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Cindie
Age: 21
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Partner: Carlos- hubby
Children: Yes, 1
Pregnant: Not anymore
Occupation: Home maker/Call Center Rep
Online: 9 hours ago.
Last updated: 228 days ago.
Member since: 233 days
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19-4-2008 - Down Syndrome Sad, getting happyMy mood while writing this blog:
Sad, getting happy



My DH and I are both 21 y/o and have been married 2 1/2 yrs. I am 18w1d pregnant with our first baby. I had an amnio done because I have a rare genetic hereditary skin problem and the baby has a %50/50 of being born with it. All that'll mean is he has to be delivered via C-Section because babies with my skin problem EHK have a higher risk of infection from natural birth due to open skin lesions.

SO I was already expecting a special person, just knowing my baby could have that. Well my biggest fear in the world has been that my baby's would have D/S or Autism. I think it's because I never learned how to deal with developmental disorders?

So last thursday my Genetic counsellor calles at 7:30pm and says "well I have some bad news, the testing came back postive for Down Syndrome" I felt as tho my world was spinning. I literally felt dizzy. I asked "are you sure? " and she said %99.9.

It turns out he's a boy, (TYLER JAMES IS HIS NAME or TJ), and he has a Trisome 21 or D/S. I have done as much learning as possible about D/S since finding out. I was AMAZED to see a woman at my work today applying for a job with D/S. Simply because I'm uneducated about the wonderful brightness and skills that people with D/S can achieve. Each day I'm looking more forward to my little boy. I realize I shouldn't EVER put boundaries on him, even tho I'm scared to death that mentally he will be severely stunted. There's no way of knowing it. and I'll only be holding him back if I think he can't do some things

I spoke with a family in my town who has a 5yr old boy named PJ and he has D/s. they got prenatal diagnosis also. The father was telling me about how wonderful and smart he is. I know that now I am scared and so is my husband that we may not be able to take care of this little boy well enough. but You only ever learn by DOING something right?

My next biggest fear is that our next child will have it also. We've been given a %1 of having another baby with it. I'm not hardly worried about the skin problem because I can deal with that. But I pray that he doesn't have it and I can consider myself lucky.

If anyone wants to talk to me, my email is Beauty3551 @ Yahoo.com Or Myspace.com/martikadragoon




6 Comments on Down Syndrome


jerri - Saturday, 9 Aug
You're doing a wonderful thing by educating yourself about this condition. my family and I are praying for you and yours. I know your son will just flurish from all the love he will have surrounding him! Congrats....hope everything goes well...

niseybear - Monday, 2 Jun
How positive you are! I hope all works out for you...be blessed. And many, many blessings for TJ!

cookiejar - Wednesday, 7 May
My Doctor told me that there are some test that are not 100% accurate all the time but not sure about that one. In any case you are doing great by finding out more about the syndrome.

riknlee - Monday, 28 Apr
I just wanted to congratulate you on your positive outlook for your baby boy. I am sure you will be blessed with a wonderful soul who you will wonder how you ever did without - have a wonderful pregnancy and birth. good luck

lisauk - Sunday, 20 Apr
i admire your positive attitude and the fact that you are finding out about D/S you seem a very strong and wonderful person and im sure your son will be beautiful.

katechris - Saturday, 19 Apr
Let me say that i think you posses amazing courage and tenacity and i admire you. From what i have seen of down syndrome people out there in the world is they are always happy and have a great capacity for love.
hugs and may you continue to see the positive
:-)
Photos
Hi!  (2008, 01, 15) My fat A*S at 25 weeks 5Days (2008, 06, 07) 25w5d View of the TUMMY (2008, 06, 07) Bare Belly at 25w5d! (2008, 06, 07) BABY TYLER JAMES FACE SHOT 30w6d (2008, 07, 12) Belly Shot 30w6d (2008, 07, 12) Tyler James Hamilton at about 9 days old! (2008, 08, 27) Me 35w5d the day I delivered (2008, 08, 27) me feeding TJ! (2008, 08, 27)

Children
Tyler-James-Hamilton (2008)

Latest blogs
04-9-2008 - PPD and Tyler and me
19-8-2008 - TJ IS HERE! 35w5d
03-8-2008 - Baby shower and 4 weeks left til he\'s here!!!
30-7-2008 - Wowza: TMI WARNING
12-7-2008 - U/S appointment and NICU consult Update on TJ... YAY
29-5-2008 - TJ FETAL ECHO RESULTS AND UPDATES
11-5-2008 - Update on Tyler James
19-4-2008 - Down Syndrome
07-4-2008 - AMNIO- 17weeks
07-4-2008 - AMNIO- 17weeks

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