Forum: Birth defects & disorders

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stacey20 - 14.8 hours ago - Posted in Congenital-Hip-Dislocation
Yay!! They listened to my idea for a thread lol. My poor Gracie was born with this. and she was one of the few with both legs affected. She's fab now though... anyone else? ...


pokerprincess - 15.3 hours ago - Posted in Cleft-Lip,-Cleft-Palate
Hi All...I entered my son into a Baby Idol contest at a local radio station. If you have a few minutes could you please vote for him? It's at http://www.hot995.com/pages/babyidolvote_kh-ky.html He is under Kyle-Alexandria Thank you so much! ...


LilyMyLastBaby! - 73 hours ago - Posted in Undescended-Testicles
my son hates his daily shot that mommy was tought to give him...he had the correction made but his body did not like it so we had to remove them and stop the infection. he is fine now and when we need to have that talk we will. ...


LilyMyLastBaby! - 73.3 hours ago - Posted in Hip-Dysplasia
yep ...


LilyMyLastBaby! - 73.7 hours ago - Posted in Atrial-Septal-Defect
extactly what i had ...


louloudev - 97.1 hours ago - Posted in Townes-Brocks-Syndrome
My friends baby was born with townes brocks syndrome She had an extra thumb growing out of her normal thumb.. My friends partner didnt think he had any symptoms but my friend was worried during pregnancy as his sister had quite bad sympt ...


MJ1210 - 109.3 hours ago - Posted in Dandy-Walker-Malformation
Has anyone had this diagnosis? We received this diagnosis a couple of weeks ago. I'd really like to compare with someone that has been there. Thanks! ...


baby4gab - 127.7 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
My baby had a single umbilical artery and I had to see a specialist and have nst's and non-stress tests every week and my baby was born perfectly healthy. After birth my midwife examined the cord and said the artery was extra large, making ...


isaiahsmommy+1 - 154.6 hours ago - Posted in Congenital-Heart-Defect
i am 28.5 weeks pregnant and just found out that my baby girl will be born with half a heart. it is called hypoplastic left heart syndrome. anyone with info please let me know, i am so scared ...


justkelly1976 - 159.1 hours ago - Posted in Congenital-Heart-Defect
I have 2 sons, both were born with CHD. My eight-year old has Tetralogy of Fallot, my 5 year old has Pulmonary Atresia. Both were repaired with open heart surgeries and are fine now. Any questions please feel free to contact me. ...


momofjs - 242.4 hours ago - Posted in test
one two.....mayday!...over..... breaker breaker one nine..... pilot to co-pilot..... this is a test of the emergency broadcast system should this be an actual emergency directions would follow this message however this is only a t ...


loveatfirstbump - 256.3 hours ago - Posted in Stork-Bites
I'm surprised to learn that they are birth defects. I've got reddish brown leopard prints that start at my hairline behind my neck, and travel up my scalp. They aren't really noticeable because my hair covers them. I’ve also got a huge birt ...


jenakers - 275.8 hours ago - Posted in Congenital-Muscular-Torticollis
My son had/has Torticollis. We did PT for 4 months to get his neck straitened out. We still have to do a little everyday to loosen him up. I think this is a condition that goes unnoticed by to many doctors. If you are dealing with this or ...


lin - 298 hours ago - Posted in Clubfoot
The ponsetti method is finally just catching on, I would recommend it as opposed to surgery. The long term results are more satisfactory with the ponsetti method. Basically there is no surgery involved, the most invasive part is the tenotom ...


RobinG - 320.4 hours ago - Posted in Clubfoot
My neice had one and she had surgery to correct it, she in a cast for a while and it never seemed to bother her or get in her way :) I looks a bit different then the other now ( she is 16) but she is doing great :) ...


lin - 330.2 hours ago - Posted in Clubfoot
I have posted some pictures of my sons club foot before it was corrected and after, check out how perfect it looks! You would never have known! ...


Melanie07 - 346.8 hours ago - Posted in Stork-Bites
My daughter was born with stork bites on her eye, neck and a big one on her head. The ones on her eye and neck have dissapeared. The one on her head is still there. Her hair is blond so you can see it through her hair. ...


Melanie07 - 346.9 hours ago - Posted in Cleft-Lip,-Cleft-Palate
My mom was born with cleft lip. She had five of us. My youngest brother was born with cleft lip. The rest of us didn't have it. I am not sure of the %. Our was 1 in 5. I did find out that taking Claritin during the first 12 weeks increases ...


Melanie07 - 347 hours ago - Posted in Ollier`s-Disease
My niece was just diagnosed with this diseae. She has already had one surgery to remove some of the tumors. She is going to have to have more. Her hips and legs are affected. ...


Laura Ward - 349.7 hours ago - Posted in test
testing ...


heavymetalmama - 369.9 hours ago - Posted in Craniosynostosis
Hi, My son also had cranio (metopic) and had surgery about 3-1/2 years ago. Anyone is welcome to contact me. There's lots of support out there for families going thru this! ...


lin - 387.8 hours ago - Posted in Hypospadias
my son was born with hypospadia. Luckily his uretha was located in the right spot so it did not need to be corrected. He does have extra foreskin and such. Right now he is kind of stuck in the middle...doesnt look circumcised but he doesnt ...


lin - 387.9 hours ago - Posted in Clubfoot
my son was born with a left club foot. he had six weeks of serial casting and then three months of the boots and bar 23 hours a day. He is now 8 months old and wears them at night and you would not know he was born with a club foot. Its bea ...


seven - 423.4 hours ago - Posted in Cleft-Lip,-Cleft-Palate
My friend has family history (her brother) of this condition and her baby came out with no issues at all. Healthy baby boy. They told her that there is a 50% chance he will have it and 50% chance he won't. Just notify your doctor about it ...


seven - 423.6 hours ago - Posted in Hypospadias
My friends son had this condition and he had the surgery and now everything is fine. You couldn't even tell that he had the surgery as he was very happy like he not in any pain. ...


mum to maizie - 477.6 hours ago - Posted in Craniosynostosis
hi my little girl was born with this condition, would like to hear from familys who have children with this. ...


carlybarleyx - 496.9 hours ago - Posted in Congenital-Heart-Defect
Hi I just thought I'd say hi! My 4 year old was born with Tetrallogy of fallots which is a rare COD, she had to have open heart surgery at 6 weeks, 1 year and 3 years old but she is absolutley fine now. Her heart condition doesnt hold her b ...


Heather2mommy - 497.3 hours ago - Posted in Joubert-Syndrome
My almost 3 year old boy has joubert syndrome he's on the 'good end of things , he cant walk talk but just learned to eat by mouth all his sign are in his head ..example eyes his sliva gland is the size of an adultsso as a baby we thought ...


jamitom - 516.5 hours ago - Posted in Posterior-Urethral-Valves
i am 23 weeks with a boy. he has puv. the amniotic fluid around him is good. which tells the doctors he is passing some urine.i am being followed every two weeks by ultrasound. they can intervene inf necessary by inserting a shunt in his bl ...


kettynyc - 536.9 hours ago - Posted in Rett-Syndrome
My niece has Rett-Syndrome and I just wanted to let anyone know who may be interested that it's really sad to see a beautiful baby so normal during the early months and then see how they regress. What I hate the most is that there is no cu ...


Angelia - 539.3 hours ago - Posted in Clubfoot
8 weeks ago during a normal 18 week u/s the technician saw what appeared as my baby's foot growing abnormally. 4 weeks ago it was confirmed that my baby has a left clubfoot. Obviously we won't know the full extent until he is born in July. ...


mylittleman - 618.1 hours ago - Posted in Cleidocranial-Dysplasia
Hi! My baby is 3 1/2 mo and has CCD--would LOVE to share any thoughts with any other moms whose babies have the same thing. By looking at my baby the only thing different is his head is a little larger on the sides than a normal baby. He do ...


jenann3256 - 640.7 hours ago - Posted in Hypospadias
Our urologist did mention that my son was curved only a very tiny bit. I would hate to think we would have to go through another surgery...especially at 4 years old. Did you have to wait this long or was it by choice? Could you tell if your ...


manniemarie - 642.2 hours ago - Posted in Hypospadias
My son was also born with this. He had his surgery between 6-7 months old. He came through it fine, I think it was harder on me and my husband. But on the down side, he needs another surgery within the next year, because he is curved. A ...


seguin - 642.7 hours ago - Posted in Congenital-Heart-Defect
My daughter was born a day before her due date and we were told she had a heart murmur and that she'd grow out of it. When she was 9 weeks old she was rushed into the ER due to she kept going limp and not breathing right. They brought her i ...


karla-anne - 651.6 hours ago - Posted in Cerebral-Palsy
I have CP too. I am 26 and pregnant with my first. My parents didn't treat me different. They wanted me to be just like everyone in life. I am soooo glad that they did. When I was 15 I had surgery to help correct the physical part of my CP. ...


jenann3256 - 654.1 hours ago - Posted in Hypospadias
Has anyone had a son who has been born with this and had it treated with surgery? How did it go? My son was born with hypospadias and we went to see the urologist today about it and he seems to be pretty confident that he can fix it with n ...


michelle1986 - 654.7 hours ago - Posted in Cleft-Lip,-Cleft-Palate
I was born with a Cleft-Palate,an I talk normally but i have hearing loss an bad ear infections that don't really go away my question is is this something i will pass on to my child when we conceive one ?what is the % of this happinin ...


babymaker - 678.3 hours ago - Posted in Cerebral-Palsy
I just wanted to say that my 9 yr old little boy has cp. he is n a wheel chair and has developmental delays. he is very smart he can talk very good he goes to school and lives a good life. we don't treat him any different. we love him. yes ...