VentriculomegalyHow can ventriculomegaly affect my child?
The ventricular system contains sac-like pockets that are filled with cerebrospinal fluid. When the ventricular system of the brain is enlarged, it is known as ventriculomegaly. The lateral ventricles of the brain are less than 10 mm wide in a healthy fetus. However, a fetus that suffers from ventriculomegaly has lateral ventricles measuring 10-15 mm wide. Sometimes they are even larger, in which the case is severe. Luckily, ventriculomegaly is not linked to other health conditions in most cases. Severe cases of ventriculomegaly can result in hydrocephalus, also known as water on the brain. In hydrocephalus cases, the cerebrospinal fluid builds up and puts pressure on the brain.
There are three major causes of ventriculomegaly. Improper brain development, destroyed brain tissue and insufficient absorption of cerebrospinal fluid are all factors that can make the ventricles in the brain larger. Sometimes chromosomal problems can cause ventriculomegaly.
Ventriculomegaly affects approximately 1 out of 1,000 live births and is normally nothing that the mother has done. The condition can be diagnosed before or after birth. Ventriculomegaly can be detected on ultrasound by the second trimester. An MRI can also be helpful in diagnosing the condition. A chromosomal analysis can be used to test for chromosomal problems that can cause the condition.
The only time that ventriculomegaly needs to be treated is when there is water on the brain. Even if there is no water on the brain, regular exams should be done to monitor the condition. Once the baby has been born, doctors will do exams and measure the head circumference to make sure the baby is healthy. Usually, ventriculomegaly will resolve on its own and there are no neurological or developmental problems. As long as there are no other health conditions or chromosomal abnormalities present, the long-term prognosis for a child born with mild to moderate ventriculomegaly is great.
See also: http://www.squidoo.com/ventriculomegaly-info
See also: http://www.i-am-pregnant.com/Birth/Birth-defects/Hydrocephalus
Comments 1 to 24 of about 2531.
1 2 3 4 5 6 7 8 9 10 11 Nextgandjplus1
11 days ago.
Hi all, I just wanted to leave another update for all those who follow. Backround: my baby was diagnosed with mild VM during my 2nd trimester. The measurements remained relatively the same for the entire pregnancy. There were no concerns at birth and I had a normal delivery. There were no concerns with my daughter until around 7 months old when her head started measuring over the 97%tile. A U/S at 7 1/2 months ruled out hydro but our pediatrician still referred us to a neurologist. Baby Avery turned 1 over the weekend and still has a huge head, but all development is on track. She is standing unassisted and getting ready to take her first steps. She walks holding my hand but is an extremey cautious little girl. With exception to a larger than average head, she is completely typical. Just wanted to update everyone, as I always enjoyed reading the positive outcomes of the babies on here to help me through a very difficult time. Many prayers for all of you who have been recently diagnosed and look toward this wonderful board for education with this diagnosis that brings to much worry and uncertainty. As many people say over and over on here, as soon as these little ones are born-no matter what their diagnosis brings-unconditional love takes over! firsttime2323
17 days ago.
Doctor called me. She said that they have finally decided 'on what to call this diagnosis' that my son has.... He has Septo Optic Dysplacia....?????. Apparently because I think it's his left or right eye that has a small optic nerve and his brain abnormalities he has septo optic Dysplacia.. It's so hard to believe this because when I look at my son he acts like a normal baby and he's always looking around and he's taking his bottles so well and he cries and he has such good muscle tone.. He kicks and moves and he moves his head a lot too! My parents and husband told the doctor that she was pretty much a liar lol.. And how she's negative and so rude. My parents and husband pretty much told her that the only reason you're throwing this in our faces is so you don't lose your job. I stood there so quiet I didn't know what to say.
This is so hard. I look at other videos of babies with this diagnosis and my baby is nothing like that. His eyes move at the same time and I can tell that he sees and hears. No one in my family or my husbands has any vision impairment or blind or brain abnormality or anything. I really don't know what to do or what to expect. It's hard losing a baby twin and realizing the other twin has an abnormality. Especially when it's your first pregnancy! :( firstname.lastname@example.org
17 days ago.
Kelsif- a fetal MRI will be able to show you the structures of the brain. It can show a whole lot more than an US. It can also possibly show if there is a blockage.
18 days ago.
hi all, just wanted to say how this message board has been wonderful and supportive the past couple of days, as I have been reading through.Our story is we started off with 20w anatomy scan and the left lateral ventricle was measuing the high end of normal. 9mm. We monitored it and it rose slowly to the abnormal/mild range of 12/13mm, it slowly rose again at the level 2 ultrasound we had to about 15mm, and that was around week 32. Now we just had an ultrasound and it has risen again to 18mm. it is isolated (everything else is 'normal') and is in the left ventricle. We got tested for syndromes which came back negative and also the test for infections came back negative too. we are meeting with dr.'s at Penn State Hershey Wednesday to discuss options. its so hard not knowing. Those that had an MRI..I am wondering why my dr.'s have not even mentioned a fetal MRI to me. Would that show more and what the obstruction is? email@example.com
18 days ago.
Hi everyone, I haven't been on in a while!
Not much has changed this end.
Background; my son was diagnosed with VM at 33 weeks, it was unilateral measuring 11.5mm.
I had an amnio and torch testing which all came back normal. I declined the fetal MRI as I was fairly close to delivery.
My son was born at 39 weeks, he was perfect!
He had an ultrasound through his fontanelle at 12 hours old. His vent measured 12.6mm. I suspect it was that size all along as it was more accurate than in uteruo.
Today my son is 2.5 years old. He is the funniest little guy, he hit all of his milestones on time until he was around 18 months. He crawled at 7 months, walked at 11 months.
At 18 months I realised his speech was behind. To this day his speech is still really delayed!
He is 100% typical in every other way.
He has his 3rd speech evaluation in 2 weeks time. They wanted to give him until he was 2.5 years before they intervened.
He does say words, he will repeat things we ask him to but he doesn't use them independently. He also doesn't follow instructions great, but he has definately improved.
I couldn't ask for more though.
If this is all that is the result of his VM then I am over the moon. Of course I wish he could talk, but I know things could have been very different, he could have had a whole host more issues so I'm grateful
I don't have any great advice for you moms in this position, I know how hard and worrying it is.
I would say always get a second opinion and remember vents can go up and down several times. And the vast majority of vm corrects itself before birth
Stay strong for your babies and best wishes to you all gmof 3
19 days ago.
I would like to start by saying thank you to turtlemom and all the other moms who have lived through these terrifying situations, and are now here, on this forum, to offer their knowledge through experience and research, support, words of encouragement, and to lend a sympathetic ear along with heartfelt sympathy for those who have suffered a devastating loss. Thank you so much.
I found this forum shortly after finding out at 19 weeks that my baby had ventriculomegaly. I was on this site most every day and night searching for situations close to mine and hoping to hear good outcomes for all the precious babies. I never posted, or asked any questions, but I followed many of the mothers who were brave enough to share their stories. Some endings were happy, some not, but I admired all the mothers that shared their stories from start to finish.
I often wondered what happened to the moms and babies that stopped posting before, or after they gave birth, so I felt I should share my story from 19 weeks pregnant to present day. My baby girl is soon to be 6 months old. I hope this will help someone who is searching.
After my 19 weeks ultrasound I received a phone call from my Kaiser doctor who casually told me that my baby had enlarged ventricles, measuring 14 and 14. She went on to tell me that I needed to call the genetics department and schedule a level 2 ultrasound. When I asked her what ventriculomegaly was, and what did it mean for my baby, she told me the genetics department would go over everything with me, and with that the conversation ended. I hung up the phone in stunned silence. This doctor was new to me, I had only seen her once, and she offered no explanation, or information about this condition. I was devastated, and scared, and it felt like my whole world had caved in on me.
For the next two weeks I was on the internet day and night, and like so many others was terrified of the unknown, and worse case scenarios.
At my level 2 ultrasound my babies vents measured 15 and 16, and I was told that it looked like part of her brain might be missing. I was also told the outcome would be grim, and was offered amniocentesis and termination.
I turned down the offer of termination and scheduled the amniocentesis. The results of the amniocentesis were good, no genetic concerns, or other abnormalities.
The doctors told me that her vent measurements were initially in the moderate category, but are now in the severe category, and with measurements this high they almost never go down, or resolve themselves.
I was keeping my baby, and accepted my situation, fully expecting my babies vents to increase in size throughout my pregnancy, and I was well aware of the procedures that might be needed after her birth. I decided that I was not going to have regular ultrasounds, I didn’t see any point in putting myself through the anguish of being told; this ultrasound shows your babies vents have increased to this…, and at the next ultrasound being told they have increased even more. There was nothing that could be done, so what was the point. I was having a hard time keeping it together, and the holidays were upon us, I wanted Christmas to be happy and normal for my boys who were 2 and 3, and I knew I couldn’t do that if every couple of weeks I got bad news, I knew I would just fall deeper and deeper into depression.
The next ultrasound I was going to have was at 34 weeks, so the baby’s head could be measured to see if I was going to be able to have a vaginal birth.
The 34 week ultra sound showed that her vents were still at 15 and 16, that all of her brain was there, and that her head was measuring only a week ahead, so a vaginal birth was not going to be a problem.
I went into labor at 39 weeks, it was a hard, but fast labor and my sweet baby girl was born. Finally…..I had her in my arms, and everything changed, the fear was gone, all I felt was overwhelming love for my daughter, my sweet baby girl. She seemed so perfect.
She weighed 8 lbs. 3 oz., 20 inches, and her head measured in the 50th percentile. Everything seemed normal. No emergency measures were needed, but she was to have an ultrasound through her fontanel in a couple of hours.
That ultra sound showed that her vents were now on the high end of normal measuring around 6-8, nothing to worry about I was told, and no further follow up needed.
My little girl is almost 6 months old now, she is a happy, chubby little girl who has met, or exceeded all milestones.
Here was a baby who at 33 weeks had vents that measured 15 and 16, and 6 weeks later they were within the normal range. We don’t know what happened, but we do know that every baby is different, and outcomes cannot be predicted in every case.
Yes, I watch her carefully, very carefully, I look for any little thing that might be off, I can’t help it, but that worry is lessening every day. We are so grateful she’s is in our life, we count our blessing, and cherish every day. This type of situation, regardless of the outcome changes you forever.
When s baby is diagnosed with VM, or hydro, or any other abnormality, I would never tell the mother not to worry, or to relax and try to enjoy the rest of her pregnancy, in my opinion you are asking the impossible, but I would tell them that the fear of the unknown during pregnancy is the worst, and when their baby is finally born that fear is replaced with the unconditional love of a mother.
Bless you all, and I pray for all the mothers and babies who are going through difficult times.
19 days ago.
Where is everyone? Anyways! My baby is still in the NICU! He is 38+2. So far he is taking his feeds well bottling like a champ! No more feeding tube. Doctors still can't figure out why he has large ventricles and thin and short CC AND thin inferior temporal lobes. So far my baby is doing really well. My family thinks that this whole brain abnormality isn't going to affect him and the brain is so unique it has other ways to work and wire ! I'm hoping they're right. As for now my baby doesn't look like it is in any trouble. However after 3 months from now we will see if he passes his milestones. Anyone in the same situation as me? firsttime2323
26 days ago.
UPDATE: MRI Results came back. Ventricles on the left are 19 mm (before was 14mm) and right 23 mm (before was 15mm).. And 3rd ventricle grew 5 mm increase. His temporal lobes are still thinned. Corpus callosum is thin and short. Doctor said there is no change. I don't know why there is an increase... A neuro is going to call me today to explain everything in detail. I'm so confused. My baby is so active, moves around, moves his head.. Smiles when he hears our voices. It's so weird how this is happening .. He doesn't even look like he has a brain abnormality. michellaAnne
27 days ago.
I am so thankful for these boards! I wouldn't be on my road trip to Boston from Florida right now if it wasn't for the countless nights I spent reading all of your stories! We are almost out of Florida and I will meet with Dr. Warf and his team on Wednesday in hopes of finally getting some answers! I have decided to deliver the baby up there and will return to Boston when I am 36 weeks. We were trying to decide on going to CHOP or Boston as they both seem to have the best programs for nuerosurgery. We chose Boston because we have some family am hour away so I won't be alone while waiting for baby. I still can't belive it's been 7 weeks since I found sweet baby Mason had a problem. To me 7 weeks to get a appointment with a nuerosurgeon is just ridiculous when there is a problem in utero. Florida is obviously not the best place to be if you get this diagnosis. Thankfully both Boston and CHOP were there to help me within days!!! I am 33 weeks now and we are ready to finally feel like we are being taken care of!!! Boston here we come!!!! I will keep you all posted and continue to pray for all of your amazingly resilient babies! firsttime2323
29 days ago.
Entessar, do you mind sharing your story? firstname.lastname@example.org
29 days ago.
Firsttime2323, I don't want you to worry.The fact its not genetic is actually a great news. I will tell you what a doctor told me about my son when he was at NICU ' WHAT IS WRITTEN TO YOUR SON IS ALREADY WRITTEN, THERE IS NOTHING YOU CAN DO TO CHANGE IT' just leave it to god hands, live the moment and stop worry about tomorrow , no one can grantee the future. I am sure that your son will never stop to surprise you just like mine.
Also I am highly recommending early childhood intervention for any supportive treatment because these therapists are actually working. firsttime2323
29 days ago.
Update: so my baby boy is 36 weeks and 6 days! His genetic testing came back NORMAL! And his kidneys are no longer infected and are also back to normal! He's doing perfect and all the nurses love him! One problem still is that his MRI is abnormal. Thin corpus callosum and undeveloped temporal lobes. Doctor said even if his genetic testing came back normal doesn't mean he won't have seizures or delays or mental retardation. I was at first happy that the genetics came back normal until he said that the baby may not live a normal life. He also said it could be inherited but we have no one in the family who has anything like this. No one has Down syndrome or anything. So we can't really figure out the problem. Today he had another MRI to see if there are any changes , if it got worse or better or the same. His ventricles are still 14 mn on both sides and third ventricle is the same size and fourth ventricle is NORMAL. My husband and I are so worried we really don't know what to expect. MRI results should come out this weekend or Monday! Can anyone relate to my story? mamamarth
37 days ago.
MichellaAnne, my heart goes out to you and your family as you continue on this journey. Grace had a similar case in that she had a Grade II hemorrhage which also caused an obstruction. Her obstruction was in the Foramen of Monro, so it only blocked her right lateral ventricle and the obstruction was what was known as a 'ball-valve' obstruction, meaning that it allowed some of the CSF to pass through but not enough to keep that ventricle from dilating. They caught the bleed almost immediately after it happened and were able to catch the obstruction as well. Our doctors remained hopeful and eventually, some of that obstruction clotted off and opened that passage even more, allowing the CSF to flow even more freely. Today marks Gracie's 5 month birthday and we couldn't be more grateful for her continued progress. She has slight delayed visual maturation with a nystagmus that actually has improved drastically. She has hit every milestone on or before the 'expected' timeframe and becomes more fun as the time passes. Because of the blood product that remains in her ventricle (it is minimal at this point) we do continue to be slightly neurotic if we feel like something is off but she had an MRI at around 2 months and her brain and ventricle measurements remain stable, such a blessing! My thoughts and prayers are with you and your family as you approach the final stretch and venture to Boston for answers! turtlemom
37 days ago.
MichellaAnne, I'm sorry you are going through this at this time. While Parker did not have a bleed, she did have a blockage that caused her hydrocephalus. You are in marvelous hands with Dr Warf. He is the best NSG in the country! Are you on Facebook? We have a group there that is very active. Hugs and prayers! michellaAnne
37 days ago.
I really wish somone was around to read my posts and give me a little reassurance. :( a lot has happened and we are now where we were 6 weeks ago with the exception that we have scheduled a consult and testing to be done in Boston. I sent all my files and images to a Dr. Warf's team and they confirmed the brain bleed :( I still do not know the extent or grade of the bleed but everything I read says when there are blood particles floating in the brain it's typically a 3 or a 4. I am almost 32 weeks and will travel to Boston at 33 weeks and they will take thier own images to get a better diagnosis. They did say by looking at my MRI of 26 weeks that the blood is blocking the aqueduct and it could possibly resolve it self and this is the reason I have had measurements of the ventricles high and low. Blood was blocking then it wasn't and now more blood has traveled down that way. So I am praying hard that the damage is minimal to his little brain. I am so scared and sad and can't help but think that I caused this to happen somehow. I just want to get him out and fix him. Has anyone with a brain bleed and hydro get the evt surgery by Dr. Warf? I hope all you babies are doing ok. God bless! akaz
38 days ago.
Hi all - it has been a while since I last posted here but thought I would update, especially as this forum was so supportive during my pregnancy! My son was diagnosed with moderate unilateral ventriculomegy at the 5 month scan where after 32 weeks these measurements decreased. After birth another scan was done which indicated mild ventriculomegy. He turned one last week and this far has been very typical. He bum shuffles all over the place and is a happy child. I just wanted to know what other parents experiences have been after birth? My son isn't walking yet, but hopefully will do in time! michellaAnne
45 days ago.
Well today was not the best day. We are back where we were 5 weeks ago and now the one ventricle is measuring at 3cm so in two weeks in went from 1 to 3 cm. not sure why it didn't show that much dialating 2 weeks ago. So sad. Meeting with nuerosurgeon on the 28th so we have 2.5 weeks until we know for sure exactly what is happening. I am so scared and sad. 😥 Firsttime2323
46 days ago.
Thanks turtlemom. The genetic testing still didn't come back. I am so scared they are going to find something :(. Is it possible for my baby who has thin CC and undeveloped temporal lobes to have a result of a normal test for genetic testing? :(:( flicka79
55 days ago.
Hi all, new here so thought would post as I had a really rubbish week this week! :-( went for a 32 week private 'well being' scan for no other reason than for reassurance. Everything looked fine at 20 week anomaly scan. Everything was looking normal at this 32 week scan but noticed sonographer was spending a long time looking at my baby's head and then she explained that baby has moderate ventriculomegaly (bilateral) both vents at 14 mm. Plus she couldn't clearly see the cavum. Everything else looks normal. Might be the cavum is there but just squashed by the enlarged ventricles or she just can't visualise it using US at this late stage of gestation. Referred for appointment with foetal medicine specialist at Gloucester (UK) on Thurs. Agonising 2 day wait from when I had the initial scan and news. Anyway he was overall quite reassuring; confirmed ventriculomegaly but called it 'isolated, mild' as he couldn't see any other anomalies. As I thought I would be, referred for foetal MRI in Bristol as he said it's hard to see anything clearly on ultrasound at 32 weeks and they want a good look round. If nothing else anomalous found and my TORCH (infections) screen is clear AND vents haven't got any bigger at next rescan (2 weeks) then the prognosis is reasonably good I think and this 'could' just be normal for this baby. We were offered a chorionic villi test to check for Downs but my nuchal score was 1/5500 vs a 1-2% early labour risk with this test, so we've opted to wait on this and will only do it if any of the other tests are poor. So, feeling better but just waiting and hoping my follow up scan on 8th July is good news :-S the only thing that did occur was just after my 20 week scan (all normal at that point and cavum visualised) my 2.5 yr old son had chicken pox. I've definitely had it and when I asked my GP, he said if I knew I'd had it then didn't need to get tested/treated Just wondering if I had a mild secondary zoster infection (no symptoms at the time) whether that can cause VM? turtlemom
55 days ago.
Oh and, checking into early intervention therapy can't hurt. I'm sure you qualify just because of the prematurity alone. That way they could help you spot any deficits if they should arise. turtlemom
55 days ago.
Hi firsttime2323, my condolences on the loss of your baby. I can't fathom how heartbreaking it must be. Regarding the questions you raised with Twin A, I would take everything they are telling you with a huge grain of salt. It is a big guess at this time and no one really knows what the futures holds for any of our littles. Typically, Neonatologists are experts in taking care of infants but really don't know much about what happens after they leave their doors. And, they do tend to give the most complicated scenario so you can be prepared. I'm not saying your little one won't have mobility challenges, but there is still a chance he/she may not. Our Neonatologist was way off with our our prognosis. And, no two Neuro kids are the same. You could find one with the same vent measurements, no ACC, etc, but they will have the opposite development. The brain is a wondous organ. I do wish you all the best with your little fighter. netters
56 days ago.
Firsttime2323- I am heart broken to hear that you lost baby A. I myself have a set of monoamniotic twins. I delivered them at 30+6 weeks last year, June 8, 2013. Are you on Facebook? There is a huge support group for mom's of MoMo twins with lots of different experiences. I don't know anything about Ventriculomegaly, but I'm sure some other MoMo mom must. Prayers to you during this time. Firsttime2323
57 days ago.
*thin corpus callosum Firsttime2323
57 days ago.
Hi everyone. I would like to share my story with everyone and I am hoping someone can relate with me. I was pregnant with Mono Mono twin boys and I had emergency c section on June 10 2014 at 30+3 weeks because our Twin B had no heartbeat. our Twin A is now in the NICU and has been there since June 10 2014. However, our Twin A was diagnosed with enlarged ventricles of 14 mm on each side. Our Twin B was completely normal and had no abnormalities. Twin A had an MRI the next day and it showed that he has corpus callosum and short in the AP dimension (I dont know what the send part means). They also said the intraorbital optic nerves appear hypoplastic. The 3rd ventricle is mildly prominent and his 4rth ventricle is normal. The temporal lobes are thinned . The doctors told us that he is going to have development delays such as walking and talking. Also they said he might not be able to see or hear. However, they also said that just by looking at him it doesn't make any sense because he's so active and looks like a normal boy. So they went ahead and did a genetic testing to see if there are any chromosome abnormalities and we are waiting for that. They said it takes about 4-6 weeks to get the results. It's just so sad because our Twin B who passed away was completely normal with no abnormalities what so ever, and our Twin A has so many :(. I always thought that identical twins were so much alike and whatever happens to one the other gets affected. and just yesterday they told me that one of his kidneys is enlarged and they have him on antibiotics. If that doesnt work he may need surgery. :( Can anyone relate? michellaAnne
58 days ago.
Good news so far. The ventricles have not gotten any bigger in the weeks time. The stayed the same and his head size did not grow any either. We are measuring one week ahead and ventricles were 1.5cm so they are about the same so they told us they were between 10-11mm. I am praying they don't get any larger. We meet with a neurologist from Miami children's hospital on the 29th of July and hope that we can get some more answers regarding the MRI results. The new dr I am seeing had the scans reviewed by another radiologist and he too did not see signs of bleeding!!! So confused. So for know we wait! I see the dr again in 2 weeks for a checkup and possibly another scan. We wait and pray for now. I wish you all luck and send you all prayers! Thank you!!!