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Home » Pregnancy & Baby Forums » Ventriculomegaly



Ventriculomegaly

Ventriculomegaly



How can ventriculomegaly affect my child?

Ventriculomegaly

The ventricular system contains sac-like pockets that are filled with cerebrospinal fluid. When the ventricular system of the brain is enlarged, it is known as ventriculomegaly. The lateral ventricles of the brain are less than 10 mm wide in a healthy fetus. However, a fetus that suffers from ventriculomegaly has lateral ventricles measuring 10-15 mm wide. Sometimes they are even larger, in which the case is severe. Luckily, ventriculomegaly is not linked to other health conditions in most cases. Severe cases of ventriculomegaly can result in hydrocephalus, also known as water on the brain. In hydrocephalus cases, the cerebrospinal fluid builds up and puts pressure on the brain.

There are three major causes of ventriculomegaly. Improper brain development, destroyed brain tissue and insufficient absorption of cerebrospinal fluid are all factors that can make the ventricles in the brain larger. Sometimes chromosomal problems can cause ventriculomegaly.

Ventriculomegaly affects approximately 1 out of 1,000 live births and is normally nothing that the mother has done. The condition can be diagnosed before or after birth. Ventriculomegaly can be detected on ultrasound by the second trimester. An MRI can also be helpful in diagnosing the condition. A chromosomal analysis can be used to test for chromosomal problems that can cause the condition.

The only time that ventriculomegaly needs to be treated is when there is water on the brain. Even if there is no water on the brain, regular exams should be done to monitor the condition. Once the baby has been born, doctors will do exams and measure the head circumference to make sure the baby is healthy. Usually, ventriculomegaly will resolve on its own and there are no neurological or developmental problems. As long as there are no other health conditions or chromosomal abnormalities present, the long-term prognosis for a child born with mild to moderate ventriculomegaly is great.

See also: http://www.squidoo.com/ventriculomegaly-info
See also: http://www.i-am-pregnant.com/Birth/Birth-defects/Hydrocephalus





Comments: Ventriculomegaly

Comments 1 to 24 of about 2717.
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katieandiggy@tiscali.co.uk - 6 days ago.
Hi everyone, I was a regular poster on her back in 2011/2012 when my son was diagnosed with unilateral VM measuring 12.6mm at 33 weeks. All tests came back normal including a CVS as I was too late for amino. I have given updates periodically on his development. He met all his milestones on time, smiling, sitting, crawling and walking. I noticed his speech was delayed around 18 months. Well fast forward he is 3.5 yrs now and has been diagnosed with Autism Spectrum Disorder. I did suspect it for a long time, just little things, very subtle but as a mother I could see it. My sons main issues are around communication, at the moment he doesn't have any behaviour issues. I always said I would update my story good or bad. All the mothers going through this, I have read literally hundreds of VM stories and Turtlemom is right that the vast majority all end up with great outcomes.

turtlemom - 13 days ago.
Andreiuxto, the chances of 'normal' neural development for your surviving twin is 97% - http://www.obfocus.com/questions/qanda10.htm. Please use caution when choosing your words here. I'm certain it was a very difficult decision to terminate your baby. But, your child had very similar measurements to my daughter. So, you made the decision to terminate a child that I chose to bring into the world. I do wish you the very best with your baby. And, I can assure you things will be fine, even if they aren't 'perfect.'

andreiuxto - 14 days ago.
I'm pregnant with twin boys, 28 weeks. At our 20 week ultrasound we found Twin A to be perfect, other than a 2-vessel cord. Twin B on the other hand, had severe bilateral VM at 20 and 22 mm, with ACC and little brain tissue found. We got a few other opinions, one grimmer than the other. We ended up having a selective reduction a week later as the VM progressed. and the head continued to grow 3 weeks beyond normal, putting the other twin and myself at risk. Both twins are completely separate, 2 sacs and 2 placentas, so while I did have some risk for preterm labour, it was very little. They still weren't able to tell us what caused this, as all bloodwork and amnio came normal. I've been closely followed the rest of the pregnancy, with all measurements normal until this week's ultrasound. The surviving baby has one ventricle measuring between 10-11 mm. The other ventricle is nomal. Measurements were both normal (about 8 I believe) 2 weeks ago. My dr says it's a completely different story that the other twin; still isolated, head circumference measuring normal, and brain fully developed. She says she sees this all the time, and normally it's no big deal, babies move on and are born healthy. Still, because this has been such a complicated pregnancy, she wants to make sure everything is fine. We had a fetal MRI on Saturday, and hoping to get results in the next few days. I haven't stopped crying since Wednesday. I never expected to have issues at the beginning of my pregnancy, let alone with both twins, same condition, but completely separate. I'm thinking that also, since it happened much later in the pregnancy, it wouldn't have affected any brain development. But I don't know if that's my denial talking or what. Am I crazy for thinking so? I'm scared the ventricle will continue to grow. What are the chances of growing into severe VM at this stage of the pregnancy

stacieT - 16 days ago.
I had my baby boy on Wednesday. His left vent at the highest measured 11 something and resolved around 32 weeks to 7.9. He has had some complications since birth, but they assure me they are all due to my csection and have no bearing on the VM. They don't want to do any follow ups with tests. Just monitor his head growth and development at his well checks. So unless something new comes up, it appears his left side unilateral VM has no effect on him

Tina Pop - 17 days ago.
Hello! It's my first time writing here. This forum has been very helpful these past 2 months. At 27 weeks I was told that my baby boy has unilateral borderline ventriculomegaly, left ventricle measuring 10-11 mm (the doctor mentioned even getting a measurment of 12mm). The problem was that the baby was not in a very good position to be measured so I was called for a follow up in 10 days and the ultrasound showed 12mm (actually it was more of a 12.something but they wrote down 12). I live in Romania, Europe, so I don't know if they perform MRI in uterus, what they told me was that if I had gone earlier for a scan they would have performed aminoacentesis. I was tested for toxoplasmosis but both IgG and IgM are very low, so I am not infected. On the ultrasound my baby looks very healthy. The only thing they found was this left ventricle enlarged. The news was devastating for me. I was really scared and came home to learn more about this condition. The doctor's attitude scared me because he said I should come in 2 weeks and see how the baby is doing and relax cause there is nothing I can do. I came home, did a lot of research, found this forum, and calmed down. I am very optimistic and I try to convince myself and others that my baby is fine. I didn't go for another ultrasound because I know too many ultrasounds can affect the baby and since there is nothing they can do while I'm pregnant, I didn't want to go and get more stressed. I made an appointment to go at the begining of July for another ultrasound. By that time I would be 37 weeks pregnant. My question is, what do you know about unilateral ventriculomegaly? Is it a good sign when only one ventricle is enlarged or is it worse? Thank you.

kawanna - 18 days ago.
This great man called Priest Babaka of babaka.wolf@gmail.com helped me with a pregnancy spell. i have been married for the past 9year without a child i and my husband has went for many check up but the Doctors always bring positive result that we are okay, we have been hoping that we will get bless one day but every day just look the same i always touch my stomach but nothing happens. But with the great help of Priest Babaka i have have my first baby this year April 22 2014 i am really thankful for the great help he render to me in case you need his help just email him on : babaka.wolf@gmail.com for help.

apritchett50 - 22 days ago.
Hello! I am currently 32 weeks pregnant with a little girl with IMV. Her vents have been stable for a while now, at 11 and 13. We had an MRI at 28 weeks which showed the same measurements and no other problems. But now they are suspecting IUGR. Just curious if anyone has had a similar diagnosis. Thanks!

tagaston - 33 days ago.
Lovingmummy1-yes, had blood taken for torch screen. Waiting for results. Opted not to have amnio, didn't really seem worth the risk this close to the end game.

lovingmummy1 - 34 days ago.
I meant my daughter is now two and fine *

lovingmummy1 - 34 days ago.
Tageston my daughters both were 11 when we found out at 17 weeks. Remained the same or just below 10.5 and then randomly one ultrasound showed 8mm both sides and then the MRI which is supposed to me the most accurate and was confirmed after birth Aswell showed the original 10.5 each side. Ultrasound scans near the end are not that great it showed us 7mm at 36 weeks and I knew it wasn't correct. The good news is 10 -11 is borderline and my daughter is now too and is perfect super smart and is properly walking now too ! Don't worry- did u have any other tests like amino or blood screenings ?

tagaston - 35 days ago.
Hello. At our 20 week scan our baby girl was found to have one ventricle at 10.6mm so we were referred to the consultant the following week who did a detailed scan. At that scan both ventricles were found to be below 10mm (they were both around 8mm). He also said there was nothing else on the scan to be concerned about and not to worry but asked us to come back in for another scan at 32 weeks. We had the scan yesterday and the ventricle has gone back to 10.6mm! He said he could refer us for a fetal MRI if we wanted which we will be having next week. Now very worried! Has anyone has measurements go up and down??

firelily - 36 days ago.
Habibi, I had a similar situation with an ultrasound showing 11 and MRI between 13-14, I don't remember exactly. Our doctor told us to expect a higher number on the MRI and so we were not surprised. Here in France they only wanted to do an ultrasound every 4 weeks. At 35 weeks the vents were both normal and about the same size. Baby boy is 11 weeks old and perfect.

habibi-8915 - 37 days ago.
I'm in the US. Just worries me that the MRI is finding a much higher number then the US. Every week until birth I will do US but I feel the number might not be accurate as there was such a variance in the MRI. Most MRIs show lower numbers not higher.

lovingmummy1 - 38 days ago.
Habibi don't worry, same thing happened to my baby vents 11 each side max, MRI showed 11 and ultrasound showed 12mm at 17 weeks. 15 and 11 still are not that high you have a good chance of good development. Are u in the uk or us? I had the MRI at queen charlottes uk. Ia all will be fine habibi

habibi-8915 - 38 days ago.
Also to add at my 18 weeks US they didn't notice any fluid. I did mention to my high risk OB during the MRI the baby was moving the whole time and i literally almost had an anxiety attack during the 45 minutes MRI.

habibi-8915 - 38 days ago.
Hello. During my 28 week ultrasound they noticed enlarged ventricles on both sides measuring at 11mm. That same day I was sent to a high-risk OB that has a better ultrasound machine to also check the measurement. Also came back 11 MM on both sides. Three days later I went and did an MRI of the fetus. All structural was fine and they noticed no brain damage. But their measurements came back 11mm on one side and 15mm on the other. Which is a big difference then what the ultrasound was reading. The very next day I had an appointment with my high-risk OB where he also did an ultrasound (since now I have to go weekly to do Ultrasounds) and he measured 11 on both sides still. And was unsure why the MRI results showed 15. Has this ever happened to anyone. I'm a ltitle concerned because the MRI number is more precise, so I heard. Not sure why there's a big different in the US versus MRI.

turtlemom - 41 days ago.
I only know IGM and IGG. Which one was negative and which one was positive? I had a false positive rubella when I was pregnant. I think that's somewhat common. http://www.cdc.gov/dpdx/toxoplasmosis/dx.html

milismom - 41 days ago.
TutleMom - so i just got a call from my doctors that my TORCH results were in. My CMV IGG was negative but the IGG was positve, Im wondering if it has a correlation between the ventricles although she assured me t was unlikely. Our genetic conselor is not in until friday so i have to wait and see.

turtlemom - 42 days ago.
My daughter had severe hydro. Her vents were unmeasurable at 27 weeks. We wound up having her at 32/6. We never had a fetal MRI. I'd scrap it and wait for one that will really tell you something.

milismom - 42 days ago.
Thank you Turtlemom ,Yes the Mri is a week before my repeat c section which was so hard to get sooner. The relief I have is that we are patients of a good university hospital and children's hospital with a great neuro department . It's hard waiting so long but I hope the blood work comes back ok as well. I'm hoping measurements don't change since they said that would be a good sign. I forgot to mention we also had an echo done after the anatomy scan (due to the unchallenged fold thickness) and it came back normal no heart defects.

turtlemom - 42 days ago.
Milismom, a MRI at 38 weeks is worthless. I would wait until your little one is born. A fetal MRI is not as definitive as one once you give birth. It's a total waste of $ and time. 15mm and 17mm at this late term are still very borderline mild to moderate vent measurements. I know it is hard to do, but you need to wait until your little guy is born to even find out if he will have hydro. Many children with borderline vents are followed for months before they determine whether they need surgical intervention. And, the prognosis is really good. It's very unlikely your little one will have intellectual disability (a chance, but small). He may have some delay, but that's probably the worst. I would recommend an appointment with a pediatric neurosurgeon. Best wishes!

MilisMom - 42 days ago.
Hello. I had a growth scan last week in currently 36 w. So far the only issue we had encounter at 20w was a borderline nuchal fold . We had an amnio done and everything came back OK. No spina bifida, chromosome abnormalities. Well at our growth scan the ventricles measured 15mm and 17mm. The doctor that talked to us mentioned hydrocephalus right away. I had blood drawn and I'm scheduled for weekly ultrasound and a mri in two weeks. It's devastating just having gotten over the scare of our 20w ultrasound. Our genetic specialist said it was good news we had the amnio done prior and everything was OK , the same with there being no increase until now and not prior. I'm a mess obviously and I can't get over the initial response from the attending doctor right after the tech got the measurements which were mental retardation and low iq. Btw we are having a boy and he has been sitting down since 30w . Will appreciate any feedback.

maeva - 43 days ago.
Hi. I am 20+ 3 today and 40 years old. This will be my second baby ( I have a nearly 4 year old girl). I had my anomaly scan on the 22nd May and I am beside myself. It was a private scan as my HSE anomaly scan is not until the 1st of july and the wait was killing me. The sonographer was just very abrupt. She told us that the head was measuring small ( 1 week behind) and that she saw something and will need to refer us to a specialist and could not say more. I then read the report and it said a suspected dilatation of the lateral posterior ventricule 11mm. the rest was fine. I saw my GP straight away who mentioned fluid build up and possible reasons and outcomes. He referred us to consultant. I have been researching the topic for the past 3 days and came across this forum. I am scared to death that it can be related to a chromosomal issue because I am 40 (hubbie persuaded me not do do any of the FTS). The wait is killing me, the unknown even more. I know if it is VM we are still in the mild category and the outcomes are good if it is also isolated but we just don't know and that's what is killing me...Will update

dejonghclaudia@hotmail.com - 44 days ago.
gandjplus1: Thank you for your feedback. Always helpful to hear other stories of similar cases than your own. gingermom: Great news, I am glad we can both relax a bit now. I keep checking the blog and I will update once my baby is born in the next few weeks.

gandjplus1 - 46 days ago.
djonghclaudia, my daughter's VM remained similar through my entire pregnancy (19 weeks through 36). The measurements fluctuated around .3 or so, which they considered to be the same due to margin of error. She did not receive any further testing when she was born and her last sonogram of her head was done 3 weeks prior to her birth. When she was around 6 months old, her head was measuring larger than normal, so we were then referred for a head sono to check the ventricles. The ventricles remained the same as from when she was inutero (over 10), and turns out she just has a large head and large ventricles. She was also monitored by a neurologist due to her head size, but once she started walking-13 months-he didn't see the need to see her anymore. All milestones have always been right on time. Additionally, a cat scan was done at 16 months, following an accident, and the VM remains. So in our case, it has never resolved-but her development is completely normal.


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