Ventriculomegaly

How can ventriculomegaly affect my child?

Comments: Ventriculomegaly

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samismum - 327 days ago.
Eyebaby, my goodness, everything you are going through and still finding the strength to help other and making them feel better!!! May God bless you and your family and especially your new baby to come. I pray to God that your baby be the best it can and perfect in every way. I wish I could be like you, you truly are an inspiration. I have decided to have this baby, it's not as bad as they are suggesting is it? Eyebaby, I don't think it's about lying to yourself or being in denial, it's about faith and mothers intuition. I think a mother knows. My gut feeling about my baby is that he will be completely normal and that he may have learning difficulties academically later on. I feel that he wont have any problems walking talking or emotionally etc, am I lying to myself? I don't think so. I feel so positive today and this forum is a godsend. I can't beleive what I was considering just a few days ago. Now that the intial panic is over, I know what I have to do. I'm having my boy. x

eyebaby - 328 days ago.
by the way, I have gone through all the bad feeling, hysterical crying when I was first told about the worst outcome by my doctors. I was crying so badly that I didn't eat well. Doctors really do not know what the outcome will be (only God knows), they told us the worst outcome to protect themselves. I can understand why they are doing that.

eyebaby - 328 days ago.
hey samismum. I am now 36 week and my baby's ventricles went from 10 mm (20 week) to 14 mm. I was told that she could have lissencephaly (in that case, my baby wont be able to develop further than a 3 month old kid and will be wheelchair bound for the rest of her life with seizures). I was devastated but my husband encouraged me that no matter what we will take care of her and love her. I am now putting this at the side coz I will have her delivered in 2 weeks' time. Friends around me have been praying for us. In my gut feeling, she does not have lissencephaly (am I just lying to myself?) We will find out after she's born.

laila10 - 328 days ago.
samismum. My baby is doing very well like any other normal one, she only having hip dysplasia (no relation with VM) thanks God,but docts told me, and it is obvious, untill the age of school u can´t tell how developed is she, I mean u can ´t be sure about the problem of learning difficulties. ? pls don´t panic, docts are saying the worst they think. they told me as u that I ´ll have a baby with Down Syndrome, specially that I ´m over 35 years. I was scared and I was willing to die before having my baby. believe me that when I delivered my baby I wasn´t able to look at her, coz of all those fears of being abnormal, all what docts said made me think that I´m a mother of a rare thing, I can remember all those awful feelings which made that my breast milk dried in very short time, I couldn´t breastfeed her coz I was very depressed and crying all the time. (Breastmilk is the best in cases of VM, it contains high amounts of DHA). Only faith could help me. now I ´m dedicating each minute in my life to my little one to make her feel how much I love her, praying all the time, trying to be positive. because every thing that happens in this life has a reason. Trust God. Just a question can u tell me what do u mean with six months born baby delay???? is that an outcome of enlarged venticles? just let me know to ask my docts about that in her next control. If u have any question feel free to ask me.good Luck

samismum - 328 days ago.
Laila, can you tell me if your baby is alert and does she recognise you? Does she lift her head? Does she try to grab things within reach? Does she look around?

samismum - 328 days ago.
Thank you all so much for you comments. They mean so much to me in this hard time. Eyebaby, I really don't have high expectations, a six month delay or learning difficulties or down syndrome is totally acceptable. My husband is on the same page as me, we don't want to watch our child suffer in life. We don't want him to suffer the indignity of a nappy change as an adult or teenager. I just have no idea how handicap he will be. Am I imagining that it will be that bad? I just want reassurance that it won't be that bad I suppose. No doctor has told me that there may even be a chance of a normal life but judging by stories people have to tell on this forum, there is a chance, is there? Could my baby be completely normal with 15 or 16 mm vents? I really don't wish to abort if I'm honest but when docs are telling you that it may me an option, then I think that they are only suggesting it because things are very bad. Are they as bad as I am thinking. I'm so worried I'm going mad.

laila10 - 328 days ago.
hi samismum. I konw you are facing a difficult time, but believe me many moms in this site had worse cases, but the outcomes were perfect. I only can say to you listen to ur mother instinct, ur lovely baby is a big one now. My baby girl had the same measurments during my pregnancy, she is now 6 months still having the same measurements,I´m still not sure about the outcomes of this problem, but she is the joy of my life. I was asked also the same option ur having now, I was about to do that but my mother gave me a big advice: not to be selfish, your baby has the right to live as well as u, God doesn´t give anyone more than he can handle. Trust God, it is the only way to solve this dilema. I wish u good luck to make right decision and have peace of mind, the only thing that I can tell u and to all moms in ur situation: love ur baby whatever happens to him, he is a part of u. although he is a very little one he can feel everything, he can´t talk to tell u his opinion about terminating his life or not. no one has the right to decide for the life of anyone. I know it is a personal decision, but I only wanted to tell my experience. All the best!!

eyebaby - 328 days ago.
hey samismum, your son is already 29 weeks old, he's pretty big now. how does your husband think? it really depends how do you and your husband feel. If you both have very high expectation, termination could be an option. But after all, he's your son and you must make sure you do not regret it in the future thinking that he could be normal. It's really a personal choice. In my country, we can't abort after 24 weeks of gestation. In a way, you are lucky to have an option now.

lin - 328 days ago.
samismum- personally i would not abort with isolated ventriculomegaly and your babies vents compared to many others on this forum seem to be on the lower end as far as how enlarged they are. My sons were between 10 and 12 the whole pregnancy and by 35 weeks at a scan they had corrected and he was born totally healthy. They also suggested termination at 24 weeks. There are a few other moms on here that can talk to you about your decisions and help compare your babies vents with their own and what their babies are like today. Hope you get some answers.

samismum - 328 days ago.
I am so stressed right now and considering a termination because of what the docs and consultants have been saying to me. Thank God for this forum because it's completely opened my eyes. I'm currently 29 weeks pregnant with my second child who is a boy. At my 20 week scan I was told my baby had enlarged ventricles 10.4 on the right and 11.6 on the left. I was then sent for a MRI scan at 24 weeks and they confirmed the same measurements. I was so releived at that point because the docs said that the outcome of Isolated Borderline Bialateral Vetriculomegaly was very good. I have just had another MRI and ultrasound at 28 weeks and the docs have said that the ventricles have enlarged to 15mm on the right and 16mm on the left and that my child now has severe ventriculomegaly. I'm going to have an amnio in 4 days, but they are suggesting that I end the pregnancy. I'm so worried and don't know how this will effect the baby if I have it. I don't know what to do. How handicapped will my child be? Do children with severe ventriculomegaly look different? Please Please Please someone help me. I cannot stop crying and I know this is not good for the baby. I love my baby and I want the best life for him. Can children with severe ventriculomegaly have normal lives?

two-on-board - 329 days ago.
Hi Piglet5432 - I have twins also, g/b twins. My boy has isolated acc and is developing normally too. I often think back to feeling as traumatised as I did and how dreadful everything felt and look at him and think how lucky I am and he is that everything, even when things feel bleak, is far far different to the way that I thought things were going to be. It is so difficult to get things into perspective when you are so anxious and worried about how things might be. Thank you for posting your experiences, I know that reading about your little girl would have made me feel loads better XXX

Piglet5432 - 329 days ago.
I was going through some old bookmarks and I stumbled upon this site. It almost made me laugh thinking about the day I came home from the doctors and frantically began searching my daughters prognosis. At 17 weeks pregnant with fraternal twin girls I found out something was wrong with baby A. She has enlarged ventricles (3rd and 4th), some issues with the corpus callosum and cerebellum and fluid in her frontal lobe. I WAS DEVASTATED. We were told out daughter would likely never walk or talk. I am proud to say that at almost four Abigail is doing miraculously well. She walks and talks and is way smarted than the typical four year old. She has enlarged 3rd and 4th vents (still), some agenesis of the CC, hydrocephalus and a fused cerebellum (rhombencephalosynapsis) and despite it all she is a rock star. She is a little slower (motorically) than other kids and her fine motor skills are behind but all in all she is doing wonderful. I urge you all to be positive. Trust your faith and your gut and how you feel. Question the docs when they give you shades of gray. Being proactive in our daughters treatment was huge for our family. If anyone would like to contact me fee free to view my daughters blog (http://rhombencephalosynapsis.blogspot.com/) or e-mail me (Piglet5432 at gmail dot com).

nschaffnit@yahoo.com - 330 days ago.
Hello, new here and love the site so far. I am 26 weeks pregnant with identical boy twins. Baby B has enlarged ventricles, around 18mm currently. They were around 12mm three weeks ago which is what really has me scared. He has no other problems expect a velamentous cord insertion (comes in on placenta membranes instead of directly into placenta) He is maintaining his weight, only 5 oz smaller than his brother who is 100 normal. I had a fetal MRI done with nothing further discovered. My MFM is suspecting aqueductal stenosis, basically a plumbing problem past the third ventricle which is also enlarged. I guess my question to you all would be, do I get the amnio? It will tell us if it is a chromosomal problem or not and will help determine if I go to full term or not. Basically if his condition worsens so that he needs to come out early it puts his brother at risk also being a preemie. But if it is such a problem that he will not live after birth then I'd rather carry them both as long as I can. I'm so torn. I know God will not give me more than I can handle and our pediatrician does Cranial Sacral Therapy and Osteopathic Manipulation Therapy so he will be in fabulous hands when he is born. The not knowing is stressful but the knowing may make the stress worse. Any advice???

daniellepittiglio@hotmail.com - 330 days ago.
hello everybody, im new to this. had my 20 week scan 3 weeks ago and baby venticles were 10.8mm a week later they were 9.2mm and then yesterday when i went back they were 10.8mm again the consultant has offered me amnio and mri scan and i jst do know what to do!! Any advise?? x x

eyebaby - 331 days ago.
the doctors said they cannot tell now but even if my baby has liss it wouldn't be the worst type. they want me to do a MRI just 10 days prior delivery but i'm very scared

turtlemom - 332 days ago.
I just re-read your last posts. What did they say about Lissenchphaly? That is way more important than vent measurements!!!!!

turtlemom - 332 days ago.
Eyebaby, 14mm is still mild, especially since you are so far along. The further you are, the harder it is to measure. Even if things start to develop, it is likely there is not much damage b/c there isn't pressure. You will just have to see how your baby acts once he/she is born.

EmelC - 332 days ago.
eyebaby, what does your doctor say about it?

eyebaby - 333 days ago.
hey it's me again, I have my baby girl whose ventricule size 10mm both side at 20 week and slowly increasing to 14 mm now at 34 weeks. anyone has the same experience? it's always increasing which makes me to be very worried.

EmelC - 343 days ago.
turtlemon thank you. Doctors are usually very keen on not telling us other good possibilities. My boys VM went down now 9-10 mm. most (a month ago it was11mm) We feel really happy. Our journey has not finished yet but now I know things can be just fine.

turtlemom - 343 days ago.
Most people find vm around the 18 week scan. If you go far enough back through the comments you will find this to be the case. Also, I've posted the link before to a site that shows that vent measurements under 12mm wind up normal in 97% of cases and when they are 13-15mm they are normal in 77% of cases.

EmelC - 343 days ago.
So my amnio is fine thank God!.. Today I'm gonna see the doctor. I'm 20 weeks pregnant now. But I think I should not expect a corrected VM yet.

monale123 - 344 days ago.
Hi Lin, our daughter's VM also corrected at 35 weeks and while they thought she had a club foot, she actually didn't. They also told us that the two were not related because talipes is quite common, but that if the baby had VM, no corpus callosum (which they thought at first) and talipes, then the talipes could possibly be an indicator of a neurological issue.

EmelC - 346 days ago.
Dear lin, Your doc is right of course. They don't have to be related. As I searched from the internet for you, it was happening 1/1000 cases and baby boys have it more than baby girls. And as I could understand it can be fixable if starting to cure it as soon as the baby was born. Also I am curious about something. Most of you found out your VM late of your pregnancy. We have found out VM when I was 16 weeks of pregnant. Do you think it is a bad thing?

lin - 347 days ago.
Curious to know how many people have had VM and clubfoot (talipes) diagnosed together. I seem to be hearing lots of association between the two, my doctor told me they were both isolated conditions and not related, but my son had vm that corrected at 35 weeks and a left club foot.