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Home » Pregnancy & Baby Forums » Ventriculomegaly



Ventriculomegaly

Ventriculomegaly



How can ventriculomegaly affect my child?

Ventriculomegaly

The ventricular system contains sac-like pockets that are filled with cerebrospinal fluid. When the ventricular system of the brain is enlarged, it is known as ventriculomegaly. The lateral ventricles of the brain are less than 10 mm wide in a healthy fetus. However, a fetus that suffers from ventriculomegaly has lateral ventricles measuring 10-15 mm wide. Sometimes they are even larger, in which the case is severe. Luckily, ventriculomegaly is not linked to other health conditions in most cases. Severe cases of ventriculomegaly can result in hydrocephalus, also known as water on the brain. In hydrocephalus cases, the cerebrospinal fluid builds up and puts pressure on the brain.

There are three major causes of ventriculomegaly. Improper brain development, destroyed brain tissue and insufficient absorption of cerebrospinal fluid are all factors that can make the ventricles in the brain larger. Sometimes chromosomal problems can cause ventriculomegaly.

Ventriculomegaly affects approximately 1 out of 1,000 live births and is normally nothing that the mother has done. The condition can be diagnosed before or after birth. Ventriculomegaly can be detected on ultrasound by the second trimester. An MRI can also be helpful in diagnosing the condition. A chromosomal analysis can be used to test for chromosomal problems that can cause the condition.

The only time that ventriculomegaly needs to be treated is when there is water on the brain. Even if there is no water on the brain, regular exams should be done to monitor the condition. Once the baby has been born, doctors will do exams and measure the head circumference to make sure the baby is healthy. Usually, ventriculomegaly will resolve on its own and there are no neurological or developmental problems. As long as there are no other health conditions or chromosomal abnormalities present, the long-term prognosis for a child born with mild to moderate ventriculomegaly is great.

See also: http://www.squidoo.com/ventriculomegaly-info
See also: http://www.i-am-pregnant.com/Birth/Birth-defects/Hydrocephalus





Comments: Ventriculomegaly

Comments 1 to 24 of about 2702.
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turtlemom - 3 hours ago.
I only know IGM and IGG. Which one was negative and which one was positive? I had a false positive rubella when I was pregnant. I think that's somewhat common. http://www.cdc.gov/dpdx/toxoplasmosis/dx.html

milismom - 8 hours ago.
TutleMom - so i just got a call from my doctors that my TORCH results were in. My CMV IGG was negative but the IGG was positve, Im wondering if it has a correlation between the ventricles although she assured me t was unlikely. Our genetic conselor is not in until friday so i have to wait and see.

turtlemom - 1 days ago.
My daughter had severe hydro. Her vents were unmeasurable at 27 weeks. We wound up having her at 32/6. We never had a fetal MRI. I'd scrap it and wait for one that will really tell you something.

milismom - 1 days ago.
Thank you Turtlemom ,Yes the Mri is a week before my repeat c section which was so hard to get sooner. The relief I have is that we are patients of a good university hospital and children's hospital with a great neuro department . It's hard waiting so long but I hope the blood work comes back ok as well. I'm hoping measurements don't change since they said that would be a good sign. I forgot to mention we also had an echo done after the anatomy scan (due to the unchallenged fold thickness) and it came back normal no heart defects.

turtlemom - 1 days ago.
Milismom, a MRI at 38 weeks is worthless. I would wait until your little one is born. A fetal MRI is not as definitive as one once you give birth. It's a total waste of $ and time. 15mm and 17mm at this late term are still very borderline mild to moderate vent measurements. I know it is hard to do, but you need to wait until your little guy is born to even find out if he will have hydro. Many children with borderline vents are followed for months before they determine whether they need surgical intervention. And, the prognosis is really good. It's very unlikely your little one will have intellectual disability (a chance, but small). He may have some delay, but that's probably the worst. I would recommend an appointment with a pediatric neurosurgeon. Best wishes!

MilisMom - 1 days ago.
Hello. I had a growth scan last week in currently 36 w. So far the only issue we had encounter at 20w was a borderline nuchal fold . We had an amnio done and everything came back OK. No spina bifida, chromosome abnormalities. Well at our growth scan the ventricles measured 15mm and 17mm. The doctor that talked to us mentioned hydrocephalus right away. I had blood drawn and I'm scheduled for weekly ultrasound and a mri in two weeks. It's devastating just having gotten over the scare of our 20w ultrasound. Our genetic specialist said it was good news we had the amnio done prior and everything was OK , the same with there being no increase until now and not prior. I'm a mess obviously and I can't get over the initial response from the attending doctor right after the tech got the measurements which were mental retardation and low iq. Btw we are having a boy and he has been sitting down since 30w . Will appreciate any feedback.

maeva - 3 days ago.
Hi. I am 20+ 3 today and 40 years old. This will be my second baby ( I have a nearly 4 year old girl). I had my anomaly scan on the 22nd May and I am beside myself. It was a private scan as my HSE anomaly scan is not until the 1st of july and the wait was killing me. The sonographer was just very abrupt. She told us that the head was measuring small ( 1 week behind) and that she saw something and will need to refer us to a specialist and could not say more. I then read the report and it said a suspected dilatation of the lateral posterior ventricule 11mm. the rest was fine. I saw my GP straight away who mentioned fluid build up and possible reasons and outcomes. He referred us to consultant. I have been researching the topic for the past 3 days and came across this forum. I am scared to death that it can be related to a chromosomal issue because I am 40 (hubbie persuaded me not do do any of the FTS). The wait is killing me, the unknown even more. I know if it is VM we are still in the mild category and the outcomes are good if it is also isolated but we just don't know and that's what is killing me...Will update

dejonghclaudia@hotmail.com - 3 days ago.
gandjplus1: Thank you for your feedback. Always helpful to hear other stories of similar cases than your own. gingermom: Great news, I am glad we can both relax a bit now. I keep checking the blog and I will update once my baby is born in the next few weeks.

gingermom - 4 days ago.
I had my follow up scan 3 days ago, the ventricles size fluctuated from 12 mm to 12.5 mm. The doctor told me not to worry and that she doesnt consider it as progression. She said that the baby is generally big, all parts of her body is at the maximum scale including her head. She said that sometimes VM happens in these babies whithout any special reason and symptom. Its likely that my daughter just has a large head similar to my husband! Im a bit relieved and try to think positive.

gandjplus1 - 6 days ago.
djonghclaudia, my daughter's VM remained similar through my entire pregnancy (19 weeks through 36). The measurements fluctuated around .3 or so, which they considered to be the same due to margin of error. She did not receive any further testing when she was born and her last sonogram of her head was done 3 weeks prior to her birth. When she was around 6 months old, her head was measuring larger than normal, so we were then referred for a head sono to check the ventricles. The ventricles remained the same as from when she was inutero (over 10), and turns out she just has a large head and large ventricles. She was also monitored by a neurologist due to her head size, but once she started walking-13 months-he didn't see the need to see her anymore. All milestones have always been right on time. Additionally, a cat scan was done at 16 months, following an accident, and the VM remains. So in our case, it has never resolved-but her development is completely normal.

turtlemom - 6 days ago.
Isolated mild VM will remain unchanged in 60% of cases, go down in 1/3 of cases and go up in only 8% of cases. http://www.obfocus.com/questions/qanda10.htm The margin of error is 1.5mm. I wouldn't worry about a change within 1.5mm. My daughter had obvious growth.

dejonghclaudia@hotmail.com - 6 days ago.
I had my follow up scan today and the right ventricle measured 12mm vs 11.8mm from 3 weeks ago. I was advised not to worry and from looking at how the measurement was taken, considering how low she is and that the Doctor has to take it from an angle, I can see its very easy to be off with 0.5mm or so. Just wondering, do we still run tests after birth or simply monitor milestones?

StacieT - 6 days ago.
Any other moms have complete resolution of VM? Ours went down to a normal 7.9 by 32 weeks and they seem to not even want to check on him after birth. Are the odds of no other issues higher when VM resolves, or does it matter?

turtlemom - 6 days ago.
No, those tests weren't common 7 years ago. I would have chosen them over the amnio had they been available then. I had an amnio at 18 weeks with Parker, but that was 2008. The Harmony & Maternti21 are good about the negative being a solid negative.

lovingmummy1 - 7 days ago.
Katiediggy thank you for you're reply. After that post she started walking better! Not 100 percent there yet but more steps ! Turtlemom could you tell me if you had any screening tests or any genetic testing when you were having Parker? I feel like maybe I should have now so if I ever wanted another baby it would bring peace of mind

turtlemom - 8 days ago.
A late term amnio is not advisable. In fact, for VM I don't recommend amnio' sin general. There are more effective blood tests called Harmony or Materni21 that you can take. They do not rule out every chromosomal abnormality, but they do cover the Trisomies, SB, etc. The one you probably had in the first trimester is fine but not as comprehensive. Honestly, it's unlikely to be genetic unless they found another marker through ultrasound. The 23% is more likely to be a result of a stroke in utero which would only be found on a MRI.

dejonghclaudia@hotmail.com - 8 days ago.
gingermom: I wish you all the best for your scan tomorrow. Please update us on the results. Positive thinking x

gingermom - 8 days ago.
dejonghclaudia: my follow up can is tommorrow and im really worried about the result. wish the best for both of us.

dejonghclaudia@hotmail.com - 8 days ago.
gingermom: If you read my story from 13 days ago you will see our results/stories are very similar. All my scans have been 100% normal, low risk pregnancy and then at 32 weeks the Doctor picked up on 'mild isolated VM' measuring at 11.8mm - I am due for my follow up scan this Thursday to see if anything has changed. I wont also be doing any additional tests as I was told there is no use. All we can do is wait until the baby is born and observe her development. I will post my results on Thursday after my scan.

gingermom - 8 days ago.
thank you turtlemom for the reply. can the normal (negative) result for maternal screening tests earlier in pregnancy including nasal bone test, nuchal translucancy scan and mother blood test be good indication that the ventriculomegaly is not due to the genetic faults? because im not going to go for amnio test at this stage of my pregnancy (34 weeks) and the fear of genetic fault is killing me.

turtlemom - 8 days ago.
Hi gingermom, there is a 77% chance of normal neural development. That doesn't necessarily mean the vents will go back to normal, but that means they won't increase into hydrocephalus. Good luck to you and yours! http://www.obfocus.com/questions/qanda10.htm

gingermom - 10 days ago.
Hi. I recently had my 32 week 3D scan and my daughter was diagnosed with mild ventriculomegaly of 12 mm. my follow-up ultrasound is by the end of this week (34 week). my doctor suggests no amnio test is required at this stage, because its not helpful and termination of pregnancy is not an option at this stage. I've performed screening tests earlier in pregnancy that came out normal (low risk). should I be woried about genetic faults? also, Ive seen my daughter face in the 3D scan that seems to be perfectly normal. is there any chance that the vents resolve in my next scan?

katieandiggy@tiscali.co.uk - 12 days ago.
Lovingmummy - if there are no other problems I wouldn't worry at this stage. I know that's easy to say. My VM baby walked at 11 months but he's 3.5years now and still can't talk and has poor receptive language. My friends daughter was a late walker. It turned out she has dyspraxia. Is your daughter in any OT or PT?

lovingmummy1 - 15 days ago.
Hi I just wanted advise from anyone with a similar situation. I have posted here before my daughter had mild vm and when she was born turned out fine. I never had an amino while pregnant or any screening tests. She is now two, she knows the alphabet can put two words together she can crawl cruise climb and stand and recently took a few steps on her own. She started to cruise late I want to add. I am worried about her because she is not walking like a normal two year old although as she has taken about 13 steps on her own I feel she can do it but am scared there might be more to why she doesn't want to or isn't right now. She has had blood test to look at ck levels for muscle problems which turned out mildly eblevated but nothing like the levels in the dystrophys. She has had an eye examination which showed short sightedness like my older daughter and everythig else was fine. Any opions would be great. If she is not walking by July they might want to genetic test which I am scared off . Any mums please help and turtlemom have u heard any cases like this. ?

clauddj - 21 days ago.
Hello. I had my 32 week doppler scan on Saturday and the Doctor reported back that my baby has 'Mild Isolated VM' measuring at 11.8mm on the right side. I dont have any other issues and have been told to return in 3 weeks for another scan. We are obviously upset by this and have done a lot of reading online. I am finding this forum particularly helpful. Would love to hear from other Mums who had the same measurement for their babies and what was the outcome.


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