Ventriculomegaly

How can ventriculomegaly affect my child?

Comments: Ventriculomegaly

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mohana_desilva@hotmail.com - 99 days ago.
Thank you madinashtonsmom. I hope it works for me too.

madiNashtonsmom - 103 days ago.
Aug2811 - so glad to hear all turned out well for you and your little one!!

madiNashtonsmom - 103 days ago.
I wanted to leave an update on my baby. He was diagnosed with mild vm mid way through my pregnancy with his vents measuring 11 & 13mm. I also had high amniotic fluid which made things very uncomfortable. Towards the end of the pregnancy his vents started to shrink down to 10mm. mohana_desilva@hotmail.com - I like to think his vents went down due to me taking about 750 mg of DHA supplements. I was taking the expecta and another brand that was about 500mg plant based DHA. I was also eating foods rich in omega 3 fatty acids like avocado, walnuts, eggs & milk enriched w/omega's, etc. I had read on here waaaaay back about a couple of different people taking supplements and having results so I thought I'd try it. Why not try it if it's not harmful to the baby. My son Ashton Scott was born on August 29, 2011 weighing 9lbs 2oz and completely healthy and normal. He did initially have a little fluid on his lungs due to delivering via c-section. But was fine after a few days. He is now 9 weeks, extremely vochal, smiling, laughing, & cooing like crazy. I hope this will give some hope to those of you who's lo's have been diagnosed w/mild vm. This site brought hope to me in my time of need and I'm very grateful to those of you who took the time to read my story and gave me your words of hope.

partyof5now (Sonya) - 109 days ago.
mylsdeniz - my thoughts are with you & your little one during this time. I know it is an ordeal to go thru & all we want is to do something to help our babys & in situations likes theses there is nothing we can do so we feel helpless on top of all our other raging pregnancy hormones. We also were given those 3 choices during my pregnancy with my son, he had another abnormality with his brain than your son but they gave us grave news as well for his out come. We did opt for the fetal MRI inutero so they could get a clearer picture on my sons brain. We also then opted for an amnio after got the MRI results back because we needed to know how servere things were looking for my son...tests were all we could do even if we couldnt do any thing about my sons issues at the time...we just wanted to be fully informed & fully away of the worst & the best so we could possibly prepare....altho I just dont see how one can prepare for the worst before it happens...there just is not prep for that. My son was born healthy thankfully, I dont know how it all happened but he is our miracle that we love so much everyday. My advice is i would opt for any additional testing they offer just so you can better prepare, if you are deciding to go further with your pregnancy love your son no matter what....you will fall in love with him the moment you see him after he is born no matter what. Take care & keep us updated....you both are in our prayers

mohana_desilva@hotmail.com - 111 days ago.
I am taking a pregnancy & breastfeeding supplement that contains 125mg of DHA supplement. I am 33 weeks pregnant & my baby's ventricles are 15mm dilated. Would extra dha supplement help? Please help. Thank you,

mylsdeniz - 114 days ago.
Hi to everyone here who have the same problems with their LO. I am in my 26+ gestational. my endless story began about when I was in my 8 week gestational. my previous pregnancy ended up with an miscarriage. I have learned that I am again pregnant last june and 1 week later I started bleeding. my doctor told me that this is another miscarriage. I have been sent home and 4 weeks later when I went to see my gp for a scan he told me that he can the the baby and he is still there. and then I have been told that the bleeding might cause damages to the baby. on my 20 week gestation scan I have been asked to come level 2 scan on the same day. just before the scan I was told that they have found couple of serious problems with the baby and than there was a big slience for about 30 min. one of the doctor was saying heart the other was putting tick on a piece of paper. and I really did not know what was going on and asking them what is wrong with my my baby and can not recieve any answer. after the scan the doctor told me that she is refering me to a consultant who can answer all of these problems with the baby. and just told me that problem with feet !!! looks like pigeon feet and fluid in the brain!!!!!... that night was a nightmare for me. I was checking all the informations on the net , crying and crying. the following day my consultant was great. just before the scan he explained to me the situation and he told me that he will do a detailed scan and than talk about it. US took about 1 and an half hour. my baby have a club feet , mid VM left 12-13 mm Right 10.5 mm and ABSENT CAVUM SEPTUM PELLUCIDE. he told me that club feet is not a problem with the fluid in the lateral ventricles can be treated as well with a shunt which means my LO will have an operation after the birth. but for the absent cavum septum he can say nothing about it.as the defects will be examined after the birth. I have been optioned 1- to do nothing and give a birth 2- have Amniocentesisanytime and MRI on week 32 3- termination of the pregancy. been informed about Down syndromes and other abnormalities and outcome varies with wide spectrum. my necxt app. was 1 week later and that for 7 days I lots weight , could not sleep, could not eat and I was online for 24 hours checking all and any kind of informations. and on my next US my consultant told me that HE COULD SEE CAVUM SEPTUM PELLUCIDUM TODAY. Tight latral VM is 8.9 mm left Lateral VM difficult to visualise and measuring around 15.3 mm. And I am referred to another hospital . I hope everything will be ok with my son. Although my consultant told me that he could see cavum septum I still have worries about that. But with all the stories here I decided not giving up and I will be the best loving mum for my son.

wals - 117 days ago.
dha supplements helped us (we used expecta lipel) I am not marketing here, this really helped us. just want to send the message out

wals - 117 days ago.
Guys, please try dha supplement

mohana_desilva@hotmail.com - 120 days ago.
I am 33 weeks pregnant & was told my baby's ventriculars were 15mm. I have spent days & night crying over this until I found this website. There is still hope there. I cried as I read a few miracle stories. I just have to hope & pray now instead of thinking it's all over! Thanks ladies :-)

laila10 - 123 days ago.
Hello everyone! my baby now is one year old, but she is not crawling or trying to stand up! the pediatrician told me that I should see a neurologist, he is afraid that it could be related to VM (she has 15-16mm /right and left) Can any mom tell me if her baby had showed a retard on starting to crawl or walk, I heard about 6 month delayed child as a result of VM I dont know if someone heard about the same thing and does that mean she will be retarded on other mental skills? thanks a lot

turtlemom - 126 days ago.
Hi krp, click on my name for our story. I'm glad you have an optimistic doc as most aren't!

krp - 126 days ago.
Hi everyone, at my 20 week ultrasound my son was recently diagnosed with ventriculomegaly. His ventricles were measuring 1.6. All tests to include the amnio came back normal. The doctor at that point was not calling it hydrocephalus. At my 24 week ultrasound, they had grown to 2.0 as and the third ventricle is now enlarged. His head circumference is two -three weeks ahead. The doctor is now saying that he is presenting with isolated hydrocephalus with acqueductal stenosis as the cause. He doesn't think it is genetic related. Our plan is to monitor, fetal MRI in the third trimseter and shunt after the baby is born. The doctor also indicated we could be optimistic about the outcume. I have been doing a lot of research and I know all outcomes are different, but if anyone has any advice for me, I would appreciate it.

aug2811 - 129 days ago.
hi everyone i delivered my baby in the month of Aug she is 2 months old. when i was pregnant they told me that my baby vent was 11- 12mm but after she was born on the 1-2 day they did ultrason on her head and they told she is total normal. i was asking them how much the vent size are but they told they don't measure the vent so i was skeptic . but they told she might have a blood clot generally they find in premature babies .so the dr recommended one more ultra son to be done after 1week . i asked the dr also to find about the vent size. they did after week and they didn't find the blood clot and they said that vents are all normal. they don't measure the vents they check the head size and the distance between the vents ...some think like that but for sure not the vent size . only at the pregnancy they check the vent size which doesn't give correct picture. so guy keep hope and pray for god . my baby girl is doing good with god grace and thanks for ur support.

LDMusgrave - 136 days ago.
Are they telling you anything along the lines of an IUGR pregnancy? As long as there is flow in the cord, you should go as long as matters will let you. 13 mm is certainly not large at all, but it should be monitored regularly. I wish you the best!!!

dolsen@westpac.com.au - 140 days ago.
Hello, just wondering if someone can give me some guidelines, as my doctor is away and i wont get any answers untill Monday. I am currently 25 weeks preg with 2nd child. They have been tracking my pregnancy as high risk from 13 weeks as i had high risk for Edwards condition due to irregular blood. Level 2 ultrasund was done and anmio which determined there was no cromosone problem, which was a relif. I still reamined high risk as my blood flow was irregular in my utrine artery and today withmy routine scan to check blood flow now the baby has 13mm Ventriclomegaly. The person doing the ultasound said its not something to worry about as the anmio came back negaive but now after reading on line about other conditions i am unsure. Can anyone shead some light on what might happen from hear. I know 13mm is mild not too high, but i am worried as they said they will induce me early due to the blood flow, does this mean the baby will come even eailer due to this problem? any feedback is welcome? I dont have a appointment untill Monday with my OB

turtlemom - 140 days ago.
Hi jemma24! Click on my name to view our story. Our vent measurements were severe - 17mm/22mm @ 21 wks and my daughter is doing well now. This is not the atypical outcome for severe Hydrocephalus so you must be prepared for all possibilities like we were/are. Please let me know if I can help. Blessings to you and your baby!

jemma24 - 141 days ago.
hello i dont no if im doing this right but hear goes! im 20 weeks pregnant and yesterday at my scan was told my baby has servere asymmetric ventriculomegaly with midline shift the left side measures 30 mm and the right 12.5mm really scared as they said there was not much hope of my baby being anything but in a weelchair for the rest of his life! just wondered if any1 on hear had a baby that was that large and how did they turn out?

jemmadawn@hotmail.com - 142 days ago.
Thanks LDMusgrave, it gives me so much hope to read stories like yours, and so happy to hear your daughter is doing so well. Well, an update on me...my waters have broke so - am in hospital. Not in labour but waiting. Might get to meet my little girl before MRI results. That would be nice :)

LDMusgrave - 143 days ago.
My daughter's ventricles measured around 10 centimeters (left ventricle 70 mm, right 32 mm) by the time she was born. She is now almost 10 months old, laughs, smiles every time you look at her, crawls everywhere and gets into everything, puts everything in her mouth, just started saying 'dada.' She's doing very well despite her measurements. I just thought I would encourage more hope!

jemmadawn@hotmail.com - 144 days ago.
Thanks thinkpink and bailey....you know I don't know what I would do without this forum and it's so nice that people like yourselves, even some time after your experience are offering this support. I am 35 weeks tomorrow and due to gestational diabetes should be induced at 38, so hopefully only 3 weeks left, and hopefully the MRI has not flagged up any other abnormalities. Out of intereset, did you have natural deliveries? I had a c-se with my son and would quite happily elect to have another. Up to now I have been told that they would prefer me to go into labour naturally or be induced. With the vm I am hoping they may let me have a c-sec again. Once again thank you all xxxx

bailey1 - 144 days ago.
Jemmadawn-- my doctor told us that my son also had 3rd ventricle dilation (we never got the exact measurements) when i was pregnant with him 2 yrs ago. the bilateral vents were measuring between 11mm-17mm depending on the week (they kept fluctuating, but towards the end they were about 12mm-14mm), and almost all of the many docs we saw said that my son would definitely need a shunt at birth. it was a looong wait till the end (they first discovered the VM at 15 weeks), and when he was finally born, the doctor was surprised that he was 'totally normal' and did not need to go to the NICU or get a shunt. today, he is a healthy, typical 2 yr old (thank Gd). the docs didn't really talk too much abt the 3rd vent and we never got much of an explanation on it. i *think* their thoughts were that it was probably acqueductal stenosis and therefore all the vents were becoming enlarged. the waiting is the worst part, but try to remember that they really won't know anything for sure until the baby is born. if you have any questions or whatever, feel free to message me anytime. good luck with everything!

thinkpink2010 - 144 days ago.
Jemmadawn- I think that the ultrasound is actually VERY promising. It is hard to find information about specific areas, mostly because babies react to things differently. Like I said before, babies are known to just reroute where the insult occured and NO affects will ever be noticed. I know it is an emotional rollercoaster! As if those last few weeks don't move slow enough, when you get this kind of stress thrown on top of it... It makes you CRAZY with worry!!! Doctors will USUALLY tell you to expect the worst because they have to make you aware of ALL possibilities. But for almost 14 months now I have been researching and talking with other parents who have had similar issues (plus my own little man's development) and THANKFULLY the worst is usually not realized. I am praying for you and you daughter (sorry I thought she was a boy last post)..... She will be perfect, you will see!! God bless!!!!

jemmadawn@hotmail.com - 145 days ago.
i know I am looking for impossible answers....but if anyone can help with this i would be grateful. the ultrasound we had showed EVIDENCE OF THIRD VENTRICLE DILATION. Is this very significatnt? The lateral ventricles were 13mm, and no other brain defects were noted, or with the rest of my babies anatomy. Our amnio results came back clear, just waiting MRI results which we will get on Tuesday. I feel on a complete rollercoaster of emotions and today is a really bad day :(

jemmadawn@hotmail.com - 146 days ago.
Thanks thinkpink. It is reasuring to hear other peoples stories, although in the back of my mind there is that very real fear that we won't be so lucky. I am keeping my hopes up that our little girl will be ok. We have our MRI scan today, but won't get any results until next Tuesday. Also awaiting results of amnio. I have never been so scared and and excited in my life....I just want my little baby with us now.

thinkpink2010 - 146 days ago.
jemmadawn- Hi! I just wanted to post that your story is VERY close to mine! I also had GD and was getting scans for that, at 35 weeks I started losing aminoic fluid and the noticed some swelling in the ventricals. Really I was too in shock to remember the exact numbers, but I think it was 17mm and 15mm ... which my doc said was minimal. They did all the blood work and rechecking for Downs. It was a CRAZY waiting game and at 37 weeks they decided to induce me. I ended up having a c-section and baby did well on the APGAR and was taken to NICU. They did an ultrasound and an MRI. When my Samuel was 1 day old they told us he had a stroke in utero. I was devastated!! Those first few weeks (right before and after he was born) were awful, so I know how you are feeling. I want you to know though that Samuel is 13 months now and doing GREAT!! He walks and talks and has no apparents signs of problems. I can't tell you this and you just feel all fine again... I know, because I was there. But I want you to know that everything can and will be OK!!!! Your MRI should be helpful in letting you know about what is going on. The wonderful thing about babies is that their brains are very adaptable.... things that would stop an adult in their tracks, babies will just rewire and you will never notice the difference. Your son will amaze you!!! Stay positive and I will be praying for you and your little man!!!