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Home » Pregnancy & Baby Forums » Ventriculomegaly



Ventriculomegaly

Ventriculomegaly



How can ventriculomegaly affect my child?

Ventriculomegaly

The ventricular system contains sac-like pockets that are filled with cerebrospinal fluid. When the ventricular system of the brain is enlarged, it is known as ventriculomegaly. The lateral ventricles of the brain are less than 10 mm wide in a healthy fetus. However, a fetus that suffers from ventriculomegaly has lateral ventricles measuring 10-15 mm wide. Sometimes they are even larger, in which the case is severe. Luckily, ventriculomegaly is not linked to other health conditions in most cases. Severe cases of ventriculomegaly can result in hydrocephalus, also known as water on the brain. In hydrocephalus cases, the cerebrospinal fluid builds up and puts pressure on the brain.

There are three major causes of ventriculomegaly. Improper brain development, destroyed brain tissue and insufficient absorption of cerebrospinal fluid are all factors that can make the ventricles in the brain larger. Sometimes chromosomal problems can cause ventriculomegaly.

Ventriculomegaly affects approximately 1 out of 1,000 live births and is normally nothing that the mother has done. The condition can be diagnosed before or after birth. Ventriculomegaly can be detected on ultrasound by the second trimester. An MRI can also be helpful in diagnosing the condition. A chromosomal analysis can be used to test for chromosomal problems that can cause the condition.

The only time that ventriculomegaly needs to be treated is when there is water on the brain. Even if there is no water on the brain, regular exams should be done to monitor the condition. Once the baby has been born, doctors will do exams and measure the head circumference to make sure the baby is healthy. Usually, ventriculomegaly will resolve on its own and there are no neurological or developmental problems. As long as there are no other health conditions or chromosomal abnormalities present, the long-term prognosis for a child born with mild to moderate ventriculomegaly is great.

See also: http://www.squidoo.com/ventriculomegaly-info
See also: http://www.i-am-pregnant.com/Birth/Birth-defects/Hydrocephalus





Comments: Ventriculomegaly

Comments 1 to 24 of about 2758.
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christopherspear - 1 hours ago.
Could strep B be a cause for ventriculomegaly? My partner was diagnosed with this 7 weeks ago, and was given antibiotics for it.

momtoamirahmuslim - 9 hours ago.
Hi, I've been looking on this board for a month now and is constantly looking for a case similar to mine. I am on my 28th weeks of pregnancy. This is my second princess. On my 20th week anomaly scan, the OB sonologist found an EFI - bright spot on the LV of my princess's heart. i started googling for downsyndrome soft markers. After 3 weeks we had a ff up ultrasound and they found out that the left ventricles of my baby's brain is dilated at 14mm and the right measure at 0.8mm. 28th week scan showed more or less a stable ventricles but an additional possible atrial septal defect on my baby's heart. I am embracing more of the possibility of a down syndrome child but I bounce back to depression every now and then. I declined an amnio as termination is not an option where I live and also it is against my belief. It is also very expensive together with the fetal 2d echo. I am thinking of not pursuing any ultrasound until my 35 weeks. As I get more stressed each after doctors visit. I always drink my vitamins , milk and had regular check ups . Sometimes , I ask why.....is this happening. I leave it all to God. I hope my baby's brain ventricles remain stable. I'm looking for comfort measures. my husband works overseas so this is harder for me :(

ElijahsMommy12715 - 16 hours ago.
Hello, i just came across this site doing a little research on Ventriculomegaly. I am 26 weeks pregnant at my last appointment they did an ultrasound and found my little boys ventricle was enlarged. I was sent to a specialist where i was informed that his lateral ventricle or atrium is suppose to be 10 mm and his is at 10.5 mm. They said he has a mild case of Ventriculomegaly. I'm waiting for the blood work to come back which takes several days.As a first time mom I can't help but to be scared and nervous. I've had 3 miscarriages that never lasted past 9 weeks. This little boy is truly a blessing from God! I have to go back in 4 weeks to see if it has gotten any bigger then every week after that. Reading these comments has given me so much information thank you all for sharing! Praying for our sweet babies!!

sunbeam - 16 hours ago.
I haven't had first-hand experience with structural anomalies but my doctors did say that if there were anomalies like a small cerebellum Kathy or missing other structures Christopher that they could tell us the likely outcome by sharing what they know about other babies who've had similar issues. We're in that 'grey zone' too Kathy with the ventricle size and they're saying 80% chance of no development problems but still 20% chance that there will be. It sounds like really good news that the size has gone down and is remaining stable. Best wishes for the rest of the pregnancy.

kathystachniak@hotmail.com - 24 hours ago.
Hello. I am new to this board and am wondering if there is anyone that has had a similar situation to mine that might have some insight. I am now 24 weeks pregnant and we were told at our 20 week US that our baby girl's ventricles were measuring large. After a more detailed US, it was confirmed that our baby has ventriculomegaly. It was also found that the cerebellum is growing at a smaller rate than it should be.We've done a TORCH, MRI, fetal echo, amnio and these all resulted in no other findings. We will do another MRI at the 3rd trimester again to see how development is coming along. We've been monitoring for about a month now and at one point a few weeks ago the largest ventricle was measuring 16mm but we just had another yesterday that measured them both around 13 mm. Though the measurements seem to have gone down slightly or at least seem stable, the neurologist told us that because of the combination of the ventriculomegaly and the small cerebellum, we should expect some type of disability. He also said that even if the measurements were to go back to a normal range, because we've been in this 'grey zone', there will always be the same risk of disability. Has anyone had ventriculomegaly paired with a small cerebellum and if so, what was the outcome? Any insight would be appreciated.

turtlemom - 1 days ago.
Are you getting a MRI? That will help determine structural abnormalities like polymicrogyria, grey matter heterotopia, etc. Although, MRI is not great and should be done later term for best imaging. Honestly, they are guessing. Ultrasound technology probably would not give them a good idea of true structural abnormalities. Diagnosis like that cannot be determined until the child is 1 or so. You really can't get great images before then.

christopherspear - 2 days ago.
Thank you for your support, and sharing your stories! They're saying they think its a structural problem and our sons brain has not developed properly will this affect the outcome? Torch Blood tests came back, not viral but they said she'd had CMV in her blood but its not recent. Some people have spoke about supplements to take to help with this condition (ventriculomegaly), which supplements are they?

turtlemom - 2 days ago.
Hi Christopher, welcome! My daughter was dx at our 18 week scan (lateral vents of 16mm and 19mm) and by 21 weeks they were 17mm and 22mm. If you see a noted increase, it's pretty safe to say this is no longer VM and it is hydrocephalus. Measurements over 15mm typically turn into hydro but not all the time. Because you are measuring 17mm, the next scan will really be able to tell you more as to whether you are looking at stable vents or an increase. Vents this large rarely decrease. My daughters grew exponentionally with each scan. She has severe hydro. If that's the case, there is a 60% or more chance of profound challenges, given the cortical mantle thinning. My daughter falls in the 40% and is developmentally 'typical.' She just turned 7 and this is our blog https://theturtlemom.wordpress.com/about/. We have a very big FB group and I'm happy to help.

Kailee4123@gmail.com - 2 days ago.
Hi Christopher. I'm sorry you and your family are going through this. Your sons ultrasound sounds fairly similar to my now 2.5 year olds 20 week ultrasound. His vents were also 17 and they thought he was missing his cavum septum pellucidi as well as his corpus callosum. We had an MRI where those structures were still not identified. His vents remained stable and at 32 weeks an MRI showed normal underlying anatomy that couldn't be seen previously due to the extra fluid. He was born at 37 weeks at 8.5 lbs and 21inches and has been a very big and healthy boy. He has exceeded all milestones and is such a joy. He has been pretty much off the growth charts since birth so I do wonder if there is a correlation with ventriculomegaly and big boys. We couldn't have asked for a better outcome, I know that's not always the case but I wanted to let you know our story. Praying for you and your family

sunbeam - 2 days ago.
Christopher I'm so sorry to hear that you are going through this awful situation. My doctors also talked about termination (at 28 weeks) and it completely floored me. If you only found out yesterday then you'll probably still be in the information gathering stage as to why this is happening. To my understanding, the prognosis for quality of life depends not so much on the size of the ventricles, but 1) why it is happening and 2) if they rapidly progress in size. We went through a litany of tests to rule out viruses, chromosomal abnormalities and other structural issues plus we had to wait (and are still waiting) to see if they get bigger. As charlottemom says below we've also been told there's a possibility they can get smaller towards the end of the pregnancy. Personally, when they brought up the possibility of termination on the day we found the enlarged vents, I felt (apart from the room spinning) that I needed much more information about the prognosis and decided to wait for all the tests to come back. The outcomes seem to be rather uncertain to predict in ventriculomegaly, especially when there is no underlying cause. Now they've ruled out all the very serious/life threatening causes for our baby they've stopped talking about termination. I also have a 2 year old and spending time with him while all this is happening is saving me. No time for total despair when stories must be read! My thoughts are with you and your family.

christopherspear - 2 days ago.
Hi, yesterday my wife and I went for our 20 week scan, and was told there was an abnormality with our son's brain, we had a second scan with a specialist the next day and it was found that our son's posterior lateral ventricles are grossly distended measuring 17mm. The vermis of the cerebellum or the cavum septum pellucidi cannot be identified, the 3rd and 4th ventricles are also dilated. The remainder of the anatomy appears normal. it wasn't just the enlargement of the ventricles, the ventricles don't look normal. we were given the impression that termination was the only option. We really don't want to terminate but if our son is going to have no quality of life then we'll have to :( we also have a 2 year old daughter who's life is also going to be affected by this. Does anyone have any advice or opinions on this?

charlottemom - 2 days ago.
Hi sunbeam, sounds like its 'isolated ventriculomegaly' and they will just keep monitoring with US till the end. Do doctors mention if they can decrease in size t owards the end of pregnancy? I hear so many stories on this board of vents decreasing and can't help but to hope it goes to normal range. sometimes I'm wondering if the decrease in measurements are due to mismeasurement and poor US quality, but its hard to believe that level 2 ultrasounds can make big mistakes like that...and put mothers through so much worry. Hi joanna- i think i heard the cysts are not a big problem 'In most cases, no serious neurodevelopmental complications occur. Many cysts resolve after a variable period.' But then again i'm not a doctor. I'm sorry for your previous loss. I heard that chances of having ventriculomegaly/hydro happening in subsequent pregnancies is very low? did you ask your doc why it is reoccuring? I agree- the wait is the hardest ...=(

joannamlambert@gmail.com - 2 days ago.
Hi everyone... sunbeam, the wait is the hardest part! I'm there too, waiting for our next ultrasound to see if the ventricles have grown. Has anyone had mild vm and a cyst finding? They noticed mild vm and a subependymal cyst on MRI at 28 weeks. Wondering if anyone else has dealt with this finding before??

sunbeam - 3 days ago.
Hi everyone, I thought I would post an update. We had another ultrasound yesterday and the vents are measuring 13.9 and 15.9, which is thankfully not a substantial increase from last time. According to the doctors it's good news that there is no obvious cause and that it hasn't progressed in the last 10 days. They say our case is unusual as they usually see mild (11-12mm) or severe (>15mm) cases. One doctor said our measurements could even be a normal variation because we're having a boy and he's a big one. Others said we have about an 80% chance that he'll have normal development with no problems, provided there's no progression from here. So it's now waiting for another ultrasound in 2 weeks and hoping the vent size stays the same or gets smaller. I guess I'll need to learn to live with the risk of developmental delay and add it to the list of motherhood worries as you say charlottemom! Glad to hear that things are going well for everyone on here.

Jessica5690 - 8 days ago.
Hi Charlottemom, congrats on a good consult. It's so nice to talk with someone level headed! My baby boy's situation is pretty much identical to your baby. He has 11mm vents but we found it at 19 weeks. Finally met with my regular OB yesterday and she gave me the rest of the ultrasound findings which all were good. It was noted no evidence of infection or bleeding, and corpus callosum is present. So I'm hoping it stays truly isolated or just a congenital condition as you mentioned. I plan to skip the amnio. My verifi test was good. They did recommend an mri at 28 weeks tho. I've read it's easier to do in utero. After he/she is born they'll have to be sedated for an mri. Anyway, I feel good about it all. The best advice I've heard is to enjoy your pregnancy! You won't change anything by worrying. Praying for all our babies!

charlottemom - 9 days ago.
just a quick update. I saw the top pediatric neurosurgeon in southern california who deals with hydrocephalus. He seemed very smart, calm demeanor, and very thorough. He looked at all my records and said my vent measurements were mild and my babies head circumferance for 32 wks gestatation is normal. He says when head circumference starts to enlarge, thats when he suspects fluid is building up and causing head to get bigger. I asked him if we need a fetal MRI, his reaction was ' if u like numbers and data u can' but i recommend MRI after birth. He mentions 4 things that would cause mild dilation , ( infection (rare), minor trauma inutero, agensis of corpus collosum , and congenital(some babies just have plump vents). He also says there is a 2% chance that baby will need intervention from him. He gave us a peace of mind and said he wouldnt worryfor the rest of the pregnancy. I have another ultrasound Sept 15, by then i'll be 35 weeks . I hope this give people a peace of mind. Of course being a first time mom, I still have be worry-free as this will always be in the back of my mind. But thats motherhood in general right? Keep me updated everyone. and lets all try to be positive

Jessica5690 - 10 days ago.
Tina pop you had a very big boy! I hope you'll keep us posted on his progress! Sunbeam, congrats on all the initial test results coming back good! I hope the ventricles either stay the same or go down! I go to my regular OB tomorrow morning to discuss the full results of my ultrasound and next steps for testing and monitoring. I'm very anxious to speak with her since I had the anatomy scan done at the hospital and I'm not even sure if the doc who gave me the diagnosis was an OB or radiologist.

Tina Pop - 10 days ago.
Thank you very much charlottemom for the information! Jessica5690 he was big, 4.140 g (9.11 lbs) and 53 cm.

sunbeam - 10 days ago.
Just returned from a visit with an obstetrician and neurogeneticist who manage high risk pregnancies. I've had a full blood screen for infections, two ultrasounds, an amiocentesis and an MRI. No abnormalities except the VM identified so far. Still waiting on the detailed amnio results and another scan in a week to check progression. Could still be fine, really not fine or somewhere in between. The uncertainty is very hard. Hoping so much that the ventricle size does not get worse as that will put us in the 'severe' category. It's terrifying.

charlottemom - 11 days ago.
hi tinapop, I did a little research. http://ispub.com/IJPN/11/1/12008 'Background: Ventricular size measurements aid early determination of deviation from normal and facilitate early intervention. This study seeks to establish normal ranges for measurements of intracranial ventricles in a term African population at birth and six weeks and define effects of modes of delivery and changes in anthropometry on the measurements.Study design: Dimensions of the width of the third ventricle, the width and length of the fourth ventricle, anterior horn width and the thalamo-occipital distance of the lateral ventricles were measuredthrough transfontanelle ultrasound scans of 103 term newborns and 82 of the same infants six weeks later. Results: Ventricular sizes were similar in both genders at birth and at six weeks. At birth LLVW was 0.0 – 4.0mm, RLVW 0.0 – 4.0mm, TOD 11.7 – 27.0mm, TVW 0.7 – 4.0mm, FVW 5.6 – 14.3mm and FVL 2.0 – 10.6mm. OFC at 6 weeks only correlated with dimensions of TOD, TVW and FVW (p = 0.002, 0.022, 0.02 respectively). Vaginal delivery was associated with smaller mean left and right lateral ventricular measurements and fourth ventricular widths at birth compared with caesarean section (p< 0.05) but not at 6 weeks.Conclusions: This study has provided reference ranges for the intracranial ventricles at birth and six weeks in term African infants also demonstrated that the impact of mode of delivery was transient on ventricular sizes.' Thalamo-occipital distance is a very sensitive marker of change in lateral ventricular size 1423 and is therefore of significant clinical use in the early detection of ventricular dilatation as seen in post-meningitic and post-haemorrhagic hydrocephalus. ' HOpe this help.. TOD (thalamo occipital distance) which is most senstive and your baby fits right in the range..congratulations.

Jessica5690 - 11 days ago.
Tina pop I'm so happy he is healthy! Just curious how big he was when born? It seems boys with this end up being really big. That's just their 'normal'...we can always hope!

Tina Pop - 11 days ago.
Hello everyone, Throughout my pregnancy I was told my baby boy has unilateral ventriculomegaly measuring 12mm at its highest. I had my baby 3 weeks ago and he is a healthy and beautiful little man! They did a transfontanellar ultrasound to measure his enlarged ventricle and told me that it is 20mm, which they consider to be still borderline. The doctor explained that for this kind of ultrasound the measurments are different. She told me that 'normal' is considered to be bellow 16mm. I googled to see if I can find any articles about transfontanellar ultrasounds and how they measure ventricles, but couldn't find anything. Does anyone here know what are the normal measurements for this kind of ultrasound?

Jessica5690 - 12 days ago.
Hello everyone, I had my 19 week anatomy scan done this past Friday. It didn't go as well as I hoped. I was told my little boy has ventriculomegaly and the measurement was 11.5. I guess I don't know if it's one vent or both cause he mentioned how with u/s he couldn't see the other side. He made the outlook seem very grim. I've had 2 sleepless nights reading online. But stumbling upon this forum and hearing real life examples of great outcomes has been wonderful and so reassuring. So I guess I don't know if it is isolated or not yet but the doc performing u/s did not see any other issues at that time. He is not my regular doc tho so his report will get reviewed by my OB and I see her Wed. He mentioned amnio and MRI but we are waiting to speak with OB. I did have chromosomal testing done at 12 weeks by Progenity. Not sure of the name of the test. I was told it all came back negative and that it's a boy! So because of that I'm leaning towards skipping the amnio. I heard some people say their similar testing just gave them a low risk score. Is that a different test than mine? They didn't say low risk they clearly said negative. Anyway, I'm looking forward to being a part of this forum and continue to keep in touch with you all. I guess for now I'm just hoping that no other issues are identified and vents remain stable. My mom thinks he is just going to be a big boy, which runs in my family. I'm 5'10' hubby 6'4 :) And u/s doc commented on him being a big boy and very active! His ears must be ringing cause he's kicking up a storm as I type :) Talk soon and best of luck to you all!

charlottemom - 12 days ago.
Thanks sunbeam for the helpful information. Are you getting a fetal MRI or are you doing followup Ultrasounds? It just worries me because it can go up, down or stay the same...Sounds like if its isolated enlargement, babies might have delayed development but eventually catch up with general population, which is not bad at all. I know babies that were not even diagnosed with a condition and started walking around 18 months..I go in for a pediatric neurologist consult to get more information and what they suggest. POssibly an MRI, but let see what the doctor has to say. please update when you can.. prayers for both of our babies.

sunbeam - 12 days ago.
I've recently had a 28 week scan where they found bilateral ventriculomegaly measuring 13 and 14mm, which wasn't there at my 22 week scan. We are still waiting on results to see what's causing it, or if it progresses. The doctor gave us a paper called 'Counseling in Isolated Mild Ventriculomegaly (http://www.ncbi.nlm.nih.gov/pubmed/19644944)', which has been very reassuring for me, so I thought I would post the main findings here for others going through the same thing. The paper reviewed all the medical research published in English up to 2009 and found that: ' 1. Fetal mild VM is commonly defined as a ventricular atrial width of 10.0-15.0 mm, and it is considered isolated if there are no associated ultrasound abnormalities. 2. There is no good evidence to suggest that the width of the ventricular atria contributes to the risk of neurodevelopmental outcome in fetuses with mild VM. 3. The most important prognostic factors are the association with other abnormalities that escape early detection and the progression of ventricular dilatation, which are reported to occur in about 13% and 16% of cases, respectively. 4. Most infants with a prenatal diagnosis of isolated mild VM have normal neurological development at least in infancy. The rate of abnormal or delayed neurodevelopment in infancy is about 11%, and it is unclear whether this is higher than in the general population.' My reading of the above is that if the ventricles are up to 15mm in size and there are no other abnormalities (like chromosomal or brain structure issues), and the ventricles don't rapidly get bigger over time, then there's an almost 90% chance that the baby will be neurodevelopmentally normal. Contrary to previous understandings of ventriculomegaly, it doesn't seem to be the case that bigger ventricles equal a worse outcome (provided they measure under 15mm). charlottemom I also asked my doctor if the fact that it has been detected late in my case changes the prognosis and he said no, the outcome is not affected by when it happens but rather why it's happening and if it gets worse as the pregnancy progresses.


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Prenatal-Vitamins
Preparing-For-Your-Hospital-Stay
Preterm-Labor
Prior-to-Becoming-Pregnant
Progesterone-Levels
PUPPP
Recalls
Recipes
Recipes-(babies-and-toddlers)
Recovery-After-Childbirth
Rh-Factor
Ringworm
Roseola
Rotavirus
Round-Ligament-Syndrome
RSV
Runny-nose
Rupture-of-the-Membranes
Safety-During-Pregnancy
Scarlet-fever
Sciatica
Separation-Anxiety
Sex-after-childbirth
Sexually-Transmitted-Diseases
Shopping-for-Baby-Products
Signs-of-Labor
Single-Parenting
Skin-Changes
Sleep
     Newborns
     Sudden-Infant-Death-Syndrome
Sleep-Apnea
Sleep-Disturbances-During-Pregnancy
Solid-Foods
     Finger-Foods
     Making-Homemade-Baby-Food
Sore-throat
Spotting
     First-trimester
     Second-trimester
     Third-trimester
Spreading-the-News
Stretch-Marks
Surrogacy
Swelling-(Edema)-in-Pregnancy
Symphysis-Pubis-Dysfunction-(SPD)
Teen-Pregnancy
Teenage-Parenting
Teeth-Care-(Children)
Teeth-care-(Pregnancy)
Teething
Telling-Loved-Ones-You-Are-Pregnant
Tests-before-pregnancy
     Bacterial-Vaginosis-Screen
     Blood-Type-and-Antibody-Screen
     Chicken-pox
     Cystic-Fibrosis-Carrier-Screening
     German-Measles
     Gonorrhea,-Chlamydia,-Syphilis
     Hemoglobin
     Hepatitis-B-Screening
     HIV
     Ovulation-Predictor-Test
     Pap-Test
     Urine-Screening
Tests-during-pregnancy
     AFP-screening-test
     Amniocentesis
     Biophysical-Profile-(BPP)
     Blood-Glucose
     Chorionic-Villi-Sampling-(CVS)
     Contraction-stress-test
     Fetal-Fibronectin-Test-(fFN)
     Group-B-Streptococcus
     Non-stress-test
     Nuchal-Translucency-Screening
     Prenatal-Paternity-Testing
     PUBS
Tetanus
Thrombophilia
Tips-On-How-To-Get-Pregnant
Tips-To-Avoid-Pregnancy
Tobacco
     Smoking-Cessation
Toxoplasmosis
Travel-during-pregnancy
     Seatbelts
Traveling-With-Children
Treating-your-child`s-symptoms
Trisomy
TTC-After-Loss
TTC-After-Tubal-Ligation-Reversal
TTC-Dealing-with-Infertility
Tubal-Ligation
Tummy-time
Twins
     Complications
     During-twin-pregnancy
     Establishing-routines
     Fraternal
     Identical
     Nursing-twins
     Twin-delivery
     Video
Ultrasound
Unassisted-Childbirth
Urinary-Tract-Infection
Urination
Uterine-Fibroids
Vaccinations
     a)-Birth-2-Months
     b)-4-Months
     c)-6-Months
     d)-12-Months
     e)-18-Months-2-Years
     f)-4-6-Years
Vaginal-Delivery
     Vaginal-birth-after-cesarean
Vaginal-Discharge
Varicose-veins
Vasectomy
Vegetarian-Diet
Ventriculomegaly 5 new
Vomiting-(Babies)
Warts
Water-Birth
Weight-Gain
Weight-of-your-child
Whats-Safe-and-Unsafe
     Beauty-and-Spa-Safety
     Career
     Fitness
     Foods
     Home
     Medical
     Medications
     Sex
     Sleep
Working-Mothers
Ovulation-Calendar

All sections
Trying to conceive
Pregnancy & Birth
Birth defects
Babies