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Home » Pregnancy & Baby Forums » Ventriculomegaly



Ventriculomegaly

Ventriculomegaly



How can ventriculomegaly affect my child?

Ventriculomegaly

The ventricular system contains sac-like pockets that are filled with cerebrospinal fluid. When the ventricular system of the brain is enlarged, it is known as ventriculomegaly. The lateral ventricles of the brain are less than 10 mm wide in a healthy fetus. However, a fetus that suffers from ventriculomegaly has lateral ventricles measuring 10-15 mm wide. Sometimes they are even larger, in which the case is severe. Luckily, ventriculomegaly is not linked to other health conditions in most cases. Severe cases of ventriculomegaly can result in hydrocephalus, also known as water on the brain. In hydrocephalus cases, the cerebrospinal fluid builds up and puts pressure on the brain.

There are three major causes of ventriculomegaly. Improper brain development, destroyed brain tissue and insufficient absorption of cerebrospinal fluid are all factors that can make the ventricles in the brain larger. Sometimes chromosomal problems can cause ventriculomegaly.

Ventriculomegaly affects approximately 1 out of 1,000 live births and is normally nothing that the mother has done. The condition can be diagnosed before or after birth. Ventriculomegaly can be detected on ultrasound by the second trimester. An MRI can also be helpful in diagnosing the condition. A chromosomal analysis can be used to test for chromosomal problems that can cause the condition.

The only time that ventriculomegaly needs to be treated is when there is water on the brain. Even if there is no water on the brain, regular exams should be done to monitor the condition. Once the baby has been born, doctors will do exams and measure the head circumference to make sure the baby is healthy. Usually, ventriculomegaly will resolve on its own and there are no neurological or developmental problems. As long as there are no other health conditions or chromosomal abnormalities present, the long-term prognosis for a child born with mild to moderate ventriculomegaly is great.

See also: http://www.squidoo.com/ventriculomegaly-info
See also: http://www.i-am-pregnant.com/Birth/Birth-defects/Hydrocephalus





Comments: Ventriculomegaly

Comments 1 to 24 of about 2627.
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MamaKatherineJJ - 6 days ago.
Hi everyone, i am currently 37 weeks pregnant. My doctor hasnt even told me that my son has ventriculomegaly or what problems could bring to my baby. I'm 22 years old and very scared because in the ultrasound he shows a 12 mm ventricule... He asked for other ultrasound for next week and a exam post birth. This is my first baby and we are very happy and he Will be very loved but this last week has been very difficult. I just want to have him safe and here pretty soon.

desitwins - 9 days ago.
Thanks, firsttime2323! Your story is very uplifting - so glad to know your son's doing so well. Am turning to a lot of similar stories on this board to stay positive. Else, it's difficult and stressful, especially with the doctors presenting stories of gloom and doom. Will update soon as we have more info.

firsttime2323 - 9 days ago.
Desitwins, your baby will be fine. My son is 5 months corrected now and when he was 31 weeks. His vents were 1.5 and 1.4. Then after it went up by 1.9 and 2.3 I believe. They told me that my baby son would be severely handicapped and won't be able to see. Firstly he's not handicapped at all. He's super active and loves to sit and he's about to start crawling soon. He loves standing. And secondly he can see perfectly fine. When he sees me or my husband he starts screaming. He's passing all his milestones. Your baby will be fine. Stay positive Hun! Btw those cant be perfect measurements until they do an mri. The ultrasounds aren't always accurate! But either way your baby is perfectly normal! Don't worry about it. Enjoy the rest of your pregnancy. :)

desitwins - 10 days ago.
They did a scan this week (31 weeks). Compared to last week, where the ventricles were measuring 1.5 and 1.4, this week, they're measuring 1.3 and 1.8. So, one has reduced by 2mm and the other has increased by 4mm. Am very scared since this is the largest increase we have seen so far - earlier it had grown 5 mm in ten weeks and now, 4 mm in just one week. Also, thought it should be stabilizing this week when it's spurted. Any thoughts or advice? Thanks!

turtlemom - 12 days ago.
There is probably around a 77% chance of normal neural development.

desitwins - 14 days ago.
Hi firelily, am new to this board and it was heartening to read your post. I can completely relate to your anxiety. Am having twins after what seems like eternity. After 6 IVFs, we managed to conceive through a surrogate. Things were progressing fine but we found out at the 20th week scan that the ventricles of one of our twins is enlarged and measuring a little over 10mm. Since then, they've been growing around a mm every two weeks so that now at the 30th week scan, they measure 14 and 15mm. The 28th week MRI was normal, the amnio came clean and no other abnormalities can be detected. Hoping this resolves at the next scan which will be in two weeks from now but given they are growing ever so steadily, am not sure. Has anyone here been in a similar situation? Desperately looking for some positivity to hold on to.

firelily - 14 days ago.
Hello everyone! It has been a hectic and stressful time for us since our diagnosis of unilateral vm at 25 weeks. Now, 7 weeks later after many appointments, specialists, and worse case scenarios we found that the ventricle decreased in size and that the MRI showed no other abnormalities. We are still in the moderate range, but are very reassured because it seems to be resolving naturally. We will have one more ultrasound before this baby arrives but as it will be so late in the pregnancy and baby is already head down and very low, they don't anticipate being able to get accurate measurements. My objective at this point is provide a calm environment for baby and to talk to him everyday, letting him know that he may feel that mommy is scared or stressed or anxious, but that these are mommy's emotions that he does not need to carry with him. Also, I tell him that he will be born into a loving home and is already loved and accepted just the way he is. Anyway, I noticed there weren't any recent posts so I thought I would leave a (hopefully) inspiring post for all those mamas who are searching for reassurance and answers to the many questions vm causes you to ask yourself.

turtlemom - 29 days ago.
Hi Heather, they are talking about the ETV. You need to ask if they are also planning on coupling this with the CPC. ETV success rates are very low in infants because the hole in the 3rd vent tends to close. The newer procedure is the CPC. If this is added, the success rates increase. You are really only looking at a similar success rate as a shunt. But, I too would try to give my little one a chance at a shunt free life. But know the success rates are not perfect. Are you on Facebook? I'm an Admin for a group called Hydrocephalus you should join.

HeatherMT - 30 days ago.
Ten days left until baby Ryder enters this world (possibly less due to extra amniotic fluid). At the last ultrasound his vents were measuring at 32mm and 64mm. That was two weeks ago. We won't have another ultrasound to measure his vents while in utero. They won't take him early because they're afraid of lung maturity. C-section scheduled for January 6th. I am battling a cold and sinus infection right now and I'm hoping it clears before he is born. At our team meeting with the surgeon and doctors who will be involved with him after birth the surgeon told us about a newer surgery that he thinks our son will benefit from better than the shunt. He said with this surgery they will construct new pathways in the brain for his fluid to drain. Apparently it's been shown to be safer than the shunt procedure because they don't have to keep opening it back up when the shunt clogs and there is less infection rate because nothing is going outside of the body. I can't remember the name of the surgery but had anyone else heard of this?

lovingmummy1 - 36 days ago.
Ladies any of you in London? Would be lovely to make friends with a mummy who can appreciate vm and other issues you can't bring up with your own friends. X

nicoleandtwins - 38 days ago.
Hi, I'd like to update, hope this gives some hope. The last measurement 2 weeks ago for my baby girl was 10.1, left vent. Today, that same vent is measuring around 7. This despite the fact that she barely grew--she is severely growth restricted--in the last 2 weeks.Bad news is, her life and her twin brother's hangs in the balance for reasons not connected to the ventriculomegaly (baby girl already has absent end diastolic flow already at only 23 weeks). Losing her is a big possibility, but then, her ventriculomegaly resolved. So newmom,,stay strong, your baby's vent measurements may yet improve in a short time; it's possible. Love and light.

lovingmummy1 - 39 days ago.
Hi newmom. I think turtlemom and all the mummy's here are giving amazing advise and time and have so much insight so do take on board their comments. I feel I can offer some advise too. My younger daughter's vents measured 10.5 either side and stayed like that till she was born. Ultrasound after birth confirmed 'plump' ventricles. Anyway I think the worst part of the pregnancy was the wait in between the first scan which we first saw the vm to two weeks later when we saw it again. I was worried it would grow massively and kept thinking the next scan would show hydro. Surprisingly the beautiful thing was after worrying and worrying I didn't actually get by by having hope all would be well I actually thought to myself that 'there's a big likelihood that it could be hydro and my baby could be severely impaired and I am heartbroken already and may well be after but what can I do ? I don't believe in abortion so Im going to mentally prepare myself and my husband and older child to accommodate a child with special needs. Yes it will be tough but that is what life is giving me and there are people out there who are dying or sick so I'm not in the worst position ever'. Anyway the fact that her vents stayed stable and she is perfect and healthy now was just a bonus but as someone quite spiritual and I hope I don't sound patronizing but I feel maybe God was seeing what I would do if he threw a challenge at me would I abort ? And maybe because I didn't and was 100 percent he instead changed the situation to make it in my favour. Deep stuff. Could be wrong. Just my own Journey. So here's to accepting life and what it throws at us. Merry Christmas !!

lovingmummy1 - 39 days ago.
Hi newmom. I think turtlemom and all the mummy's here are giving amazing advise and time and have so much insight so do take on board their comments. I feel I can offer some advise too. My younger daughter's vents measured 10.5 either side and stayed like that till she was born. Ultrasound after birth confirmed 'plump' ventricles. Anyway I think the worst part of the pregnancy was the wait in between the first scan which we first saw the vm to two weeks later when we saw it again. I was worried it would grow massively and kept thinking the next scan would show hydro. Surprisingly the beautiful thing was after worrying and worrying I didn't actually get by by having hope all would be well I actually thought to myself that 'there's a big likelihood that it could be hydro and my baby could be severely impaired and I am heartbroken already and may well be after but what can I do ? I don't believe in abortion so Im going to mentally prepare myself and my husband and older child to accommodate a child with special needs. Yes it will be tough but that is what life is giving me and there are people out there who are dying or sick so I'm not in the worst position ever'. Anyway the fact that her vents stayed stable and she is perfect and healthy now was just a bonus but as someone quite spiritual and I hope I don't sound patronizing but I feel maybe God was seeing what I would do if he threw a challenge at me would I abort ? And maybe because I didn't and was 100 percent he instead changed the situation to make it in my favour. Deep stuff. Could be wrong. Just my own Journey. So here's to accepting life and what it throws at us. Merry Christmas !!

firelily - 40 days ago.
To add a little bit of perspective, we had two ultrasounds within 24 hours of each other. The first time the left ventricle measured 12.9 and the next day at 12.1, almost 1 mm difference. They explained to us that both the person who does the scan and the position of the baby can effect the measurement. The pathology specialist also explained to us that since the ventricles have fluid in them they could be more or less filled depending on what side the baby is lying on.I try to focus the positive, which is that it seems to be isolated and mild. Here in France all the doctors have been very encouraging and have reassured us very much. My best wishes to you all.

newmom03192015 - 40 days ago.
Thank you for your feedback. I understand that in the grand spectrum of issues (or potential issues) that can be detected prenatally, my experience does not compre to others. My heart goes out to everyone, because I still feel first hand the anxiety and uncertainty that anything other than 'NORMAL' results can cause. I'm guessing this is my first lesson in parenthood. I really appreciate the responses I have received on here so far.

turtlemom - 40 days ago.
And, if you aren't going up significantly with each scan, there is at least a 77% chance everything will be fine. To give you some perspective- at our 18 week scan, my daughters vents were 16mm & 19mm; at 21 they were 17mm & 22mm; at 24 weeks they were 19mm & 28mm; @ 27 weeks they stopped measuring them bc he couldn't find the midline, the estimates were somewhere between 40-50mm EACH. So, you can see where my perspective is a little different. You need marked increase of vents to show hydrocephalus. The little ones who fall into that 3% have had a brain bleed or something similar.

turtlemom - 40 days ago.
There is a margin of error of 1.5mm. Meaning a scan of 9mm, 10.2mm, 9.7mm, 10.5mm, etc on different dates by different people are all probably the same.

GandJplus1 - 40 days ago.
i know in my daughter's case, she measured around the same (mild VM) from 19 weeks up until 38 weeks. It never 'resolved on its own' but never progressed. I don't know statistics on this, I can only give you my experience. We have a very positive outcome, no issues thus far with her development but obviously would love her to the moon and back no matter what the outcome!

newmom03192015 - 40 days ago.
I am wondering- if the ventricle measurement was in the 9mm range at 20 weeks, and is now 10.2mm at 26 weeks, is there any research that shows that this measurement will remain stable in this mild range throughout the rest of the pregnancy? Or is there still a likely chance that the measurements will continue to increase? The doctors have only commented about the left ventricle, as they could not accurately measure the right side but thought it looked okay visually. Thank you!

nicoleandtwins - 40 days ago.
Hi turtlemom, thanks for the information you keep giving on this page. I'd just like to ask about the 1.5 mm degree of error on scans. That could be 1.5 mm more than 10mm or less than 10mm? My level II scan for my baby girl measured the right vent at 8, left ventricle at 10.1; previous scans for left vent were 10.6 (3 weeks before) another before that was 9. If in a couple of weeks the measurements remain constant, does that mean it won't progress any further? Thanks!

newmom03192015 - 40 days ago.
I appreciate your perspective. I guess this finding just completely took me off guard and I have to come to a place of acceptance no matter the outcome.

turtlemom - 40 days ago.
The further along you are, the more difficult it is to get an accurate measurement. And, here is my reference for the 97% http://www.obfocus.com/questions/qanda10.htm. I don't know where you were finding the scary sources. I've been around here about 6 1/2 years and those stats seem to hold up. As far as how you can manage, you just have to keep it together. I'm not sure how to help you in that dept. We were told at our 18 week appt our daughter would have Hydrocephalus, she would have brain surgery the day after she was born and would have at least a 50% chance of profound challenges. So, I've never been in your shoes. I don't mean to give you a grass is greener lecture, but I've seen it all. I know parents who have lost their sweet babies while in utero or shortly after. I know children who have the exact same dx as my daughter and have major obstacles to overcome. I know that no matter what I love my daughter something fierce. I came to terms with the fact my daughter may live with us forever on May 15, 2008. And, that is okay. I hope she can live a life on her own and she may very well. But, there could be challenges in her path. But, as a parent I believe we can wish for the best but live with guarded optimism.

newmom03192015 - 40 days ago.
Thank you, turtlemom. Any suggestions on how to allow myself to still enjoy the rest of the pregnancy? I feel like I am always on the verge of tears since finding out about this, and now just counting down the days until the next ultrasound or until blood work results come back. I am in a friend's wedding this weekend, and celebrating Christmas with family.... I just don't know how I will be able to enjoy it or at least pretend to be enjoying it. My husband is trying to stay really positive, and I don't want to bring him down by talking about this all of the time. Even if the baby is delivered and is 'normal,' are the chances of behavioral issues, autism, etc increased because of this prenatal finding? The Internet has scared me (except for this site, which is the most comfort I have found). Thanks again.

turtlemom - 40 days ago.
Hi new mom, Hugs! That's a lot on your plate. Prayers for your mom. The margin of error is 1.5mm. I think you are fine with that 10.2mm. We never measure 10ths of mm's. I think that's really reaching. 97% of the time a measurement under 12mm winds up with normal neural development. I do know some that fall in the 3%. But, the odds are on your side. Prayers and blessings to you and yours!

newmom03192015 - 41 days ago.
Please- I need some reassurance. This is my first pregnancy, and my husband and I are over the moon. We found out at our 20 week ultrasound that there was a dangling choroid plexus, but the ventricle measurements were still within normal limits. We returned for a follow up ultrasound at 26 weeks, and the left ventricle is now measuring 10.2mm (normal range is 10 or below). All other brain anatomy and organs are normal. It is just this one measurement. We decided to not undergo amnio because I am 27 weeks and did not want to risk pre term labor. My initial 1st trimester genetic screening came back normal (risk 1:10,000 for the syndromes that were tested). My CMV antibodies were positive, but active infection negative (I have worked as a nurse in the past, and was probably exposed at some point). I had additional genetic blood work done and awaiting results. My provider (head of MFM at Johns Hopkins Hospital) was very reassuring. She believes this will resolve itself or not lead to detrimental complications. I am alternating between feeling reassuring and being terrified. I will love this baby no matter what, I just can't seem to stop living in a complete daze ever since I found this out. Please offer me some reassurance to just get through the days until my follow up ultrasound in 4 weeks. My mom was diagnosed with lung cancer last week, so I cannot talk to her about this right now- it would be too much stress on her plate. I do not feel comfortable talking to friends- it feels too personal and uncertain. This is my only outlet. Thank you so much.


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     f)-4-6-Years
Vaginal-Delivery
     Vaginal-birth-after-cesarean
Vaginal-Discharge
Varicose-veins
Vasectomy
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Ventriculomegaly
Vomiting-(Babies)
Warts
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Weight-of-your-child
Whats-Safe-and-Unsafe
     Beauty-and-Spa-Safety
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Working-Mothers
Ovulation-Calendar

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