Ventriculomegaly

How can ventriculomegaly affect my child?

Comments: Ventriculomegaly

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laila10 - 43 days ago.
Hello everyone!! I wish you all a happy new year, the best for our little fighters. Did anyone here have a problem with her baby with VM to walk?? My little girl is now 15 months, but she still can´t stand up or try to walk.She is on physiotherapy, but Im afraid that this retardation could be related to her VM ??? any opinion??

taughy_gal_belfast@hotmail.com - 44 days ago.
hi katie congratulations hope all is well :) i have a big scan next week with my constultant to measure the vents have been so positive lately bt can feel myself going back down thinking to myself is it because i binge out sometimes on crisps and chocolate?? is it because wat i like to drink( lucozade) as am addicted just a lot of things going over in my head :(...does any 1 kno what the chances are??? vents measred 10.3 mm everything else looked normal just dont know what to be thinking go for a re measurement next week and i am so nervous..if vents measure the same well be signed of at the fetal medicine and just have to wait unto our little man is born ???

lcasp436@yahoo.com - 46 days ago.
Hi there everyone- I have been reading your stories for the last couple of days and they have been so encouraging. It's amazing how much love is out there. Anyway, I just went in for my 19 wk us and found out my little one's ventricles are 12mm. In addition, the dr. Also found a small hole in our baby's heart. I am referred to a geneticist for another us and amino and we are so scared. Have any of you had or heard of these problems co-occurring?

timmpierce@gmail.com - 47 days ago.
Does anyone know if taking antibiotics (for a bad cough/cold) might exacerbate the VM? We are obviously going to consult our OB on this, but are interested in any opinions.

blessedBlessy - 50 days ago.
Yup. That's why I was confused. that's what they wrote in the findings. Ventriculomegaly 3.1mm.. I don't know if they meant the size, or the excess (from the normal).. Oh I remember the OB told me about ME having LESS water for the baby to float in.

turtlemom - 50 days ago.
Hi Katie, Congratulations! I'm glad things went well with the birth of your boy! It sounds like he has just slightly enlarged vents and things are probably just fine. It is a wait and see situation, but more than likely everything will be just fine! Try to relax and enjoy your baby without worries! So happy for you!

LDMusgrave - 50 days ago.
Lateral ventricles are normally 10mm or less, so a ventricle measuring 3.1 mm wouldn't be ventriculomegaly. Now if it's 31mm... that is.

blessedBlessy - 51 days ago.
thanks katie! i'll consult with my doctor about increasing DHA dosage. she only gave me fish oil/omega 3 for that. by the way, in the ultrasound, what they wrote in the findings is this: Ventriculomegaly 3.1mm... im not sure what the 3.1 mm means..

katieandiggy@tiscali.co.uk - 51 days ago.
Turtlemom- I'm looking for your opinion. As I said below me son was born today, they sent him for his head scan with the pedi. On my ultrasound the left ventricle was measuring around 11mm. Today on his head scan it was his right ventricle that was measuring 12.5mm and the left normal.... Now I'm wondering if they made a mistake with left and right on ultrasound or if one went down and the other went up. Anyway they had a good look around the brain and everything else looked normal, no cysts or anything and they said the flow of fluid looked fine. I'm wondering your thoughts? They don't seem to concerned at all, they want to measure his head once a week and rescan in a month.

CiaMom2011 - 52 days ago.
I am now 5mnths pregnant with twins and im so scared 2 do the tests they are too stressful but my gynae is saying everything is fine 4 now but he wants to do more test. Im praying 4 evrythng 2 be fine ths time

CiaMom2011 - 52 days ago.
Im new 2 ths site bt t has helped a lot when i was pregnant with my firstborn who is now 3. Drs said he his ventricle were large when i was 5mnths pregnant. Most drs suggested termination but there was 1 who gave me hope now i have a healthy 3yr old boy who is growing and developing well.

katieandiggy@tiscali.co.uk - 52 days ago.
I have also just had my son by vaginal delivery. He weighed 9lb 8oz. His head is totally the normal size at 37cm infact it's smaller than my first sons head which was 39. They told me his head was on 97th centile. He looks perfect in everyway. He has been looked over by a pedi and will have a scan at some point. I will update with the results. Merry Christmas all x

mohana_desilva@hotmail.com - 52 days ago.
Hi everyone, I gave birth normally to a little boy on 11th December. He looks normal & his head doesn't look bigger than my other kids. They've got him booked for a MRI on 17th Jan. He is a hungry boy like his older brother & is gorgeous. Just need to wait on his MRI scan & they've downgraded me to a pediatrician. I was seeing a neurologist while I was pregnant. Not sure if increasing my DHA intake helped.

katieandiggy@tiscali.co.uk - 53 days ago.
Blessed- at my last scan my consultant could not see any evidence of enlarged vent. I have been taking a high dose of DHA/EPA 4,500mg of which about 1000mg is DHA. I don't know if that has worked or it's coincidence. I thought anything was worth a try.

blessedBlessy - 53 days ago.
by the way, they didn't indicate the measurements. but my doctor mentioned that it's 2 weeks ahead of her age.

blessedBlessy - 53 days ago.
Hi, turtlemom! thanks for the reply.. i really appreciate the stories here. by the way, they didn't tell me whether it's lateral or not.. they also did not put the measurements. =( No schedule for MRI yet. The OB just told me 'let's hope for the best.' I actually just switched OB recently since we decided that I give birth here in my home province. It's just my husband and I in the city where we work, so no one could really take care of me esp when my hubby's at work. Maybe that's why the OB still didn't advised an MRI. We're really worried, and hopeful at the same time. To those whose baby's vents reduced, I just wanna ask what did you do that may have brought the reduction in size.?

LDMusgrave - 53 days ago.
Happy Christmas to you as well, Tim.

timmpierce@gmail.com - 53 days ago.
Hi everyone, just an update on our situation. We had another ultrasound yesterday and we also looked over the results of an MRI we had 2 weeks ago. It seems to be very hard to determine the exact size of the vents, so far this is what we know -> 32 weeks Ultrasound LV = 14mm RV = 14mm, 33 weeks MRI LV = 11mm RV = 16mm, 34+5 weeks Ultrasound LV = 9mm RV = 16mm. So although the last ultrasound we had yesterday seems to show a slight improvement in the left ventricle, I think the MRI scan was probably a little more accurate. The MRI scan also revealed a very small case of 'heterotopia' in the right ventricle, which may or may not be related to the dilation. Apparently this is often associated with epilepsy, and considering my partner has mild epilepsy this does seem to suggest a genetic component to all this (but she turned out pretty well so perhaps it isn't so bad after all!). The doctors have been telling us that there's still a good chance everything will be fine, but we are preparing ourselves for the chance that our son will be born with learning difficulties and/or seizures. It's not easy, but I was always told to 'hope for the best & prepare for the worst', so that's what we're doing! All the best & happy Xmas to all, Tim.

turtlemom - 54 days ago.
Katie, I can't wait to see pictures of your precious baby! Good luck and update when you can. Thank you for the sweet words!

turtlemom - 54 days ago.
Welcome, blessed! Did they happen to let you know the lateral ventricle measurements? Are you scheduled for a MRI? Blessings to you and your baby!

blessedBlessy - 54 days ago.
hi everyone! i'm new here. i was actually searching about ventriculomegaly since i just found out that my baby has it. the discovery really saddened me and my husband. i had an ultrasound at 23 weeks but it's all ok. however, just this week (at 32 weeks), i had another ultrasound. this is where i found out about my baby's condition. my OB just advised me to have more rest, eat healthy food, take vitamins... to all the mothers who experienced the same, i would also like to ask your advice on what to do to help m baby.. thanks!

katieandiggy@tiscali.co.uk - 55 days ago.
Mommy23soon- that is just excellent news I'm so happy for you both! I agree, thank you Turtlemom for giving us all hope and making us feel less isolated and alone. You don't know how much your positive words have helped me. I'm going in hospital first thing in the morning to have my little boy, I'm excited and nervous. I will update on his situation once I know more.

turtlemom - 55 days ago.
THat is awesome news, mommy23soon! I'm pleased as punch for you! Please check in here and let us know how things are going (when you can) after they arrive. My best friend is 26 weeks along with twins and I can't wait for them to come (actually, she is on bedrest, so I do want them to bake quite a while longer). So, I wish you and her well with your multiples!

mommy23soon - 55 days ago.
We had our specialist appointment today - and I am very pleased and relieved to share our good news with the forum tonight! At 27 weeks one of our twins was diagnosed with ventriculomegaly (with vents measuring 13mm and 16mm), we were sent to a specialist and we have been monitored every two weeks by ultrasound. The vent measurements over the last few weeks have been decreasing, they went down to 12mm and 14mm, then 11mm and 13mm, and today they measured 8.9mm and 9.8mm (I'm currently 32 weeks)!!! We are VERY happy with today's news, it was like an early Christmas present for us! We wont be seeing the specialist anymore, as we have been released back to our regular OB - we will be having a follow up ultrasound of the ventricles after the birth, but like I said, we are so very happy with today's news. It has been an uncertain and scary few weeks - but I just wanted to share some good news. Vent measurements do and can decrease in size, before and after birth - I didn't think that was going to be the case when we were told a few weeks ago, but it did happen. I also want to thank mom's like turtlemom, her experience and positivity made the last few weeks seem more bright for us here - even if the vent measurements didn't return to whats considered 'normal' - her words and story made my husband and I realize we would be able to handle what ever happened with this baby. I will update after the babes arrive, good luck to everyone and thank you to all who shared their stories!

CJENGO - 57 days ago.
Cheffreda - I stayed with the same doctor but I was consdered high risk. I was seen every two weeks. I also saw a perinatologist once a week.