Latest comments: Birth defects & disorders All sections Trying to conceive Pregnancy & Birth Birth defects Babies

About 200 birth defects have their own forum topic. Read the latest comments below or pick a specific topic from the right column.

Showing the latest comments, from 550 to 600.


Takaka Farmgirl - 34846.3 hours ago - Posted in Trisomy-21
I have some really sad news to share with you. I had the amnio test last tuesday (1 week ago) and because of my very high risk was offerred a more expensive, quicker partial test -FISH (stands for something)? We will have the full a ...


anxious88 - 34862.5 hours ago - Posted in Omphalocele
i just turned 27 weeks and my babys liver is on the outside of her little body. my water broke a week ago so im stuck in the hospital for 2 months to make sure my baby has a chance of survival ...as long as she doesnt try leaving my tummy e ...


kittydisney - 34875.7 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
Update.. I am 32 weeks pregnant and Ashlyn is measuring perfect... I am diabetic, suffer APS and have 1A1V. So with two things that would cause her to be small and one thing that would cause her to be big, she is perfect right now!!! Good ...


warriorgal - 34909.2 hours ago - Posted in Clubfoot
kristymumof4- its comforting to hear that someone else has been through this. I would like to hear more. Iwill go over to your page. ...


kristymumof4 - 34914.9 hours ago - Posted in Clubfoot
hi my son now 6 had club feet it is nothing to worry about my sons feet are now perfect when he was born they just put him in casts to bend them back bit by bit ...


jenmomma - 34936.5 hours ago - Posted in Cleft-Lip,-Cleft-Palate
My first child (age 4 1/2 now) was born with a cleft of the soft palate only. It wasn't diagnosed until after delivery. She only required special bottles as treatment until she turned 1 and they did the surgical repair. Repair was perfec ...


AmandaDueDec17 - 34982.1 hours ago - Posted in Ventricular-Septal-Defect
My daughter was born in January 08 and she had Unbalanced AVSD. Her aorta was also small and she had one big hole and some tiny ones. She had open heart surgery when she was 4 weeks old, if not she could of died. Its a three step process t ...


newsamumma - 35036.1 hours ago - Posted in Treacher-Collins-Syndrome
ANGELIA Im not sure how mild or severe your friends child is, but I never had any plastic surgery, I have seen many specialists in my childhood, but i chose not to worry about having any done. I do sometimes wonder about maybe having my j ...


newsamumma - 35036.2 hours ago - Posted in Treacher-Collins-Syndrome
Hi I am 10 weeks pregnant and I have TCS. My grandmother has it, which the gene carried through my father (but he shows no symptoms and was unaware he even carried the gene until I was born!) So It does run through my family. I am an only ...


warriorgal - 35154.4 hours ago - Posted in Clubfoot
Anyone been diagnosed with abnormal fetal foot position on u/s or possible club foot? I am a bit nervous. ...


Reilly-N-bumps-mummyX - 35170 hours ago - Posted in Diaphragmatic-Hernia
hi there all! i am 19 now and had my son at 17! the dyafagmatic hernia wasnt picked up on scans and was only found out after an x-ray once he was born, i was so worried, was told to preoare for the worst, he had the op at two days old, conv ...


Takaka Farmgirl - 35189.4 hours ago - Posted in Trisomy-21
I am 15 weeks preggers with my third, and have had two miscarriages in the past. I am scheduled for amnio tomorrow. I am 37 years old. My nuchal fold measurment was horrid, at 5ml, and that has given me the most worrying odds of 1/3 for ...


Angelnkc - 35223.8 hours ago - Posted in Omphalocele
From what I have been told I was one of the first babies born this way to survive. I was born in 1966 with all of my insides on the outside of my body except my heart, lungs and diaphram. I had my first surgery at almost 3 days old. In 19 ...


chowe99 - 35265.9 hours ago - Posted in Cervical-Teratoma
My son Xander was born with a Cervical Teratoma. Xander was delivered via the EXIT procedure at CHOP. At 3 day’s the teratoma was removed and he was trached. He was deccanulated at 1 year. He has hypothyroidism and takes Synthroid to regu ...


MarcieB - 35300.5 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
Good morning moms. I just wanted to report, I went to the doctor yesterday and received good report. Baby weighes 1.5 pounds and her spine still shows no signs of spina bifiida. Doctors did do 2nd confirmation on SUA but said that she seems ...


redheadmama - 35334.1 hours ago - Posted in Anencephaly
I have two friends who have had baby boys with this - one four years ago and one right now. Heartbreaking and tear-jerking. God have mercy. ...


emma32uk - 35339 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
Hello ladies, just to let you know that i have had my little girl on the 2nd june. they left her umbilical cord long after she was born so they could do a few tests and every thing seems ok. she weighed 7lb 15 oz so was a good healthy weigh ...


kaladustin - 35339.5 hours ago - Posted in Trisomy-18
I lost my daughter at 20 weeks to Trisomy 18, That was one of the hardest things i went through. Now i am pregnant again and they said they will do all the testing for that at my 10 weeks (which i am at 7 now) and i will be very anxious to ...


babyx2 - 35365.4 hours ago - Posted in Trisomy-21
Hi NikiL- Your story inspires me... I am 15 weeks preggo and am scheduled for an amniocentesis tomorrow. I will be 36 years old this month and my blood work combined with my age and the measurement of baby's fold (2.1mm)put me at an incre ...


jocelyn c - 35448.6 hours ago - Posted in Pierre-Robin-Sequence
Hello my name is Jocelyn. I have a baby girl that is 6mos old now and was born with Pierre Robin. It was a big suprise when she was born. We didnt know that she was born with the Cleft Palate. She stayed in the hospitals NICU for bout a wee ...


kickboxerbaby - 35456.8 hours ago - Posted in Treacher-Collins-Syndrome
My niece was born with TCS. She is 16 months old now and absolutely beautiful. She rarely cries. Not even after her surgeries which she has already under went a few. However now my husband and I are expecting. Although I have another child ...


youngmumma - 35500.2 hours ago - Posted in Gastroschisis
Went for my 20 week scan and found out my baby has gastroschisis, anyone else out there going through this? Please email me puppyrogue@hotmail.com ...


tennmom - 35510.4 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
marcieb - i was in your shoes about 4 weeks ago - during my routine ultrasound the tech noticied i have 1A1V - while she said there were no apparent issues present, I did like most people and searched the internet and FREAKED OUT!! This fo ...


MarcieB - 35515.1 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
I just wanted to say thank you to all the positive comments posted here. I am 22 weeks with my first child. I was told last week during a screening and u/s with a specialist (for spina bifida) that her spine looked okay but he said she had ...


azmom - 35528.3 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
Hello Ladies- Once again, I only have great news to share. The week 32 US went great. Baby is over 4.5 lbs and measuring AHEAD of schedule. Kidneys, heart and liver are all perfect. SUA or no SUA, I am confident this baby is just fine. I d ...


silentdance - 35592.4 hours ago - Posted in Cystic-Hygroma
My baby was diagnosed with fetal cystic hygroma. It is the hardest thing I've experienced in my life to date. I wrote about it on my pregnancy page. Upon diagnosis, the actual odds of giving birth to a healthy baby are about 20%, according ...


hopebaby3 - 35681.8 hours ago - Posted in Trisomy-21
I am so worried right now. For my 2nd Dr told me my odds of having a DS baby is higher than that of a 36 yrs old. I was 33 then. I did a amnio and my Son turned out to be a healthy baby boy. Now i am preg (4 wks) with baby #3. By the time ...


no.3onboard - 35792 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
Hi Moms!!! First of all, congrats to you all!! I was in your shoes last summer, when I found out our baby had SUA. Just like most of you, I freaked out; cried, worried, read the internet and did not enjoy my pregnancy. DON'T DO THIS LAD ...


Angelia - 35798.5 hours ago - Posted in Stork-Bites
Both of the stork bites on my son are now almost completely gone, even the one on the base of his neck by this hairline. I had read those often don't go away, but his is fading more and more every day. He is now 9.5 months old. ...


taliyahsmom - 35818.2 hours ago - Posted in Stork-Bites
My daughter was born with one on the tip of her finger. at 5 months old it started turning darker red, the next day it was the color of dried blood under her skin, like the blood vessels had burst. I took her into the doctor where they cut ...


percypig - 35849 hours ago - Posted in Congenital-Hip-Dislocation
I was born with this in both hips, they missed it and was only detected when I was 4. This has meant Ive had a lot of operations. I hope that my baby is not born with this, but I will be ensuring they do VERY thorough checks!!! I am conce ...


Katelyns Mom - 35868.8 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
My Katie was also diagnosed with SUA early on in my pregnancy. I was really concerned with it so I had an amnio. It turned out she has a minor chromosome deletion called 18P. Needless to say it caused me a great deal of worry. I just wa ...


Maizy - 35914.1 hours ago - Posted in Ventricular-Septal-Defect
just had a scan am 25+ weeks, and it showed only two vavles of the heart chamber working , the doctor spent a very long time looking at this. I am not too sure what this means i have to go back in two weeks for another scan. she should have ...


MinnesotaMoms - 35914.9 hours ago - Posted in Spina-Bifida
Hello all! How nice to have a support group at hand for issues like these. I found out today that my little baby BOY--yay--definitely has a nueral tube defect, aka Spina Bifida. (YAY for the boy, BOO for the SB). I was prepared for the n ...


nikiL - 35957.9 hours ago - Posted in Trisomy-21
Hi, just joined up but this website is my bible! I had my 12 weeks scan last week for downs, risk assesment cam back at a 1:4 chance of my baby having Downs. These were based on a Nuchal Thickness of 3mm and they said 'no nasel bone' seen. ...


daydays mom - 36005.6 hours ago - Posted in Stork-Bites
my daughter has them on the back of her neck. do they ever go away? ...


tquinn - 36025.7 hours ago - Posted in Meckel`s-Diverticulum
My daughter had this at 2and a half years old. First sign of it was she bleed from her bottom about the amount of a grown womens cycle, so I rush her to the E.R. they said it was just Rota-Virus. I was like o.k. but that much blood? The E.R ...


lin - 36040.1 hours ago - Posted in Spina-Bifida
Beautifully Written and I could not agree more. I was told with my first pregnancy that my baby had Ventriculomegaly, and possibly hydrochepalus or spina bifida. Was told he had a club foot, and that all these things together could mean he ...


lmcrawford - 36085.1 hours ago - Posted in Stork-Bites
my dad, myself and both my daguthers were born with stork bites on the back of the neck, and my oldest daughter an myself have the same ones on our forehead, in the middle going down towards our nose. you could really notice it early on, bu ...


azmom - 36086.2 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
Hello all... I am trending a little small, 40% to weight at week 30. I am going to the doc today. All vital organs are great and AOK...so I am not really worried about size. That can be made up in a week. I will keep you posted. 10 weeks l ...


MinnesotaMoms - 36106.7 hours ago - Posted in Spina-Bifida
I was told a week ago that my AFP results came back pretty high, and the doctor (who I will call Dr. Gloom and Doom on account of everything coming out of her mouth is preceded by: 'High Risk'!) urged me to go get an ultra sound the very ne ...


emma1979 - 36118.1 hours ago - Posted in Hirschsprung`s-Disease
Hi there, I have a 2 yr old son called lachlan - he has short segment hirschsprungs disease. He is doing really well. I am also due to have another baby boy in august. Im from sydney and would love to chat ...


babytucci - 36151.5 hours ago - Posted in Ureteropelvic-Junction-Obstruction
I just found out my baby has this. Anyone else? ...


kittydisney - 36153.7 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
Six weeks ago when I found out our baby girl has 1A1V she was 2 days smaller than she should be, last Wednesday the Ultrasound tech said she was right on schedule.. What a relief, she was 1.25 lbs.. ...


emma32uk - 36165.5 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
Hello, i have had my last growth scan today, im 35 + 5 weeks pregnant. all's well with the baby, shes weighing approximatley 6 lbs 10 oz, which im happy about as i still have 30 days to go. nothing was spotted due to the SUA condition which ...


tia2105 - 36192.4 hours ago - Posted in Trisomy-21
I am 17 weeks preg & had a maternal serum blood test (screening test for DS) last week. 2 days after the test, the hosp called and said I have a very high risk of a DS baby (ratio is 1:60; the nurse said cut-off point is 1:250). This is our ...


azmom - 36298.4 hours ago - Posted in 1A1V-(Single-Umbilical-Artery)
Hello ladies. My second level 2 ultrasound is this Friday. We are at week 28, and seems to be going well. I have a healthy mover and kicker...I will post next Monday and let you know our results. ...


Allboys!! - 36323.4 hours ago - Posted in Trisomy-18
I lost my baby 10 days ago. Although she didn't have T-18 which they originally thought she did she actually had Triploidy. There isn't a section for this condition so I thought I would post my situation here. I am not making less of T-1 ...


Angelia - 36347.6 hours ago - Posted in Stork-Bites
My son was born with two. One on the back base of his neck where the hairline ends and one in the middle of the back of his head, as if he had fallen. At first I got questioned a lot as to whether he had fallen, gotten hit, in his carrier t ...


kp7586 - 36446.3 hours ago - Posted in Posterior-Urethral-Valves
My son had this and we did not find out till he was 2 months old because we did not know about , it did some major damage. He went into kidney failure because of it and now his whole uniary system is a bit messed up. He ended p having to sp ...

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