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Home » Pregnancy & Baby Forums » Ventriculomegaly



Ventriculomegaly

Ventriculomegaly



How can ventriculomegaly affect my child?

Ventriculomegaly

The ventricular system contains sac-like pockets that are filled with cerebrospinal fluid. When the ventricular system of the brain is enlarged, it is known as ventriculomegaly. The lateral ventricles of the brain are less than 10 mm wide in a healthy fetus. However, a fetus that suffers from ventriculomegaly has lateral ventricles measuring 10-15 mm wide. Sometimes they are even larger, in which the case is severe. Luckily, ventriculomegaly is not linked to other health conditions in most cases. Severe cases of ventriculomegaly can result in hydrocephalus, also known as water on the brain. In hydrocephalus cases, the cerebrospinal fluid builds up and puts pressure on the brain.

There are three major causes of ventriculomegaly. Improper brain development, destroyed brain tissue and insufficient absorption of cerebrospinal fluid are all factors that can make the ventricles in the brain larger. Sometimes chromosomal problems can cause ventriculomegaly.

Ventriculomegaly affects approximately 1 out of 1,000 live births and is normally nothing that the mother has done. The condition can be diagnosed before or after birth. Ventriculomegaly can be detected on ultrasound by the second trimester. An MRI can also be helpful in diagnosing the condition. A chromosomal analysis can be used to test for chromosomal problems that can cause the condition.

The only time that ventriculomegaly needs to be treated is when there is water on the brain. Even if there is no water on the brain, regular exams should be done to monitor the condition. Once the baby has been born, doctors will do exams and measure the head circumference to make sure the baby is healthy. Usually, ventriculomegaly will resolve on its own and there are no neurological or developmental problems. As long as there are no other health conditions or chromosomal abnormalities present, the long-term prognosis for a child born with mild to moderate ventriculomegaly is great.

See also: http://www.squidoo.com/ventriculomegaly-info
See also: http://www.i-am-pregnant.com/Birth/Birth-defects/Hydrocephalus





Comments: Ventriculomegaly

Comments 1 to 24 of about 2651.
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turtlemom - 22 hours ago.
Jess, I suggest you find a group on Facebook called Hydrocephalus. Those measurements would qualify for that possibility. My daughter has that condition. You can click on my name to find my blog. Best wishes for your next scan!

jesspaewai@gmail.com - 1 days ago.
Hi everyone! Just came across this forum while endlessly searching for positive info about enlarged ventricles. I am 23 weeks pregnant with Boy/Girl Twins, my girl has a severely enlarged ventricle, measurements are 22mm in baby girl and 5mm in baby boy. We still havnt had a MRI or most other tests yet, just waiting on obstetricians. Would any of you all have any positive stories or suggestions for me? I literally feel like I'm searching for a miracle but trying to be positive for baby girl! This is an isolated finding and everything else on her little body is perfect including size, heart and nuchal fold.

sunnyoutlook - 2 days ago.
That is great news Mummy. I will be interested to hear what the consultant says. We had our second scan yesterday and our vent (posterior lateral) had come down slightly to 9.8mm. I have another scan next week and possible MRI but our consultant said he felt all was very positive at this stage.

mummy4812 - 3 days ago.
Just an update. We had a call from the hospital today and things are looking better. We are still classed as borderline ventriculomegaly as the measurements taken on our mri were 9.5 and 9.6 for the lateral vents. They said they do not have a measurement for the 4th ventricle it just appeared to be dilated on the first scan however this does not appear to be the case on the second scan with the consultant or on the mri (this was news to us as no one reassured us of this when we went for our second scan). We have an appointment tomorrow with the consultant so will be able to ask more detailed questions however I feel probably the most positive I have in the last 2 weeks.

turtlemom - 3 days ago.
I have done a little more research on 4th vent enlargement as it is more uncommon. I have found some studies that show it to be benign in early scans. I'm curious to find out what your MRI shows.

mummy4812 - 6 days ago.
My notes from the hospital say borderline ventriculomegaly and a prominent 4th ventricle. Every time they have done measurements they have advised me they were measuring the fourth ventricle but like turtlemom advised this seems high for a fourth ventricle measurement and my measurements would make more sense if they were measuring the lateral vents. I had my MRI on Friday and should have another meeting with my consultant this week so will ask then exactly what they are measuring. Will keep you informed. Good luck with all your appointments too and hopefully you'll know a bit more soon.

turtlemom - 7 days ago.
sunnyoutlook, you are correct on the measurements for lateral ventricles. If they are at or around 10mm, there is a wonderful prognosis. But, mummy4812 described the 4th vent as enlarged. That is a completely different story.

turtlemom - 7 days ago.
mummy4812, are you positive it was only the 4th ventricle that was enlarged? Are the lateral vents not enlarged at all? If this is the case, I would recommend getting a MRI. That is a more unusual case. It is a very large measurement for a 4th vent. And, with no lateral vent enlargement, I would want a MRI to get better imaging of why that is. Best wishes to you and your baby!

mummy4812 - 8 days ago.
I am new to this and after some advice from people who will understand my recent turmoil of emotions. At my 20wk scan we were informed that our little girl has a prominent fourth ventricle. We were immediately put under consultant led care here in Wales and I was left to worry and goggle (not wise) over a weekend before being allowed to ask someone all of my questions. Basically her fourth ventricle measured 9.8mm at the 20wk scan on 13th Feb, but by the time we saw the consultant on Monday 16th Feb she only measured it as 8.9 and 9.3 on two separate measurements. They have since sent us for an Mri scan in Bristol to allow them a detailed look at our daughters brain and we are waiting the results of this as we speak. My husband is incredibly positive in all of this and feels there is nothing wrong and the consultants are just being over cautious but I feel my hormones ay be clouding my judgement and the moment and I am preparing myself for the worst, although not really knowing what that is. I just feel a little lost at the moment and would appreciate any words of advice or comfort from other mummies please. I would like to say the consultant seemed positive in the issues with her brain were the only 'defects' they could find and so they don't believe this is a chromosomal issue but again I really don't know...

gandjplus1 - 9 days ago.
Just wanted to leave another update on my now 18 month old with VM. She is doing so wonderful and is developmentally perfect. She is running, climbing and talking a ton. Her VM was first seen at my 19 week sono and never resolved. She had a CT scan in December (due to an unrelated minor head injury at day care) and it was visible that her ventricles remain enlarged. The doctor came in after the scan and said that there was no bleeding or any concern from the fall but I should see a neurologist because of enlarged ventricles. I explained that she has had this issue since the first scan on her brain in utero and I would not be following up with a neurologist. I don't know if they are required to refer to a specialist with these findings, but the neurologist she formerly saw had no concerns. I know someone asked about having other children and if they also had VM..for me just 1 out of 3 has this diagnosis so I doubt it's a genetic thing.

firsttime2323 - 17 days ago.
Humanist - aww congrats! I want to try again soon. My son is 6 months corrected but I love kids and I plan on having a big family. My husband agrees and this time I want to start trying and I want a little girl. My son has vents 19mm and 20 mm and he's also turned out fine. He's passing all his milestones and no delays and no problems. :) thanks for the response xoxoxo

MacCrewe4 - 17 days ago.
36 week update - our baby boy now has two vent measurements 27/31 (down from 40 on one vent last week). Microarray came back clear to eliminate genetic factors, no spina bifida, or other apparent anomalies, etc. Met with neurosurgeon who said he would likely need surgery on fenestration within first few days and aqueductal stenosis was mentioned again. The womb is the safest place to be right now to avoid further complications and the fact that it most likely occurred in the third trimester is also a positive. We are doing a little better, having had time to let it sink in, and are trying to remain positive. Doc. Said 1/3 will be okay, 1/3 will have mild to moderate delays, and 1/3 severe delays is accurate in this case. Best wishes to all parents out there - this forum makes us feel like we're not alone.

humanist - 18 days ago.
Firsttime2323 - my 3 year old son had vents of 20mm each side at birth. He's turned out fine in every way, absolutely no issues whatsoever. 5 days ago my daughter has born who didn't have ventriculomegaly or any other condition and seems perfectly healthy (early days yet though). So it's not inevitable that subsequent kids will also have VM.

Pompey - 18 days ago.
Hi I am looking for advice. I am 28 weeks with twin boys. A scan at 26 weeks showed increased LV at 12mm. A second scan today has shown an increase to 14mm. Unfortunately the professor was not available to discuss this with me and I await a call regarding an MRI. The other twin has a normal range. As its progressive I am really worried. Any advice gratefully received.

firsttime2323 - 19 days ago.
Hey guys! So genetics called me and asked to see my son. However she said all tests that they have done came back normal they want to see if they can do anymore testing. And she said if your planning on having babies in the future we can help with that. Anyone have any babies after their first with vents and the baby coming out normal?

mariska - 20 days ago.
hi all, I was on this forum a few years ago. My baby was diagnosed with ventriculomegaly (12 mm at max). He turned 6 years last august and he is doing great, except his school results now show that there might be something with is reading skills. Does any on this forum have the same experience. @turtlemom, great to see you are still active on the forum. Thanks all, Mariska

firelily - 20 days ago.
Well, we had an MRI done at 32 weeks which confirmed that the brain was developing normally and vm was the only finding, so the doctors were very reassured. Even before this, they weren't really concerned about a 13, the most important thing was that it did not continue to grow. They have told us that baby won't even have any exams beyond what any baby has at birth unless there is another sign of a problem. I am in France and I am sure the protocols are different. Once it was determined to be isolated and stable they have only reassured us and have never suggested that there could have been damage done. Plus, like turtle mom said, there is a margin of error that you have to consider. Our specialist said that because the ventricles are filled with liquid, the measurement will change based on what position the baby is in, so to me a small change in a few days isn't alarming. They don't like to do scans closer than 4 weeks apart because of this. I know it is a difficult, stressful and confusing time and that there isn't enough information available for us and this is very unfortunate because growing a baby is the most magical thing in life and we should be filled with joy!!! So, I encourage you to stay positive. There is nothing better to do!

firelily - 21 days ago.
Our specialist said that she sees unilateral vm more often in boys, and asymmetric vents in general in boys whether or not they are dilated. Afterwards, I know nothing about the teardrop shape, but I can tell you that at 20 weeks our baby's left vent was in the normal range, at 30 weeks it was measuring 13mm and at 35 weeks it was at 8. The doctor who did the scan at 35 weeks said that the baby was in the perfect position and that she felt the measurement was reliable. Keep up the positive outlook!!!

turtlemom - 21 days ago.
It happens sometimes later. It's not unheard of. I've never read anything about boys and girls being different. But, maybe they know more than I do. Honestly, that normally isn't the case. But, maybe it is this time. Clinical trials are few and far between for VM bc it usually turns out OK. Here's another resource that should be of comfort - 97% chance of normal outcome. http://www.obfocus.com/questions/qanda10.htm My only concern is about the shape. And, I do know some in the 3% with challenging, heartbreaking stories.

turtlemom - 21 days ago.
The margin of error is 1.5mm. And, it's more difficult to get a good reading the further along you are. I would suggest you wait a couple of weeks and get another scan. If they are still measuring larger than 10mm, you could consider getting a mri because of the shape. Best wishes!

firsttime2323 - 26 days ago.
Btw everyone I know this is off topic but if anyone here is interested in losing weight without exercising and need to lose those stretch marks and have their c section scar there are creams that I've used to get rid of them. If anyone is interested let me know I can show you the products! Email me at s.n.taji@hotmail.com

firsttime2323 - 26 days ago.
Maccrewe4, don't worry! Everything will be fine! Just wait until baby is here. We've all been thru a lot and usually when baby is out good news start to happen. They said my baby would have abnormal behavior and genetic problems and so many more. Everything that they said was not true and non happened. I have a healthy baby boy! You'll be fine. Keep us updated hun

MacCrewe4 - 26 days ago.
Hi, I am 35+ weeks pregnant and have been through quite a bit. At 20 weeks we had abnormal blood work and 3-4 soft markers for Downs - had a clear amnio. Soft markers included slightly dilated kidneys 4.1 when norm is 4mm and chorid plexus cyst at. 1.1mm when norm is 1 or under. At 29 weeks everything looked great for the first time except baby was big - tested a second time for GD and was cleared. Had a growth scan follow-up today and baby has 40mm of fluid on one side of the brain and elevated on the other side but weren't given a number. Waiting on microarray from previous amnio to rule out genetic factors, waiting on MRI and appt. with neurosurgery team with possible shunt at birth. His head was consistently measuring big and he's estimated to be over 10 pounds at a scheduled c-section at 39 weeks. We are beside ourselves and doctors are perplexed how things could have gone from so good to so bad . Any advice?

turtlemom - 29 days ago.
I wouldn't worry, mamakatherine. You are very far along and it's very difficult to get a good vent measurement at 37 weeks. I'm surprised they even tried. To me, that is nothing at all to worry about.

MamaKatherineJJ - 39 days ago.
Hi everyone, i am currently 37 weeks pregnant. My doctor hasnt even told me that my son has ventriculomegaly or what problems could bring to my baby. I'm 22 years old and very scared because in the ultrasound he shows a 12 mm ventricule... He asked for other ultrasound for next week and a exam post birth. This is my first baby and we are very happy and he Will be very loved but this last week has been very difficult. I just want to have him safe and here pretty soon.


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