VentriculomegalyHow can ventriculomegaly affect my child?
The ventricular system contains sac-like pockets that are filled with cerebrospinal fluid. When the ventricular system of the brain is enlarged, it is known as ventriculomegaly. The lateral ventricles of the brain are less than 10 mm wide in a healthy fetus. However, a fetus that suffers from ventriculomegaly has lateral ventricles measuring 10-15 mm wide. Sometimes they are even larger, in which the case is severe. Luckily, ventriculomegaly is not linked to other health conditions in most cases. Severe cases of ventriculomegaly can result in hydrocephalus, also known as water on the brain. In hydrocephalus cases, the cerebrospinal fluid builds up and puts pressure on the brain.
There are three major causes of ventriculomegaly. Improper brain development, destroyed brain tissue and insufficient absorption of cerebrospinal fluid are all factors that can make the ventricles in the brain larger. Sometimes chromosomal problems can cause ventriculomegaly.
Ventriculomegaly affects approximately 1 out of 1,000 live births and is normally nothing that the mother has done. The condition can be diagnosed before or after birth. Ventriculomegaly can be detected on ultrasound by the second trimester. An MRI can also be helpful in diagnosing the condition. A chromosomal analysis can be used to test for chromosomal problems that can cause the condition.
The only time that ventriculomegaly needs to be treated is when there is water on the brain. Even if there is no water on the brain, regular exams should be done to monitor the condition. Once the baby has been born, doctors will do exams and measure the head circumference to make sure the baby is healthy. Usually, ventriculomegaly will resolve on its own and there are no neurological or developmental problems. As long as there are no other health conditions or chromosomal abnormalities present, the long-term prognosis for a child born with mild to moderate ventriculomegaly is great.
See also: http://www.squidoo.com/ventriculomegaly-info
See also: http://www.i-am-pregnant.com/Birth/Birth-defects/Hydrocephalus
Comments 1 to 24 of about 2538.
1 2 3 4 5 6 7 8 9 10 11 Nextfirsttime2323
4 days ago.
Update: my baby was released from the hospital on August 21! Doctors says he has septo optic dysplacia.. I say he has nothing. My son is acting like a normal baby. He smiles when he sees us, has good neck control and muscles. He's taking his feeds good and doing absolutely great. His vents are still 19mm and 23 mm.. With third vent to be 5mm. His head is measuring on track as well as everything else. Not sure what will happen in the future but he is doing absolutely great and you can't even tell there is something wrong. Pediatrician and family doctor are happy with him and his progress and we see a neurosurgeon on November 25 for a follow up and MRI. I'm hoping the vents go down and they find morning. However he does have small optic nerves but they say he can see and is tracking objects.. He may need glasses after 6 months or so but they say the majority of time even with small optic nerves .. They can have really good vision! If anyone is in the same situation as me.. Please tell me how things are going!! turtlemom
6 days ago.
Hi entessar, I hope everything is okay. Here are symptoms of Hydrocephalus in infants - vomiting, sleepiness, irritability, downward deviation of the eyes (also called 'sun setting'), and seizures. http://www.ninds.nih.gov/disorders/hydrocephalus/detail_hydrocephalus.htm#260253125
Thinking of you! firstname.lastname@example.org
6 days ago.
Moms whose child needed a shunt due to ventriculmegaly , aside from a big head what was there symptoms Please ?? email@example.com
14 days ago.
Update: I last posted probably about 3 months ago while I was pregnant. My son was dx at 20 weeks with bilateral vm of 11mm and increased throughout pregnancy up to 23mm by 37weeks. MRI at 37 weeks suspected aqeductal stenosis, but neurosurgeon said hydrocephaly was not present. When he was born he was immediately evaluated by pediatricians and they deemed he did not need to go to nicu. He had an ultrasound the next day and ventricles decreases to 15 and 17mm. A good sign with no hydro. He has been doing great! We met with neurosurgeons twice since he was born 2 months ago, measuring his head circumference to monitor any development of hydro. He said if he does have aqueductal stenosis that he will develop hydro, and most likely it will happen in the first year of life. He said there is no point in doing another mri or ultrasound since we will only treat hydro and not vm alone. The waiting game is not awesome news, but at the same time my gut instinct is that everything is okay and some children just have enlarged vents. There is nothing that I would want changed with my boy. I hope this gives encouragement to other women out there who are going through a similar situation to mine. We prayed a lot and gave it to God. I am so thankful of how everything turned out. it makes me so sad and mad that some physicians would have told me to abort my baby. Give life a chance. Have hope. Pray and have faith that God will help you through your circumstances. He didn't cause this. He will help you through this no matter what happens. God bless you mamas. Xoxo gandjplus1
24 days ago.
Hi lab77...my daughter had very similar measurements at 20 and 23 weeks. At each visit, through my 37th week, they remained about the same. I had already had an amnio done prior to finding out about the VM because my bloodwork was postiive for DS (this happened with 2 of my children and neither has DS) so I already knew it wasn't a genetic problem but even with an amnio, they can only tell you if it's a genetic problem or not. I can tell you from experience and from the research I have done, if there are no other complications and the vents remain stable...most likely this is just your babies normal! My perinatologist told me that with vents in those measurements (and no evidence of any other brain abnormalities) there is a 95% chance of 'normal' intellectual functioning and with vents in the normal range he can say a 96% chance...seems like very good odds to me! lab77
25 days ago.
I just joined the website and hoping to get some insight with other expectant mothers who are currently going through the same things as myself.
I recently had the 20 weeks ultra sound and found that the right side of ventrical was measuring at 9.6 and the left at 8. The sonographer had asked us to return for a follow up ultra sound in 2 weeks as it was very hard to get the exact measurements due to the position of the baby. So i was told. 2 weeks later we have just been told the babies right side has now gone up to 10.1. I understand that this is still low and on the cusp of normal to mild, but we have been referred on to the fetus specialists and recommended to have an amnio done in 2 days. There is obviously a risk of miscarriage that we are very concerned about and not sure if we should be doing the test right now since it is still mild. I am extremely worried and not sure what to do. I know that i want to know if there is anything seriously wrong and feel that no matter what decision i make, it is a risk either way. The baby also has some urine in the kidney, though again quite low at this stage andt not sure if there is a link.
Any advice or thoughts would be appreciated.
I am currently 22 weeks pregnant Ana30
27 days ago.
Just wanted to share my story with you, to give you some hope and positive outcome. My son will be six years old in December and will start grade 1 in September. He was diagnosed with mild ventricullomegally at week 26 of my pregnancy due to some bleeding ( 12 mm). USound before was fine. Ventricle size never gone up. He was born on full term with 12 mm ventricles, some permanent brain damages in frontal lobe area and brain cysts. He was checked by US on sevens day after he was born. We have never had later check. My son has never had any health problem (except huge allergy to Peniclin which is not related). He is healthy five year old boy, speak 2 languages fluently, learns how to write and read and doesn't have any related problem. I know what I had gone through during my pregnancy, want to give you some positive examples. All the best gandjplus1
39 days ago.
Hi all, I just wanted to leave another update for all those who follow. Backround: my baby was diagnosed with mild VM during my 2nd trimester. The measurements remained relatively the same for the entire pregnancy. There were no concerns at birth and I had a normal delivery. There were no concerns with my daughter until around 7 months old when her head started measuring over the 97%tile. A U/S at 7 1/2 months ruled out hydro but our pediatrician still referred us to a neurologist. Baby Avery turned 1 over the weekend and still has a huge head, but all development is on track. She is standing unassisted and getting ready to take her first steps. She walks holding my hand but is an extremey cautious little girl. With exception to a larger than average head, she is completely typical. Just wanted to update everyone, as I always enjoyed reading the positive outcomes of the babies on here to help me through a very difficult time. Many prayers for all of you who have been recently diagnosed and look toward this wonderful board for education with this diagnosis that brings to much worry and uncertainty. As many people say over and over on here, as soon as these little ones are born-no matter what their diagnosis brings-unconditional love takes over! firsttime2323
45 days ago.
Doctor called me. She said that they have finally decided 'on what to call this diagnosis' that my son has.... He has Septo Optic Dysplacia....?????. Apparently because I think it's his left or right eye that has a small optic nerve and his brain abnormalities he has septo optic Dysplacia.. It's so hard to believe this because when I look at my son he acts like a normal baby and he's always looking around and he's taking his bottles so well and he cries and he has such good muscle tone.. He kicks and moves and he moves his head a lot too! My parents and husband told the doctor that she was pretty much a liar lol.. And how she's negative and so rude. My parents and husband pretty much told her that the only reason you're throwing this in our faces is so you don't lose your job. I stood there so quiet I didn't know what to say.
This is so hard. I look at other videos of babies with this diagnosis and my baby is nothing like that. His eyes move at the same time and I can tell that he sees and hears. No one in my family or my husbands has any vision impairment or blind or brain abnormality or anything. I really don't know what to do or what to expect. It's hard losing a baby twin and realizing the other twin has an abnormality. Especially when it's your first pregnancy! :( firstname.lastname@example.org
45 days ago.
Kelsif- a fetal MRI will be able to show you the structures of the brain. It can show a whole lot more than an US. It can also possibly show if there is a blockage.
46 days ago.
hi all, just wanted to say how this message board has been wonderful and supportive the past couple of days, as I have been reading through.Our story is we started off with 20w anatomy scan and the left lateral ventricle was measuing the high end of normal. 9mm. We monitored it and it rose slowly to the abnormal/mild range of 12/13mm, it slowly rose again at the level 2 ultrasound we had to about 15mm, and that was around week 32. Now we just had an ultrasound and it has risen again to 18mm. it is isolated (everything else is 'normal') and is in the left ventricle. We got tested for syndromes which came back negative and also the test for infections came back negative too. we are meeting with dr.'s at Penn State Hershey Wednesday to discuss options. its so hard not knowing. Those that had an MRI..I am wondering why my dr.'s have not even mentioned a fetal MRI to me. Would that show more and what the obstruction is? email@example.com
46 days ago.
Hi everyone, I haven't been on in a while!
Not much has changed this end.
Background; my son was diagnosed with VM at 33 weeks, it was unilateral measuring 11.5mm.
I had an amnio and torch testing which all came back normal. I declined the fetal MRI as I was fairly close to delivery.
My son was born at 39 weeks, he was perfect!
He had an ultrasound through his fontanelle at 12 hours old. His vent measured 12.6mm. I suspect it was that size all along as it was more accurate than in uteruo.
Today my son is 2.5 years old. He is the funniest little guy, he hit all of his milestones on time until he was around 18 months. He crawled at 7 months, walked at 11 months.
At 18 months I realised his speech was behind. To this day his speech is still really delayed!
He is 100% typical in every other way.
He has his 3rd speech evaluation in 2 weeks time. They wanted to give him until he was 2.5 years before they intervened.
He does say words, he will repeat things we ask him to but he doesn't use them independently. He also doesn't follow instructions great, but he has definately improved.
I couldn't ask for more though.
If this is all that is the result of his VM then I am over the moon. Of course I wish he could talk, but I know things could have been very different, he could have had a whole host more issues so I'm grateful
I don't have any great advice for you moms in this position, I know how hard and worrying it is.
I would say always get a second opinion and remember vents can go up and down several times. And the vast majority of vm corrects itself before birth
Stay strong for your babies and best wishes to you all gmof 3
47 days ago.
I would like to start by saying thank you to turtlemom and all the other moms who have lived through these terrifying situations, and are now here, on this forum, to offer their knowledge through experience and research, support, words of encouragement, and to lend a sympathetic ear along with heartfelt sympathy for those who have suffered a devastating loss. Thank you so much.
I found this forum shortly after finding out at 19 weeks that my baby had ventriculomegaly. I was on this site most every day and night searching for situations close to mine and hoping to hear good outcomes for all the precious babies. I never posted, or asked any questions, but I followed many of the mothers who were brave enough to share their stories. Some endings were happy, some not, but I admired all the mothers that shared their stories from start to finish.
I often wondered what happened to the moms and babies that stopped posting before, or after they gave birth, so I felt I should share my story from 19 weeks pregnant to present day. My baby girl is soon to be 6 months old. I hope this will help someone who is searching.
After my 19 weeks ultrasound I received a phone call from my Kaiser doctor who casually told me that my baby had enlarged ventricles, measuring 14 and 14. She went on to tell me that I needed to call the genetics department and schedule a level 2 ultrasound. When I asked her what ventriculomegaly was, and what did it mean for my baby, she told me the genetics department would go over everything with me, and with that the conversation ended. I hung up the phone in stunned silence. This doctor was new to me, I had only seen her once, and she offered no explanation, or information about this condition. I was devastated, and scared, and it felt like my whole world had caved in on me.
For the next two weeks I was on the internet day and night, and like so many others was terrified of the unknown, and worse case scenarios.
At my level 2 ultrasound my babies vents measured 15 and 16, and I was told that it looked like part of her brain might be missing. I was also told the outcome would be grim, and was offered amniocentesis and termination.
I turned down the offer of termination and scheduled the amniocentesis. The results of the amniocentesis were good, no genetic concerns, or other abnormalities.
The doctors told me that her vent measurements were initially in the moderate category, but are now in the severe category, and with measurements this high they almost never go down, or resolve themselves.
I was keeping my baby, and accepted my situation, fully expecting my babies vents to increase in size throughout my pregnancy, and I was well aware of the procedures that might be needed after her birth. I decided that I was not going to have regular ultrasounds, I didn’t see any point in putting myself through the anguish of being told; this ultrasound shows your babies vents have increased to this…, and at the next ultrasound being told they have increased even more. There was nothing that could be done, so what was the point. I was having a hard time keeping it together, and the holidays were upon us, I wanted Christmas to be happy and normal for my boys who were 2 and 3, and I knew I couldn’t do that if every couple of weeks I got bad news, I knew I would just fall deeper and deeper into depression.
The next ultrasound I was going to have was at 34 weeks, so the baby’s head could be measured to see if I was going to be able to have a vaginal birth.
The 34 week ultra sound showed that her vents were still at 15 and 16, that all of her brain was there, and that her head was measuring only a week ahead, so a vaginal birth was not going to be a problem.
I went into labor at 39 weeks, it was a hard, but fast labor and my sweet baby girl was born. Finally…..I had her in my arms, and everything changed, the fear was gone, all I felt was overwhelming love for my daughter, my sweet baby girl. She seemed so perfect.
She weighed 8 lbs. 3 oz., 20 inches, and her head measured in the 50th percentile. Everything seemed normal. No emergency measures were needed, but she was to have an ultrasound through her fontanel in a couple of hours.
That ultra sound showed that her vents were now on the high end of normal measuring around 6-8, nothing to worry about I was told, and no further follow up needed.
My little girl is almost 6 months old now, she is a happy, chubby little girl who has met, or exceeded all milestones.
Here was a baby who at 33 weeks had vents that measured 15 and 16, and 6 weeks later they were within the normal range. We don’t know what happened, but we do know that every baby is different, and outcomes cannot be predicted in every case.
Yes, I watch her carefully, very carefully, I look for any little thing that might be off, I can’t help it, but that worry is lessening every day. We are so grateful she’s is in our life, we count our blessing, and cherish every day. This type of situation, regardless of the outcome changes you forever.
When s baby is diagnosed with VM, or hydro, or any other abnormality, I would never tell the mother not to worry, or to relax and try to enjoy the rest of her pregnancy, in my opinion you are asking the impossible, but I would tell them that the fear of the unknown during pregnancy is the worst, and when their baby is finally born that fear is replaced with the unconditional love of a mother.
Bless you all, and I pray for all the mothers and babies who are going through difficult times.
47 days ago.
Where is everyone? Anyways! My baby is still in the NICU! He is 38+2. So far he is taking his feeds well bottling like a champ! No more feeding tube. Doctors still can't figure out why he has large ventricles and thin and short CC AND thin inferior temporal lobes. So far my baby is doing really well. My family thinks that this whole brain abnormality isn't going to affect him and the brain is so unique it has other ways to work and wire ! I'm hoping they're right. As for now my baby doesn't look like it is in any trouble. However after 3 months from now we will see if he passes his milestones. Anyone in the same situation as me? firsttime2323
54 days ago.
UPDATE: MRI Results came back. Ventricles on the left are 19 mm (before was 14mm) and right 23 mm (before was 15mm).. And 3rd ventricle grew 5 mm increase. His temporal lobes are still thinned. Corpus callosum is thin and short. Doctor said there is no change. I don't know why there is an increase... A neuro is going to call me today to explain everything in detail. I'm so confused. My baby is so active, moves around, moves his head.. Smiles when he hears our voices. It's so weird how this is happening .. He doesn't even look like he has a brain abnormality. michellaAnne
55 days ago.
I am so thankful for these boards! I wouldn't be on my road trip to Boston from Florida right now if it wasn't for the countless nights I spent reading all of your stories! We are almost out of Florida and I will meet with Dr. Warf and his team on Wednesday in hopes of finally getting some answers! I have decided to deliver the baby up there and will return to Boston when I am 36 weeks. We were trying to decide on going to CHOP or Boston as they both seem to have the best programs for nuerosurgery. We chose Boston because we have some family am hour away so I won't be alone while waiting for baby. I still can't belive it's been 7 weeks since I found sweet baby Mason had a problem. To me 7 weeks to get a appointment with a nuerosurgeon is just ridiculous when there is a problem in utero. Florida is obviously not the best place to be if you get this diagnosis. Thankfully both Boston and CHOP were there to help me within days!!! I am 33 weeks now and we are ready to finally feel like we are being taken care of!!! Boston here we come!!!! I will keep you all posted and continue to pray for all of your amazingly resilient babies! firsttime2323
57 days ago.
Entessar, do you mind sharing your story? firstname.lastname@example.org
57 days ago.
Firsttime2323, I don't want you to worry.The fact its not genetic is actually a great news. I will tell you what a doctor told me about my son when he was at NICU ' WHAT IS WRITTEN TO YOUR SON IS ALREADY WRITTEN, THERE IS NOTHING YOU CAN DO TO CHANGE IT' just leave it to god hands, live the moment and stop worry about tomorrow , no one can grantee the future. I am sure that your son will never stop to surprise you just like mine.
Also I am highly recommending early childhood intervention for any supportive treatment because these therapists are actually working. firsttime2323
57 days ago.
Update: so my baby boy is 36 weeks and 6 days! His genetic testing came back NORMAL! And his kidneys are no longer infected and are also back to normal! He's doing perfect and all the nurses love him! One problem still is that his MRI is abnormal. Thin corpus callosum and undeveloped temporal lobes. Doctor said even if his genetic testing came back normal doesn't mean he won't have seizures or delays or mental retardation. I was at first happy that the genetics came back normal until he said that the baby may not live a normal life. He also said it could be inherited but we have no one in the family who has anything like this. No one has Down syndrome or anything. So we can't really figure out the problem. Today he had another MRI to see if there are any changes , if it got worse or better or the same. His ventricles are still 14 mn on both sides and third ventricle is the same size and fourth ventricle is NORMAL. My husband and I are so worried we really don't know what to expect. MRI results should come out this weekend or Monday! Can anyone relate to my story? mamamarth
65 days ago.
MichellaAnne, my heart goes out to you and your family as you continue on this journey. Grace had a similar case in that she had a Grade II hemorrhage which also caused an obstruction. Her obstruction was in the Foramen of Monro, so it only blocked her right lateral ventricle and the obstruction was what was known as a 'ball-valve' obstruction, meaning that it allowed some of the CSF to pass through but not enough to keep that ventricle from dilating. They caught the bleed almost immediately after it happened and were able to catch the obstruction as well. Our doctors remained hopeful and eventually, some of that obstruction clotted off and opened that passage even more, allowing the CSF to flow even more freely. Today marks Gracie's 5 month birthday and we couldn't be more grateful for her continued progress. She has slight delayed visual maturation with a nystagmus that actually has improved drastically. She has hit every milestone on or before the 'expected' timeframe and becomes more fun as the time passes. Because of the blood product that remains in her ventricle (it is minimal at this point) we do continue to be slightly neurotic if we feel like something is off but she had an MRI at around 2 months and her brain and ventricle measurements remain stable, such a blessing! My thoughts and prayers are with you and your family as you approach the final stretch and venture to Boston for answers! turtlemom
65 days ago.
MichellaAnne, I'm sorry you are going through this at this time. While Parker did not have a bleed, she did have a blockage that caused her hydrocephalus. You are in marvelous hands with Dr Warf. He is the best NSG in the country! Are you on Facebook? We have a group there that is very active. Hugs and prayers! michellaAnne
65 days ago.
I really wish somone was around to read my posts and give me a little reassurance. :( a lot has happened and we are now where we were 6 weeks ago with the exception that we have scheduled a consult and testing to be done in Boston. I sent all my files and images to a Dr. Warf's team and they confirmed the brain bleed :( I still do not know the extent or grade of the bleed but everything I read says when there are blood particles floating in the brain it's typically a 3 or a 4. I am almost 32 weeks and will travel to Boston at 33 weeks and they will take thier own images to get a better diagnosis. They did say by looking at my MRI of 26 weeks that the blood is blocking the aqueduct and it could possibly resolve it self and this is the reason I have had measurements of the ventricles high and low. Blood was blocking then it wasn't and now more blood has traveled down that way. So I am praying hard that the damage is minimal to his little brain. I am so scared and sad and can't help but think that I caused this to happen somehow. I just want to get him out and fix him. Has anyone with a brain bleed and hydro get the evt surgery by Dr. Warf? I hope all you babies are doing ok. God bless! akaz
66 days ago.
Hi all - it has been a while since I last posted here but thought I would update, especially as this forum was so supportive during my pregnancy! My son was diagnosed with moderate unilateral ventriculomegy at the 5 month scan where after 32 weeks these measurements decreased. After birth another scan was done which indicated mild ventriculomegy. He turned one last week and this far has been very typical. He bum shuffles all over the place and is a happy child. I just wanted to know what other parents experiences have been after birth? My son isn't walking yet, but hopefully will do in time! michellaAnne
73 days ago.
Well today was not the best day. We are back where we were 5 weeks ago and now the one ventricle is measuring at 3cm so in two weeks in went from 1 to 3 cm. not sure why it didn't show that much dialating 2 weeks ago. So sad. Meeting with nuerosurgeon on the 28th so we have 2.5 weeks until we know for sure exactly what is happening. I am so scared and sad. 😥 Firsttime2323
74 days ago.
Thanks turtlemom. The genetic testing still didn't come back. I am so scared they are going to find something :(. Is it possible for my baby who has thin CC and undeveloped temporal lobes to have a result of a normal test for genetic testing? :(:(