blessed x3 (590.1 days ago) UPDATE: His bili- levels got down to 14 last night, which is great, BUT he started turning blue from his chest down and they haven`t figured out why just yet. He was breathing fine, and his blood counts didn`t suggest anything new. They are running all sorts of tests on him to figure it out. They also started him on a feeding tube every 3 hours because he is refusing to eat, or even stay awake. They also said have to sedate him to put something in his arm so his veins don`t collapse. They are worried, because when they tried to remove the feeding tube to see if he was digesting it okay, it came out with green stuff all over it. They said it is normal to have stomach contents on it, but it is not normal that they are green. They are starting him on antibiotics in case it is an infection, and are running more tests for that. I hope they figure out what is going on really soon. Right now my sister is a mess. She wants to be home with her 2 year old daughter, but is afraid to leave the baby for any length of time.
sarasponda (591.2 days ago) I posted below but want to add that my son`s bili levels shot up from 13 to 22 in one day too. He was listless, wasn`t eating, and didn`t even respond when his blood was drawn. I was worried about brain damage, and am happy to say that he is now a healthy 3-year-old. I`m prejudiced, but he's smart & healthy! He talked earlier than any baby that I`ve met, has a fun imagination, has good impulse control (for his age:)), and is sporty. My thoughts are with little Mason and your family.
blessed x3 (591.4 days ago) Thank you all so much for your kind words, and prayers. I am glad to hear the ones who had babies with complications are okay now. My sister just spoke with the dr and they are keeping his levels steady, but with how high they are and how fast they shot up, they are having to evaluate him for brain damage. He is also refusing to eat right now, and they said that is one of the signs of permanent damage. We are hoping he isn`t eating due to not feeling good rather than having permanent disabilities =( I`ll continue to keep you all updated, via this poll. Thanks again.
julz (591.6 days ago) Like i want a shiny Ȭ said, I am suprised they took him off the lights when his levels were at 14, I thought they had to be under 11. My two youngest boys were under the lights for atleast a week and both were readmitted for 24 hrs to be fully under the lights until their levels stayed at 10 and continued to drop. I will continue to pray for your sister and your nephew. If you would like I will PM you my bbf`s e-mail address, she knows quite a bit about hemolytic disease & transfusions and she said it`s okay if you want to contact her.
waiting4number3 (591.9 days ago) Your nephew is in my prayers as well as his mother and father. I really hope they help him soon.
sarasponda (591.9 days ago) My kids & I have incompatible blood types and they had bili levels similar to your nephew. They were each in the hospital under blue lights for about a week. My son was released at 3-days, only to have to return the next day. It was hard and frightening to have him in the hospital longer than expected. On the plus side, I got plenty of help nursing and learning to pump during those extra days in the hospital. My son is now 3 and has been very healthy (haven`t had to take him to the doctor`s office for an illness yet) and is intelligent. With my daughter, the hospital stay was fine and seeing her under the lights wasn`t too sad because I knew what was going on and that she would be fine, plus I got to spend the week nursing & relaxing. Best wishes for Mason & his Mom.
My5Babies:) (592 days ago) My daughter 2 years ago (she was 7 at the time) had hemolytic anemia. Her situation was very different than your nephews, but she did have to receive blood transfusions and it helped her a lot. I`m sorry i don`t have any good advice :(
hazebeyond (592 days ago) I haven`t any experience with this, but I sincerely hope they can figure something out for him.
jamie86 (592 days ago) If that`s what I think it is then a friend of mine dealt with that when her daughter was born. A few days under the lights and all was fine though. I hope your nephew is doing better soon and can go home for good.
blessed x3 (592.1 days ago) My poll was about my nephew having a rare blood condition called Hemolytic disease. His biliruben levels were over 18, and he was in the NICU from 12 hours old, until 4 days old. He had his IV removed and his levels went down still, a few hours later they took him off the lights and the bili blanket. His levels were still going down and h was released when they reached 14. Here it is less than 24 hours later and my mom calls to tell me he is in Children`s hospital, and his levels went from 14 to over 22. they have him on a IV again, and lights and are talking about a blood transfusion. Please pray for my sister and baby Mason if you believe in prayer. If you have been through this, please share anything you think will be helpful. Thanks.