Ventriculomegaly

How can ventriculomegaly affect my child?

Comments: Ventriculomegaly

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twinbabyboys - 417 days ago.
Enya how many weeks are you? I feel ur pain. We just found out the same for one of my twin boys. I feel lost and helpless. I go in tom to check again to see how things are going. I don't know how I'm keeping sane through all of it. There are some great people on this website that have already helped me. I wish you so much luck. :(

enya1292 - 417 days ago.
Hi everyone, new here and happy I found this forum. We had our anatomy U/s last week and found that our daughters ventricles are enlarged. One is 15 mm and the other is 13. Nothing was said during the ultrasound, it was only after we went in to see the doctor (so for a blissful 5 minutes I thought she was going to be ok). The Dr. referred to my upcoming visit to the perinatologist for this as "Dotting our I's and crossing our T's". He didn't seem concered I hope he was not lying to me and putting on a face then sending me out for someone else to deal with. Though I will say, happily, he was adamant that there were no other deformities seen. He and the sonographer both looked it over. The stuff I have read online ranges from awful/death sentence to no big deal. She is at the border of 'mild' with the 15 so I am really concerned. It was an awful christmas and I have been holding back tears the whole week. We are scheduled to see a perinatologist this Friday. I am scared, angry and sad all at once. We had undergone in vitro w/donor egg to get this child, too. I have gone through a month of listening to her little, strong heart on my doppler. I have spent the last week looking at her very pretty face on the 3d image. I am devastated beyond belief and afraid of losing her. Good thing I ate all that protein and Omega/DHA during this pregnancy (har har har). :-( I dont' know what I did for this to happen. I am so scared of losing my little girl, of it being serious. I pray every night and my husband really thinks it will be ok, but I am having a really hard time with this.

twinbabyboys - 420 days ago.
Hello all. I'm so grateful I found this site for some support. I am 20 weeks pregnant with identical baby boys. We just found out that one of the boys lil brAin measures at 12 and 13 mm. I went for an MRI yesterday but will unf have to wait till Monday for results. At this point I'm just trying to keep sane....hoping for the best and looking for some information and support from mommies that are going or have gone through the same thing. Happy holidays to all of u.

nordic - 421 days ago.
My little boy is now 2 and a half and doing great. Speaking 2 languages now. Mariska, sorry about your friend, such an impossible decision. What I have heard about migrational problems is that the neurons don't move to where they are supposed to, so not great. Doctors are not always right though. For all of those facing a tough Christmas hang in there. Things might turn out just fine and you might be surprised at whatyou can cope with

laila10 - 421 days ago.
I wish u all, great moms of this site, happy Christmas. All the best for our little ones, they are gorgeous and they will never give up!!

lin - 425 days ago.
Hello everyone! its been awhile since I have been on here and do not know many people anymore! Great news...Im expecting our third baby!

ana30 - 426 days ago.
Hi all, wanted to give you some update. My son celebrated his second birthday. He was diagnosed and born with mild VM, choroid plexus cysts and some permanent brain damages (as a result of stroke in uterus ... or who really knows???). He has been developing perfectly 'normal' and has never had any health issue. I like to emphasize he was very big baby (some doctors see relation between larger ventricles and VM in baby boys. All the best , marry Christmas and happy New Year

partyof5now (Sonya) - 430 days ago.
mariska - sorry I have never heard of that before, the VM measurements are large but there have been quite a few babies with larger on this forum that have turned out fine. Has she asked for a second opinion? They told us my son had colpocephaly & VM when I was 29 weeks & they recommended us to term him but we didnt...he just turn 1 yr last month & is absolutely healthy...you can read about it in my blogs. I hope your friend finds the answers she needs & everything turns out ok.

mariska - 431 days ago.
Hi all, I have got a friend in need. She had the results of her babies MRI and the baby has been diagnosed with migration disturbance (I am not sure if this is the right English word) in the brain. She has to decide this wednesday if she will continue or terminate the pregnancy. All other results (genetic, blood et.c) were fine. Ventrigomegaly of 19mm. Please help!! (please be aware that I had a son born with VM 2 years ago and he is perfectly healty. But I do not know anything about this matter. Any one?

partyof5now (Sonya) - 431 days ago.
MarieG - such an amazing outcome, so happy for you! LDMusgrave - Congrats on your newly arrived little one, glad to hear everything is going good...please keep us updated on her progress...going to have to post some pics so we can see her :) momto2 - Glad to hear everything worked out & your little is so healthy....please keep us updated as well :) Babies sure are such amazing little ones arent they!

momto2 - 432 days ago.
I just wanted to give a update on the outcome of our pregnancy as we now have a healthy, happy 7 month old boy! We were told at the 20 week ultrasound our baby had mild ventriculomegaly ranging from 11/12 to possibly 14 at one point. The pregnancy was extremely stressful and full of tears and consisted of one ultrasound after another until about 33 weeks, when everything went back to normal range! After that, the doctor just followed up after birth with a head ultrasound. All of that stress and he is a beautiful, extremely happy baby! It was such a comfort to read about other people's experiences and hope someone else feels comfort in reading about ours!

LDMusgrave - 433 days ago.
Hi everyone. I'm typing this up on my phone from the hospital bed. Marlena Nichole Musgrave was born at 5:18 PM on December 7th. She weighed 7 lbs 13 oz and was 19 1/2 inches long with a head circumference of 42 cm. She received a VP programmable shunt about an hour shy of her being a day old. She is currently doing well. She is on room air, cries when she's not happy, has great eye movement control. We are currently working on getting her feedings going well. She is taking a bottle, but still is getting the hang of it. She is perfect to me. Her little misshapen head has a couple spots of bone protruding it seems like those weren't there before surgery and her head is a bit mushy in the back now which is a good sign I think.

MarieG - 434 days ago.
Hi Guys, I thought of you all today as I was cleaning out my emails and I found a very sad email I sent to my former OB in Hk asking him for advice as I was not getting the help and assistance I needed in Singapore when I was having my son last year. It made me cry. Anyway, for those of you who may not have seen my story pages and pages back, I have a little boy who is 17 months old now. Well what can I say. He was diagnosed with a missing CC, enlarged lateral vents, dilated kidneys, too much amnio fluid and I was told to terminate him at 26 weeks. To cut a long story short, my son and I then had an MRI and his condition was isolated to dilated ventricles. However his vents went from 10.8 at 24 weeks to 19mm at 35 weeks. The doctor brought him out at 36 weeks via C section (I live in Asia they give C's at the drop of a hat) to 'help' him and if necessary have an operation, send him to ICU. There's no mistaking it, this was possibly the darkest time of my life. Anyway, he was born and within 10 minutes the AMAZING doctor had scanned him and said he was FINE!! They monitored him for 1 year with scans (yes, it was stressful too) and then they told me to go away as he was fine and his vent were 9mm and 8mm. Today my son is 17 months old. He is doing everything he should be doing, early! He is a beautiful boy, the light of my life. He brings me amazing joy in my life. In a crazy kind of way, this experience was a gift. It made me stop and see what a beautiful family I have and how lucky I am . I am very blessed to be able to enjoy my children. I know that some of you are staring into the abyss that I was 18-months ago. I can only try and offer you some comfort by saying that in most cases of enlarged ventricles, once your baby is born you are going to find that there is no issue at all. God bless and have a great christmas all.

partyof5now (Sonya) - 435 days ago.
Big Cat - so glad to hear everything worked out for your little one...its such great news & sure to give hope to others that come along & find this site :) Its so needed at such a scary time

Big Cat - 436 days ago.
Hi All, I found this website a while back when our baby boy was diagnosed with unilateral vent at 12.5mm. I told my self that Id come back and post an update once he was born which could offer hope to everyone else. To cut a long story short, his vent was 10.5mm at the 20 week scan, we were then referred to OXford JR where his vent had increased to 12.5mm. All the normal 'reasons' were provided etc for it's cause. I did some research of my own and asked my wife to start taking Udo's Choice Blend Oil, rich in Omegas and other things and also to start eating walnuts. These two things are very very good for brain development. Now whether these had an affect on him or not, but at his 32 week scan, his vent was back down at 6.9mm. He was scanned right after birth and everything was as it should be. People have commented that he is extremely alert for his age, (now 3 weeks) and is probably ahead of his milestones. It's a tough thing to go through and anything that could be tried, we tried and thank God that he is fine. Hope this little story helps! BC

partyof5now (Sonya) - 445 days ago.
Congrats Jess2008 on your new little one!

partyof5now (Sonya) - 445 days ago.
laila10 - Hope your little girl recovered from her respitory issues, did they do an MRI on her after she was born to see clear measurement of her vents? Dont blame yourself...things just happen for no reason sometimes, as it did in our case as well. If it was unexplained & no other abnormalities then there is a good chance everything is going to be fine...just love & enjoy your little precious bundle of joy. I know it doesnt stop us from wondering down the road if something pops up if it is connected, I have done that myself. Just love your little one & will be thinking of you guys, please keep us updated on her :)

Two-on-board - 445 days ago.
Hi Jess2008! Great to hear an update, and congratulations on your new baby boy! XXX

jess2008 - 445 days ago.
Been a long time since I've visited this page! I see some of the same names here helping those who are searching for answers.....anyway, Gage had his second birthday in September and is really about the same as always just getting bigger...and cuter! He has been back on the ventilator for the past month due to his inability to get rid of co2.Hopefully he will be able to get back off of the vent during the day in December after his pulmonary appt. He's had a stable summer and I hate that winter is here b/c he always tens to get sick and ends up in the hospital! Jessica, Gage's mommy had a new baby boy in October! No problems really and he had no issues. What a difference! For those who do not know us Gage's story is posted on the profile page...he's not your average boy!

turtlemom - 449 days ago.
Hi Laila, These things just happen sometimes. There is nothing that you did wrong (stress and hair products had nothing to do with this!!!) so please stop blaming yourself. There is a really good possibility that everything will turn out completely normal with your little one. Praying for you!

laila10 - 449 days ago.
hello every body!! hope you are all fine! I was absent for a while coz I had my little baby last month tanks god we both of us are good now, but we had a bad time at hospital, she was taken to the NICU for 10 days coz of the VM 16mm and some respiratory issues. since then we ve been visiting the neurologist, he says that we have to keep watching the baby´s behaviour for a long term till five or seven years and repeat MRI twice a year! I ´m very upset imaging that I can find learning disabilities with my child in the future, till now I´m not aure about the cause of VM I was thinking that it could be the chemicals in hair removals creams or coloring hear creams that I was using during pregnancy or may be the stress (I had too much in my early pregnancy due to some issues in my work) I am blaming my self for any thing that I could done during pregnancy and it was harmful for her!!! I really don´t konw till what age of her I ll be watching for abnormal behaviors, pls moms that have experience with that help me with an answer.thanks a lot

scottishmama - 450 days ago.
I am so happy to have found this site. I had my 32 week ultrasound yesterday and they found that one of the ventricals had 15mm fluid in it which is obviously to much. I have been crying pretty much non stop since we found out. I would love to meet other moms who are going or have gone through the same thing.

LDMusgrave - 463 days ago.
Hi turtlemom, Parker's pre-natal story is so much like mine so far, I've been using it as a form of hope and guidance.Your daughter is just gorgeous and perfect. Your advice means so much to me. My husband was able to get insurance for us through Wal-mart. It isn't the best, but at least Duke will have something to bill if we can get this cord blood infusion process worked out, and not have to make an up front payment.

turtlemom - 463 days ago.
Hi Ldmusgrave, we delivered at 32wk, 6d. Parker's head circ was 43cm at birth. I think anything around 45cm is okay. I would keep her in around 1-3 more weeks. Make sure to get steriod shots 2 days before you deliver. You don't want lung issues (Parker did not).

LDMusgrave - 464 days ago.
They didn't tell me what her head circumference meant today, but I looked it up with I got home. A normal, term newborn baby's head circumference is between 33 cm. and 38 cm. So she is 32 weeks old in gestational age right now, and her head is technically that of a full term baby. I feel that the longer her hydrocephalus goes untreated, the higher the chance for her to have irreversible brain damage. I spoke with one of my genetic counselors today and she is discussing the u/s results with our MFM doctor to determine if a c-section would be best sooner than later.