Ventriculomegaly

How can ventriculomegaly affect my child?

Comments: Ventriculomegaly

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jemmadawn@hotmail.com - 147 days ago.
i know I am looking for impossible answers....but if anyone can help with this i would be grateful. the ultrasound we had showed EVIDENCE OF THIRD VENTRICLE DILATION. Is this very significatnt? The lateral ventricles were 13mm, and no other brain defects were noted, or with the rest of my babies anatomy. Our amnio results came back clear, just waiting MRI results which we will get on Tuesday. I feel on a complete rollercoaster of emotions and today is a really bad day :(

jemmadawn@hotmail.com - 148 days ago.
Thanks thinkpink. It is reasuring to hear other peoples stories, although in the back of my mind there is that very real fear that we won't be so lucky. I am keeping my hopes up that our little girl will be ok. We have our MRI scan today, but won't get any results until next Tuesday. Also awaiting results of amnio. I have never been so scared and and excited in my life....I just want my little baby with us now.

thinkpink2010 - 149 days ago.
jemmadawn- Hi! I just wanted to post that your story is VERY close to mine! I also had GD and was getting scans for that, at 35 weeks I started losing aminoic fluid and the noticed some swelling in the ventricals. Really I was too in shock to remember the exact numbers, but I think it was 17mm and 15mm ... which my doc said was minimal. They did all the blood work and rechecking for Downs. It was a CRAZY waiting game and at 37 weeks they decided to induce me. I ended up having a c-section and baby did well on the APGAR and was taken to NICU. They did an ultrasound and an MRI. When my Samuel was 1 day old they told us he had a stroke in utero. I was devastated!! Those first few weeks (right before and after he was born) were awful, so I know how you are feeling. I want you to know though that Samuel is 13 months now and doing GREAT!! He walks and talks and has no apparents signs of problems. I can't tell you this and you just feel all fine again... I know, because I was there. But I want you to know that everything can and will be OK!!!! Your MRI should be helpful in letting you know about what is going on. The wonderful thing about babies is that their brains are very adaptable.... things that would stop an adult in their tracks, babies will just rewire and you will never notice the difference. Your son will amaze you!!! Stay positive and I will be praying for you and your little man!!!

jemmadawn@hotmail.com - 151 days ago.
Thanks Turtlemom. I have my mri booked for thurs, and today I am having an amniocentesis just to rule out chromosonal abnormality. This will include a scan so we will be able to get another look at babies brain. I spoke to the specialist yesterday and she went through last weeks report, and the biggest measurement the doc recorded was 13mm. Thanks for your help, I will update on our prgress. Just trying to stay positive :)

turtlemom - 153 days ago.
Hi jemmadawn, if the scans were accurate and they actually got a 17mm reading, there is a chance your baby will develop Hydrocephalus and need a shunt. The cause is not as important because you will probably never find out. Toxoplasmosis, etc is really rare. What is more likely would be a brain bleed (stroke) in utero or, like my daughter, we don't know the cause for her blockage. A shunt isn't the end of the world. It is a device that allows my daughter to live. Without it, she wouldn't survive. Blessings to you and your baby. If you have other specific questions, my personal email is amybhendrix@yahoo.com.

jemmadawn@hotmail.com - 154 days ago.
Hi ladies, glad I have found this site and such helpful stories. If anyone can help shed some light on my situation I would be exceptionally grateful as I am completely beside myself with worry. I am 34 weeks pregnant today, and have had a relatively easy going pregnancy. I have a high BMI so and my son who is 2 was 10lb 5, so I was booked in for extra growth scans at 28 and 34 weeks. At 28 weeks my scan was fine, measurements all fin, no issues. I was diagnosed with gestational diabetes at this time and I am currently injecting insulin for this. Yesterday i had my34 week scan, the sonographer etected 'Dilated lateral ventricles seen = 12mm with dangling choroid plexus. Dilated 3rd ventricle also noted. I was referred straight to a consultant. The consultant then scanned me, she could see one ventricle was large and measured 1.2cm, I also had a vaginal scan but she could not see much on that. She got another consultant to come and look and he saw 2 ventricles were dilated, the largest measurement he got (he did alot of measuring!) was 17mm. He said the cerebellum looked fine and there were no other issues with baby. The plan now is for me to have an MRI scan, but being the weekend I have an agonising wait to find out when that will be. The consultant went through the causees and options, and in not so many words told us there may be a case where we have to prepare for the worst. I had bloods done to detect infection, my husband and I also had tests done for platelets. From what I gather the causes couls be: 1. A bleed caused by infection i.e rubella or toxoplasmosis. This is possible but would it cause bleeds on both sides of the brain. 2. A chromosomal abnormality ie downs, but I had tests done early in pregnancy and came back low risk. Would this not have shown at 20 and 28 week scan. I also had a private 4d scan at 27 weeks, would something have shown then. 3. build up of CSF caused by a blockage. Would this explain both dilated ventricles? How detremental is that to baby. Any help would be so gratefully appreciated as I am literally worrying myself sick. Thanks x

linnyc1981 - 154 days ago.
thans, we are so excited...and nervous at the same time...it is nice to see so many familiar names in this forum..i hope y, i have enjoyed looking at photos and watching children grow...

turtlemom - 155 days ago.
Congrats LinnyC!!!

linnyc1981 - 156 days ago.
Hi All Just popping back in to say hello.... This is an amazing forum who offered so much support druing an extremely stressful time. My little boy had a mild vm from 19 weeks and we were told he was missing part of his brain. He is now a busy 2 year old who is talking, running, jumping etc. And is the delight of our lives....believe in your babies....I will be around this forum again offering an ear to listen, as we have found out Max will be a big brother in May next year.

ana30 - 158 days ago.
Just wanted to put some update to give more hope to all pregnant moms. Some of you will recognize my name. My little boy was diagnosed and born with mild VM (12 mm.), choroid plexus cysts and some permanent brain damages. This all was confirmed on Ultrasound exam done second day after he was born. He is almost three years old, never had any health problem. I have realized he is even much more smarter than his brothers were in his age (in many areas). You can see my complete story on my profile page. I'm not visiting this forum any more (simple do not have enough time), but I just wanted to put some updates. It\s always encouraging to hear good-outcome story. All the best to all .

turtlemom - 173 days ago.
Here is a story that ran in our newspaper regarding my daughter and Hydro - http://newsok.com/yukon-parents-credit-umbilical-cord-blood-infusion-with-helping-daughter/article/3598717?custom_click=rss

moo2 - 182 days ago.
Hi there. I am only new to this site but I have only recently been through a similar terrifying situation as many of you are now and I really want to post my GOOD NEWS story. I only wish I had found this forum 6 months ago when I was going through the most difficult time of my life. I will quickly put my story in a nutshell. My baby was diagnosed with mild VM at the 20 week scan. Her left vent was borderline at 10mm and so the nightmare began.... The specialists thought it could potentially be a bleed on her brain so I was sent for an MRI and amnio, and plenty of extra scans. Fortunately the MRI and Amnio came out clear which was an unbelievable relief. The ventricle continued to grow but only reached a maximum of around 13mm. Still ventriculomegaly but a mild case. The worst part was the UNKNOWN. The docs couldnt really tell us what this meant for our child and so we just kept going.... praying for a miracle and that our baby girl would somehow be ok. I was having major panic and anxiety attacks (which I have never experienced before). I wasnt sleeping and was basically in tears every single day for 20 weeks!! Not great when you have 2 other toddlers to look after. At our final scan before our baby was born we were told that she had a BIG head. This just bought our world crashing down. We were officially petrified. We had decided to have a C-section to eliminate any other problems and put less pressure on her head. On May 19th 2011 our beautiful angel was born! And she was PERFECT! Yes completely perfect! Her head measured slightly above average but certainly nothing on the size they had told us she would be. 24 hours after her birth she had a cranial ultrasound. The left ventricle that had measured 13mm before birth was now back down to 2mm!!!!!!!! We could not believe our ears! How could this be!!! The doctors seemed to think it was a partial blockage and after birth the pressure was released and the fluid had drained. This was THE single most wonderful news we could have recieved and to this day we still cant believe how blessed we are. We had another 6 week cranial ultrasound to confirm that the ventricles had stayed relatively the same and they had! It was the most amazing feeling walking out of the specialists office being told they he does not need to see us again and we have ourselves a perfectly healthy baby girl. I always promised myself if our baby Sophie ended up being ok I would post our story on as many Venticulamegaly and Hydro sites as I could find. I completely understand the angst and terror you guys are all feeling at the moment but PLEASE try and have some faith in those little angels you are bearing. They are miracles just waiting to grace our world. Things can and WILL be ok. Just give them a chance. From the bottom of my heart I wish you all the very best.

Indigodingo - 184 days ago.
Thanks LD. I am certainly trying not to worry, I know it is a wasted emotion and there is really nothing I can do now, and I will love my baby whatever happens. I just hate the uncertainty and the conflicting information! It helps me to read books about neurological development in children, and to think of ways to give my baby the best start in life whatever happens. Will keep you informed!

LDMusgrave - 188 days ago.
If the doctor is telling you not to worry, then definitely don't worry. This means that everything else has checked out fine with the baby. If the ONLY thing they can find 'wrong' with the baby is that slightly elevated ventricle then the baby will most likely be just fine.

Indigodingo - 190 days ago.
Hi everyone, haven't been here for a while. Latest measure is showing one vent at about 13mm, but doctor says this is 'nothing to worry about' as it hasn't increased 'much' since we have been measuring. So it's been a bit over 10, 12, down to under 10, back up to 12... but some of these could be variances in measurements, not actual real change. I feel like I have no idea of what is 'normal' is and what I should be concerned about. I know so many of you here have had serious warnings at measurements lower than what we have, so this is quite confusing. I don't want to worry for nothing, but then I don't wish to be niaive either. I am at 37 and a half weeks now, so the little fella will be here soon and I am just so excited to meet him, but is there a chance there will be something wrong I am not prepared for? Or should I just take the doctor's word for it and not worry?

turtlemom - 200 days ago.
Vent measurements are sooo subjective. Check out this site and feel much better - http://www.obfocus.com/questions/qanda10.htm :'Isolated ventriculomegaly greater than or equal to 12 mm is associated with normal neurodevelopment in approximately 77% of cases. Whereas isolated ventriculomegaly of less than 12 mm is associated with normal neurodevelopment in 97% of cases link.' In other words, there is a 97% chance your baby will be fine. Now, I do know beautiful babies that fall into the 3% category, but chances are your baby will be fine.

smiles123 - 211 days ago.
Hi went for my level 2 scan today (i am 24wks+5days )and thank GOD everything looks normal. anterior ventricle measuring 5.9/27ant the posteior measures 8.5/27...... the consultant said i should chill out and enjoy my pregnancy. All the best for all those mums and dads who are going thru hard time.....

nordic - 212 days ago.
I wanted to give an updates to all the mums on this forum, and a big thank you to everyone who keeps posting. my boy who had ventricles of about 13-14 mm (see my profile) is now 3 years and still doing great. I was also offered abortion, and thanks to this forum, and asking for information from doctors abroad we decided to go through with the pregancy. Like samismum I am so happy about the decision, but it was tough. Lin, you were my first inkling of hope when i was pregnant and diagnosed at the ultrasound. At the time you were just about the only mum posting here, and there were a couple of pages of comments. Now there is so much activity, so many mums and dads in the same tough situation. Thanks to everyone for sharing

Partyof5now (Sonya) - 213 days ago.
mommy2e - what great news! Congrats on your newest little one =)

mommy2e - 214 days ago.
Hi all, Just wanted to post an update. We were diagnosed with mild vent at our 20week us. From there we went for lots of followup us and an MRI which all showed slightly enlarged vents (anywhere from 10 -14 mm). We gave birth to a beautiful baby boy 2weeks early and he is perfect in every way! The pediatrician at birth referred us for an ultrasound 2 days after birth. After agonizing about the results, we were thrilled to hear today that the ultrasound was completely normal and no further follow-up will be required (just well baby check-ups). What a relieving feeling after so many months of turmoil and worry. Just wanted to share our story in hopes that it gives someone a little fuel to keeps going, as I know this board helped us get through our situation many times.

laila10 - 214 days ago.
Thanks everyone, Aug2811, MadiNashtonsmos and Turtulemom for your support. I did all procedures for her, that docts asked me to find out the reason for the seizure, and it seems that like Turtulemom said, it is an isolated condition, they told me that some babies can suffer that and it goes by time!! it was terrifying!! Hope she can recover soon!!

aug2811 - 216 days ago.
b11_0126@hotmail.com generally Dr's recommend for an MRI to get an exact picture of the vents size and whats causing . my child had similar measurement as of your child.i had MRI too. So talk to your Dr.

b11_0126@hotmail.com - 216 days ago.
Hi Aug2811, I haven't had an MRI yet. Just ultrasounds (about 6)

Aug2811 - 217 days ago.
Did anybody bank Cord Blood with Stem Cyte?

Aug2811 - 217 days ago.
b11_0126@hotmail.com did u had an MRI. what did they tell u