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Home » Pregnancy & Baby Forums » Ventriculomegaly



Ventriculomegaly

Ventriculomegaly



How can ventriculomegaly affect my child?

Ventriculomegaly

The ventricular system contains sac-like pockets that are filled with cerebrospinal fluid. When the ventricular system of the brain is enlarged, it is known as ventriculomegaly. The lateral ventricles of the brain are less than 10 mm wide in a healthy fetus. However, a fetus that suffers from ventriculomegaly has lateral ventricles measuring 10-15 mm wide. Sometimes they are even larger, in which the case is severe. Luckily, ventriculomegaly is not linked to other health conditions in most cases. Severe cases of ventriculomegaly can result in hydrocephalus, also known as water on the brain. In hydrocephalus cases, the cerebrospinal fluid builds up and puts pressure on the brain.

There are three major causes of ventriculomegaly. Improper brain development, destroyed brain tissue and insufficient absorption of cerebrospinal fluid are all factors that can make the ventricles in the brain larger. Sometimes chromosomal problems can cause ventriculomegaly.

Ventriculomegaly affects approximately 1 out of 1,000 live births and is normally nothing that the mother has done. The condition can be diagnosed before or after birth. Ventriculomegaly can be detected on ultrasound by the second trimester. An MRI can also be helpful in diagnosing the condition. A chromosomal analysis can be used to test for chromosomal problems that can cause the condition.

The only time that ventriculomegaly needs to be treated is when there is water on the brain. Even if there is no water on the brain, regular exams should be done to monitor the condition. Once the baby has been born, doctors will do exams and measure the head circumference to make sure the baby is healthy. Usually, ventriculomegaly will resolve on its own and there are no neurological or developmental problems. As long as there are no other health conditions or chromosomal abnormalities present, the long-term prognosis for a child born with mild to moderate ventriculomegaly is great.

See also: http://www.squidoo.com/ventriculomegaly-info
See also: http://www.i-am-pregnant.com/Birth/Birth-defects/Hydrocephalus





Comments: Ventriculomegaly

Comments 1 to 24 of about 2571.
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firsttime2323 - 3 days ago.
An update on my son: As you all know my son is almost 5 months but he was premature so corrected he'd be 10 weeks and 3 days! The doctors have diagnosed him with Septo optic displayia and has vents of 20mm on each left and right. He has a Follorw up on the 25th of November to see how his brain is. So far my son is smiling and lifting his head up, has great muscle ton, looks at us and smiles when we talk to him. He started cooing 2 weeks ago! He's screaming and cooing and cooing at us as if he's talking to us. It amazes me that my son is passing all his milestones. He's acting like a normal baby! The doctors told me he would be delayed in everything and that he would not be a normal baby! We have a follow up also at the hospital he was born at and I'm planning on taking my son to the doctors that said that my baby wouldn't be normal and show them that they were wrong! I just want to let everyone know DO NOT LISTEN TO THE DOCTORS! ONCE YOUR BABY IS BORN YOU'LL SEE THAT THEY WERE ABSOLUTLY WRONG! don't worry and don't let them suck the joy out of your pregnancy! :)

kitkat99 - 4 days ago.
Hi everyone, I am currently 28 weeks pregnant with a little surprise and was given a diagnosis of mild / borderline VM at 24 weeks. I have been scanned by detailed ultrasound at the fetal medicine unit at 20, 22 and 25 weeks where the left ventricle has been measured between 9.8,10.8 and 11mm with a 8-9mm measurement thrown in in the middle scan just to confuse things!! The right ventricle is fine. The MRI and torch test were fine but I don't want an amnio just yet, however I might reconsider at 30 weeks depending on what they find at my next scan. The consultant said if it was just for fact finding then he agrees with me that it wouldn't really be worth it at this stage as the risk of miscarriage might mean having a premature baby and him/her being poorly regardless of the ventricles. So far I cannot fault the care I have had and the doctors have been more optimistic than me! (While still not being 100% positive they say not too worry too much, it isn't ideal but it isn't too concerning as yet). The MRI professor also said not to get too hung up on measurements as everyone measures differently and he is very generous with his measurements! Luckily everything else with the baby is fine at the moment- heart, face, kidneys, limbs and spine are all just right. I just wanted to share my story and say thanks to everyone else for sharing theirs, I am scared especially of the small risk of chromosome problems and the vents growing but it is just nice to know you aren't alone when you read the past posts. Will keep you updated xx

alixbot@gmail.com - 8 days ago.
Thank you for your reply katieandiggy. I agree with you, a speech delay is still a positive outcome compared to others. I hope your son is learning how to use a communication device or pecs system to make things a little easier. I know it is hard to imagine my baby being anything other than 'typical' as far as medical concerns, and without medical complications, but I know she is going to arrive just as God has planned. Praying for you and your son.

katieandiggy@tiscali.co.uk - 8 days ago.
Hi Alixbot~ I've been a member of this forum for the last 3 years and I've followed and read many many stories. My son was diagnosed with aysemetrical ventriculomegaly at 33 weeks. His left ventricle measured 11.5mm. When he was born is was classed as mildly enlarged/prominent. And a follow up at 7 weeks it was described as normal shape and size but aysemetrical. My son will be 3 at Christmas! He has a severe speech and language delay and will be tested for autism (although he doesn't exhibite typical autism signs) he's brilliant though, great little person and we all communicate, just not verbally. Be read and researched many stories like ours and the vast vast majority of them have positive outcomes. I would class my sons outcome as positive, for all of the things that could be wrong and all of the potential causes of ventriculomegaly, if all my son has is speech/language issues, I'm thankful. I know we all want our kids to be perfect in every way, and I was sad for a period of time about my sons speech but now I'm just his advocate for this speech therapy. I'm sure your situation will be a positive one.

alixbot@gmail.com - 8 days ago.
Thank you very much for your response gandjplus1. It is helpful and I appreciate and welcome your prayers. I'm guessing the scan or ultrasound we are having done on the 3rd will give us more info as far as dilation and exact sizes...

gandjplus1 - 10 days ago.
Hi Alixbot and welcome! My daughter had/has asymmetrical lateral ventricles (but also dilated) which was picked up on my 19 week sonogram. They have remained this way. She is now 14 months old and doesn't seem to be affected by it. All developmental milestones have been exactly on target. Doctors feel this is just the way she was made. Hope this helps and will pray for your baby.

alixbot@gmail.com - 10 days ago.
Hi. I am 30 weeks, 4 days pregnant with my first child. A little girl we are naming Reese. I had an ultrasound done last Tuesday, and followed up on Friday. The doctor told me that the sonographer found a predominant left ventricle. She then said its not larger or protruding, it is only assymetrical, so she is referring us to a specialist. That appointment is not until November 3rd. She said everything was probably fine and not to worry. But naturally. as a first time mother and a pediatric occuoational therapist by trade, I am worried. Has anyone else dealt with something similar? What was the outcome?

kalsey - 18 days ago.
Thanks Turtlemom for the CBR recommendation. And for mentioning Newborn possibilities! We are getting everything for free up to 5 years:) And I mentioned Parker, and they knew you :)

kalsey - 24 days ago.
I had a 32 week level 2 US today - ventricles have stayed the same, 14 and 15-ish mm. Left kidney dilated to 10mm, so still enlarged. Blood test came back very low risk for chromosome issues. Perinatologist said everything else on the baby looks very healthy. We go back at 36 weeks to measure again. We are not out of the woods yet, but feel greatly relieved to have at least one stable measurement, and a normal blood test. Will keep you posted, whether we have a good or bumpy outcome. Thanks all for the encouragement and support!

turtlemom - 28 days ago.
Kelston, the margin of error is 1.5mm. I doubt the measurements are even different. I don't think they can even tell between 10mm and 10.1mm. That is a seriously small amount of space. Vent measurements under 12mm have a 97% chance of having normal neural development. Now, I know a few little ones who fall into that 3%. But, I really doubt your little one is one of them. I think they are crazy for measuring tenths of mm's.

gandjplus1 - 28 days ago.
Kelston, read this board!, read as far back as time allows-I found this to be more eduational than anything else I found on the internet. Here are tons of real people with real experiences. My daughter had similar measurements to yours. They remained the same throughout my entire pregnancy, and at a head sono when she was 7 months old they were also the same. She is now 13 months, walking, talking and met all of her milestones so far. Best of luck on your journey and and prayers for your baby. Most likely, this is just your baby's norm. The mommas on here played such an important role for me and I am so thankful I found this!

gandjplus1 - 28 days ago.
great news Kailee! That is so wonderful to hear. I asked the neurologist this question and he replied that there could be a correlation, but didn't really give me an answer. She is 13 months old and already has such an extensive vocabulary as well. She is way ahead of where my other daughters were at this age, also so much bigger than they were too!

kelston - 28 days ago.
Hi everyone I found my baby boy had mild VM at my 20 week scan measuring 10.1mm on left ventricle Returned a week later for a detailed scan with specialist and no other abnormalities found, left vent measured the same but in notes it said 10.4mm??? Returned last week at 25 weeks+4 days pregnant and VM still persisting at 10.9mm on the left ventricle, torch test came back clear, turned down an amnio as not a risk taker, waiting for fetal MRI appointment now as was told could be a blockage/cyst, or something like Down syndrome, was also told could be his normal. Trying my best to be positive but not sure what to think, this is my first baby and im 21 years old I wish I could enjoy my pregnancy but dont think I will untill he is here now.

kailee4123@gmail.com - 28 days ago.
gandjplus1 I have a 21 month old who had bilateral ventriculomegaly of 17. He has been way above the 95th percentile for height and weight since he was born! I have always wondered if his size has anything to do with it. He is doing great; he has a huge vocabulary, and already knows his colors and shapes! It's amazing to see since we were told at 20 weeks that there was no chance of a normal outcome. Glad your little one is doing well!

kalsey - 29 days ago.
Oh, and they did do the Panoramic test, not the Harmony to test for chromosome problems. There have been quite a few false + with this, so we shall see.

kalsey - 30 days ago.
no cysts. The choroids were starting to separate from the ventricle walls. The article I posted a few comments down explains that is how they know to diagnose VM for sure. I just didnt know if that was something found in EVERY VM diagnosis, or another problem on top of VM. Thanks for advice. I will probably bank cord blood if Harmony test is negative, and the ventricles stay enlarged. Thanks!

turtlemom - 30 days ago.
Hi Kalsey, A negative Harmony is a negative. A positive could be a false positive. With most Trisomy's, there are soft markers. Now, not 100% of the time, but most of the time you would also see a possible heart defect, etc. Was it a choroid plexus cyst possibly? I would not consider this an additional dx. They are usually benign and go away.

gandjplus1 - 31 days ago.
Kalsey - If you can do it, definitely bank the cord blood! It has so many possibilities, even if your child's VM turns out to be of no concern. I did it for two of my children and although expensive and hope I never have to use it, I'm very glad I did it. Turtlemom swears by it and believes that the cord blood helped tremendously for her daughter's wonderful development. And regarding an amnio, I personally wouldn't do it far along in my pregnancy. I had one done at 17 weeks, so chances of losing baby was very unlikely. Something so interesting from the link to the article that you posted...larger fetuses and larger ventricle measurements. My daughter with VM is huge, 90%tile for height and weight..wonder if there is a correlation like the author suggests...anyone else whose babies had VM larger than average babies?? Update on baby Avery, she is doing wonderful! 13 months-walking and talking and just so perfect. Still has a huge head (99-100%), but I think that's the reason she is so smart, I like to think that her brain is just bigger than average. We will see what the neurologist thinks in October...

kalsey - 31 days ago.
for question 1 (see below), I did have what is called the Harmony (I think) blood test for Downs and am waiting on results. If I am going to bank cord blood, is a negative result from this test alone, enough to save cord blood? Just wondering if amnio would be more accurate. Turtlemom thoughts?

kalsey - 31 days ago.
and question (2). After readin this report http://books.google.com/books?id=NelULlxsF-wC&pg=PA227&lpg=PA227&dq=what+does+dangling+choroid+plexus&source=bl&ots=OVv0_huviP&sig=kRQfjTMycqewKy-WT9KZBraotJU&hl=en&sa=X&ei=8xwqVKv9EZe2yASk2IDoCg&ved=0CFgQ6AEwCg#v=onepage&q=what%20does%20dangling%20choroid%20plexus&f=false it seems that every real diagnosis of VM and Hydro have some kind of dangling choroid plexus. I've read through the posts, and it sounds like some docs have mentioned this and others not in sonos. My doc said something about the choroid plexus in my sono, and I started to get worried that maybe my baby did not have isolated VM, but this on top of it. TURTLEMAMA can you read this and give me your thoughts? :-)

kalsey - 31 days ago.
Thanks for the input and encouragement. A few questions. (1) If I dont do an amnio to rule out DS or genetic abnormality, how do I know if I should bank the cord blood? As it does not good in prescence of genetic defects....

laniejo2219@gmail.com - 32 days ago.
Kalsey - I also think you're doctor is giving you good advice. When I met with the neurosugeons at 37 weeks, he said that by the time parents are referred to him, we all are so freaked out because most OBs have scared the parents to death and think that their child is going to need emergency surgery right after birth. He said most the time they don't do surgery (if there is hydro) until the baby is at least 4 weeks old. Obviously if it's severe than that's a different story, but for most cases it's not like that. I had to get an MRI before the neurosurgeons would give me a consult. That kind of bothered me but I understand that they need to evaluate in order to give you an accurate prognosis. The benefit was that he did not see any signs of hydro. His vents measured 23, but there was no cortical (?) thinning, which indicates hydro, and the brain was normal. We felt much better after meeting with them. Knowing that there was no hydro at that point meant the pediatricians at birth would evaluate his head and then decide if goes to nicu. Because he came out with normal head size, he did not need to go. It was also comforting knowing that the brain itselfwas normal. I wouldn't advise doing chromosome testing or an amino because at this point in your pregnancy, there's no treating any problems if there is one, and it's not going to result in a different outcome or action. you can do a blood test once the baby is born if it's needed (we never had to). If the vents get larger I'd get the mri in utero. That way all the docs have a better understanding of what may be happening and how they and you can prepare. It could also avoid the baby needing one after birth, which I did not want him to go through and luckily he has not needed one. It was not a pleasant experience for me. The surgeons also told me that after a baby is born the vents can decrease because of being in normal atmospheric pressure, which in our case they did decrease by at least 5 mm the next day (23 bilateral to 15 & 17) via ultrasound. We haven't needed anymore u/s or mri. They say at this point we just watch for hydro symptoms and head circumference. But they did say if he does have aqueductal stenosis, he will develop hydro at some point, most likely this year. Our mri suspected aquectal stenosis, but he said they all say that if bilateral and 3 rd vent enlarged but 4th vent is normal. The actual stenosis is usually too hard to see. Hope this helps. I know it is so stressful and worrisome, but we are proof that everything can turn out okay. I am hopeful and believe that our son won't need surgery, but if he does, then we'll deal with it then. One day at a time! There is a chance that he'll have an intellectual disability, but I no longer care about that. Once you see your baby and the love that comes instantly, you won't want to change anything about them! He is perfect in my eyes and so beautiful! May God be with you and give you peace during this time!

mamamarth - 32 days ago.
Turtlemom, that is wonderful to hear! What a blessing you both are!

turtlemom - 33 days ago.
Hi mamamarth, I'm glad your little one is doing well! Parker started Kindergarten in August and is on track with her peers. She does have OT for fine motor to help with handwriting. But, her vocabulary is advanced and she is a complete joy!

mamamarth - 33 days ago.
By the way, Turtlemom, how is Parker doing? I think about you both quite often as your story remains one of our greatest inspirations! Hope you and your family are well!


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