Endometriosis

What is endometriosis and how is it treated?

Comments: Endometriosis

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synthiaw - 22 days ago.
Can you have endimetriouses as well as pcos?

ladypooh - 53 days ago.
Hi, I have just registered today on this website. I was browsing through, curious to read the comments of others that might have a similar problem to mine. I have been married for one year and was diagnosed with endometriosis 6 months ago and I had a laparoscopy done with removal of bilateral ovarian cysts. Other then the cysts and a small uterine fibroid, my doctor told me everything was fine, and that there was no reason why I should not concieve naturally. Every cycle since then, I timed my ovulation, took all the necessary precautions and went through all the feelings of anticipation and hope followed by frustration and sadness when my next menstrual cycle started. I know I have not been through this for years like others but I think I can still understand there pain. I myself am a doctor and preparing for my pHD but unfortunately, going through this emotional turmoil has left me feeling paralyzed and unable to concentrate or enjoy other aspects of my life. Today is the 27th day of my cycle and I am sitting here feeling all the usual symptoms of PMS and I have little hope of being pregnant. Doctor or not....I am a woman whose primary desire in life is to be a mother and nothing else could ever give me the same amount of joy...Can anyone plz give me some words of comfort?

cha ching - 94 days ago.
Oh where to begin? I have a fairly lengthy story, so I won't clog up this thread with it. I do need to get it off my chest in hopes someone will read it and give me some advice and encouraging words. Perhaps on my personal page... Anyway, I was diagnosed with endometriosis earlier this month. The thing that concerns me about it though was that my fertility specialist was able to diagnose me without having to do surgery. All he went by was the ultrasound he did in his office. He also went on to tell me that I have endometriosis grade 4. How can he know that without going in? I do have a cyst or fibroid on the right side of my pelvis... where it is exactly, I'm not sure. I was told by the ultrasound tech with my first ultrasound (before seeing my specialist) that the cyst or fibroid or whatever it is doesn't appear to be on the ovary. I don't experience any abdominal pain and my menstrual cramps are nothing more than a dull pain that I usually get the day before my cycle and the first day of my cycle. I'm so confused. How does he know that I have endo when he didn't even have a look inside with surgery?!

gator68 - 309 days ago.
I have been suffering from Endometriosis for 16 years at 22 a hysterectomy was reccomended... I refused and went on to have 2 more children. At 32 hysterectomy was recommended again. I begged the OBGYN I worked with not to do one unless there was no hope... He did explor lap and found one fallopian tube covered with 5 cysts wrapped in endometriosis... He removed the tube and continued working for 6 hours to remove tissue it was everywhere bladder, spine, intestines even the liver.. I can never thank him enough!!! I woke up with the least amount of pain in years I felt great!!! Walked out of the hopital... Later that afternoon my 3 yo jumped on my abdomin while I was napping... Tore the ovarian artery open... 11units of blood and 3 days in ICU.. I awoke still feeling better than before surgery... So here I am 6 years later and guess what 12 weeks pregnant with number 5!!! They said it wouldn't , couldn't happen......My new husband and I TTC for 4 months and here we are we also had a loss at 9 weeks 9 months ago so preg is possible with endometriosis... I will have the hysterectomy after this because the pain has become so severe and 10 day very heavy periods (2 boxes of tampons and 1 of pads) every month are too much to bare anymore... But there is hope after diagnosis and treatment...

TamaraHope - 356 days ago.
I was 'diagnosed' with endo at age 14. They didn't do a laparascopy, only an exam and an ultrasound, but due to family history and syptoms they never felt the need. I have always had irregular periods. I can go as long as 6 month with out one and they can last as long as 6 weeks. Bc helps to regulate them and helps with the sever pain as well. No women in my family has avoided a hysterectomy past the age of 35 in the last 4, 5 including mine, generations. I decided long ago I would have children young regaurdless of other factors in my life and got lucky that the man I was with at 17 was the love of my life. We had a boy with no complications even with my type 1 diabetis. After dealing with several cervical cysts we started trying almost a year ago. My gyn told me in November, due to bc no longer regulating my cycles, that he would likly no longer recommend pregnancy after another year we really upped the anti and I managed to concieve. Every case is different. The care you recieve makes a huge dfference. Not all stories of women with endo will have a happy ending but they are possible. If having a child/children is important to you then get proper care!

ZoeyLondon - 472 days ago.
I'm in tears while reading these post. It feels like I'm all alone struggling with Endo. Now I no that I'm not. All of the woman in my family had kids with no problems. Also all of my friends have kids. So no one understands my pain. I never thought in a million yrs I would have this much trouble having a baby *tear*. Reading these post gives me hope. I already had one surgery removing 3 cysts. Now my doctor believes if he remove my left clod tube I will be able to conceive. My heart is heavy but I have faith in GOD. Don't give up Ladies i'll keep y'all in my prayers. I no its hard I cry my self to sleep many of nights. But I can't give up I no one day I will hold my lil girl in my arms.

britmoncivais - 504 days ago.
Its so crazy to sit here and read about all these women who tried for 2 mos and got pregnant with endometriosis. I guess I say its CRAZY because I am 23, been married for 5 years (yes I was 18) and we got pregnant with our first little girl just 3 mos after we were married. well in June of 08, I got off birth control because obviously we wanted another. After having just unexplainable bouts of pain and to the point I would be on the floor...I went to a dr. What's worse is I was told I had P.I.D. (pelvic inflammatory disease) so I was pretty upset to say the least. But, it didn't make sense. so we went out of town to another dr. He said, that the two do have the same symptoms... he was concerned I had endo. well.... to make a long story short...I had my first surgery Oct 08 which did infact confirm that I had endometriosis. well, much to my suprise, My family and I were on vacation in March of 09 in Tn at the moutains.. and I was supposed to have my cycle. Well I never did. I was really hopeful and when I got back to work on March 23 2009...I got 3 positive pregnancy tests. TALK ABOUT ECSTATIC!!!!!!!!!!!! But, unfortanately...I was only able to enjoy 13 weeks of that wonderful pregnancy... the baby had no heartbeat at my 13 week appointment. Well..I had another surgery in Sept 09... and another in March of 10... and HERE IT IS...Oct 2010... much over a year since we lost our precious baby... and going on 3 years of ttc.. and still no baby. I tried Lupron (altho it eased the pain for a minute...it has HORRIBLE effects.) I've tried surgeries... and now I'm going to a specialist on Oct 11. It is horrible to feel like your a failure because you can't give your husband what you feel like your supposed to give him. It has taken a toll on me phsycially and emotionally. And I just want someone to really convince me there is hope.

endoandpregnant - 532 days ago.
Hi everyone, I am posting this message as a very happy mother to be!!! I have endometriosis and have suffered with this since I was 13. Two years after I started menstrating, I would become almost parylyzed with pain when I had my period, my mother took me to the doctor and was told that it was just severe cramping and was prescribed naproxen. This just dulled the pain a little and for years I was on many different medications for the pain. I have always had regular periods (cycle and flow) except for the pain. When I was 23 I had the worst episode to date and felt like I was dying, and if I could have gotten off the chair I was sitting in I would have called 911. After that episode I decided to advocate for myself and demanded to see a gynecologist. I have since had the laprascopy to diagnose the endometriosis and a laprotomy to carterize the endo. Which was 11 years ago. Unfortunately the doctor said I still have endo on my intestines and gave me the option of another surgery, but with the complications in dealing with the intesines I declined. I was also told then that if I wanted children we should start trying right away. Of course my husband and I were not ready at the time. So four years ago we decided that we wanted to start trying and we had been unsuccessful. I did not seek outside help as I wasn't in a place to accept it if I could not have children. Then this year at 33 and going to turn 34 in a few moths I decided that it's now or never and we had to seek out professional help. On June 18, 2010 I had my first appointment with my new gynecologist and was told that I should have a 'second' look surgery to see what is going on with the endo, so I was refered back to the fertility clinic that did the cauterization of the endo. To our surprise on July 16, 2010 after not starting my period (I'm like clockwork) I took a pregnancy test and it was POSITIVE!!!!!! So 21 years after having the first symptoms of endo and two surgeries for it; I am PREGNANT!!!! Don't loose hope ladies, relax avoid stress and if you have been trying for 6 months and have been diagnosed with endo most doctors will refer you to a fertility clinic as there are other complications!!!! Love to all who have endo and are trying to conceive, I am sending all of my hope to you.

LeianimalM - 599 days ago.
Hi Everyone! I'm so glad there is a forum on here for Endo because I've suffered for almost 10 years now with it and I'm hoping that this post can give hope to so many of you that are scared/worried/pessimistic about whether you will ever get pregnant. I sufferend from sever bladder infections all the time and was going to the dr almost every other month for antibiotics and finally when I was 18 I was diagnosed with a tumor that was wrapped around my left ovary about the size of an orange and several large cysts in my uterus. I had surgery right away and while they were in there they discovered that I had sever endo that had spread to my bladder. They removed what they could but were very concerned with what functionality my ovary after this tumor had been basically suffocating it for so long not to mention the cancer scare involved. The tumor turned out benign but the endo really had done some damage and I had a second surgery about a year later. I following all the treatments including Depo-Lupron (which I would NEVER do again and don't particularly recommend it as a treatment option for anyone- i feel it did more damage to me than the endo itself). After years of wondering if I would ever be able to conceive I'm happy to announce that I am 7 weeks pregnant and could not possibly be more excited! It's a hard disease and really takes a toll on you mentally and I dreaded the possibility of not being able to have a baby with my husband. He knew it was possible when we got married and everything and said we would adopt or whatever if there was trouble but it meant so much to both of us to be able to have our own. Don't lose hope. It can definitely happen for you. The human body is an amazing thing and will-power and hope can really go a long way. Good luck to all of you and I hope this brief story can add some positivity to someone's life out here!

baby-beiler - 607 days ago.
alright ladies... i cant take this anymore... i was diagnosed with endometriosis not too long ago... in march i think it was and i was on BC to stop ovulations for three months but now i am taking it regularly and i want to cry... The whole week of my cycle i have cramps and migraines... I can hardly get off the couch.. What works for you? I already had a laproscopy test done in march and it is only june... message me on my page with suggestions okay thanks!

joejoe - 636 days ago.
Hi Ladies.. hope everyone is relatively pain free :-) I'm 31 (32 in august) and have suffered with endo for years, finally got dx nearly 10 years ago. I've never fell pregnant, but then i've never been in a steady enough relationship to warrant trying for a baby. In february this year i had my 5th operation.. i've had 4 laparoscopies and this one was laparotomy to seperate my bowel, womb and left ovary from the endo. I've previously had the tube dye test which said all was ok.. so now i'm with a my partner who i've been with for a year.. we're going to start trying. Have been offered IVF already.. but want to try naturally for a while x

sarahjay - 645 days ago.
I got endometriosis after my c section in september of 2007. Just found out im pregnant! :) do not lose hope.

huncitygirl - 659 days ago.
I have Endometriosis and PCOS. I had two surgeries to remove tissue and cysts. They were very painful and I was told that conceiving might never happen. My Gyno told me that it would at least take up to a year to conceive. Well guess what ladies!!!! Two months after trying we got pregnant!!! We have totally beat the odds and both the doctor and my Gyno can't believe how fast it happened. It is a miracle! So as bad as it may seem it is possible to lead a normal life! Good luck to all out there dealing with this terrible disease.

colettejane - 753 days ago.
Fairykie, Hi I suffer from endometriosis also for nearly 2 years I got it a year after having a c-section. The doc told me that i would probably never get pregnant and I was trying for 7 months and that they would put me on fertility drugs in feb and give me a d&c Dec (i had been bleeding for 3 months) just gone to see would that improve things but about a week beforehand discovered that i was pregnant. What a miracle, they scanned me at 6wks and 8wks to make sure that it was taking properly. Yes you can get pregnant but was told it will be a tough road as I am totally exhausted, my immune system very low will pick up everything and I may get pain as my abdomen grows due to scarring but it will be worth it. so best of luck to you just keep trying and praying (its amazing how religious you turn if you want something bad enough)

fairykie - 763 days ago.
I just read this piece on Endometriosis......please tell me there is some ppl that actually doget pregnant while having this problem? I'm very new to this site and thought that joining would set my mind at ease, but now after reading this, im even more afraid that I wont be able to conceive because I have Endometriosis.

raabstaci - 860 days ago.
Cutiepie82- I had a laparoscopy and it took me about 4days to heel all the way. I also just had an hsc thats the test where the inject die into you and I left work and came back right after.

Cutiepie82 - 861 days ago.
I'm having a laparascopy in 2 1/2 weeks, they are also looking in my uterus and putting a dye through my fallopian tube to see if there are blockages. Am nervous about it, also could anyone tell me how long does it take to recover? can i go back to work the day after? Not sure if i have endometriosis yet, that's what they are checking for, my grandmother has it and i have all the symptoms, have been with my husband for 3 years, never used protection, have been actively trying for about 10 cycles with no sucess. Was excited with TTC, but now i can't help but feel dissapointed

happymommytobe! - 863 days ago.
Llamakeeper- that was also the trick for me! i was told i had endo when i was only 18, I had laprascopy and hoped for the best. they told me the sooner i try the better. i had been with my boyfriend for 3 years by then adn we were leaving together but in no way were we ready for a family! so i stayed on continuous BC to stop my periods. we got married about 15 months ago and started trying in march and got pregnant in about 2 1/2 months. i hope the symptoms of endo dont come back to bad! i'm dreading it. when i came off BC i thought i was going to die. thank god we got pregnant quick or I probably would have gotten another surgery.

happymommytobe! - 863 days ago.
kchia80- don't stress! My doctor told me theat with having endo the tough part would be getting pregnant, and if i got past that i'd be fine. I did worry a little about eptopic pregnancy though. but everything turned out fine!

TanMansMomma32 - 908 days ago.
mountain - I hate them they are a pain in the rear!

mountainmama - 909 days ago.
you know i was thinking it might be a cyst....i should probably just make an appointment...sigh :(

TanMansMomma32 - 911 days ago.
mountainmama - I feel a tugging type feeling on my left side near my overy-- found out in april that it was attached to my wall and Intestines( my gyn fixed it) but now it is starting again. I would talk to your gyn about it... and get an ultra sound --do you have cyst?

mountainmama - 911 days ago.
hey ladies! i have endo, had my first baby over a year ago & am still nursing...well i got my period yesterday (like maybe my third one since) and had my usual nasty cramps, but i also had a new feeling on my left side/ovary/uterus...it was a strange spasm or something. so bizarre and i don't really know how to explain it, it wasn't gas (i know that lol) it was this strange twitching but it was definetely coming from the inside of my body....anyone else experience this?

TanMansMomma32 - 911 days ago.
I just came off seasonique last month my doctor put me on it for the endo ( i had horrible mood swings and memory loss etcI had my AF on aug 1 and my DPO 17 and I have been taken ovulation tests since the 5th and still nothing. any suggestions or comments? Im scared that I have not been ovulating period...

TanMansMomma32 - 911 days ago.
kchia80 I dont believe that is a sign of miscarriage, have you had your HGC guant done lately?