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Home » Pregnancy & Baby Forums » Ventriculomegaly



Ventriculomegaly

Ventriculomegaly



How can ventriculomegaly affect my child?

Ventriculomegaly

The ventricular system contains sac-like pockets that are filled with cerebrospinal fluid. When the ventricular system of the brain is enlarged, it is known as ventriculomegaly. The lateral ventricles of the brain are less than 10 mm wide in a healthy fetus. However, a fetus that suffers from ventriculomegaly has lateral ventricles measuring 10-15 mm wide. Sometimes they are even larger, in which the case is severe. Luckily, ventriculomegaly is not linked to other health conditions in most cases. Severe cases of ventriculomegaly can result in hydrocephalus, also known as water on the brain. In hydrocephalus cases, the cerebrospinal fluid builds up and puts pressure on the brain.

There are three major causes of ventriculomegaly. Improper brain development, destroyed brain tissue and insufficient absorption of cerebrospinal fluid are all factors that can make the ventricles in the brain larger. Sometimes chromosomal problems can cause ventriculomegaly.

Ventriculomegaly affects approximately 1 out of 1,000 live births and is normally nothing that the mother has done. The condition can be diagnosed before or after birth. Ventriculomegaly can be detected on ultrasound by the second trimester. An MRI can also be helpful in diagnosing the condition. A chromosomal analysis can be used to test for chromosomal problems that can cause the condition.

The only time that ventriculomegaly needs to be treated is when there is water on the brain. Even if there is no water on the brain, regular exams should be done to monitor the condition. Once the baby has been born, doctors will do exams and measure the head circumference to make sure the baby is healthy. Usually, ventriculomegaly will resolve on its own and there are no neurological or developmental problems. As long as there are no other health conditions or chromosomal abnormalities present, the long-term prognosis for a child born with mild to moderate ventriculomegaly is great.

See also: http://www.squidoo.com/ventriculomegaly-info
See also: http://www.i-am-pregnant.com/Birth/Birth-defects/Hydrocephalus





Comments: Ventriculomegaly

Comments 1 to 24 of about 2479.
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up north - 22 hours ago.
I was pregnant with a little boy who at 27 weeks had enlarged ventricles (12mm) they continued to grow until 32 weeks when they were (16 and 18mm). We met many docs to discuss 'what this all means'. They then stopped growing. When he was born he had an ultrasound and they were still 16 and 18mm. He is now 5 years old. He is bright and totally healthy. You would never know today what we went through...Good luck everyone

bdelacubano@gmail.com - 7 days ago.
I don't know if this will work right. I tried to read all the posts. Sorry if I repeat. Just told yesterday at 30 weeks that my babie's vent measures1.8. Is that the same as 18 mm? My doc wants to send me for a level 2 ultrasound and they can't get me in for over 2 weeks. This seems like a long time to me if there is a problem. Could this possibly be normal? She showed no signs at 20 week ultrasound. I am trying not to be overcome with worry. Thank you.

turtlemom - 7 days ago.
Horizontal

mamamarth - 8 days ago.
Turtlemom, in regards to Parker's nystagmus...do you remember if it was vertical or horizontal?

mamamarth - 11 days ago.
Thank you Turtlemom! Just leaving the ophthalmologist at chop and the appt. went great! Visually, the Dr. thinks everything is developing right on track. He thinks, if anything, it may be a motor issue of the eyes which has a great prognosis and she will likely grow out of. He was very optimistic that she's going to do very well! We were able to capture the 'shaking' on video as it only happens sporadically, so to be safe he is going to share that with a colleague specializing in neuro ophthalmology. Otherwise, he doesn't want to see her until she's 6 months which is just to ensure all is progressing as it should. Another hurdle successfully crossed!

turtlemom - 16 days ago.
Parker had nystagmus until she was around a year old. It did go away with time. Prayers for your little one.

mamamarth - 16 days ago.
Hello all! Just wanted to give a quick update as we had our first hiccup with Grace this weekend. We were concerned about some visual changes we noticed where her eyes seemed to be 'shaking'. Because of her history and because she's our first baby, determining what's 'normal' is always tough and we feel we can never be too cautious. To be safe we took her to our local children's hospital late Friday night where they did a ct scan which essentially showed no neuro changes since her ultrasound after her birth. That was great news! To be safe neuro down at chop wanted to evaluate her as well. All of her assessments looked great but they kept her overnight to do an EEG to rule out any seizure activity. Fortunately that was negative and if anything showed that her brain seems to be transitioning beautifully from newborn to baby. But they do think she may have a slight sensory nystagmus (her eyes twitch in an attempt to focus) which may be a result of the pressure that was put on her brain in utero. So we are going to see ophthalmology next week. But otherwise she looked good so praying that's it and we are just so grateful it wasn't anything serious at this point. Regardless, she is a little ray of sunshine and my husband and I continue to take this journey one day at a time and relish in how fortunate we are that she is ours! :)

mamamarth - 30 days ago.
Roni825, will be praying for you in the final stretch! I know you will both do amazing!! Mafernj and Ansia2014, the discovery and diagnosis of ventriculomegaly is without a doubt one filled with fear and anxiety about what's to come, especially because the varying outcomes range to each end of the spectrum. Fortunately, both of your cases seem to be mild which may just be your baby's normal. Please keep us posted on how things progress....I will certainly be sending many prayers your way! As for our Grace, she is doing amazing! She had her one month appt today and she's progressing as a healthy baby with head circumferences continuing to measure well within normal range! She has amazing head control, is tracking moving objects and when her little eyes lock in a gaze with mine I could just melt. She has taught me so much about life already and continues to inspire so much hope as you all do as well. The human brain is such an incredible thing and it's ability to endure and evolve is nothing short of miraculous in my opinion. Continuing to send wishes of health and happiness to everyone on this forum as your stories truly help so many to find peace! What a blessing!

JoshandCalebsmom - 31 days ago.
Mafernj, I know how worried you must be and I hope everything works out well for you. My sons ventricles were found to be 17 at 20 weeks and remained pretty stable. He had no other defects. I did not.have a c section and when my son was born his head was proportionate. He is a big boy! He is now 15 months and perfectly healthy and actually advanced with language. Hope you have a great delivery and a healthy baby!

mafernj - 32 days ago.
I got diagnosed w ventricularmegaly on Friday... I'm 38 weeks pregnant. The number is 12 w no other defects.... So they say, I cannot describe how I feel right now, I went thru my whole pregnancy confident that all was great. So here I am, went to see Obgyn today he suggested a csection this Friday.... I was planning for natural birth. I don't care about that as much as making sure my baby's brain doesn't go thru much more stress. Idk what to expect, I wish I had more time to prepare mentally for what she will look like and have to endure. Dr is optimistic it will resolve on its own, I'm just a nervous wreck and feel I will lose my mind waiting for her to be scanned on Friday. Any idea of what I should prepare myself for?? Will her head be very big? Will she be delay? Thank u for any advice and for reading. Glad I just found this blog.

Ansia2014 - 33 days ago.
Hello, , my 22 weeks ultrasound scan showed my baby boy has borderline unilateral right ventriculomegaly (10mm), though the measurements were 8.1mm at 18 weeks and 7.1 at 20 weeks. I had a clear CVS at 11 weeks and my TORCH screen is normal. I am extremely worried but was just asked to re-scan in two weeks. I am very worried that they will progress. Also, if I had only had the 20 weeks ultrasound I would be blissfully ignorant.

Roni825 - 38 days ago.
Stable measurements today about 7 weeks after first discovering high/borderline measurements. Will post again after baby is born in the hopes of helping someone with a similar situation. 11 1/2 weeks to go. Thanks again, everyone. Take care for now!

gandjplus1 - 38 days ago.
I found all of you lovely people just about one year ago after my level 2 sonogram left me a nervous wreck. At 19 weeks pregnant, my baby's lateral ventricles measured asymetrical and at the 'high end' of normal (don't remember exact measurements). I was then followed every 3 weeks at a perinatologist. Her ventricles did increase and stabilized a bit above 10. Each appointment left me with 'scanxiety' but I quickly came to this board for re-assurance and support. Today, my baby is 7 months old and developing wonderfully. She rolls, sits, smiles and laughs and is just amazing. At her 6 month check-up, she was referred for a head sonogram, as her pediatrician said she has macrocephaly-her head measures in the 98%tile. Her vents were again measured and they remain the same at just above the 'normal limit', but they feel that this is just her 'normal'. Luckily her fontanelle had not fully closed, so she did not need an MRI and sedation. Since this board was so unbelievably supportive to me throughout the entire second half of my pregnancy, i just wanted to share my story. Good luck to everyone here going through the same thing. I pray for each and everyone of you and your babies!!

blueskymom - 38 days ago.
Yay baby Grace!! Mamamarth, thanks for sharing your beautiful story.

Roni825 - 41 days ago.
Hi Paytonp1, how many weeks are you now? The fact that the vents decreased is good. I'm not an expert, but I am in a similar situation and know your worry. Vents measuring at 10 are still normal so it sounds like baby could just be on the high end of normal. The hard part (or at least in my case) is that the doctors aren't going to tell you it's ok and will want to remeasure periodically to make sure it doesn't progress. However, from my research along with the stories of people here, the chances are extremely good (with no other findings) that the outcome will be fine. Medical technology has come a long way and sometimes all this information causes us to worry for no reason. I had an unnecessary scare during my pregnancy with my 3 year old daughter over something completely different, so I'm seeing a pattern here. I hope you find the reassurance you need. I will be checking in here too after my second follow up Tuesday (6 weeks from when this all started.) Hang in there.

paytonp1@aol.com - 42 days ago.
At my Fetal anomaly scan my baby's vents measured 11 mm, with no other abnormalities, I went back a few weeks later and her vents decreased in size, 10.mm and 9.4 mm , I am driving myself sick everyday bc of this , can this be normal fetal growth someone please ease my nerves

sophiewent85@gmail.com - 44 days ago.
The fear and stress of my pregnancy with my baby diagnosed with ventriculomegaly now seems so far from our life. Our baby boy is 3 months old and is happy and healthy. He had vent measurements in utero up to 17mm and doctors made the future seem bleak - they were so very wrong - there are so many positive outcomes. I wish you all the best with your babies - positive thinking will get you a long way - believe in your babies - they are truly amazing .

turtlemom - 44 days ago.
mamamarth, Congratulations! What a wonderful outcome. I couldn't be happier for your family. May the blessings continue for you and yours!

mamamarth - 46 days ago.
Thank you so much Roni825! How are you feeling? How did your last ultrasound go? Wishing you and your family the best in health and happiness!

roni825 - 46 days ago.
Congrats mamamarth to you and your family! Words cannot express how happy I feel for you. I've been thinking of you and checking in everyday. Just know that you have helped me get through this difficult time as I'm sure you've helped several others. Enjoy every moment!

mamamarth - 46 days ago.
Hello all! I hope this message finds everyone well! I just wanted to update you all as it has been 2 weeks to the day since our beautiful little girl was born! Grace Catherine entered this world on 2/17 at 8:30 pm weighing in at 7lbs 3oz and measuring 19in. long. We were scheduled to deliver at 8 am via c-section, however Grace had other plans. I went into labor on the 17th and the doctors at Chop didn't want to wait until the following morning, so the c-section was performed that night. She entered this world wailing as if to let the world know her strength...it was the most amazing sound we had ever heard. We got a quick glimpse and she was whisked away to the NICU for immediate assessments and testing. My husband was incredible at bouncing back and forth between the two of us...each time he was more ecstatic about how well she was doing. She was breathing on her own, her vitals looked amazing and initial assessments lead the drs and nurses up believe she was essentially a healthy baby. As of 3 am she still hadn't had her ultrasound, which would be the final determination of whether or not she would need an MRI followed by a shunt. Around that same time I was cleared to head to the NICU and regardless of the pain I would have run down to her floor if they allowed. When we arrived to the NICU I was suddenly nervous, but as soon as I laid my eyes on her and held her in my arms, any fear or anxiety that had built up over the last 6 months escaped me. She was my version of perfection and I couldn't be more in love! At 7 am neurosurgery came in for our consult after reviewing her ultrasound and the outcome was astonishing. In an extreme turn of events, the right ventricle was showing mild dilation measuring slightly larger than the left with the remaining brain structures appearing completely healthy. Not only did she not need a shunt, she didn't need further imaging and would only remain in the NICU for another 24 hours for monitoring. On Weds. the 19th she was discharged from the NICU to accompany us in my room for our final night in the hospital. On Thursday the 20th, we were discharged home with our baby girl in tow only to return for follow up to CHOP in 3 months to ensure she is meeting all developmental milestones. In the last 2 weeks we have visited her pediatrician twice for head circumference and weight checks which have been well within the healthy range. My husband and I are relishing in everyday and every ounce of good news. Please don't get me wrong, regardless of the outcome our love for her couldn't be stronger and we were and are willing to face whatever hurdles may come...but to have had such an unexpected turn of events is a blessing beyond our wildest dreams. Believing in these babies and finding and entrusting quality medical care are so important...both, combined with our faith, have carried us in our moments of doubt and fear. This forum has been such a beautiful outlet and I will continue to share updates and read other's stories as you are all so inspiring.

naomimwilson@gmail.com - 49 days ago.
'your endless research isn't going to give you the answers you want. Unfortunately it's going to direct and redirect you to various scenarios with widely ranging outcomes. What I want you to do is enjoy this pregnancy, relish in the positives and we are here to prepare you for any hurdles we encounter.' Thank You Mamamarth for sharing, the best thing I have read!

naomimwilson@gmail.com - 50 days ago.
OK so I am new here I posted on Motherwise on facebook and a lovely lady led me here :) At our 20 week scan we found out bub had 11mm dilated ventricles and 2 vessel cord, everything else (size etc) seemed normal. We were referred to the Fetal Monitoring Unit for further investigation. At 24 weeks we had a second scan at the FMU were bubs ventricles now measured 12 and 13mm and she was a little small, we were given a number of options and we decided to come back in 2 weeks and rescan see how she was going. 26 weeks (yesterday) her ventricles measured 15mm bilaterally and she is very small 5 percentile they said, this is concerning because at 20 weeks she was fine 50 percentile for estimated size and weight. We are being referred to Sydney, AUS from Canberra for a MRI hopefully this will happen next week. The 2 FMU specialists we have spoken to at the FMU are quite concerned, they believe there are 3 possibilities at this stage, Structural, Genetic or chromosomal. Down syndrome and Cerebral Palsy have been mentioned, cerebral palsy mostly at the last appointment but we don't have enough information. That is the part I hate the most I feel like I am completely in the dark, I don't know anything.

timmpierce@gmail.com - 58 days ago.
Blueskymom - good luck with everything. Hope you manage the stress ok, I remember it well! The fear of the unknown was unbearable and definitely tempered our enthusiasm during the pregnancy. My son had similar measurements (which actually got a little larger after birth) and also had no other symptoms. He's now two and seems perfectly normal so far.

timmpierce@gmail.com - 58 days ago.
Hi Katie, good to read your update. Hope your little 'un cracks the speaking thing soon, got my fingers crossed. He could be one if those kids who doesn't speak until they're sure they can put a full sentence together, did you try any signing with him? Magnus is still doing well, everything seems to be on track as far as I can tell.


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