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14-7-2009 - 1/140 Down Syndrome Result...

My mood while writing this blog: Bit teary...

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As you all know I am pregnant and have been informed this week that my baby is a little girl. Well I had some missed call's today and after an age they got through...it was the hospital with a frantic midwife on the other end. Obviously I was quite spinny headed as panic set in wondering what they wanted and she stated that the results of the triple test they had performed on me last week had come back.

I took a deep breath and said..."go on.."

She babbled in a frantic manner that my test came back in a very very high risk of Down Syndrome...
I said...calmly "ok, how high?"
1/140...

and then went on to babble more at me, How do you feel? Do you understand what this means? Its very high you know? Are you in shock, you dont sound upset? Do you realise how hard this will be? They are very difficult you know? What do you want to do? I have an appointment at 11am tomorrow for a termination for you....

At this point...I told her in no uncertain terms, that was no option, and I was not happy about it!!! And, I also did not consider 1/140 as high as she did.

I explained to her that despite her panic, I was very calm because this is a subject I have long discussed and know about, I would NEVER terminate a pregnancy because of this, and was very offended. People with Downs Syndrome are beautiful people, and despite their difficulties with the correct support and knowledge can/will go on to lead relatively normal lives. And, any family who is graced to have a member with this disability, will state loudly what amazing people they are!!!

So, after the call, my head was quite battered and upset...

I didnt want hugs because I didnt want to cry, I had to think, I realised... I was upset at her... not the result...She couldnt understand I did not want any further tests, what will be...will be... If this baby is Downs Syndrome, then so be it...she will be just as special whatever...'come what may'...I then cried...Cried for my baby...Will she have it? will she be able to have the things we all have? what will she lose out on?...I then cried for the baby if she is a 'normal' everyday baby and knowing her life would be that touch easier...I then cried for guilt at not knowing which I was crying for...and realising, I just love my baby girl so much already...

So have finally got back to my sense of calm before the call...If the numbers arent on her side, and she is disabled, we will do everything in our power to enable her to have the very best in everything...and if the numbers are on her side, nothing changes...she will have the very best of everything...so in the end...It matters not a jot...1/1... 1/250...1/1,400, so what!?!

Our daughter will be perfect in every way, no matter what!

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12 Comments on 1/140 Down Syndrome Result...


Martha03 - Wednesday, 15 Jul
You are going to be one hell of a mother. You are a wonderful person adn I have the same feelings as you do. When women become pregnant we all have the chance of something being wrong with our children and if people aren't willing to raise the baby for whatever reasons I believe they are not fully commited to begin with. My prayers are with you... and God Bless you and your baby angel .. your little girl.

CryMommy09 - Wednesday, 15 Jul
I am soo sorry. I don't no what to say. I can't imagine how you must be feeling.
I agree that you are very strong & mature.
I would not terminate eighter. I can't believe that they just assumed that you would, that would outrage me.

sirat - Wednesday, 15 Jul
Hi...I too have tested +ve for this test and number is supposed to be "very high" too. I go for my first ultrasound tomm. where it will further determine if if the baby will have it or not. Then i will get an amniocentesis done which is a 100 % diagonistic test..and we will see what will be will be. But i have been told that there is a very high %age of false +ve and almost everyone in a particular age group is supposed to be +ve....so dont worry your not alone, and this is not any guarantee that the baby will in any case be affected. I want to get the tests done so that i know what to do in any case or event....I will pray for you. By the way, i know some one who had a 1 in 11 chance and the baby was normal. Keep your faith and trust God. And chenge your midwife. she sounds like an idiot....and kick her in the ass while your at it, too and slap her silly for me too...I will keep you in my prayers.....

HelluvaAngel - Wednesday, 15 Jul
I refused to have that test because just like you it wouldn't matter the results. You are a wonderful, strong woman and your going to have a daughter that is going to grow up to be just like her mommy. Take care!

Rubes - Wednesday, 15 Jul
Down's kids lead normal lives. I knew this one Down's fella, married to this gorgeous woman with two adorable little (healthy) girls. Also, the test gives the odds of your child having it, it does not mention the severity of it.
But it sounds like you have your head screwed on, and you'll love your little bundle of joy despite what you've been told! Also, 1/140 isn't THAT high, at all, really, is it??

Feedmepickles - Tuesday, 14 Jul
You are a strong, smart woman, and I know that whatever happens you and your beautiful little girl will be just fine!

*mommy*ashley*of*2*little*ones - Tuesday, 14 Jul
i dont get this test done just for this reason and also there have been many pregnancy were they say they have it and then at the end they dont there just fine, how sad, now you have to worry about it, but i bet ur baby is so perfectly fine, i would not get anymore test, because there not accurate!! best wishes!!

Julianna - Tuesday, 14 Jul
God has blessed your daughter with an amazing mother who knows her and loves her already despite any abnormality she may or may not have! My doctor tried to get me to have these tests becasue of my age when I had Nicholas. I refused becasue no matter what i wanted my baby & there was nothing I needed to know to prepare myself for loving my son! Good for you! I am proud of you for being true to yourself. you seem like an amazing woman!

tquinn - Tuesday, 14 Jul
I will not get the tests done for the other people's reaction, not my own. I have a wonderful 6 yr. old autistic daughter who can't talk and is not potty trained but is happy and healthy and funny. I would not have a life without her. So this baby can be disabled and it won't matter, we would adjust. It wouldn't be easy but it is possible to have a disability and be happy. Bravo, you are a great mom and have my full support!

adriana03 - Tuesday, 14 Jul
aww soorry for her reaction but you are definitley the stronger one!.. Im not a pro but i dont really think those numbers are high. stay positive. Good luck!

happyforest - Tuesday, 14 Jul
im so happy that you are strong and confident enough to handle this situation and to love your baby UNCONDITIONALLY!! i am against terminations for this reason and also for all others, and too many women just end their babies life because of a 'chance' that something may be wrong. and 1/140 is not even 1%!! so theres a huge possibility that the baby will be just fine! how terrible of that person on the phone, call back and ask for their supervisor or boss and report this harassment!!!! she should not be asking you a million questions, and then assuming that you want a termination before you even get a chance to talk!

EloiseAndHarrys-Mummy! - Tuesday, 14 Jul
bless ya. I totally agree. ive even thought about not bothering with the test until she told me the numbers can be different everytime you have a baby. Im goign to have it now just to know the chances but same as you i wouldnt have anymore. what ever it comes out like it will still be my child. I totally agree on how wonderful they are. People ive met with downsyndrome are some of the most lively loving people ever. They maybe have a ashorter life expectancy but they suer to live it. They put me to shame lol. x