Latest comments: Birth defects & disorders All sections Trying to conceive Pregnancy & Birth Birth defects Babies

About 200 birth defects have their own forum topic. Read the latest comments below or pick a specific topic from the right column.

Showing the latest comments, from 100 to 150.


taylor23 - 19351.9 hours ago - Posted in Choroid-Plexus-Cysts-(CPC)
hi I am 20 weeks pregnant and 24 years old this is my first pregnancy. Last week when I went for my 19th week scan i was told that my baby had 4 cpc's on her brain. Not to worry because they should dissapear by themselves by 32 weeks but so ...


lilAussieChic - 19362.1 hours ago - Posted in Anencephaly
I found out 5 weeks ago that my dear bubba had anencephaly. I was 13.5 wks. Its crazy you know, u wish so bad for that 12 week mark to confirm that you have made it through those supposedly threatening first three months only to reallise th ...


james.rena@ymail.com - 19446.4 hours ago - Posted in Antley-Bixler-Syndrome
Good evening. I am wondering if anyone of you were pregnant or have children with this syndrome? If so, what were you told about it?? ...


hollyjp - 19453.9 hours ago - Posted in Vesicoureteral-Reflux
My 5 week old was just diagnosed 2 on the right and 3 on the left. She had a UTI, kidney infection, and sepsis at 3 weeks old and was in the hospital for 10 full days. They did the VCUG this morning and am waiting to hear from her pediatr ...


shelly2011 - 19478.3 hours ago - Posted in Hydrocephalus
Hi I am 21 week pregnant and at my 20wk U/S there was signs of fuid on the brain, I had an MRI scan within a few days and fluid is present on left ventricle 18mm and right ventricle 12mm, also there is sign of brain damage on right and left ...


lute - 19575.2 hours ago - Posted in Vaginal-Agenesis
This is also called Vaginal atresia. The uterus/womb is either missing or deformed. If it's missing, it means they won't have periods - the shedding of the lining of the womb/uterus. If they have a deformed uterus, they will have periods ...


lute - 19575.5 hours ago - Posted in Ambiguous-Genitalia
Immediate gender assignment surgery on infants (per Dr Money's suicidal patient) is discredited, especially if testes are present. Vital life-threatening conditions should be addressed, but otherwise infants should be spared cosmetic surger ...


lute - 19575.6 hours ago - Posted in Scrotum-Agenesis
Treat the area with topical testosterone until the skin scrotalises, then reconstruct. ...


mommykeisha - 19622.1 hours ago - Posted in Cleft-Lip,-Cleft-Palate
Im 20 weeks pregnant i just found out two days ago that my lil man has a double cleft lip. I dont know yet if he has that and a cleft palate we will find out in 4 weeks if he also has that to. I am so scared for him. I dont know how this ha ...


katiebear - 19637.9 hours ago - Posted in Trisomy-18
I just wanted you all to know I'm praying for you hearts and that God shows his peace that passes all understanding and love to each of you through your beautiful perfectly planed purposeful babies. ...my sweet little jonah sits in hea ...


jessica austin - 19638.5 hours ago - Posted in Tethered-Spinal-Cord-Syndrome
My daughter has Tethered Spinal Cord Syndrome. Because of that she has a wide virety of neurological problems. Because of the damagae to her spine she now has Syringomyelia and Hydromyelia. I am on this site frequently. If you have any ques ...


luvbugs - 19754 hours ago - Posted in Hypospadias
Its been awhile since I posted on here: previously I said we opted out of surgery-due to unforeseen circumstances we ended up doing the surgery. I put a blog on my page about the entire experience if you want to take a look. Good luck ever ...


xxryans~mummyxx - 19795.7 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
SRM sorry for your loss, it sounds like you little boy had a lot of issues other than just the SUA, did they do a post mortem, maybe that can offer you some peace of mind. Did you know any of the issues before giving birth. ...


Srm0421@hotmail.com - 19835.4 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
I gave birth to a little boy8-4-2010 who has SUA and he had Cadual Regression Syndrome with overlapping V.A.C.T.E.R.L. factors syndrome. He passed away 2 hours after birth. I had high amniotic fluid and went into preterm labor at 29 weeks, ...


manda2301 - 19835.7 hours ago - Posted in Hydrocephalus
hi my name is manda and im 26 years old i have a 6 year old son with spina bifida and hydrocephalus , he had a v.p shunt fitted when he was 6 weeks old and thankfully he has gone from strength to strength . he attends main stream school is ...


hoping4mymiracle - 19954.3 hours ago - Posted in Clubfoot
Just wanted to say hi to all you ladies my son was born with 2 clubbed feet 5 years ago now. He had the casting and heel cut as well as wore the shoes timm he was a year and half. About a year ago I started to notice the left one started to ...


louie-26 - 20038.8 hours ago - Posted in Gastroschisis
Hi I went for my dating scan on Thursday to find out that my baby looks like it has gastroschisis, I have to go back on Thursday for another scan with a consultant just to confirm it, they gave me a leaflet and told me to try not to worry t ...


Prayingforyou - 20042.4 hours ago - Posted in Cystic-Hygroma
I found out that my baby had a Cystic Hygroma when I was 9 weeks and 4 days pregnant and it was the worst news I have ever got in my life. It measured 7.2mm. We went back to another doctor and they told us to just give up and terminate. But ...


lin - 20045.9 hours ago - Posted in Clubfoot
charmara- Those sweet little feet grow on you dont they! I remember taking a ton of pictures of my sons, they were casted right away but the first week without I was also little sad. My son was also born with mild hypospadia and at 18 week ...


charmara - 20074.6 hours ago - Posted in Clubfoot
Max gets his casts on on the 31st! I have gotten used to the feet and will be a little sad to see them go, but he will be happy in the end :) Lin- yay! :) ...


lin - 20139.6 hours ago - Posted in Clubfoot
Excited to report that baby #3 does not appear to have a clubfoot! Baby #1 had a left club foot, and baby #2 did not. ...


girl from ab - 20249.6 hours ago - Posted in Stork-Bites
My son has a large one at the back of his neck into his hair line ( just like mine) I still have it so I assume he will to but he also has it on his eyelids and between his eyebrow LOL nice to know this ones on his face will probably fade i ...


victoriassecret - 20265.9 hours ago - Posted in Stork-Bites
wow well my 2 yr old might have this and its only visible when i do her hair and never thought about it til now... is this bad or dangerous? ...


JavielitosMami - 20291.8 hours ago - Posted in Gastroschisis
My son was born March 5th 2010 w/ Gastroschisis. Every case is different but he was in the Nicu for 6 months and he is finally turning one next week !! I am so happy & I feel like I am a better mother because of what we went throught I am t ...


lilmama(maddie) - 20293.8 hours ago - Posted in Trisomy-21
Just wanted to update in case someone has the same question as I did and looks here. We had the level II ultrasound and everything came back completely clear. She is showing signs of echogenic bowel but he said it's nothing at all too worry ...


missykay19888@yahoo.com - 20326.2 hours ago - Posted in Cystic-Hygroma
My second pregnancy with my daughter i had issues from the beginning, but i didnt get an ultrasound until i was 25 weeks. At 12 weeks i was in the ER 2-3 times a week with sever abdominal cramps, that we now know was bractin hics (spelling? ...


shelan - 20332.5 hours ago - Posted in Trisomy-18
I wanted to leave a message here and say that you moms are very strong and give hope and a voice to those who find out news about a trisomy .it is so good to see people talking about their situations.support and kindness goes such a long wa ...


Technomama79 - 20367.4 hours ago - Posted in Omphalocele
Hi, my baby was born with a very large omphalocele where his bowels and liver were out. I am proud to say he was born a healthy 7lb 9oz. They were able to get the stomach contents in within a week because of his large size and he has no oth ...


lilmamamads - 20457.4 hours ago - Posted in Trisomy-21
Sorry it was a eif ...


lilmamamads - 20457.4 hours ago - Posted in Trisomy-21
Anyone have an afp come back normal but show 2 soft markers in the ultrasound? My 18 week came back with both eic and possible echogenic bowel. I go in on the 28 for a more detailed scan. I guess you just wait but has anyone else had this ...


Shanz-From-NZ - 20472.3 hours ago - Posted in Ventricular-Septal-Defect
Hi, i'm 23w preggers and bubby has a very small VSD, everything else about the heart looks fine so we are thinking positive and hoping for the best :) It is so hard that we won't really know how it affects bubby till up to a month after bu ...


petersbaby - 20538 hours ago - Posted in Cystic-Hygroma
hi ladies i really hope that this helps. i was told my baby had a cystic hygroma and it measured 5ml at my 11 week scan then at my 16 week scan the fluid had decreased to 4.1ml but at my 22 week scan i was told the fluid increased to 7ml. ...


esposabella - 20753.1 hours ago - Posted in Trisomy-21
I was wondering if anyone had the DS diagnosed before birth with either the NT scan and or the Triple blood screen. I got back a good NT scan result but the triple scan test came back abnormal. Now im going in for the amniocentisis, anyone ...


kellerfer - 20757.2 hours ago - Posted in Hydrocephalus
I was given a leaflet by my babies hospital, it is for a company that sell special matresses. You may be aware that there is more chance of a flat head if they lie on one side all the time, so hopefully this will help. The company is called ...


kellerfer - 20781.9 hours ago - Posted in Hydrocephalus
I'm just wondering if anyone here knows if aquired hydrocephalus can be caused as a result of childbirth. I suppose the correct question is can a prolonged labour cause a baby to have a bleed on the brain, as it's the bleed on his brain tha ...


Dtcakes77@yahoo.com - 20871.9 hours ago - Posted in Congenital-Heart-Defect
Hey everyone. This is my first message on this site, although i was on here with my first pregnancy. I am now 21 weeks pregnant and just found out i am having a boy who has a congenital heart defect called Coartation of the aorta. My husb ...


erikatx - 21175.6 hours ago - Posted in Trisomy-21
congratulations kerryx0lee ! are you on babycenter Ds group btw? I am mother of the most PERFECT little boy who happens to have Ds, he is 16 months and the bestest thing that could have ever happened to us! www.twogirlsandethan.blog ...


missyv28 - 21196.5 hours ago - Posted in Gastroschisis
My nephew has this and his mom has been in the hospital for 6 days with low amniotic fluid and he is not growing. He is 31 weeks in utero but the size of a 27 weeker. Is that normal for a baby with gastroschisis? ...


mylight - 21282.8 hours ago - Posted in Trisomy-18
I have a little boy with full trisomy 18. The doctors told us that he would abort during pregnancy and then he didnt, the night he was born they gave him one hour to live, then two days then two weeks and he is now 8 months old. He is doing ...


kerryx0lee - 21304.1 hours ago - Posted in Trisomy-21
hello everyone .. i usually post in the Week-to-Week sections and now i am glad to have found this section of the site .. i am 21 years old and just gave birth to our 3rd child 8 days ago. 4 days ago he was diagnosed with Down Syndrome. T ...


charmara - 21315.9 hours ago - Posted in Clubfoot
Talansmommy- That sounds like what they are planning on doing to help correct my sons feet. Thank you for the info. very helpful and encouraging. ...


lin - 21364.8 hours ago - Posted in Clubfoot
Good points Talonsmommy. I also was on that site a lot with my son, a great resource. I had not heard that Dr Ponsetti had passed away! Thats too bad, what a dedicated man, worked right up until his death. ...


ellae - 21366.8 hours ago - Posted in Trisomy-21
momofalmost- i was in the same situation when I had my son. I was given a 1 in 8 and opted against the amnio. My husband and I went in not knowing if he had it or not. He had several soft markers. They will most likely have a neonatilist pr ...


momofalmost5 - 21370.6 hours ago - Posted in Trisomy-21
hello all I will be 38 weeks tomorrow, at 18 weeks i had a positive AFP showing my baby at a 1:173 risk of having down syndrome. I opted against amnio because I would not abort baby reguardless of result and did not feel the need to risk ...


talansmommy - 21377.2 hours ago - Posted in Clubfoot
My son was born with a lt clubfoot. It was not detected on US so it was a surprise to us. We initally recieved treatment at our local hospital but then went to Iowa City to see Dr. Ponseti before he passed. We now see Dr. Marquende for f/u. ...


angelina987 - 21478.2 hours ago - Posted in Congenital-Heart-Defect
Hi all, I am pregnant of 34 weeks.Through fetel management test we come to know as baby is having AV canal defect(AVSD).My doctor is suggesting as we should have to go for surgery at the baby's age of 6 weeks to 3 months.I am bothered ab ...


babycarter - 21506 hours ago - Posted in Hypospadias
Thank you! ...


lin - 21557 hours ago - Posted in Hypospadias
babycarter, they waited until my son was over one year old to have his corrected (it was mild as well and they just had to remove some extra skin). They waited so it was safer to put him under local anesthetic. Perhaps you should talk to yo ...


babycarter - 21557.7 hours ago - Posted in Diaphragmatic-Hernia
psychicx-I had an older sister with this who died an hour after birth. It was never detected, but she was born tn 1986 also. I did a medical research paper on this topic and the findings were inconclusive. There wasn't enough evidence suppo ...


babycarter - 21558 hours ago - Posted in Hypospadias
My son was idagnosed soon after birth, we met with the urologyst while still in the hospital and he will have a follow up appointment around 4 months of age and surgery will be scheduled. Luckely he has a very mild case and his penis will e ...

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