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Home » Pregnancy & Baby Forums » Ventriculomegaly



Ventriculomegaly

Ventriculomegaly



How can ventriculomegaly affect my child?

Ventriculomegaly

The ventricular system contains sac-like pockets that are filled with cerebrospinal fluid. When the ventricular system of the brain is enlarged, it is known as ventriculomegaly. The lateral ventricles of the brain are less than 10 mm wide in a healthy fetus. However, a fetus that suffers from ventriculomegaly has lateral ventricles measuring 10-15 mm wide. Sometimes they are even larger, in which the case is severe. Luckily, ventriculomegaly is not linked to other health conditions in most cases. Severe cases of ventriculomegaly can result in hydrocephalus, also known as water on the brain. In hydrocephalus cases, the cerebrospinal fluid builds up and puts pressure on the brain.

There are three major causes of ventriculomegaly. Improper brain development, destroyed brain tissue and insufficient absorption of cerebrospinal fluid are all factors that can make the ventricles in the brain larger. Sometimes chromosomal problems can cause ventriculomegaly.

Ventriculomegaly affects approximately 1 out of 1,000 live births and is normally nothing that the mother has done. The condition can be diagnosed before or after birth. Ventriculomegaly can be detected on ultrasound by the second trimester. An MRI can also be helpful in diagnosing the condition. A chromosomal analysis can be used to test for chromosomal problems that can cause the condition.

The only time that ventriculomegaly needs to be treated is when there is water on the brain. Even if there is no water on the brain, regular exams should be done to monitor the condition. Once the baby has been born, doctors will do exams and measure the head circumference to make sure the baby is healthy. Usually, ventriculomegaly will resolve on its own and there are no neurological or developmental problems. As long as there are no other health conditions or chromosomal abnormalities present, the long-term prognosis for a child born with mild to moderate ventriculomegaly is great.

See also: http://www.squidoo.com/ventriculomegaly-info
See also: http://www.i-am-pregnant.com/Birth/Birth-defects/Hydrocephalus





Comments: Ventriculomegaly

Comments 1 to 24 of about 2557.
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kalsey - 2 hours ago.
Oh, and they did do the Panoramic test, not the Harmony to test for chromosome problems. There have been quite a few false + with this, so we shall see.

kalsey - 1 days ago.
no cysts. The choroids were starting to separate from the ventricle walls. The article I posted a few comments down explains that is how they know to diagnose VM for sure. I just didnt know if that was something found in EVERY VM diagnosis, or another problem on top of VM. Thanks for advice. I will probably bank cord blood if Harmony test is negative, and the ventricles stay enlarged. Thanks!

turtlemom - 2 days ago.
Hi Kalsey, A negative Harmony is a negative. A positive could be a false positive. With most Trisomy's, there are soft markers. Now, not 100% of the time, but most of the time you would also see a possible heart defect, etc. Was it a choroid plexus cyst possibly? I would not consider this an additional dx. They are usually benign and go away.

gandjplus1 - 2 days ago.
Kalsey - If you can do it, definitely bank the cord blood! It has so many possibilities, even if your child's VM turns out to be of no concern. I did it for two of my children and although expensive and hope I never have to use it, I'm very glad I did it. Turtlemom swears by it and believes that the cord blood helped tremendously for her daughter's wonderful development. And regarding an amnio, I personally wouldn't do it far along in my pregnancy. I had one done at 17 weeks, so chances of losing baby was very unlikely. Something so interesting from the link to the article that you posted...larger fetuses and larger ventricle measurements. My daughter with VM is huge, 90%tile for height and weight..wonder if there is a correlation like the author suggests...anyone else whose babies had VM larger than average babies?? Update on baby Avery, she is doing wonderful! 13 months-walking and talking and just so perfect. Still has a huge head (99-100%), but I think that's the reason she is so smart, I like to think that her brain is just bigger than average. We will see what the neurologist thinks in October...

kalsey - 2 days ago.
for question 1 (see below), I did have what is called the Harmony (I think) blood test for Downs and am waiting on results. If I am going to bank cord blood, is a negative result from this test alone, enough to save cord blood? Just wondering if amnio would be more accurate. Turtlemom thoughts?

kalsey - 3 days ago.
and question (2). After readin this report http://books.google.com/books?id=NelULlxsF-wC&pg=PA227&lpg=PA227&dq=what+does+dangling+choroid+plexus&source=bl&ots=OVv0_huviP&sig=kRQfjTMycqewKy-WT9KZBraotJU&hl=en&sa=X&ei=8xwqVKv9EZe2yASk2IDoCg&ved=0CFgQ6AEwCg#v=onepage&q=what%20does%20dangling%20choroid%20plexus&f=false it seems that every real diagnosis of VM and Hydro have some kind of dangling choroid plexus. I've read through the posts, and it sounds like some docs have mentioned this and others not in sonos. My doc said something about the choroid plexus in my sono, and I started to get worried that maybe my baby did not have isolated VM, but this on top of it. TURTLEMAMA can you read this and give me your thoughts? :-)

kalsey - 3 days ago.
Thanks for the input and encouragement. A few questions. (1) If I dont do an amnio to rule out DS or genetic abnormality, how do I know if I should bank the cord blood? As it does not good in prescence of genetic defects....

laniejo2219@gmail.com - 3 days ago.
Kalsey - I also think you're doctor is giving you good advice. When I met with the neurosugeons at 37 weeks, he said that by the time parents are referred to him, we all are so freaked out because most OBs have scared the parents to death and think that their child is going to need emergency surgery right after birth. He said most the time they don't do surgery (if there is hydro) until the baby is at least 4 weeks old. Obviously if it's severe than that's a different story, but for most cases it's not like that. I had to get an MRI before the neurosurgeons would give me a consult. That kind of bothered me but I understand that they need to evaluate in order to give you an accurate prognosis. The benefit was that he did not see any signs of hydro. His vents measured 23, but there was no cortical (?) thinning, which indicates hydro, and the brain was normal. We felt much better after meeting with them. Knowing that there was no hydro at that point meant the pediatricians at birth would evaluate his head and then decide if goes to nicu. Because he came out with normal head size, he did not need to go. It was also comforting knowing that the brain itselfwas normal. I wouldn't advise doing chromosome testing or an amino because at this point in your pregnancy, there's no treating any problems if there is one, and it's not going to result in a different outcome or action. you can do a blood test once the baby is born if it's needed (we never had to). If the vents get larger I'd get the mri in utero. That way all the docs have a better understanding of what may be happening and how they and you can prepare. It could also avoid the baby needing one after birth, which I did not want him to go through and luckily he has not needed one. It was not a pleasant experience for me. The surgeons also told me that after a baby is born the vents can decrease because of being in normal atmospheric pressure, which in our case they did decrease by at least 5 mm the next day (23 bilateral to 15 & 17) via ultrasound. We haven't needed anymore u/s or mri. They say at this point we just watch for hydro symptoms and head circumference. But they did say if he does have aqueductal stenosis, he will develop hydro at some point, most likely this year. Our mri suspected aquectal stenosis, but he said they all say that if bilateral and 3 rd vent enlarged but 4th vent is normal. The actual stenosis is usually too hard to see. Hope this helps. I know it is so stressful and worrisome, but we are proof that everything can turn out okay. I am hopeful and believe that our son won't need surgery, but if he does, then we'll deal with it then. One day at a time! There is a chance that he'll have an intellectual disability, but I no longer care about that. Once you see your baby and the love that comes instantly, you won't want to change anything about them! He is perfect in my eyes and so beautiful! May God be with you and give you peace during this time!

mamamarth - 4 days ago.
Turtlemom, that is wonderful to hear! What a blessing you both are!

turtlemom - 4 days ago.
Hi mamamarth, I'm glad your little one is doing well! Parker started Kindergarten in August and is on track with her peers. She does have OT for fine motor to help with handwriting. But, her vocabulary is advanced and she is a complete joy!

mamamarth - 4 days ago.
By the way, Turtlemom, how is Parker doing? I think about you both quite often as your story remains one of our greatest inspirations! Hope you and your family are well!

mamamarth - 4 days ago.
Kalsey, sending tons of love your way! Your strength is fierce and your babies are so lucky to have you as their mom and advocate! I agree with Turtlemom, I think your doctor is taking the right approach. Waiting on such a potentially scary unknown is the most difficult part, but like Turtlemom said, the amnio can be really risky at this stage in your pregnancy. Long story short, our daughter had a stroke and circumstantial bleed in utero causing an obstruction in the ventricular pathways and Unilateral VM of the right side. We had tons of ultrasounds and 2 fetal MRIs, lots of blood work (more bc of the bleed than anything else) and no amnio. It truly was a waiting game that continued to get 'worse' with her largest measurement being 33 mm (you will find this is still minimal in comparison to some of the stories on this forum, which reinforces how malleable these tiny brains are!). Miraculously, the obstruction began to recede a few wks prior to her delivery and her measurements have remained stable at 14-20mm since that time. Our daughter is 7 months old and truly a joy! Doctors were slightly more concerned about her development bc of the bleed/stroke, however, she has hit all milestones on time or before! In fact, she is motoring everywhere! If not crawling, she is dinging up the bottom of all our furniture cruising around in her walker! She does have some delayed visual maturation and a nystagmus, however her MRI after birth and subsequent appts. all lead her neuro and neuro/optho to believe she will grow out of it. Again, they think her vision issues are more related to the bleed/stroke, not the VM. I will certainly say prayers for your family ! Please keep us posted!

turtlemom - 5 days ago.
Lab77, you are still very small. The margin of error is 1.5mm. If there was a blockage in the 3rd vent, you would see bilateral dilation. Unilateral dilation is more uncommon. If it continues to increase (which I doubt), I'd get a MRI around 30 weeks. There are several possibilities. But, they are small. You have a 77% chance of normal neural development.

turtlemom - 5 days ago.
And yes to cord blood! Call CBR right away!! Tell them Parker Hendrix sent you. With a VM dx, you might qualify for free banking under the newborn possibilities program.

turtlemom - 5 days ago.
Hi kalsey, bravo to your doctor for not freaking out! I do think you should be seeing a Perinalologist if your doctor isn't one, but as far as the insight, they were spot on! An amino is riskier further along. That's something you should do in the 18-24 week range. It could cause pre-term labor now. And, the chances of infection are really really low. I was so freaked about toxomasmosis I put my cat to sleep after our hydro dx bc he had anal cancer (it was time anyway). I told my Peri and he thought I was nuts! Stable vents are completely probable. Hugs and keep us posted.

lious8871 - 6 days ago.
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kalsey - 7 days ago.
Also, I find it a bit odd that she is so sure that if everything stays the same, we do not need to talk shunt. Is that assuming too much? And why did she not say anything about developemental issues as a possibility? She also said that she expects the measurements to stay the same, and most of the time they do, or sometimes decrease. They do increase sometimes, but that is not with most cases. What have you found in your experience/research MOMS?! Is this statistically accurate?! I have lost 4 pounds in the last 48 hours, and everyone here has given me much more hope than reading the online medical prognosis. THANKS TO ANYONE WHO HAS SOME ADVISE AND ANSWERS FOR US!

kalsey - 7 days ago.
I have been silently reading most of the posts over the last few days. I am 30 weeks pregnant. I just found out from a level 2 sonogram that my baby has bilateral VM, with ventricles measuring 14(right?) and 15 or 16 (left - cant remember exactly) mm. The perinatologist said besides a dilated kidney, everything in the baby is measuring perfectly. All measurements, including head circumference, heart, stomache, and everything else in the brain is on track. She acted extremely jovial and lighthearted, and said she wouldnt even put me in the moderate category at this point - just mild. She said I had what she considered mild hydrocephalus. I had read enough about VM to know that my measurements put me in the moderate category, and told her. She said no, no, because everyhtin else on your baby looks so good, and this has develped later in pregnancy, she is firm on a mild category. Also, as long as the measurements stay the same, she is pretty sure I will not need to consider a shunt. She guessed the cause of dilated was just a partial but not complete blockage. She was quick to dismiss an amnio, but wanted blookwork drawn to rule out downs. She wants me back in 2 weeks. If vents have increased, she will then talk MRI and nuero surgeon. Needless to say, I am nervously waiting for 2 weeks to pass until they re-measure. My concern and questions for any experienced mom out there that has delt with hydro and.or VM - What are your thoughts on the doctors reaction? Is she assuming too much on cause of VM? How important is an MRI for me at this point? What will it tell me? Should I be pushing for any additional tests? I hear a lot of you doing all these tests like an amnio to rule out chromoose and genetic issues - should I be asking for these? Should I be concerened she did not ask that I do testing to rule out infection etc on my end? How important is it to bank cord blood? We live in Ilinois - should I seek out the best of the best where a lot of you have gone up in Boston? Please please, any advice for how we should proceed! Btw I am 26 and this is my third kid. My second had a severe congenital heart defect that was diagnosed 4 hours after birth, and the shock and emotional roller coaster we went on was not something i wish to repeat. But sounds like this may be a repeat - but I want to do everything in my power to be informed ahead of time in this case! Please advise anyone !!??

lab77 - 12 days ago.
Thanks for the reply gandjplus1 Since my last post, i did have another ultra sound which was just 2 days ago and unfortunately, her left side ventricle went up to 12mm, left went down to 5.5. The specialist recommended and amnio which i did, but i am so scared if anything serious is wrong. The fact that it went up over 2mm in just 3 weeks has really freaked me out. I understand the amnio will give us a better indication if there is any serious abnormalities, but i am still unclear what results may be if the amnio is clear yet the ventricle is still enlarged. How severe can it still get? can it still result in any kind of disibility? Ladies, any information on this would be greatly appreciated. There isnt too much info on line about the best and worst outcomes

firsttime2323 - 15 days ago.
Update: my baby was released from the hospital on August 21! Doctors says he has septo optic dysplacia.. I say he has nothing. My son is acting like a normal baby. He smiles when he sees us, has good neck control and muscles. He's taking his feeds good and doing absolutely great. His vents are still 19mm and 23 mm.. With third vent to be 5mm. His head is measuring on track as well as everything else. Not sure what will happen in the future but he is doing absolutely great and you can't even tell there is something wrong. Pediatrician and family doctor are happy with him and his progress and we see a neurosurgeon on November 25 for a follow up and MRI. I'm hoping the vents go down and they find morning. However he does have small optic nerves but they say he can see and is tracking objects.. He may need glasses after 6 months or so but they say the majority of time even with small optic nerves .. They can have really good vision! If anyone is in the same situation as me.. Please tell me how things are going!!

turtlemom - 18 days ago.
Hi entessar, I hope everything is okay. Here are symptoms of Hydrocephalus in infants - vomiting, sleepiness, irritability, downward deviation of the eyes (also called 'sun setting'), and seizures. http://www.ninds.nih.gov/disorders/hydrocephalus/detail_hydrocephalus.htm#260253125 Thinking of you!

entessar129@gmail.com - 18 days ago.
Moms whose child needed a shunt due to ventriculmegaly , aside from a big head what was there symptoms Please ??

laniejo2219@gmail.com - 25 days ago.
Update: I last posted probably about 3 months ago while I was pregnant. My son was dx at 20 weeks with bilateral vm of 11mm and increased throughout pregnancy up to 23mm by 37weeks. MRI at 37 weeks suspected aqeductal stenosis, but neurosurgeon said hydrocephaly was not present. When he was born he was immediately evaluated by pediatricians and they deemed he did not need to go to nicu. He had an ultrasound the next day and ventricles decreases to 15 and 17mm. A good sign with no hydro. He has been doing great! We met with neurosurgeons twice since he was born 2 months ago, measuring his head circumference to monitor any development of hydro. He said if he does have aqueductal stenosis that he will develop hydro, and most likely it will happen in the first year of life. He said there is no point in doing another mri or ultrasound since we will only treat hydro and not vm alone. The waiting game is not awesome news, but at the same time my gut instinct is that everything is okay and some children just have enlarged vents. There is nothing that I would want changed with my boy. I hope this gives encouragement to other women out there who are going through a similar situation to mine. We prayed a lot and gave it to God. I am so thankful of how everything turned out. it makes me so sad and mad that some physicians would have told me to abort my baby. Give life a chance. Have hope. Pray and have faith that God will help you through your circumstances. He didn't cause this. He will help you through this no matter what happens. God bless you mamas. Xoxo

gandjplus1 - 36 days ago.
Hi lab77...my daughter had very similar measurements at 20 and 23 weeks. At each visit, through my 37th week, they remained about the same. I had already had an amnio done prior to finding out about the VM because my bloodwork was postiive for DS (this happened with 2 of my children and neither has DS) so I already knew it wasn't a genetic problem but even with an amnio, they can only tell you if it's a genetic problem or not. I can tell you from experience and from the research I have done, if there are no other complications and the vents remain stable...most likely this is just your babies normal! My perinatologist told me that with vents in those measurements (and no evidence of any other brain abnormalities) there is a 95% chance of 'normal' intellectual functioning and with vents in the normal range he can say a 96% chance...seems like very good odds to me!

lab77 - 37 days ago.
Hi everyone, I just joined the website and hoping to get some insight with other expectant mothers who are currently going through the same things as myself. I recently had the 20 weeks ultra sound and found that the right side of ventrical was measuring at 9.6 and the left at 8. The sonographer had asked us to return for a follow up ultra sound in 2 weeks as it was very hard to get the exact measurements due to the position of the baby. So i was told. 2 weeks later we have just been told the babies right side has now gone up to 10.1. I understand that this is still low and on the cusp of normal to mild, but we have been referred on to the fetus specialists and recommended to have an amnio done in 2 days. There is obviously a risk of miscarriage that we are very concerned about and not sure if we should be doing the test right now since it is still mild. I am extremely worried and not sure what to do. I know that i want to know if there is anything seriously wrong and feel that no matter what decision i make, it is a risk either way. The baby also has some urine in the kidney, though again quite low at this stage andt not sure if there is a link. Any advice or thoughts would be appreciated. I am currently 22 weeks pregnant


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Teeth-care-(Pregnancy)
Teething
Telling-Loved-Ones-You-Are-Pregnant
Tests-before-pregnancy
     Bacterial-Vaginosis-Screen
     Blood-Type-and-Antibody-Screen
     Chicken-pox
     Cystic-Fibrosis-Carrier-Screening
     German-Measles
     Gonorrhea,-Chlamydia,-Syphilis
     Hemoglobin
     Hepatitis-B-Screening
     HIV
     Ovulation-Predictor-Test
     Pap-Test
     Urine-Screening
Tests-during-pregnancy
     AFP-screening-test
     Amniocentesis
     Biophysical-Profile-(BPP)
     Blood-Glucose
     Chorionic-Villi-Sampling-(CVS)
     Contraction-stress-test
     Fetal-Fibronectin-Test-(fFN)
     Group-B-Streptococcus
     Non-stress-test
     Nuchal-Translucency-Screening
     Prenatal-Paternity-Testing
     PUBS
Tetanus
Thrombophilia
Tips-On-How-To-Get-Pregnant
Tips-To-Avoid-Pregnancy
Tobacco
     Smoking-Cessation
Toxoplasmosis
Travel-during-pregnancy
     Seatbelts
Traveling-With-Children
Treating-your-child`s-symptoms
Trisomy
TTC-After-Loss
TTC-After-Tubal-Ligation-Reversal
TTC-Dealing-with-Infertility
Tubal-Ligation
Tummy-time
Twins
     Complications
     During-twin-pregnancy
     Establishing-routines
     Fraternal
     Identical
     Nursing-twins
     Twin-delivery
     Video
Ultrasound
Unassisted-Childbirth
Urinary-Tract-Infection
Urination
Uterine-Fibroids
Vaccinations
     a)-Birth-2-Months
     b)-4-Months
     c)-6-Months
     d)-12-Months
     e)-18-Months-2-Years
     f)-4-6-Years
Vaginal-Delivery
     Vaginal-birth-after-cesarean
Vaginal-Discharge
Varicose-veins
Vasectomy
Vegetarian-Diet
Ventriculomegaly 1 new
Vomiting-(Babies)
Warts
Water-Birth
Weight-Gain
Weight-of-your-child
Whats-Safe-and-Unsafe
     Beauty-and-Spa-Safety
     Career
     Fitness
     Foods
     Home
     Medical
     Medications
     Sex
     Sleep
Working-Mothers
Ovulation-Calendar

All sections
Trying to conceive
Pregnancy & Birth
Birth defects
Babies