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Home » Pregnancy & Baby Forums » Ventriculomegaly



Ventriculomegaly

Ventriculomegaly



How can ventriculomegaly affect my child?

Ventriculomegaly

The ventricular system contains sac-like pockets that are filled with cerebrospinal fluid. When the ventricular system of the brain is enlarged, it is known as ventriculomegaly. The lateral ventricles of the brain are less than 10 mm wide in a healthy fetus. However, a fetus that suffers from ventriculomegaly has lateral ventricles measuring 10-15 mm wide. Sometimes they are even larger, in which the case is severe. Luckily, ventriculomegaly is not linked to other health conditions in most cases. Severe cases of ventriculomegaly can result in hydrocephalus, also known as water on the brain. In hydrocephalus cases, the cerebrospinal fluid builds up and puts pressure on the brain.

There are three major causes of ventriculomegaly. Improper brain development, destroyed brain tissue and insufficient absorption of cerebrospinal fluid are all factors that can make the ventricles in the brain larger. Sometimes chromosomal problems can cause ventriculomegaly.

Ventriculomegaly affects approximately 1 out of 1,000 live births and is normally nothing that the mother has done. The condition can be diagnosed before or after birth. Ventriculomegaly can be detected on ultrasound by the second trimester. An MRI can also be helpful in diagnosing the condition. A chromosomal analysis can be used to test for chromosomal problems that can cause the condition.

The only time that ventriculomegaly needs to be treated is when there is water on the brain. Even if there is no water on the brain, regular exams should be done to monitor the condition. Once the baby has been born, doctors will do exams and measure the head circumference to make sure the baby is healthy. Usually, ventriculomegaly will resolve on its own and there are no neurological or developmental problems. As long as there are no other health conditions or chromosomal abnormalities present, the long-term prognosis for a child born with mild to moderate ventriculomegaly is great.

See also: http://www.squidoo.com/ventriculomegaly-info
See also: http://www.i-am-pregnant.com/Birth/Birth-defects/Hydrocephalus





Comments: Ventriculomegaly

Comments 1 to 24 of about 2617.
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nicoleandtwins - 1 days ago.
Hi, I'd like to update, hope this gives some hope. The last measurement 2 weeks ago for my baby girl was 10.1, left vent. Today, that same vent is measuring around 7. This despite the fact that she barely grew--she is severely growth restricted--in the last 2 weeks.Bad news is, her life and her twin brother's hangs in the balance for reasons not connected to the ventriculomegaly (baby girl already has absent end diastolic flow already at only 23 weeks). Losing her is a big possibility, but then, her ventriculomegaly resolved. So newmom,,stay strong, your baby's vent measurements may yet improve in a short time; it's possible. Love and light.

lovingmummy1 - 3 days ago.
Hi newmom. I think turtlemom and all the mummy's here are giving amazing advise and time and have so much insight so do take on board their comments. I feel I can offer some advise too. My younger daughter's vents measured 10.5 either side and stayed like that till she was born. Ultrasound after birth confirmed 'plump' ventricles. Anyway I think the worst part of the pregnancy was the wait in between the first scan which we first saw the vm to two weeks later when we saw it again. I was worried it would grow massively and kept thinking the next scan would show hydro. Surprisingly the beautiful thing was after worrying and worrying I didn't actually get by by having hope all would be well I actually thought to myself that 'there's a big likelihood that it could be hydro and my baby could be severely impaired and I am heartbroken already and may well be after but what can I do ? I don't believe in abortion so Im going to mentally prepare myself and my husband and older child to accommodate a child with special needs. Yes it will be tough but that is what life is giving me and there are people out there who are dying or sick so I'm not in the worst position ever'. Anyway the fact that her vents stayed stable and she is perfect and healthy now was just a bonus but as someone quite spiritual and I hope I don't sound patronizing but I feel maybe God was seeing what I would do if he threw a challenge at me would I abort ? And maybe because I didn't and was 100 percent he instead changed the situation to make it in my favour. Deep stuff. Could be wrong. Just my own Journey. So here's to accepting life and what it throws at us. Merry Christmas !!

lovingmummy1 - 3 days ago.
Hi newmom. I think turtlemom and all the mummy's here are giving amazing advise and time and have so much insight so do take on board their comments. I feel I can offer some advise too. My younger daughter's vents measured 10.5 either side and stayed like that till she was born. Ultrasound after birth confirmed 'plump' ventricles. Anyway I think the worst part of the pregnancy was the wait in between the first scan which we first saw the vm to two weeks later when we saw it again. I was worried it would grow massively and kept thinking the next scan would show hydro. Surprisingly the beautiful thing was after worrying and worrying I didn't actually get by by having hope all would be well I actually thought to myself that 'there's a big likelihood that it could be hydro and my baby could be severely impaired and I am heartbroken already and may well be after but what can I do ? I don't believe in abortion so Im going to mentally prepare myself and my husband and older child to accommodate a child with special needs. Yes it will be tough but that is what life is giving me and there are people out there who are dying or sick so I'm not in the worst position ever'. Anyway the fact that her vents stayed stable and she is perfect and healthy now was just a bonus but as someone quite spiritual and I hope I don't sound patronizing but I feel maybe God was seeing what I would do if he threw a challenge at me would I abort ? And maybe because I didn't and was 100 percent he instead changed the situation to make it in my favour. Deep stuff. Could be wrong. Just my own Journey. So here's to accepting life and what it throws at us. Merry Christmas !!

firelily - 3 days ago.
To add a little bit of perspective, we had two ultrasounds within 24 hours of each other. The first time the left ventricle measured 12.9 and the next day at 12.1, almost 1 mm difference. They explained to us that both the person who does the scan and the position of the baby can effect the measurement. The pathology specialist also explained to us that since the ventricles have fluid in them they could be more or less filled depending on what side the baby is lying on.I try to focus the positive, which is that it seems to be isolated and mild. Here in France all the doctors have been very encouraging and have reassured us very much. My best wishes to you all.

newmom03192015 - 3 days ago.
Thank you for your feedback. I understand that in the grand spectrum of issues (or potential issues) that can be detected prenatally, my experience does not compre to others. My heart goes out to everyone, because I still feel first hand the anxiety and uncertainty that anything other than 'NORMAL' results can cause. I'm guessing this is my first lesson in parenthood. I really appreciate the responses I have received on here so far.

turtlemom - 3 days ago.
And, if you aren't going up significantly with each scan, there is at least a 77% chance everything will be fine. To give you some perspective- at our 18 week scan, my daughters vents were 16mm & 19mm; at 21 they were 17mm & 22mm; at 24 weeks they were 19mm & 28mm; @ 27 weeks they stopped measuring them bc he couldn't find the midline, the estimates were somewhere between 40-50mm EACH. So, you can see where my perspective is a little different. You need marked increase of vents to show hydrocephalus. The little ones who fall into that 3% have had a brain bleed or something similar.

turtlemom - 3 days ago.
There is a margin of error of 1.5mm. Meaning a scan of 9mm, 10.2mm, 9.7mm, 10.5mm, etc on different dates by different people are all probably the same.

GandJplus1 - 3 days ago.
i know in my daughter's case, she measured around the same (mild VM) from 19 weeks up until 38 weeks. It never 'resolved on its own' but never progressed. I don't know statistics on this, I can only give you my experience. We have a very positive outcome, no issues thus far with her development but obviously would love her to the moon and back no matter what the outcome!

newmom03192015 - 3 days ago.
I am wondering- if the ventricle measurement was in the 9mm range at 20 weeks, and is now 10.2mm at 26 weeks, is there any research that shows that this measurement will remain stable in this mild range throughout the rest of the pregnancy? Or is there still a likely chance that the measurements will continue to increase? The doctors have only commented about the left ventricle, as they could not accurately measure the right side but thought it looked okay visually. Thank you!

nicoleandtwins - 4 days ago.
Hi turtlemom, thanks for the information you keep giving on this page. I'd just like to ask about the 1.5 mm degree of error on scans. That could be 1.5 mm more than 10mm or less than 10mm? My level II scan for my baby girl measured the right vent at 8, left ventricle at 10.1; previous scans for left vent were 10.6 (3 weeks before) another before that was 9. If in a couple of weeks the measurements remain constant, does that mean it won't progress any further? Thanks!

newmom03192015 - 4 days ago.
I appreciate your perspective. I guess this finding just completely took me off guard and I have to come to a place of acceptance no matter the outcome.

turtlemom - 4 days ago.
The further along you are, the more difficult it is to get an accurate measurement. And, here is my reference for the 97% http://www.obfocus.com/questions/qanda10.htm. I don't know where you were finding the scary sources. I've been around here about 6 1/2 years and those stats seem to hold up. As far as how you can manage, you just have to keep it together. I'm not sure how to help you in that dept. We were told at our 18 week appt our daughter would have Hydrocephalus, she would have brain surgery the day after she was born and would have at least a 50% chance of profound challenges. So, I've never been in your shoes. I don't mean to give you a grass is greener lecture, but I've seen it all. I know parents who have lost their sweet babies while in utero or shortly after. I know children who have the exact same dx as my daughter and have major obstacles to overcome. I know that no matter what I love my daughter something fierce. I came to terms with the fact my daughter may live with us forever on May 15, 2008. And, that is okay. I hope she can live a life on her own and she may very well. But, there could be challenges in her path. But, as a parent I believe we can wish for the best but live with guarded optimism.

newmom03192015 - 4 days ago.
Thank you, turtlemom. Any suggestions on how to allow myself to still enjoy the rest of the pregnancy? I feel like I am always on the verge of tears since finding out about this, and now just counting down the days until the next ultrasound or until blood work results come back. I am in a friend's wedding this weekend, and celebrating Christmas with family.... I just don't know how I will be able to enjoy it or at least pretend to be enjoying it. My husband is trying to stay really positive, and I don't want to bring him down by talking about this all of the time. Even if the baby is delivered and is 'normal,' are the chances of behavioral issues, autism, etc increased because of this prenatal finding? The Internet has scared me (except for this site, which is the most comfort I have found). Thanks again.

turtlemom - 4 days ago.
Hi new mom, Hugs! That's a lot on your plate. Prayers for your mom. The margin of error is 1.5mm. I think you are fine with that 10.2mm. We never measure 10ths of mm's. I think that's really reaching. 97% of the time a measurement under 12mm winds up with normal neural development. I do know some that fall in the 3%. But, the odds are on your side. Prayers and blessings to you and yours!

newmom03192015 - 4 days ago.
Please- I need some reassurance. This is my first pregnancy, and my husband and I are over the moon. We found out at our 20 week ultrasound that there was a dangling choroid plexus, but the ventricle measurements were still within normal limits. We returned for a follow up ultrasound at 26 weeks, and the left ventricle is now measuring 10.2mm (normal range is 10 or below). All other brain anatomy and organs are normal. It is just this one measurement. We decided to not undergo amnio because I am 27 weeks and did not want to risk pre term labor. My initial 1st trimester genetic screening came back normal (risk 1:10,000 for the syndromes that were tested). My CMV antibodies were positive, but active infection negative (I have worked as a nurse in the past, and was probably exposed at some point). I had additional genetic blood work done and awaiting results. My provider (head of MFM at Johns Hopkins Hospital) was very reassuring. She believes this will resolve itself or not lead to detrimental complications. I am alternating between feeling reassuring and being terrified. I will love this baby no matter what, I just can't seem to stop living in a complete daze ever since I found this out. Please offer me some reassurance to just get through the days until my follow up ultrasound in 4 weeks. My mom was diagnosed with lung cancer last week, so I cannot talk to her about this right now- it would be too much stress on her plate. I do not feel comfortable talking to friends- it feels too personal and uncertain. This is my only outlet. Thank you so much.

GandJplus1 - 5 days ago.
my heart goes out to you smargot. so sorry to hear this news. I follow various blogs and one of them happens to be about a girl with the same diagnosis. the blog is 'life with liss'...the little girl with liss is around 4 or so. Just in case you wanted a little extra reading...hugs to you. Although the little girl certainly has challenges, there are also many positives to tell.

Two-on-board - 7 days ago.
Hugs to you and yours Smargot xxx

smargot - 8 days ago.
At the second follow-up MRI at 28 weeks, we got a definite diagnosis of lissencephaly, so ours will not be one of the good outcomes. Many children with lissencephaly do not develop mentally beyond a 3-to-5 month level, and our doctors told us that based on the early presentation in our case, that is what we should expect. Virtually all children with lissencephaly have painful seizures that start between 2-6 months of age. The seizures are often difficult to control with medication—sometimes people find a drug or combination of drugs that works, but sometimes they don’t or their drug/combo stops working. Through the 1980s, life expectancy was around 2 years, but now some children with lissencephaly live as long as 6 or even 10 years in exceptional cases. There is no chance that children with lissencephaly, even the exceptional ones, will ever achieve any kind of independent functioning. They require constant supervision, care, and assistance with all basic life functions. Most also require extensive medical interventions to treat their worst symptoms, and many symptoms, like the seizures, cannot be completely alleviated. They often struggle to breathe and swallow and suffer from respiratory illnesses like pneumonia. Some require a feeding tube because of the swallowing problems and reflux. Most have extremely limited mobility and vision problems and are never able to communicate in any way, although a few who survive early childhood and have unusually good cognitive skills and limb control can learn a few hand signs. Very rarely, children with less severe cases may even have near-normal cognitive development, but they still have seizures, respiratory problems, feeding issues, limited muscle development and mobility, and a maximum life expectancy of 10 years. The cause of death is usually asphyxiation or respiratory disease. I don't post this with the intention of worrying anyone unnecessarily. Lissencephaly is one of the rarest causes of vm. They also suspected the cortex looked too smooth as early as 20 weeks in our case. Most vm will not turn out this way. The overall frequency of liss is estimated at 1 in 80,000 pregnancies. My sincere best wishes to everyone else.

Two-on-board - 8 days ago.
I have boy/girl twins. My son has a diagnosis of complete agenesis of the corpus callosum. It was suspected following enlarged vents on ultrasound and confirmed by MRI when I was 31 weeks pregnant. I got much reassurance and hope from this site which was not incorrectly given. My son is now 5 nearly 6 years old. He attends state school, reads, writes, draws, plays with lego, does all the things that his peers do. He is educationally not in the same group as his twin sister, but he is within typical range. Overall - HE IS HAPPY! This was my one big fear, that I would not be able to make him happy ...... It breaks my heart to hear that there is so much negativity about how our children develop and function - there is a place in the world for all children, high achievers or not. I panicked, cried and thought the worst - most of this was due to being offered a termination of my son when I was 31 weeks pregnant, with a risk of delivering my daughter early too ..... how could I believe any positive message when the biggest doubt had been caste? Doctors do not know everything, doctors do not have to live our lives following our babies being born, doctors have not got crystal balls or ways of predicting outcomes, they can only go on their prior experiences. Nobody can reassure you that your babies are going to be fine and develop typically but it is never as bad when they are in front of you after they are born - whatever, you will love them and help them as you would if they suffered a terrible accident when they were older and suffered repercussions. I love Smargot's analysis of the people on this forum - it pulls it all into perspective - another stat for you Smargot is that my son is typically developing with a diagnosis of acc at 5 years old - any other help I can give you, let me know x

KLN21 - 10 days ago.
Yes they diagnosed her as isolated VM as all tests (amnio, MRI and bloods) came back negative. no cause for the IGUR was found, except I did develop Pre E at 33wks. At birth the placenta was small but appeared normal.

GandJplus1 - 13 days ago.
nicoleandtwins, my daughter had isolated VM from 19 weeks and also was at high risk for Downs after quad screening. She does not have Down's or any other diagnosis for that matter.

nicoleandtwins - 17 days ago.
Hi KLN21, was your daughter's vm diagnosed as isolated during your pregnancy? My blood test came back with high risk for down syndrome. I don't know if I should consider the IUGR and vm as soft markers for down, or still hope against hope that it's still isolated vm. Thanks!

KLN21 - 19 days ago.
Nicoleandtwins my daughter was IGUR from 20wks and had unilateral ventriculomegally measuring 10.8 the highest measurement. She is now nearly 3months old. After birth her head ultrasound showed her left ventricle was larger then the right measured 5mm. She is healthy and is meeting all her milestones. I hope this gives u hope with ur little girl.

Firsttime2323 - 19 days ago.
lovingmummy1, give it some time. My friends daughter is 19 months with good health and no brain abnormalities and shes still having trouble walking. All babies are different. :)

lovingmummy1 - 20 days ago.
Kalseyk I was following this blog of a woman who's baby had no corpus collosum when I was pregnant with my second child who had large vents too. Her baby was perfectly normal and walking talking now but I stopped following it. Apparently some people do fine without it and some don't even know they don't have it. I had a question for you ladies. My second daughter is now 19 months she had vents that were 10.5 either side so mild vm. After birth ultrasound confirmed it. Anyway she is super smart can count up to 10 knows all her fav characters and songs and operates the iPad better than me even though she hardly uses it. She is verbally great The only delay is she's not walking she is still bum shuffling all around the house and just now has started to semi pull up. The pead wanted to discharge her from her follow ups because he said she will walk in her own time and that he's got no concerns. I always still worry though that she is delayed in walking because of the vents. Any feedback would be appreciated. Well done to all you brave mummies I remember how scary it was I wish I never worried in my pregnancy now because I have the most beautiful gift ever.


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Tummy-time
Twins
     Complications
     During-twin-pregnancy
     Establishing-routines
     Fraternal
     Identical
     Nursing-twins
     Twin-delivery
     Video
Ultrasound
Unassisted-Childbirth
Urinary-Tract-Infection
Urination
Uterine-Fibroids
Vaccinations
     a)-Birth-2-Months
     b)-4-Months
     c)-6-Months
     d)-12-Months
     e)-18-Months-2-Years
     f)-4-6-Years
Vaginal-Delivery
     Vaginal-birth-after-cesarean
Vaginal-Discharge
Varicose-veins
Vasectomy
Vegetarian-Diet
Ventriculomegaly
Vomiting-(Babies)
Warts
Water-Birth
Weight-Gain
Weight-of-your-child
Whats-Safe-and-Unsafe
     Beauty-and-Spa-Safety
     Career
     Fitness
     Foods
     Home
     Medical
     Medications
     Sex
     Sleep
Working-Mothers
Ovulation-Calendar

All sections
Trying to conceive
Pregnancy & Birth
Birth defects
Babies