jamie -
541 days ago.
My heart goes out to all of you that have lost a child to SIDS...My cousin's 3 month old just died today..so tragic
julz -
744 days ago.
FYI there has been a SIDS breakthrough!! ....Dr. Hannah Kinney in Boston has been studying the serotonin levels in the brains of SIDS babies!!! http://rss.msnbc.msn.com/id/35204455/ns/local_news-san_diego_ca/ It has been on the news and the Today show. After all these years they finally may have found an actual cause!!!!
julz -
946 days ago.
I gave birth to Tymarion Al Tate, he was a gift sent to us by our angel Arihanna. We are so blessed, she sent us the perfect addition to our family. Ty has been getting quite a few pokes while he's sleeping, we have an angel care monitor for peace of mind, buit we have to have faith that everything will be okay. I still miss my Ari so much!!!
melissao -
1013 days ago.
Happy Mothers Day Angel Mommies
A Mother's Day Wish From Heaven
Dear Mr. Hallmark,
I am writing to you from heaven,
and though it must appear
A rather strange idea,
I see everything from here.
I just popped in to visit,
your stores to find a card
A card of love for my mother,
as this day for her is hard.
There must be some mistake I thought,
every card you could imagine
Except I could not find a card,
from a child who lives in heaven.
She is still a mother too,
no matter where I reside.
I had to leave, she understands,
but oh the tears she's cried.
I thought that if I wrote you,
that you would come to know
That though I live in heaven now,
I still love my mother so.
She talks with me, and dreams with me;
we still share laughter too,
Memories our way of speaking now,
would you see what you could do?
My mother carries me in her heart,
her tears she hides from sight.
She writes poems to honor me,
sometimes far into the night
She plants flowers in my garden,
there my living memory dwells
She writes to other grieving parents,
trying to ease their pain as well.
So you see Mr. Hallmark,
though I no longer live on earth
I must find a way,
to remind her of her wondrous worth
She needs to be honored,
and remembered too
Just as the children of earth will do.
Thank you Mr. Hallmark,
I know you'll do your best
I have done all I can do;
to you I'll leave the rest.
Find a way to tell her,
how much she means to me
Until I can do it for myself,
when she joins me in eternity.
~JODY SEILHEIMER
Heartfelt Words by Jody
In Memory of Her Son, Cory
julz -
1124 days ago.
Thanks for the comment. I am pregnant now, I am now 13 weeks, I think Ari was able to hand select our new little one, and sent him or her down to us when she felt we were ready. Lots of luv & hugs-Julia
Bri -
1124 days ago.
Ahh julz - Happy Birthday Arihanna! I know she is missed by you all. She has made you a strong person. I know you were trying to conceive again, how's that going by the way! I'm sure Arihanna would have loved to have a baby brother or sister!
julz -
1124 days ago.
Tomorrow is my Sweet Angel Arihanna's 1st birthday, she was born on January 20, 2008 at 4:50pm. SIDS took her away from us too soon, we miss and love her very much, her memory will live on as long as we remember her. Please take a moment and think of her tomorrow. Lots of Luv & hugs-Julia
crabscanfly -
1179 days ago.
I would be concerned and worried about having my baby around smoke from the fire place. i personally wouldnt have my baby around it, but i dont think once in a while would hurt, just have a window and a fan going!!
Heather-08-01 -
1180 days ago.
Hi everyone =) I want to get your take on something: I'm completely terrified of SIDS, I know we all worry about it, but I seriously don't even nap anymore during the day because I have to check Beckett so often. We have a wood burning stove in our home (as well as typical HVAC) but I started thinking about the smoke and particles not being good for him. I looked it up of course and there is some evidence that wood fires can be a risk factor for SIDS. So, now I'm all freaked out and ready ban the use of the stove for the winter. Am I overreacting here or have any of you heard this too?
julz -
1180 days ago.
Aww..thanks sweetie, you are great. I lovbe that you and your sis are doing so much to help people be aware of SIDS. We had our first meeting to plan Our Memorial benefit for Ari, it's not until March, but it's going to be huge, I am so excited!
crabscanfly -
1180 days ago.
Im good to go, today me and my sister are teaching more pregnant ladys about SIDS, we are acutally getting the up todate videos that they have so we can show other ppl. I enjoy my time helping my sister educate other ppl about SIDS, As Its Number 1 killer in all infants. And when SIDS does Happen, you cannot save a baby from SIDS. Thats Why they call it. Sudden Infant Death Syndrome.! if you didnt die, they wouldnt have death in there. I know you can put the child on life support. but i couldnt possible. make that choice, of makin it harder to let go.
Julz- Your good to go, and we can get through this. :) We are doing a candle light memorial, In loving memory of all the babys that passed away, i will light a candle for your lil gir :)
julz -
1180 days ago.
Oh I wasn't trying to argue. I was just trying to give people a vision into what I have learned these past 8 months, which is what crabscanfly is doing too. I guess the reality of it is that when SIDS happens there is nothing you can do about it. Not to scared anyone, but there have been time when the parents were holding their child and they did CPR right away, but they were unable to bring their baby back. I wasn't judging cathymays, I know that she has been thru the same terrifying experience that I was thru but her child made it and I am go glad that he did, I really hope I didn't hurt anyones feelings, I was just saying that I have heard of this and it is called ALTE, I have only heard of one other woman who this happened too and it seems your stories are very similar. I would never want anyone to go thru what I have been thru, to bury your baby is just unnatural and as a SIDS parent I get frustrated with the stats and the theories. I guess over these past 8 months I have learned so much, and if the knowledge I have gained will help one family understand SIDS, then I have done my work and made my sweet Ari proud. And I know that's what crabscanfly is doing too, in honor of her niece. I really hope I didn't offend anyone. Lots of Luv & Hugs!
crabscanfly -
1183 days ago.
Well then I dont no, Im Just gonna follow up on Whats SIDS Canada and America have to say about SIDS and their latest research that they have learned about it. If you want to learn more, they are starting a course online!!! Theres alot of ppl that did everything right, and i guess you cant stop it. i dont no why they are saying race or any of that, but i guess they need reasons to back up there answers and .some kind of evidence. so i have no idea, , .... Its whatever they are researching on, .. Im not arguing iam just saying the stuff that i have learned so far, from what my sister has learned. and the parents that she has talked to that tryed to get there baby to survive, when they had to unplug life support.
Bri -
1183 days ago.
Ladies, you are arguing over symantics. Because cathymays was able to save her baby doesn't make her story less important. Whether it's called near SIDS, ALTE or Thank God she was there! It doesn't matter. What matters is that her baby was saved and she is looking for other parents that this has happened to. I feel for her family. To have lost sooo many babies in their generation is really sad. I feel for Julz, we've talked in the past and I don't know how you cope. You are an amazing women. I would at a loss if I didn't have Kekoa. Maybe a different page is needed but her story is real and for now this is the closest place for her to post it.
julz -
1183 days ago.
I wasn't saying that ALTE was near SIDS, it's just what they used to call it, because they didn't know what to call it. ATLE, is very similar to sleep apnea. SIDS and ALTE are two totally different things. I have met SIDS parents who's babies were able to be revived, but even on life support they could not survive, the doctors call this interrupted SIDS, and when the baby eventually dies it is ruled as SIDS or SUID. When a SIDS parent goes on to have other children they do share a greater risk of having SIDS occur again, but the precentage of that risk is very low. My risk of having my subsequent baby die of SIDS might only be 1% higher than a person who has not had SIDS happen, but it all depends on the risk factors, I guess i get frustrated because they don't know what causes SIDS, so how are they going to tell me that my next child hasd a higher risk of dying of SIDS? Just like they say that race, financial status and residence location and the seasons make a difference. I feel like sometimes what they say gives people a false sense of security, that it won't happen to them, I did everything right and it still happened to me. they really need to work to find out what causes this so no more families need to go thru what we have been thru.
crabscanfly -
1183 days ago.
That still dont make no sense, when my sister went to the SIDS conference In Ontario. They had a A paremedic there That said her baby just about died of SIDS< and The SIDS Director Who Runs SIDS canada, Said there is no such thing as Near miss of SIDS,. There is different classifications Of SIDS, Sense 2000. They have changed alot. If i can get the info from my sister i will put it down here. They are trying to figure out when a baby dies from SIDS< What kind of cardiac arest they go into, because when an adult goes into cardiac arrest, They can be saved if your fast enough, So they dont understand why they cannot save a baby at this time. Because when a baby DIES, of SIDS, all their organs shut down, and they dont no how they can bring them back and they dont no what kind of cardiac aresst they go into either. they are also researching the saritonin in the brain, But then thats another thing, Thay also think it could be because they have low saritonin in the brain, but they can only detect if its low in a dead baby, and they dont no why they cant find out how low or high it is when the baby is. But there is no such thing as a NEAR Miss Of SIDS, and if you happen to take an online course about SIDS or go to a conference, they will tell you that, all the research is updated. sence 2000 And they have different classifacations for it as well. At one point they used to have 600 researchers for SIDS> But sense it cost alot to do research, they only have 60 on now. Also If you have had 1 baby die of SIDS> You have a higher risk of it happening again, I dont mean to worry anyone, But Its all the info i have at this time, as we are setting up to teach others in our community about SIDS , We are just taking around stuff that we have learned from my sister going to the SIDS Conference, and their latest research.
They had so much info at the conference, on what happens after you call 911 and everything that they do in a cornors office. You would be suprised!
julz -
1183 days ago.
~ I found this online, it was written by Tom Keens, of Children's Hospital in LA regarding ALTE, which is what sounds to be what your son has cathymays~
The terms 'Near-miss SIDS', 'Near SIDS', and 'Aborted SIDS' have been used in the past, and refer to ALTE. These terms are not preferred now because they imply that if someone had not come along (by chance) to resuscitate an ALTE baby, the baby would have gone on to die. For those of you who may have witnessed an ALTE, they are frightening to the observer, who often 'believes' that the baby is in the process of dying. However, many ALTE babies have a number of episodes, which they manage to survive, sometimes even before they receive treatment, such as a home monitor. SIDS babies, on the other hand, rarely had apneas observed prior to death, and death is usually the first sign of any 'problem'. Some SIDS babies had apneas observed prior to death, though the percent is very small. Some ALTE babies will go on to die from 'SIDS' (sudden death, no cause at autopsy), though the percent is small, even if they are not treated.
crabscanfly -
1183 days ago.
I would just Like to say, Remember, your baby is alive, you cannot survive from SIDS there is no such thing as a near miss of SIDS< If there was, everyone would have there babys today. You can be one minute 2 late and you still cant. Anyway, A SIDS baby does not turn blue right when they die, They turn blue a lil bit after they die, a baby that has sleep apnea Turns blue, There is tons of information if you go to SIDS Conference, that they have now, you would be amazed
cathymays -
1184 days ago.
I would like to tell you all about my little miracle his name is kadin adn he is 4months, i call him a miracle becasue he was. when i found out i was pregnant with him i had an iud inplace supposed to be 99.9% that i would not get pregnant but i did, when i was 15wks they found cancer cells on my cervix and had to srape them off giving me a great chance of miscarage but i carried him to 35wks. but that was nt long enough for his lungs to develop so he had to spend 8days in the nicu. but the real mircle came when we got home i was going to work when he was 5wks i have my own cleaning buisness so i have the option to take him with. that day he was supposed to sty with my aunt i even left him with her, somthing wasnt right though i just keep getting this feeling that something bad was going to happen so i went back to get him and take him with sure enough he was blue. i grabed him up nd he startled and started breathing again, we rushed him to the hospital were they placed him on a heart moniter. kaydin still quits breathing on an average of 6 times a. he sleeps on his back, firm mattress, no pillows, toys blankets, has a pacifire andn we use a fan. i truly believe that is genitic we have lost 4babies to sids in our family over the last 3generations and that is just imediate family. but i reallly wish they would ,make the moniters easier for parents to get they are so great. thanks for reading our story and feel free to ask me any question s and i would love to know if there is anyone eles that this has happened to if you have any advise for me.
crabscanfly -
1202 days ago.
There is alot of things they dont recommend to be used for sleep, such as Strollers,Swings, Exersaucers, jumperoos, car seats, play pens, 3n1 play n packs. They also say, Bumper pads, including mesh bumper pads, not to be used, They dont recommend no blankets, pillows, toy etc, in the crib, They say not to use a pillow or blanket until they are 2 years of age. If you are a native person, they dont recommend you useing i think they are called moss bags, They dont recommend leaving your baby in a carseat long period of times, just because it can cut of the breathing., they say to take the baby out of the carseat for a bit and then put it back in, so it the baby can be repotioned. They dont recommend sleep poistioners. as they can slid and get caught in them. They also say just the normal bassinets to. and co sleepers that go ontop of the bed. not to be used. There is so much info that they are looking at......................................................................
They are looking at maybe it could be genetic, They are also looking at some stuff in the brain. They Also said The SIDS Rate Was decreasing, But sence 2005, and it jumped high..... .........
dont think your out of the clear For SIDS, SIDS Happens At 1 month of age to, 1 year of Age.
....................................
Whats SIDS Knows To Be True. Is ...
There is no known Cause Of SIDS but there are many known risk factors that we can reduce. The rate of SIDS is higher in first nations communities.
SIDS can strike any family, at any time of the day or night, in any season. SIDS usally happens during sleep or napping. There seems to be no pain or suffering., baby at high risk are, babys up to 6 months of age. Baby boys, babys of teen mothers, premature and low birth weight babys, twins and triplets............... They also say the more expensive you buy, the more padding you get, and thats bad, The less padding the better.
After they age of 1 year old they can sleep die of SUDC, Thats SUDDEN UNEXPLAINED DEATH IN A CHILD OVER 1. I dont think its as commin as SIDS' but it does happens, There was a few ppl that lost there babys at 16 months etc.
crabscanfly -
1202 days ago.
I will post some info in this page as soon as i read the stuff my sister gave me on some stuff, there is alot of stuff about SIDS that they dont talk about.. My sister just came back from a SIDS Conference, run by SIDS Canada, i will post some info on here, that might be helpful for all of you!!.