VentriculomegalyHow can ventriculomegaly affect my child?
The ventricular system contains sac-like pockets that are filled with cerebrospinal fluid. When the ventricular system of the brain is enlarged, it is known as ventriculomegaly. The lateral ventricles of the brain are less than 10 mm wide in a healthy fetus. However, a fetus that suffers from ventriculomegaly has lateral ventricles measuring 10-15 mm wide. Sometimes they are even larger, in which the case is severe. Luckily, ventriculomegaly is not linked to other health conditions in most cases. Severe cases of ventriculomegaly can result in hydrocephalus, also known as water on the brain. In hydrocephalus cases, the cerebrospinal fluid builds up and puts pressure on the brain.
There are three major causes of ventriculomegaly. Improper brain development, destroyed brain tissue and insufficient absorption of cerebrospinal fluid are all factors that can make the ventricles in the brain larger. Sometimes chromosomal problems can cause ventriculomegaly.
Ventriculomegaly affects approximately 1 out of 1,000 live births and is normally nothing that the mother has done. The condition can be diagnosed before or after birth. Ventriculomegaly can be detected on ultrasound by the second trimester. An MRI can also be helpful in diagnosing the condition. A chromosomal analysis can be used to test for chromosomal problems that can cause the condition.
The only time that ventriculomegaly needs to be treated is when there is water on the brain. Even if there is no water on the brain, regular exams should be done to monitor the condition. Once the baby has been born, doctors will do exams and measure the head circumference to make sure the baby is healthy. Usually, ventriculomegaly will resolve on its own and there are no neurological or developmental problems. As long as there are no other health conditions or chromosomal abnormalities present, the long-term prognosis for a child born with mild to moderate ventriculomegaly is great.
See also: http://www.squidoo.com/ventriculomegaly-info
See also: http://www.i-am-pregnant.com/Birth/Birth-defects/Hydrocephalus
Comments 1 to 24 of about 2797.
1 2 3 4 5 6 7 8 9 10 11 Nextturtlemom
40 min. ago.
I misread your post. I thought you wrote 9.8mm and 1cm (10mm). I've never heard of a vent measure smaller than 3mm. I think the 1mm is off. Caro87
5 hours ago.
Thanks turtlemom, even if the gap between the two ventricles is this big? Thanks. turtlemom
7 hours ago.
Caro, the margin of error is 1.5mm. Your measurements are well within normal limits. I wouldn't worry 1 second. Caro87
9 hours ago.
Hello, I am at 20 weeks and just had an ultrasound with by baby's brain ventricles being at 9.8mm and 1mm. I am very concerned about 1. the fact that 9.8mm is so close to the 10mm 'norm limit'; 2. 1mm seeming sooo small and 3. having such a huge difference between the two sizes....how worried should I be? I am reading a lot about enlarged ventricles but not with regards to the asymmetry. I am scheduled for an Ultrasound II for further testing. Very concerned. Thank you Boyanna@hotmail.it
2 days ago.
Hello everyone. Just wanted to give an update. My son was diagnosed ventriculomegaly going from 11mm to 14 while still in womb, and the last ultrasound we had before the delivery measured 9mm.
When he was born, they measured it again and this time ventricles were 3,6 and 4,5 mm which are normal measures. The only concern is the assymetry, but our doctor said that it should be all good.
Tomorrow we are going for another check now that he's one month old
All those worries for nothing.. lovingmummy1
5 days ago.
Thanks turtle mom. I think there are no strict garantees with any tests and it's down to a bigger force out there. I've heard of amnios not picking up some genetic disorders as there are so many so I guess it will be lots of prayer and lots of luck! turtlemom
8 days ago.
Harmony and other cell-free DNA tests are relatively accurate. If you get a negative, it's a good chance there are no Trisomies. The tests do have a decent false positive rate, but you can feel pretty secure with a negative. These tests are only looking for Trisomies. They don't eliminate the plethora of other issues that can arise. Having a level 2 ultrasound is a good choice as well. Typically, you would need to go to a High Risk OB for these. lovingmummy1
11 days ago.
Hi ladies, this message is specifically for turtlemom or any other mothers who opted for genetic screening in their pregnancies. I've mentioned in this post before that my second daughter had mild vm of 11mm on both sides and I rejected all forms of testing so I waited the whole 9 months and when she was born she was fine. Fast forward two years and she walked late 2 years old to be exact and now almost three she is still having physio as one of her foot turns in and she does not jump or run too fast but otherwise Wallis and talks ALOT and is deffo super smart. I had a blood test for her that looked at ck levels when she wasn't walking to rule out any muscular dystrophies and they came out slightly elevated but the peads discharged her saying it would be in the thousands. NOW i think may be pregnant as we are trying but this time I don't want to be so naive and I don't think I could wait the whole 9 months what could be wrong with our child. What testing would you guys recommend as I heard an amnio and cvs carry risks for mother and baby and this will be my third c section. Has anyone had the harmony alone and it was accurate and who has had an amnio and and 3rd section as I worry for my health too. Any help would be appreciated xx anna1jackson
24 days ago.
So only one opportunity to improve your brain its train it. How you do it - it's your choice but it possible. You can play special games (https://itunes.apple.com/app/apple-store/id887025430?pt=95788912&ct=usa_link&mt=8
) or just googling special technique (en.wikipedia.org/wiki/Cognitive_training) turtlemom
25 days ago.
Is that the only complication? How dilated are the vents? The prognosis for normal neural development is great with isolated VM. My daughter has hydrocephalus which has a more complicated prognosis. But, there are many awesome people living with hydro. babyboy16
25 days ago.
Hello I am new to this group I am currently 21 weeks and my baby boy has been diagnosed with severe ventriculomegaly the options was to medical terminate or contiue with the pregnancy I'm having a really hard time even considering that at this point in my pregnancy is there any hopeful results that can come from continuing with the pregnancy please help !!! turtlemom
38 days ago.
I did reach out to the big group to see if there was a smaller one. I know the one for VM has branch out groups for birth years. Your guy would be 2014, right? However, I really see the benefit of the bigger group with children of all ages. It's interesting to see what the different paths have been. I'm in a thread right now talking about group homes. You never know. turtlemom
38 days ago.
Hi Kalsey, the FB group really is the best. I don't know of any other smaller groups. But, that one is excellent (I've seen horrible ones for other conditions). I really can't encourage you enough to at least try it. You can always get out. Parker is having trouble keeping up with her peers in 1st grade. This is the first time her delay is becoming obvious. She was meeting milestones until now. I believe her fine motor deficits are due to ACC. She also has just general learning disability and I think that's more from hydro. But, no one would really know for sure. At 1 I had no clue we would be here. After she was discharged from Early Intervention with an above average vocabulary, she was walking, etc. I thought that meant we were in the clear. It's been like diagnosis day all over again fine tuning her IEP to meet her needs.
Here's the ACC group. Your little one may be fine. https://www.facebook.com/groups/ACClistservgroup/ kalsey
39 days ago.
Turtlemom, this is a question for you :) or rather a request. A little history first. My son was dx with ventriculomegaly in utero, and it turns out that he also has ACC . As far as we know, it is isolated. He hasn't had a MRI, so we don't know any specifics. He is 13 months old and has no delays at this point. Absolutely none. We kind of expect something to pop up at some point. But for now he is absolutely normal. I am feeling very isolated. I have never met anyone with ACC, and I have no contact with moms who are dealing with this unknown ACC. I know you have met a lot of people in this situation with Parker. Is there any way you could help me meet some families dealing with this? I am not interested in any Facebook type groups, but more of a personal smaller support group. ? Any suggestions would be appreciated. Feeling a little 'lonely' sometimes :) momtoamirahmuslim
43 days ago.
HI to all. I just wanted to leave a message in this board as it had been my source of information during my pregnancy. When I was on my 20th week of gestation. My daughter was seen of having Echogenic intraCardiac Foci on the left ventricle, left ventriculomegaly reaching at maximum of 14 mm and Atrial Septal Defect all was a marker for down syndrome. It was very difficult to accept that there was no medication that I could take to cure the condition and all we could do was wait. The doctors gave us possible diagnosis of hydrocephalus and down syndrome. Termination was not an option for us. We prayed sincere and hard and accepted everything .I had to do ultrasound every 2 weeks to measure the vents and to see if I needed to be induced early. On my 32nd week of UTZ, the perinatologist couldn't locate the EIF anymore and the vents have gone down to 7. 2 mm. On my delivery date - I was 39 weeks, the incubator, ambubag and the resus team was prepared. They were all geared up to send my baby to the NICU. BUT PRAISE GOD!!! I gave birth to a healthy baby girl - 8 lbs and scored 9/ 10 APGAR she was roomed in as a well baby. I just wanted to give hope to anyone who is experiencing what I have been through. Your love for your baby will transcend all belief and faith and God will see you through. Hope for the best , PRAY and it will be given to you. My baby is 1 month old now. I hope this message could boost your faith and beleive that with GOD nothing is impossible - HE only says 'BE' and IT IS Montenegrina
48 days ago.
Another update - my baby's ventricles are now measuring 9mm and they are within a normal range, so now we can finally breathe!
God bless you all, Merry Christmass Montenegrina
85 days ago.
Just a quick update (I was posting as Boyanna before): we went to see a brain expert who performed multislice 4D scan, and was able to locate the corpus callosum and cavum septi pellucidi. I was so happy, I couldn't believe that everything is OK with that. Still, posterior left ventricle is dilatated - 12mm, but still in mild to moderate cathegory.
My doctor reasures me that everything will be normal if the ventricles continue to stay stable and do not grow suddenly.
I am seeing him in 2 weeks for another ckeck.
I have read that fish oil (omega 3) can help, so I doubled the dose I was taking before...
Will be updating soon, wish you all good luck. Just trust in God and in your baby! turtlemom
89 days ago.
Boyanna, It very sad that anyone would recommend termination this late term. My daughter was born at 32weeks, 6 days and her prognosis was way more grim. She does have complete ACC. The prognosis is varied, but for the majority it's favorable. The margin of error is 1.5mm, so it's completely possible the second scan was the same or potentially less. I personally don't at all worry about tenths of mm. A mm is so small. Measuring smaller than 1mm is futile. The prognosis is great with what you have presented. It's possible your little one may have delay. But, it's not a terminal diagnosis. I can't imagine terminating a baby for mild delay. Personally, I can't think of it as termination at this late gestation, since the baby would live if born today. firstname.lastname@example.org
89 days ago.
Hello everybody. Reading your messages has given me so much strenght to survive past few days..
Our nightmare started 2 weeks ago, while I was 29 weeks pregnant. My doctor said that my baby boy suffered from ventriculomegaly, and the ventricles were measuring 11mm. He sent me to the other doctor nearby to do the expert ultrasound known as 4D ultrasound (I guess it is the 2nd level ultrasound...) The doctor that made those 4D testings noticed that the vents went up to 12,5mm and she could not identify the corpus callosum. She said that she can't see it, but she can not claim that there is no CC at all. We were sent to the Consilium of prenatal diagnostics, and they confirmed her results. They couldn't see CC.
Where I live, the termination of pregnancy is allowed up to the 32nd week, and I am now in week 31. They said it is too late for anything, and all we can do now is wait to see the outcome. I was shocked! I wanted to know if my baby will be normal or not, and asked for another opinion of the doctor that said according to him, baby's brain looks normal - hemispheres and other part of brain are well visible, even though the technology he uses doesn't let him look for the corpus callosum. He calmed us a bit, but still...
In few days we are going to the multislice scanner, where the brain expert will be able to tell us if the baby has other abnormalities or not.
I am so scared, that I can not sleep at night... I will inform you all of the outcome turtlemom
92 days ago.
Vent measurements do not dictate prognosis. Having an isolated condition lends to a more favorable prognosis. Parker's brain itself had not structural flaws befor the compression. If that's the case, it's more likely when shunted, you would have less issues. Those with structural abnormalities like Lissencephaly, Schizencephaly, Polymicrogyria, etc. will have more challenges. I see where they think it may be WW. Prayers to you and your family! You never know. I have a friend who had a daughter with WW. She lived to almost 3. Another little precious boy survived almost to 1. It is a difficult diagnosis to say the least. Big hugs to you! christopherspear
92 days ago.
Hi thanks for your reply, yes he does have lissencephaly, and as we're past 24 weeks they're saying the folds wont develop, we've just got the report and its saying that the ventriculomegaly has destroyed the falx is this possible as his vents are 24 and 32 which seems quite mild compared to what your daughters were, or could it be because of the other complications? turtlemom
96 days ago.
Is there not a genetic test for WW? I know several little ones with this syndrome and I know it was confirmed by genetics. But, the tests were done after they were born. Does your little one have lissencephaly? I also know some people with DW. The prognosis is more favorable but still has a range. I don't think you should diagnose just based upon the brain stem. WW is pretty rare. There are Facebook groups for WW and DW. I encourage you to post there to get more opinions. I bet you find someone in the DW group with similarities. Hugs and best wishes! christopherspear
97 days ago.
We had an MRI on Tuesday and it has revealed a kinked, Z shaped brain stem, the consultant said this is indicative of 'Walker Warburg Spectrum' which is the severest form of muscular dystrophy, Apparently this is a genetic condition, these children are completely paralysed and only live at the maximum till the age of 3 years, often dying within the first few months of life (they struggle to breathe, and their muscles waste away) but she said if it is not this it could be a 'Severe Dandy Walker' which means he would have all the same problems but a slightly longer life span. I wondered if anyone else has a child with 'Severe Dandy Walker' that has a kinked Z shaped brain stem and if so what your experience is? I guess I'm hoping one of you will tell me of someone who beat all the odds - desperately clinging to the idea, that the docs are giving us the worst case scenario but from what I've read on the net a kinked brain stem is kind of the ultimate damage a brain can sustain! Kailee4123@gmail.com
99 days ago.
I have also wondered if there is any correlation with size. My almost 3 year old had enlarged vents of 17 my whole pregnancy and he has always been pretty much off the growth charts with his head way off. His head is an inch bigger than my 6year old and he has to wear adult hats! He has always been very advanced with langauage and had no issues at all. Wish someone would do a study about this! gandjplus1
111 days ago.
Hi, Just leaving another update on my now 2 year 2 month old daughter...she is doing so wonderful! Every milestone is normal if not ahead of what is expected. Completely potty trained, even overnight, by 21 months, speaking in full sentences, running, jumping, counting, knows colors. She is just so smart! My daughter is BIG, almost the same size as her sister who is 22 months older. Everything about her is big-including her head size. I wonder if her above normal size vents are associated with her large head and body frame? anyone else have 'large' size kids and big vents??