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Home » Pregnancy & Baby Forums » Ventriculomegaly



Ventriculomegaly

Ventriculomegaly



How can ventriculomegaly affect my child?

Ventriculomegaly

The ventricular system contains sac-like pockets that are filled with cerebrospinal fluid. When the ventricular system of the brain is enlarged, it is known as ventriculomegaly. The lateral ventricles of the brain are less than 10 mm wide in a healthy fetus. However, a fetus that suffers from ventriculomegaly has lateral ventricles measuring 10-15 mm wide. Sometimes they are even larger, in which the case is severe. Luckily, ventriculomegaly is not linked to other health conditions in most cases. Severe cases of ventriculomegaly can result in hydrocephalus, also known as water on the brain. In hydrocephalus cases, the cerebrospinal fluid builds up and puts pressure on the brain.

There are three major causes of ventriculomegaly. Improper brain development, destroyed brain tissue and insufficient absorption of cerebrospinal fluid are all factors that can make the ventricles in the brain larger. Sometimes chromosomal problems can cause ventriculomegaly.

Ventriculomegaly affects approximately 1 out of 1,000 live births and is normally nothing that the mother has done. The condition can be diagnosed before or after birth. Ventriculomegaly can be detected on ultrasound by the second trimester. An MRI can also be helpful in diagnosing the condition. A chromosomal analysis can be used to test for chromosomal problems that can cause the condition.

The only time that ventriculomegaly needs to be treated is when there is water on the brain. Even if there is no water on the brain, regular exams should be done to monitor the condition. Once the baby has been born, doctors will do exams and measure the head circumference to make sure the baby is healthy. Usually, ventriculomegaly will resolve on its own and there are no neurological or developmental problems. As long as there are no other health conditions or chromosomal abnormalities present, the long-term prognosis for a child born with mild to moderate ventriculomegaly is great.

See also: http://www.squidoo.com/ventriculomegaly-info
See also: http://www.i-am-pregnant.com/Birth/Birth-defects/Hydrocephalus





Comments: Ventriculomegaly

Comments 1 to 24 of about 2672.
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StacieT - 3 days ago.
Our 32 weeks follow-up scan is in 3 days. I'm terrified of hearing they went back up. I really wanted to enjoy this pregnancy but I am just so over it at this point. :(

mamamarth - 20 days ago.
Hello all! Just wanted to give a quick update! During our pregnancy our daughter suffered a hemorrhagic stroke resulting in unilateral VM with measurements as large as 40 mm. About a month before delivery they noticed the fluid was starting to drain and the obstruction had partially cleared. She was born with a right sided vent measurement of approx. 20 mm. No major interventions have been required! She turned one in February and aside from some weakened eye muscles, she is our idea of perfect! She met all milestones on time or before and gives us a run for our money daily with her sass...something we are forever grateful for!! We are also ecstatic to now be 17 weeks pregnant with our second baby and so far all looks healthy! We continue to pray that this remains, but stand confident that we can face any challenges head on! Many prayers and love to you all!

vcanada - 23 days ago.
Just a followup. My lo had enlarged ventricles at 20 wks. Got as large as 13mm. 30 week MRI showed Grey Matter Heterotopia, which was confirmed a month after birth. She is absolutely beautiful and was seeming to meet her milestones, she's now 9 months, but a little delayed these days. She grabs for things, smiles, laughs, is a great eater, but has a hard time sitting up by herself. She had a seizure the other day, which is a symptom of Grey Matter Heterotopia. Just wondering if any others have experienced this after birth of their lo. Thanks in advance and good luck to all!

turtlemom - 24 days ago.
Aksh, are you on Facebook? I'm an Administrator for the largest Hydro group. It's just called Hydrocephalus and there are over 4400 members. Join that and you will get a bunch of support. My personal blog is www.theturtlemom.wordpress.com. I haven't updated it recently, but it chronicles our early days in the About page and there are photos of our first 5 years. Another wonderful resource is www.fetalhydrocephalus.com.

aksh - 24 days ago.
I am also going thru a hard time as you all are. I am 23 weeks pregnant and found in 19 weeks my baby diagonsed severe hydrocephalus , enlarged ventricles 20 mm each. Had Mri and nipt test 20 week. Mri shows aqueduct stensois and nipt blood work is normal. Diagonsed as isolated hydo. And from last 4 weeks i am getting so much negativity from doctars to terminate .. I cant do this at alllll.. And moreover i am feeling this stress is killing me .. I dont know how to deal with it.. Pls pls pls advise .. Turtlemom i read so many your comments and i appreciate how much u help everyone . Pls advise me what should i do.. I hate these doctars now

timmpierce@gmail.com - 26 days ago.
My son Magnus had his 3 year post-natal evaluation yesterday. This was the last in a series of check-ups necessary because his ventricles measured 20mm each side at birth . I'm delighted to say that he scored in the top 5% for cognitive ability and they said he had excellent social skills (he had them laughing the whole way through). So they don't need to see him any more. The dilemma I have now is what to tell him when he's older. Obviously I should tell him that he had Ventriculomegaly when he was a baby just in case that information might be useful if any future conditions crop up ....but on the other hand I don't want to make him feel different or inferior to other people. Thoughts?

turtlemom - 26 days ago.
And, I have to give a disclaimer, I would have carried your baby to term. It's likely your baby may have had some delays. But, it's also likely he/she could be like my daughter.

turtlemom - 26 days ago.
Swat, it would be unlikely.

turtlemom - 26 days ago.
Stacie, with measurements under 12mm, there is a 97% chance of normal neural development. It is very common that the vents go back to normal in the 3rd trimester. And, the margin of error is 1.5mm. So, there's a chance they weren't really dilated to begin with. Personally, I'd take the news and enjoy your baby. I do know some who fall into the 3%. But, you wouldn't know that until well after birth and another scan isn't going to help you determine that.

StacieT - 27 days ago.
Thanks for the advice. We are going to do another follow up in 4 weeks. The specialist said it would be very rare, and that he personally has never seen them increase after falling down to normal levels. I just am still worried since mine are so close to the cut off of normal

swatichouksey - 27 days ago.
Hi All , I want some suggestion from you all . I my first pregnancy At our 20 week u/s we were told that our baby the fetal cerebral ventricles appear dilated on both sides - 14.3 and 18 mm in addition the cavum septum pellucid-um could not be identified and the cerebellum appeared small . again after 2 days i went for 2nd opinion NT scan and found the same results and due to all these we terminated the baby . I did fish test and amniotic fluid Karyotype test and all the test report was normal . Today i am 7th week pregnant . iS their chances i will have another baby with VENTRICULOMEGALY?

firelily - 27 days ago.
Hi Stacie- It is good to hear that the measurement has gone down. I cannot say whether you should ask for a follow up or not because it is a very personal decision to me, but I do think that either way, you should really try to be reassured and enjoy the rest of the pregnancy. For us, after a high of 13 mm in the left vent at 32 weeks, a sonogram at 35 weeks showed the same vent to be 8 mm. Our son was born last week and he is perfect. His head circumference was 35.5 mm and his Apgar 10. He saw a neuro pediatrician who said that she is not concerned. We are very optimistic and the vm is slowly disappearing from our minds... I wish you all the best.

StacieT - 27 days ago.
I had my follow up today at 28 weeks. Left vent is now measuring 9.8 and right is 8.6. I have no idea what the right was before as they didn't mention it was ever an issue. Left before was either 11 or 11.6. The specialist today said he doesn't need to see me again. But thay my regular obgyn could follow up with another sono if he wants. My question is when I talk to my ob tomorrow should I specifically ask for a follow up, or accept these measurements and move on and attempt to enjoy the next 12 weeks?

nlgalayda - 37 days ago.
i just wanted to share my story and give you hope for anyone going this horrible state of fear, helplessness and the unknown. At our 20 week u/s we were told that our baby had ventriculomegaly and that the ventricles grew substantially which was a sign that they would continue at this rate. They scheduled an MRI immediately and we had the Maternity 21 test done. It was the hardest 2 weeks of my life, I cried every day. And I read horribly negative stories on the Internet that scared me even more. However, the ventricles measures smaller with the MRI and even smaller when my son was born and stayed the same at 6 months. He is two and hitting every milestone. Just wanted to give you hope bc I know how hard it is. Prayers to anyone going through this.

katieandiggy@tiscali.co.uk - 43 days ago.
Hi Kitkat, well there are a few things that make me think that he may be diagnosed. He has a few symptoms but they are very mild so I'm not sure.... As I said before, his milestones were all met, his hand/eye coordination is fantastic, you should see him on an iPad, he's a whizz! His gross motor is great, he's not clumsy, his fine motor is great, he can put tiny pins in tiny holes. The things I notice are: 1) He never pointed at things that interest him (until 3 months ago he started) 2) he likes to be upside down to watch TV sometimes. 3) he does some strange eye movements which I feel is visual stimming. 4) as well as a delay in speech, he is delayed in receptive language he just doesn't understand much. If I were to say go get the teddy, he wouldn't have a clue what I'm talking about. Now, not all of this points to autism, some of them are normal child behaviours. But I think that sometimes doctors just like to give it a name and as much as I don't want my son to be labelled, here in the UK that is the only way for him to get the treatment and therapy that he needs. There have been a couple of other things, spinning wheels/lining things up but that has all stopped now. Who knows, I will keep you posted.

kitkat99 - 43 days ago.
Katieanddiggy can I ask what are the reasons you think your son may be diagnosed with autism other than his speech delay? I'm just curious please don't answer if you don't want to. My son was diagnosed with isolated vm in utero with a measurement if 10.8mm in the left ventricle. He is 6 weeks old now and he is seeing a neurosurgeon for a follow up in april. It is strange after all the panic and rush to see fetal medicine specialists during pregnancy and many many scans, they seem pretty relaxed about him so far. He does seem fine and is smiling, cooing, moving his limbs around and lifting his head. When he was born he had an apgar score of 10 and his head circ was 36cm, so pretty average. I suppose it is just a wait and see issue when there is so little known about mild isolatwd vm, and keeping an eye on milestones.

katieandiggy@tiscali.co.uk - 46 days ago.
Hi everyone, I'm a regular reader of this board and back in 2011/12 was a regular poster after my son was diagnosed with isolated mild ventriculomegaly (12.6mm unilateral) My son is 3 years old now, and he hit every milestone bang on time except his speech and language. I noticed at 18 months his speech wasn't developing correctly. Well fast forward and his speech is still of that of a 12 month old, but he's fine in all other areas. My son is due to see a psychologist, occupational therapist, speech therapist for an evaluation. I suspect my son will be diagnosed with Autism. He's not typical but autism has a very broad spectrum. I just hope he gets the help he needs. He has just started pre school and he is doing very very well and has recently started pointing (at last) so it's a bit easier to understand what he wants! He is such a funny kid, he literally rules the house and his older brother. I wouldn't change him for the world.

desitwins - 48 days ago.
Wanted to leave a quick update if it helps anyone - one of our twins was diagnosed with in-utero ventriculomegaly - 18mm and 15mm at its peak but regressed to 14mm and 11mm over the next few weeks. They were born Feb 11 and a day later, the ventrs measured 12mm and 10mm. He recorded an APGAR score of 10 at birth and the doctors said he looks clinically normal. Relative to my other one, he cries a lot and seems a little disoriented but that could just be a premature baby thing. Overall, am positive and trying to be optimistic.

StacieT - 50 days ago.
Small update. Nurse called and infection test was negative, and with 90% certainly baby has no chromosomal abnormalities. I asked her what else could cause this but she didn't know.

turtlemom - 50 days ago.
For vent measurements under 12mm, there is a 97% chance of normal neural development. Best wishes to you and yours! http://www.obfocus.com/questions/qanda10.htm

StacieT - 51 days ago.
I am hoping someone will maybe have a similar experience to mine. We went in at 19 weeks to find out baby is a boy. We got a call later saying he had bilateral choroid plexus cyst. That these are not harmful and they just wanted to send me to maternal fetal med to have a level 2 to check for other abnormalities as sometimes these cyst are soft markers for Trisomies. We had our appt last week at 23 weeks and the cysts were completely gone, but his left vent is either 11mm or 11.6mm. I thought during sono she said 11.6, but my report says 11. I am now waiting for toxoplasmosis test and Verifi test that looks for chromosomal disorders. All other aspects of baby looked great on sono. I am so stressed out and scared. This is my 4th baby, and before him we had two losses. I'm starting to get concerned the losses were from abnormalities and that something is very wrong with my son

turtlemom - 52 days ago.
Jess, I suggest you find a group on Facebook called Hydrocephalus. Those measurements would qualify for that possibility. My daughter has that condition. You can click on my name to find my blog. Best wishes for your next scan!

jesspaewai@gmail.com - 52 days ago.
Hi everyone! Just came across this forum while endlessly searching for positive info about enlarged ventricles. I am 23 weeks pregnant with Boy/Girl Twins, my girl has a severely enlarged ventricle, measurements are 22mm in baby girl and 5mm in baby boy. We still havnt had a MRI or most other tests yet, just waiting on obstetricians. Would any of you all have any positive stories or suggestions for me? I literally feel like I'm searching for a miracle but trying to be positive for baby girl! This is an isolated finding and everything else on her little body is perfect including size, heart and nuchal fold.

sunnyoutlook - 53 days ago.
That is great news Mummy. I will be interested to hear what the consultant says. We had our second scan yesterday and our vent (posterior lateral) had come down slightly to 9.8mm. I have another scan next week and possible MRI but our consultant said he felt all was very positive at this stage.

mummy4812 - 54 days ago.
Just an update. We had a call from the hospital today and things are looking better. We are still classed as borderline ventriculomegaly as the measurements taken on our mri were 9.5 and 9.6 for the lateral vents. They said they do not have a measurement for the 4th ventricle it just appeared to be dilated on the first scan however this does not appear to be the case on the second scan with the consultant or on the mri (this was news to us as no one reassured us of this when we went for our second scan). We have an appointment tomorrow with the consultant so will be able to ask more detailed questions however I feel probably the most positive I have in the last 2 weeks.


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