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Home » Pregnancy & Baby Forums » Ventriculomegaly



Ventriculomegaly

Ventriculomegaly



How can ventriculomegaly affect my child?

Ventriculomegaly

The ventricular system contains sac-like pockets that are filled with cerebrospinal fluid. When the ventricular system of the brain is enlarged, it is known as ventriculomegaly. The lateral ventricles of the brain are less than 10 mm wide in a healthy fetus. However, a fetus that suffers from ventriculomegaly has lateral ventricles measuring 10-15 mm wide. Sometimes they are even larger, in which the case is severe. Luckily, ventriculomegaly is not linked to other health conditions in most cases. Severe cases of ventriculomegaly can result in hydrocephalus, also known as water on the brain. In hydrocephalus cases, the cerebrospinal fluid builds up and puts pressure on the brain.

There are three major causes of ventriculomegaly. Improper brain development, destroyed brain tissue and insufficient absorption of cerebrospinal fluid are all factors that can make the ventricles in the brain larger. Sometimes chromosomal problems can cause ventriculomegaly.

Ventriculomegaly affects approximately 1 out of 1,000 live births and is normally nothing that the mother has done. The condition can be diagnosed before or after birth. Ventriculomegaly can be detected on ultrasound by the second trimester. An MRI can also be helpful in diagnosing the condition. A chromosomal analysis can be used to test for chromosomal problems that can cause the condition.

The only time that ventriculomegaly needs to be treated is when there is water on the brain. Even if there is no water on the brain, regular exams should be done to monitor the condition. Once the baby has been born, doctors will do exams and measure the head circumference to make sure the baby is healthy. Usually, ventriculomegaly will resolve on its own and there are no neurological or developmental problems. As long as there are no other health conditions or chromosomal abnormalities present, the long-term prognosis for a child born with mild to moderate ventriculomegaly is great.

See also: http://www.squidoo.com/ventriculomegaly-info
See also: http://www.i-am-pregnant.com/Birth/Birth-defects/Hydrocephalus





Comments: Ventriculomegaly

Comments 1 to 24 of about 2587.
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turtlemom - 7 days ago.
Heather, CBR will bank for free with your diagnosis. Ask them about the Newborn Possibilities program. The large expense would be if you decide to go forward with an infusion. It is very expensive. But, you can decide that later. I undoubtedly know the stem cells saved my daughters vision. She was dx with optic nerve Hypoasia and had nystagmus when she was an infant. Her ophthalmologist determined she would have significant visual impairment if not be blind by the combination of those two components. Our Neonatologist also gave us a poor prognosis. Anyway, Parker is developmentally typical. Stdm cells can re-generate and help damaged parts. In our case, I believe it saved her vision at the very least.

HeatherMT - 7 days ago.
Turtlemom, I read in the comments about how you suggest banking the cord blood. I called the doctor to ask about it and she said she didn't see the harm and that it could possibly benefit, but that a lot of the things that it might be helpful for my son are still in the research phase and that it was very expensive. I read that there is an application you can fill out to try to get it done for free. We don't have thousands of dollars so I want to fill out the application and try to get it and if we can't get it for free we are going to seek help through family and friends or a gofundme account. I was wondering how it helped your little girl.

firsttime2323 - 7 days ago.
Nicole, I can't relate to your situation but for some Of us here.. Our doctors said different things that put us all in a bad situation and we were so upset. My son is doing so well with large ventricles and diagnosed with Septo optic dysplacia... They did all sorts of gentic tests and gene tests .. They found nothing what's so ever! My son is 3 months correct and passing all his milestones.. If we all get postive news in the end.. I'm pretty sure your little girl will be okay! :) stay positive!!!

nicoleandtwins - 8 days ago.
Turtlemom, thanks for replying. I am seeing a peri, and to this peri, my girl's measurements are IUGR. she's behind in gestation, she's measuring 15-16 weeks, with the head being larger than the body. Body is small, and her femur length is the most delayed of her measurements. But even the head's measurements are behind. The peri was all gloom and doom, because to her, it doesn't seem like isolated vm. I kept insisting that there was a chance she'd still be normal. She wasn't too convinced.

turtlemom - 8 days ago.
Nicole, the girl is measuring behind her brother, but how does she measure in general? Is she just petite or is she behind in gestation? Maybe you just have a big boy and teeny girl. They shouldn't be compared to each other. Are you seeing a Perinatologist? If not, get one. The margin of error is 1.5mm. To me,I wouldn't be worried about the vents at 10.6. There is still a 97% chance of normal neural development with isolated VM under 12mm. http://www.obfocus.com/questions/qanda10.htm

turtlemom - 8 days ago.
Heather, there are more active and appropriate places for you to find similar situations. Look on BabyCenter and Facebook for the Hydrocephalus boards. Your little one is more appropriately considered in that category.

nicoleandtwins - 8 days ago.
Hi, does anyone have any information or experience about IUGR and ventriculomegaly? i'm expecting boy-girl twins and am at 19 weeks. My girl was seen to have bilateral dilation at 9 mm on one ultrasound with one doc and 10.6 in another. She's measuring 2-3 weeks behind her brother. The last doctor, a high-risk specialist seemed convinced that the vm and the small size mean it's a chromosomal abnormality and doesn 't think there's much of a chance she'll make it. The doc says that the measurement are borderline for boys, since they have large ventricles, but high for girls. Please, does anyone have any success stories of babies diagnosed this early with borderline vm and intrauterine growth restriction? My level II scan is three weeks away and I need something to hope for. Thanks.

HeatherMT - 8 days ago.
Thank you turtlemom! I keep reading about 12 mm and 20mm but I haven't read any stories about anything much worse. This gives me more hope! I talked to the doctors about trying to deliver several weeks earlier but they refused to do that. I have a feeling I might end up going into labor early anyways since his head is almost measuring full term now as it is. Many blessings to you and your little girl!

turtlemom - 8 days ago.
Hi Heather, by the time we were 32 weeks, I was preparing to deliver my daughter with hydrocephalus because her head circumference was as large as a toddler. The mortality rate is low, so there is no reason to think he won't make it. Here is a good site that give you the real prognosis - 60% chance of profound challenges and a 40% chance of near 'normal' development. It's difficult to determine where your little one will fall until he is several years old. It is likely he will need surgical intervention to help the CSF flow like my daughter did shortly after birth. But, I thank God that is available to save her life. She is now a typical 6 year old. Many blessings to you and yours! http://www.chop.edu/conditions-diseases/hydrocephalus#.VGuf4opOLCQ

HeatherMT - 8 days ago.
Hello everyone I am new to this site. I am currently 32 weeks pregnant with my third child, a baby boy. At our 18 week ultrasound we found out that there was extra spinal fluid on the brain. We have had all the testing done that they have offered including the amnio and the MRI. The MRI showed signs of bleeding on the brain. All the tests so far have come back negative for any chromosomal defects or any infections. We are still waiting on the more extensive tests that look at each individual chromosome to see if there are any abnormalities. I had an ultrasound almost two weeks ago that showed his ventricles are still dilating. His left ventricle is dilated to 52 mm and his right ventricle is dilated to 26mm. I have been trying to find other cases like our child where they are displayed so severely and what the outcomes are but I have failed to find similar cases. I am very worried that he may not make it a few hours past delivery. The doctors say they are almost certain if he makes it that he will be severely handicapped.

smargot - 11 days ago.
My situation echoes many stories here: I'm currently 24w3d. At my 19w US, the ventricles were measuring at 10mm so they scheduled me for a follow-up at 22w. At the follow-up, they had increased to 12mm and the ventricle wall looked too thick and bright, potentially indicating a bleed. They could not locate the cavum septum pellucidum or the artery above the corpus callosum, leading them to suspect agenesis of the cc. Also, the cortex looked a little too smooth, although they admitted this was subjective and that it was too early to tell whether or not it was a problem.

I was offered termination and told I would have to decide soon because the legal limit in our state is 24w. I was also told they could do an amnio and MRI to get more information and probably get results in time, so I had an amniocentesis that day and was scheduled for an MRI the following week. At the MRI, they were able to locate the corpus callosum, although it is thinner than normal, and confirmed that there was no bleed. The DNA microarray and TORCH screening from the amnio both came back negative for chromosomal abnormalities and infection. That was all the good news. The bad news was that the ventricles had increased to 13mm, there was more fluid around the outside of the brain than is normal, and the cortex still looked a little too smooth (though again, too soon to tell for sure).

We were prepared to terminate if the cc was missing, because we were told there was a 40-70% chance of perinatal mortality with both vm + acc, and that any surviving infant would likely be severely impaired. When they were able to locate the cc, we were told there was a ~70% chance of normal development or only minor cognitive impairment, depending on how the cortex develops. If the diagnosis is lissencephaly, there is still a high risk of perinatal mortality or severe impairment (basically no chance of what we would consider a desirable outcome). So now, we're anxiously awaiting a 27w US to see how the brain is developing, and I'm trying to learn as much as I can about the possible outcomes.

I have found this forum so reassuring, but I was afraid I might only be paying attention to the 'good' news and filtering out the 'bad' so I decided to try to look at the information systematically, and will share what I gathered in case it might be helpful to others.

On this board, out of 126 cases with outcomes reported at birth or after, there are only 11 cases of severe impairment (seizures, severe speech & language delay, cannot walk/talk/eat except through tube, respiratory issues, significant cognitive impairment) and 13 cases of mild to moderate impairment (delayed physical or motor development, moderate speech & language delay, complications related to shunt). In the other 102 cases, all indications at the time of the update suggested the child was apparently healthy and meeting all milestones.

In almost all the cases of severe impairment, additional issues were noted in addition to the vm (e.g. cleft palate, club foot, cardiac issues, lissencephaly) and in several cases, genetic causes were identified (microdeletion in chromosome 22, Dandy Walker syndrome).

In most cases of mild to moderate impairment, hydroencephaly was diagnosed. With shunting, physiotherapy, and/or other treatments (including cord blood infusion), many of these children seem to be doing very well.

Lots of caveats: this is not a randomly-selected sample, there are no objective evaluations available in most cases, and often very little follow-up (many people are only reporting on health at birth or <1 year). In many cases, it seems that the vm resolved either before birth or shortly after, and parents were told there was no need for further scanning, so it's unsurprising that most would also stop lingering on vm message boards and just move on with their lives.

However, in 22 cases reporting at 1-1 1/2 years and 18 cases reporting at 2+ years (ranging from 2-18), the kids are described as being totally healthy and normal; compared to 2 cases of mild impairment (no severe) among 1-1 1/2 year olds and 5 cases of impairment (ranging from mild to severe) in the 2+ year olds.

I know there are no guarantees, particularly as they do not know the cause of the vm in our case and the possible diagnosis of lissencephaly seems like it would still be devastating. However, your stories have given me great hope, particularly if we find out in 3 weeks that what we're looking at is merely isolated vm. So, thank you all for sharing. I will update with our news to continue adding to this wonderful resource.


Beedak8 - 13 days ago.
Hello all! I am new to this forum and would like some advice... at 30 week I found out my baby girl's ventricles were measruing around 17 mm & 20 mm, now at 32 weeks her 3rd ventricle is measuring at 13 mm, while other vents have remained the same. My peri suggested aqudectal stenosis but without an MRI its uncertain. I am currently in the hospital with ruptured membranes so no MRI until she comes out. I am nervous as you can imagine and recently banked her cord blood in hopes of going to Duke for a cord blood infusion, My questions are: how diffcult is it to get into a trial at Duke being that the procedure is now FDA approved and any thoughts on her measurements which could possibly mean Hydrocephalus? Thanks in advance!

kailee4123@gmail.com - 13 days ago.
My son had ventricle measurements of 17 mm at our 20 week ultrasound and they also said he didn't have a corpus callosum. They said we may want to think about termination, that he would definitely need a shunt, and had no chance of a totally normal outcome but it could be severe. Well, his ventricles stayed stable through the pregnancy, they figured out at 32 weeks that he did have a corpus callosum (they couldn't see it with the extra fluid). He is about to celebrate his second birthday and he is ahead on milestones and a healthy, sweet boy. I don't think anyone can say with certainty, based on ventricle measurements on ultrasound, what a child's outcome will be but I believe there is always hope. Praying for you and your baby

wasimreza@gmail.com - 14 days ago.
Hi, at our 20 week scan we were told by doctors that our daughter has vents measuring 15-16mm which indicated hydrocephalus. There is also an issue with her heart which appears to have a hole. The pade cardiologist did say that at this point it looks like surgeries can repair the heart. However, he did mention considering the fluid development of the brain, it could be more complicated by the time baby is born. We are waiting for the results of the amnio. We are due to go to the doc on the 17th, when it will have been 10 days since the 20 week scan. Is there any hope for my baby?

gandjplus1 - 19 days ago.
i love all of the feedback on here recently. there are so many people that we never get to hear the outcome and I always wonder... so happy to hear such great news ronni825 and first time2323!

roni825 - 20 days ago.
Just a quick follow up. Joined last winter when baby boy's right vent was prominent (9-10 mm) All other structures looked fine, although the cisterna magna was also prominent (9-10 mm) but to my understanding is still 'normal.' Baby Christian is 5 months old and to date is meeting his milestones. We just followed up with a pediatric neurosurgeon who has no concerns. I regret letting it get me so down during the pregnancy and I hope my story is reassuring to someone else with a similar situation.

firsttime2323 - 29 days ago.
An update on my son: As you all know my son is almost 5 months but he was premature so corrected he'd be 10 weeks and 3 days! The doctors have diagnosed him with Septo optic displayia and has vents of 20mm on each left and right. He has a Follorw up on the 25th of November to see how his brain is. So far my son is smiling and lifting his head up, has great muscle ton, looks at us and smiles when we talk to him. He started cooing 2 weeks ago! He's screaming and cooing and cooing at us as if he's talking to us. It amazes me that my son is passing all his milestones. He's acting like a normal baby! The doctors told me he would be delayed in everything and that he would not be a normal baby! We have a follow up also at the hospital he was born at and I'm planning on taking my son to the doctors that said that my baby wouldn't be normal and show them that they were wrong! I just want to let everyone know DO NOT LISTEN TO THE DOCTORS! ONCE YOUR BABY IS BORN YOU'LL SEE THAT THEY WERE ABSOLUTLY WRONG! don't worry and don't let them suck the joy out of your pregnancy! :)

kitkat99 - 30 days ago.
Hi everyone, I am currently 28 weeks pregnant with a little surprise and was given a diagnosis of mild / borderline VM at 24 weeks. I have been scanned by detailed ultrasound at the fetal medicine unit at 20, 22 and 25 weeks where the left ventricle has been measured between 9.8,10.8 and 11mm with a 8-9mm measurement thrown in in the middle scan just to confuse things!! The right ventricle is fine. The MRI and torch test were fine but I don't want an amnio just yet, however I might reconsider at 30 weeks depending on what they find at my next scan. The consultant said if it was just for fact finding then he agrees with me that it wouldn't really be worth it at this stage as the risk of miscarriage might mean having a premature baby and him/her being poorly regardless of the ventricles. So far I cannot fault the care I have had and the doctors have been more optimistic than me! (While still not being 100% positive they say not too worry too much, it isn't ideal but it isn't too concerning as yet). The MRI professor also said not to get too hung up on measurements as everyone measures differently and he is very generous with his measurements! Luckily everything else with the baby is fine at the moment- heart, face, kidneys, limbs and spine are all just right. I just wanted to share my story and say thanks to everyone else for sharing theirs, I am scared especially of the small risk of chromosome problems and the vents growing but it is just nice to know you aren't alone when you read the past posts. Will keep you updated xx

alixbot@gmail.com - 34 days ago.
Thank you for your reply katieandiggy. I agree with you, a speech delay is still a positive outcome compared to others. I hope your son is learning how to use a communication device or pecs system to make things a little easier. I know it is hard to imagine my baby being anything other than 'typical' as far as medical concerns, and without medical complications, but I know she is going to arrive just as God has planned. Praying for you and your son.

katieandiggy@tiscali.co.uk - 34 days ago.
Hi Alixbot~ I've been a member of this forum for the last 3 years and I've followed and read many many stories. My son was diagnosed with aysemetrical ventriculomegaly at 33 weeks. His left ventricle measured 11.5mm. When he was born is was classed as mildly enlarged/prominent. And a follow up at 7 weeks it was described as normal shape and size but aysemetrical. My son will be 3 at Christmas! He has a severe speech and language delay and will be tested for autism (although he doesn't exhibite typical autism signs) he's brilliant though, great little person and we all communicate, just not verbally. Be read and researched many stories like ours and the vast vast majority of them have positive outcomes. I would class my sons outcome as positive, for all of the things that could be wrong and all of the potential causes of ventriculomegaly, if all my son has is speech/language issues, I'm thankful. I know we all want our kids to be perfect in every way, and I was sad for a period of time about my sons speech but now I'm just his advocate for this speech therapy. I'm sure your situation will be a positive one.

alixbot@gmail.com - 35 days ago.
Thank you very much for your response gandjplus1. It is helpful and I appreciate and welcome your prayers. I'm guessing the scan or ultrasound we are having done on the 3rd will give us more info as far as dilation and exact sizes...

gandjplus1 - 36 days ago.
Hi Alixbot and welcome! My daughter had/has asymmetrical lateral ventricles (but also dilated) which was picked up on my 19 week sonogram. They have remained this way. She is now 14 months old and doesn't seem to be affected by it. All developmental milestones have been exactly on target. Doctors feel this is just the way she was made. Hope this helps and will pray for your baby.

alixbot@gmail.com - 37 days ago.
Hi. I am 30 weeks, 4 days pregnant with my first child. A little girl we are naming Reese. I had an ultrasound done last Tuesday, and followed up on Friday. The doctor told me that the sonographer found a predominant left ventricle. She then said its not larger or protruding, it is only assymetrical, so she is referring us to a specialist. That appointment is not until November 3rd. She said everything was probably fine and not to worry. But naturally. as a first time mother and a pediatric occuoational therapist by trade, I am worried. Has anyone else dealt with something similar? What was the outcome?

kalsey - 44 days ago.
Thanks Turtlemom for the CBR recommendation. And for mentioning Newborn possibilities! We are getting everything for free up to 5 years:) And I mentioned Parker, and they knew you :)

kalsey - 50 days ago.
I had a 32 week level 2 US today - ventricles have stayed the same, 14 and 15-ish mm. Left kidney dilated to 10mm, so still enlarged. Blood test came back very low risk for chromosome issues. Perinatologist said everything else on the baby looks very healthy. We go back at 36 weeks to measure again. We are not out of the woods yet, but feel greatly relieved to have at least one stable measurement, and a normal blood test. Will keep you posted, whether we have a good or bumpy outcome. Thanks all for the encouragement and support!


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     Bacterial-Vaginosis-Screen
     Blood-Type-and-Antibody-Screen
     Chicken-pox
     Cystic-Fibrosis-Carrier-Screening
     German-Measles
     Gonorrhea,-Chlamydia,-Syphilis
     Hemoglobin
     Hepatitis-B-Screening
     HIV
     Ovulation-Predictor-Test
     Pap-Test
     Urine-Screening
Tests-during-pregnancy
     AFP-screening-test
     Amniocentesis
     Biophysical-Profile-(BPP)
     Blood-Glucose
     Chorionic-Villi-Sampling-(CVS)
     Contraction-stress-test
     Fetal-Fibronectin-Test-(fFN)
     Group-B-Streptococcus
     Non-stress-test
     Nuchal-Translucency-Screening
     Prenatal-Paternity-Testing
     PUBS
Tetanus
Thrombophilia
Tips-On-How-To-Get-Pregnant
Tips-To-Avoid-Pregnancy
Tobacco
     Smoking-Cessation
Toxoplasmosis
Travel-during-pregnancy
     Seatbelts
Traveling-With-Children
Treating-your-child`s-symptoms
Trisomy
TTC-After-Loss
TTC-After-Tubal-Ligation-Reversal
TTC-Dealing-with-Infertility
Tubal-Ligation
Tummy-time
Twins
     Complications
     During-twin-pregnancy
     Establishing-routines
     Fraternal
     Identical
     Nursing-twins
     Twin-delivery
     Video
Ultrasound
Unassisted-Childbirth
Urinary-Tract-Infection
Urination
Uterine-Fibroids
Vaccinations
     a)-Birth-2-Months
     b)-4-Months
     c)-6-Months
     d)-12-Months
     e)-18-Months-2-Years
     f)-4-6-Years
Vaginal-Delivery
     Vaginal-birth-after-cesarean
Vaginal-Discharge
Varicose-veins
Vasectomy
Vegetarian-Diet
Ventriculomegaly
Vomiting-(Babies)
Warts
Water-Birth
Weight-Gain
Weight-of-your-child
Whats-Safe-and-Unsafe
     Beauty-and-Spa-Safety
     Career
     Fitness
     Foods
     Home
     Medical
     Medications
     Sex
     Sleep
Working-Mothers
Ovulation-Calendar

All sections
Trying to conceive
Pregnancy & Birth
Birth defects
Babies