Ventriculomegaly

How can ventriculomegaly affect my child?

Comments: Ventriculomegaly

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taughy_gal_belfast@hotmail.com - 83 days ago.
hi we took the TORCH test but opted out for the amino dont know when i will gte results or if a will even know if it comes back fine ..its the not knowing thats the worst i will love him as much as my other son who is our life but at the same time you just want everyhthing to be normal and healthy..our sonograher from last week said its guidelines had only recently changed so anyone that measured up to 12mm wasnt reffered so it was classed as normal and we wouldnt be going through what we are what i would like to know isif he is born normal but with fluid on the brain what happens?? what is the outcomes ?? he spoke about down syndrome ..i see a lot of people talking about a chromosone tgest can this only be done after pregerancy ?? when is ur due date??thinking of you .

katieandiggy@tiscali.co.uk - 84 days ago.
Hi I'm in pretty much the same situation as you. My sons left ventricle is between 10 and 11mm. I can understand not wanting an amnio as you would keep the baby regardless, but the TOrCH screening it to check for maternal infections that could be causing the enlargement I would recommend having that, it's non intrusive just a blood test but if it was an infection it could be treated. I've read lots into this and seen so many posts and lots of babies ventricles return to normal or do not get bigger. If the ventricles stay below 12mm there is a 97% chance of normal neurodevelopment. Your babies is very mild at just over 10mm. I send my prayers.

taughy_gal_belfast@hotmail.com - 84 days ago.
Hi ,i had my anomoly can last wedensday and when we were there the sonograpoher said the ventricles look a bit bigger they were measuring 10.3mm she told me not to stress or worry but that was a bit hard said it wasnt being put through as urgent so i got a leter on friday saying o hafd to go again today to see a docotor was so nervous everythign was goon through my head so we went adn the docotr scanned the braqin he said everything looks normal except the ventricle is till measuring 10.3 mm they offered me a TORCH test and an aminocentisis but really not going to go for that as no matter what the outcome is i iwill love him as much as my other son just wanted to see of anyone else knew what the outcome could be out if there is any???? as i was upset and didnt really get to ask the doctor any questionsas he said i would really not know until i have gave birth but thta is a long wait :(xx

katieandiggy@tiscali.co.uk - 85 days ago.
So I went back today for a rescan. The ventricle had remained the same between 10 and 11mm. My torch test was normal and so was my chromosome test. She has diagnosed isolated mild ventriculomegaly. she is going to get the pedi to talk to me in 2 weeks time. What do you think the prognosis is?

johannaelizabethturford@yahoo.co.uk - 88 days ago.
Hiya every one, I am 21 weeks today with a little girl named Ashley. We found out on the 14th that our little girl has hydrocephalus, she also has a distended bowel and an enlarged stomach. On the day we found out we were told by the doctor that she is not conducive to life and will either die in the womb or when she is born. We came away from the hospital grieving for our little girl as if she had already passed because the doctor had advised us to have a termination. Since then I have had an MRI, amniocentesis and several ultrasound scans. We were going to go through with the termination as we thought that was best. When we had the MRI I asked a lot of questions because I wasn't ready to give up so easily. We found out that she does have a chance of survival and I'm so angry that the 1st doctor led us to believe she didn't . I am so happy that I pushed for more information before going through with it because since Monday she haven't stopped kicking my insides. I have read through some comments and would like to know about Omega oil as I have seen it mentioned. Also Turtlemom I have read through your profile and seeing and hearing about Parker have given us so much hope, she is so beautiful. If any one has any information on how I can help her I would appreciate it very much.. Thanks for reading this

thinkpink2010 - 88 days ago.
Katie- Samuel had a second MRI when he was about 7 months old and his left ventricle had not ever gone back to it's normal size although it was closer, it is still a little larger then is right.... when I look at the MRI I can barely tell. This was kind of worriesome to me, but both our neurologist said that was no big deal at all. Sam is a little delayed in talking (which could just be that he has 2 older brothers to talk for him) but he is doing our early intervention rehab for that, but other than that he is doing GREAT!!! I hope the stories you are reading on here are encouragement for you. None of us can promise that it won't be any harder than a 'normal' baby (for us SERIOSLY the 'harder' part is all the worry I have), but ALL of us can promise that you will love your little one to pieces and it will ALL be worth it!! Just a matter of days before you meet your son. You will be suprised by how little you associate your son with the injury when he gets here..... Or at least I was, instantly he was PERFECT (and he still is)..... You will shed tears of worry, but the worry goes to the sidelines with all the wonderful moments you have to experience. God bless you again and I will say a prayer for you and your little man!!

Kebus - 89 days ago.
Dear all, I’ve been waiting with this post for over a year. During this time I almost forgot my fear, tears and doubts which appeared in August 2010, when I was 20th week of pregnancy and the doctor told about ventriculomagaly in relation to my unborn child. It was terrifying. I was searching all the sources and finally found this forum. You have no idea how helpful and relieving it was! Of course, the “problem” was still there, but I got hope and strength after reading all your stories. Thank you. So, about me and my baby. I’m 30 years old mum of Marysia, sweet little girl who will be celebrating her first birthday soon. She is a wonderful, playful , smart and perfectly healthy baby :). As I’ve written above, she was diagnosed with VM when I was in the half way of my pregnancy. Her left ventricle was over 14mm, and the right one was in “normal” framework,about 6mm. Until delivery the size of the left ventricle was “jumping” from 14mm to 9mm, later 12mm again and finally 7mm… Marysia was born in a natural way in 40th w.o.p. When she was 10 days her brain had been scan with USG – no abnormalities had been observed. Later, when she was ca 4 months, we checked the brain once again-her left ventricle was a bit larger than the right one, but it was a NORMAL size of about 4 mm. Marysia was diagnosed with small asymmetry –she was doing uncomplicated exercises with physiotherapist and me for about 6 weeks. That’s ALL. Now she is absolutely fine-she’s watching me at the moment, smiling and singing the song about the cat :):):) Guys, thank you once again for the hope you gave me last summer. I wish you all best , and really, really believe me-VM is not a sentence. Hugs for you! (sorry for my poor English)

katieandiggy@tiscali.co.uk - 91 days ago.
Thinkpink- thank you I will mention that at my appointment next week. She did mention delivering early because of size of baby so he may be delivered in the next couple of weeks. My consultant seemed unsure of what may have caused, like you say you never get a definitive answer. Did your baby's ventricle Shrink back to normal?

thinkpink2010 - 92 days ago.
Katie- they can do an MRI while you are pregnant and I would maybe ask your peri about this. According to my peri, the only way to tell if it is a bleed is on MRI... When Sam was born his u/s looked fine... the doc decided to do an MRI and that is when we got the stroke diagnosis. Just a thought.

katieandiggy@tiscali.co.uk - 92 days ago.
Ok so I had my scan with the consultant, she said the ventricle is boaderline measuring between 10-11mm. It hasn't got worse, which is good. She said there was no evidence of any bleeding, apparently there is something that you can see on an US that would indicate bleeding, but nothing. On another note the baby's growth is off the chart. The head and stomach are above the 95th centile and the estimated weight is 7lbs at 34 weeks, on track to be 10lbs! I'm going back in one week for another scan and the result of the TORCH test. Fingers crossed.

katieandiggy@tiscali.co.uk - 92 days ago.
Thinkpink - thank you for your reply! I am looking at all possibilities, I'm glad your son is doing well! My appointment is today, this is just a rescan with the consultant. I feel a lot more at ease having spoken to people on this board, I know that even if it is bad there is always a light at the end of the tunnel. Miracles like with Turtlemoms little girl. I'm hoping it has returned within normal limits or at least not got worse. Fingers crossed.

thinkpink2010 - 92 days ago.
katie- I wanted to chime in also. I was about 34 weeks when they discovered minimal swelling in my sons ventricals. It was a huge shock at first and very upsetting. I ended up delivering him a few weeks later (exactly 37 weeks) because I was losing amionic fluid (unrelated). Within a day of his birth we found out (by MRI) it was a brain bleed also known as a stroke. A baby having a stroke before or during birth is as common as an older person having one. I think that it is good news that the swelling happened later, because the brain is more formed....the earlier it happens the more the formation can be altered. More good news is, because our babies brains are still developing MANY times the area that was damaged will just be bipassed and the child will use another area of the brain to 'make up.' My Samuel is now 15 months and if I hadn't had that U/S we would NEVER know that anything was wrong. I know this time is stressful and if you are anything like me you just want some answers.... but you will find that even when you get answers they are not definitive answers... Like with Samuel, he is doing great but there is no promise he won't one day have a seizure or that he won't get to school and have some learning disabilities. But, having 2 other kiddos I KNOW that you worry about ALL your kids. One answer I do have though, is that you are going to love your little man. Chances are very good that he will be completely fine. I hope and pray that all will turn out well and that the next few weeks will pass quietly and quickly for you (as I remember how slow they went when I was worrying). God bless!!!

turtlemom - 93 days ago.
I don't know if there are cord blood banks in the UK. We have them here.Cord blood contains stem cells. These cells can morph into whatever type of cells you need. So, you can bank it and if there is a problem (i.e.e brain damage) it can be re-infused into the babay and hopefully correct some of the damage. THat is what we did for my daughter. You can contact Cord Blood Registry in the United States to see if they wouldsend you a collection kit and store it for you here

katieandiggy@tiscali.co.uk - 93 days ago.
Turtlemom sorry to keep pestering you but I know you have been through this and have answers. I was reading a few posts regarding cord blood banking, I've tried to google it but I have no idea what it is or how it can help?

katieandiggy@tiscali.co.uk - 93 days ago.
Thank you, I am preparing for the worst but hoping for the best. My appointment is tomorrow so I will keep you updated. This appointment is with the consultant. I'm hoping that the girl that did it last made a mistake. After the scan she did say to me 'I'm not sure what size the ventricles should be at 33 weeks, I know at 20 weeks they should be under 10mm' This kind of gives me the impression she doesn't really know much about scanning the brain.

turtlemom - 93 days ago.
If you go to the site I referenced below you will find that vents 12mm or below have a 97% chance of normal neural development. I do know of a precious little boy that falls into the 3% category, so we can't say for sure your baby will be perfect, but chances are it will. That said, it is probably better that this didn't come up until later. More dilation means more pressure on the brain which means more damage. But, 11.5 is so minimal, it really wouldn't cause much pressure if any at all. The only thing I would be concerned with would be a brain bleed. That is a common cause of late term dilation. A MRI would show this, probably. THis is what caused the dilation in the afore mentioned precious little boy. His mom comes around here from time to time so she might chime in. He had slightly enlarged vents that went back to normal before birth. She didn't know anything was wrong until he was 3 months old and he began to have siezures. This is uncommon, but it can happen. THe only reason I bring this up is because we all (including everyone not only just us on this board) shoudl be prepared for anything). As parents, we should love our little come hell or high water.

turtlemom - 93 days ago.
If you go to the same site I referenced below, you will find that vents below 13mm have a 97% chance of normaln neural development. So, I really don't think you have anything to sorry about at all. However, I do know of a completely precious baby that falls into the 3% category. THe fact that it happened later is probably a good thing because less pressure typically means less brain damage in theory. But, it could also mean there was an insult to the brain (brain bleed/stroke). An MRI would show this. The very precious child I mentioned before that falls in the 3 3% category.

katieandiggy@tiscali.co.uk - 94 days ago.
Turtlemom . A question ... Obviously it's not good that my son has got enlarged ventricles at all But is it better that it has happened late in my pregnancy? Is the prognosis better? Katie

turtlemom - 95 days ago.
hERE IS WHERE i GET THE 77% STATS - http://www.obfocus.com/questions/qanda10.htm

cheerdizzy83@gmail.com - 95 days ago.
Thanks Turtlemom! This has been a nightmare the last few days...seems like the doctors have no real answers to give and when I heard the doctor say abortion....it sounded as if it was the end of everything with no hope in sight. I have been doing tons of reading online and now see that there is hope and 11/14 is almost nothing. I am so upset at my doctor for giving me these thoughts. I have an amnio today to check for any other 'markers'...I pray that things are good. Also, I read that taking an Omega 3 supplement has helped many people...have you heard of this? I read your profile and i am so thankful the Lord blessed you and your beautiful baby girl, she is truly a miracle and I can only hope to have the same success

turtlemom - 95 days ago.
Hi cheerdizzy83, 11/14 are borderline enlargement. There is no realy correlation between VM or Hydro and D/S. What you may and I do mean MAY be looking at is a possible case of Hydrocephalus. You wouldn't know this until it would be too late to terminate. As a mother of a daughter with Hydro, I would tell you not to tx a Hydro baby. But, that is your choice. It hasn't been a cake walk, but she is an absolute joy. Click on my name for our story. You can also go to www.fetalhydrocephalus.com for more information about this condition. You have a 77% chance of 'normal neurodevelopment' with vent measurements under 15mm. But, there is a 23% chance that this could develop into Hydro. YOu have to decide if you are willing to risk that 23% chance. I'm happy to help in any way. I love my daughter more than anything and would trade any moment with her - the good, bad and ugly.

cheerdizzy83@gmail.com - 96 days ago.
Hello, I am hoping someone can give me some good advice. I am 20.5 weeks prego and found out yesterday that my baby has enlarged ventricles in his brain. One side is measuring at 11mm and the other at 14mm. the doctor told me to explore all my options including abortion! I am terrified.... If abortion is the option, I only have until TUESDAY to get it done....only 5 days to figure all this out before making a decision like abortion doesnt seem right. I went to a Genetics doctor today and they said looking at family history they do not think it is something with chromosomes....but my blood test came back at a 1 in 620 chance for Downs even though I am only 27 years old. Can anyone help me with this....does this 'fluid' mean that there is already brain damage to my baby? HELP!!!!!

katieandiggy@tiscali.co.uk - 96 days ago.
Thanks Turtlemom I really hope that's the case. I've been worried my whole pregnancy about his head size but it's been consistent, always big but not jumping centiles. My scan is on Tuesday so please keep your fingers crossed

turtlemom - 96 days ago.
Katie, I have a feeling you just a big headed baby. The further along you are, the harder it is to get an accurate measurement. 11.5 is really minimally enlarged. I bet there are perfectly normal adults walking around with minamalky enlarged vents that don't even know it.

katieandiggy@tiscali.co.uk - 96 days ago.
Hi I wondered if anybody had any advice... Basically I had a 1/135 chance of DS, I had CVS and all came back fine. I was referred to Kings College Hospital for the CVS and they did my 20 week scan. My baby was measuring large with a head on the 95th centile about 4 weeks ahead. They asked me to come back at 28 weeks for a growth scan. I went back and the head was still on the 95th centile, the body and legs on about the 70th. They said that the fetal growth was consistent, I.e it had not jumped percentiles and that the brain looked fine, all measurements normal. They said the baby was big and suggested a growth scan at my local hospital at 32 weeks. I went along Monday at 33 weeks, the head was still on 95th centile but the sonographer said that the posterior ventricle looked slightly enlarged, it was 11.5mm. I have been referred back to my consultant for a rescan next week. My question is, I know that with enlarged ventricles the head can be enlarged but my baby's head has been big since 20 weeks when all measurements were normal and again at 28 weeks when ventricles were normal. Do you think his big head is a reason the ventricle is enlarged? Is this common? Any answers/advice is appreciated. Katie