes - 6406.4 hours ago - Posted in Greig-Cephalopolysyndactyly-Syndrome
I have a child who was born with Greigs Cephalopolysyndactyly Syndrome. Although he had multiple fingers and toes (which the wonderful plastic surgeon at East Grinstead dealt with) and several hernias (also dealt with) he is now 6 years o ...


alanajade - 6601.4 hours ago - Posted in Cystic-Hygroma
Hi, i am almost 16 weeks pregnant, i found out yesterday that my baby has 7mm of fluid around their neck, i have been told there is a 60% chance my baby has turners syndrome or is downs syndrome. I am really wanting to hear some positive ...


alleycia - 6639.1 hours ago - Posted in Trisomy-18
I am almost 20 weeks pregnant and i have a close friend who is only nine weeks ahead Of me who just found out that her baby has a heart defect. This has been the first sign of any problem since ivf conception. This baby boy has not othe h ...


alleycia - 6639.1 hours ago - Posted in Trisomy-13
I am almost 20 weeks pregnant and i have a close friend who is only nine weeks ahead Of me who just found out that her baby has a heart defect. This has been the first sign of any problem since ivf conception. This baby boy has not othe h ...


alleycia - 6639.2 hours ago - Posted in Trisomy-21
I am almost 20 weeks pregnant and i have a close friend who is only nine weeks ahead Of me who just found out that her baby has a heart defect. This has been the first sign of any problem since ivf conception. This baby boy has not othe h ...


emmasmummy - 7207.6 hours ago - Posted in Congenital-Heart-Defect
TAUSSIG-BING SYNDROME Hi, my little man due in Niv has the above rare heart defect, basically the lower chambers if his heart have no separation and his Aorta and Pulminatry Artery are doing the opposite job from what they should be, so ox ...


Rohansmummy - 7268.9 hours ago - Posted in Hydrocephalus
Hi everyone :) My son was born with severe Hydrocephalus ( ventriculomegaly ) He was diagnosed in Utero at 26 weeks. Here is our Story :) www.i-am-pregnant.com/vip/rohansmummy ...


kyndra.byrd@aol.com - 7269.7 hours ago - Posted in Cystic-Hygroma
My name is Kyndra and I'm 24 years old. I was born with cystic hygroma. I had a large mass the size of a baseball on my left side of my neck. I have hygroma on my vocal cords, in my chest and under my tongue. I had the huge mass removed whe ...


MyAngelTwins - 7544 hours ago - Posted in Trisomy-21
I have a son who has Down Syndrome. I had him last September. I am sure you have had your amnio by now. If its positive with DS, I would be happy to chat with you. God must have wanted this baby to be here with a 2% chance:) My son is a HUG ...


sophlou88 - 7597.5 hours ago - Posted in Trisomy-21
I managed to get pregnant on the copper coil (2% chance). Although unplanned and very unexpected my partner and I were over the moon. I had the coil removed and It was touch and go for baby as I had a high chance of miscarriage . When I rea ...


spidermansmama - 7977.9 hours ago - Posted in Congenital-Heart-Defect
please check out Socks 4 Surgery www.socks4surgery.com My son was born with a congiental birth defect, and i design speciality baby socks. please check out the sale album on Facebook!! Socks 4 Surgery ...


spidermansmama - 7977.9 hours ago - Posted in Cleft-Lip,-Cleft-Palate
please check out Socks 4 Surgery www.socks4surgery.com visit the SALE album on Facebook I design speciality baby socks! ...


katieandiggy@tiscali.co.uk - 8130.1 hours ago - Posted in Hydrocephalus
This board is fairly quiet, if you look for the Ventriculomegaly board, there are hydro mums on there too. ...


lindsayt - 8301 hours ago - Posted in Beckwith-Wiedemann-Syndrome
My little boy was diagnosed with this when he was 5 months old. He had pretty much all the signs of it from birth but it wasn't picked up by the doctors despite me having a feeling something was wrong & me keep asking them about his sympto ...


rls-lovemyfourbabies - 8344.8 hours ago - Posted in Beckwith-Wiedemann-Syndrome
My friends baby (1 yr old) is been tested for this now. Has anyone heard of a diagnosis this late before? ...


rls-lovemyfourbabies - 8344.8 hours ago - Posted in Trisomy-21
Has anyone ever had downs diagnosed at months old? My friends baby (almost 1 now) has some 'markers' and they are testing for downs and another syndrome, but I have never heard of this not been picked up in the first few days?? So confused ...


xxbabbyxx - 8625.7 hours ago - Posted in Triple-X-Syndrome
My baby girl is 9 months old now and an absolute delight. She is perfectly normal in all ways and if I hadnt had an amnio we would never know she had xxx. She has some slight muscle weakness in her upper legs but physio is fixing that. Tri ...


Blondebaby - 8706.4 hours ago - Posted in Anencephaly
Well I got the most devastating news possible today. I thought everything was just fine with my baby. Heart beat was good and my previous u/s were as well. My baby has a condition known as Anencephaly, it is extremely rare. I read that it h ...


AdoptMom - 8776.2 hours ago - Posted in Spina-Bifida
My husband and I are in the beginning process of adopting an infant that will be born with SB. We are still learning about this and hope to find support here...thanks! ...


cowgirlemily - 8994.8 hours ago - Posted in Hydrocephalus
I had an u/s at 21 weeks and they thought the baby might have extra fluid. At 26 weeks, they said yes there is extra fluid in the ventrical. Now, I am waiting to see a specialist and get a better u/s. There doesn't seem to be much reassurin ...


steviehewett - 9140.8 hours ago - Posted in Spina-Bifida
Hi I have a mild form of Spima Bifida and although I have been taking the standard dose of folic acid for 2 years 400ug per day for ttc, now I am pregnant I will be upped to 5mg. I am terrified about passing this condition onto my baby :-( ...


Ryan~Neve Mum - 9265.6 hours ago - Posted in Ventricular-Septal-Defect
My daughter has just be diagnosised with VSD she has 2 holes in her heart 1 which is very small and another which is small her cardiologist has said they prob won't need operating on and will just moniter them and fingers crossed they will ...


Nattashia*BLUE* - 9382.1 hours ago - Posted in Cleft-Lip,-Cleft-Palate
I was born with a bilateral cleft and palate. Ive had many surguries and I got maybe 1 more left and Im 25! I have a daughter and she was not born with either a cleft or palate. Im 25 weeks pregnant now and I went to see a genetics person ...


lonelyfidelity - 9422.5 hours ago - Posted in Hydrocephalus
Hi all. I just got my 22 week US done and was informed fhat my babies vents were slightly dialated and I needed a second US to see whats going on. Of course the first thing I did was google the situation which really made things worse becau ...


true_blue29488@yahoo.com - 9526.1 hours ago - Posted in Trisomy-21
Did anyone get the 12 week screening done? I did and my doctor said there's a 1 in 80 chance my baby will have down syndrome. I got a blood test done and an ultrasound. The ultrasound went good and no signs of DS. I'm 26 years old and also ...


dolly2boyz - 9620.4 hours ago - Posted in Hemangioma
just a quick update on my daughters hemangioma.she is 10 month old now and her hemangioma looks to have stopped growing,its maybe the size of a 5 pence and is slightly raised.we are lucky that its on her jawline really.she dosnt have a clue ...


turtlemom - 9927.9 hours ago - Posted in Hydrocephalus
My daughter developed Hydro in-utero and it was detected at 18 weeks GA. My blog is www.theturtlemom.wordpress.com. ...


frenchie23 - 12535.8 hours ago - Posted in Stork-Bites
:) I don't think its a birth defect either! I thought it was a birth mark... My daughter has one on the back of her neck by the hair line and yes it turns dark red when she cries and just is a dark pink ,'normally':p it doesn't bother me on ...


frenchie23 - 12536.7 hours ago - Posted in Hemangioma
Heeey ladies, when I was a baby I had an Hemangioma on my neck, it was actually pretty big ( size of a quarter or nickel maybe ) and thick... My parents got it surgically removed when I was 4 and honestly, I think it would look better with ...


dolly2boyz - 14946 hours ago - Posted in Hemangioma
hi,my daughter was born in june totally perfect.at 2 weeks old she developed a very small red blemish on her jaw line.we thought it would go away at 1st but our health visitor said it was an hemangioma.it has gone slightly bigger and bubble ...


bedrestingmum - 15036.8 hours ago - Posted in Branchial-Cleft-Cyst
New to this site and not sure if I'm posting in the right location but I just wanted to share the situation bubs and I are in right now. I'm 23 and a half weeks pregnant. This is my first pregnancy. I have been having fortnightly ultraso ...


vtotino@yourlawyer.com - 15142.2 hours ago - Posted in Craniosynostosis
The use of certain drugs has been linked to craniosynostosis and other birth defects. This is a great resource: http://www.yourlawyer.com/topics/overview/craniosynostosis-side-effects-birth-defects-lawsuit ...


brittanys-2nd - 15215.3 hours ago - Posted in Gastroschisis
My son was born with gastroschisis, he had 3 surgeries during his stay in the childrens hospital. There were alot of ups and downs but he is now a happy and healthy 14 month old who I wouldnt change a thing about! The only thing different a ...


lauralou - 15292.6 hours ago - Posted in Clubfoot
hi everyone, my little boy was born with talipes (clubfoot).... hes now almost 3 and part way through his treatment, Ponsetti method. If anyone wants to ask anything please feel free to message me, i am more than happy to share experience e ...

More comments: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 More sections: All sections Trying to conceive Pregnancy & Birth Birth defects Babies