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| 07-5-2008 - 3 week update |
My mood while writing this blog: great |
april 28th~~~
~~~weight 4lbs 14oz =( thought we would hit 5lbs today but still doing great
~~~billi level down to 8.4 yay
~~~only 1 spell of apnea at 9am and before that at 6am on 4/27
~~~they are fortifying his breastmilk to 22cal per feed!!!
~~~dad went up to see him this morning i cant wait to see him tonight
LATER~~~
another update after mom went up to the nicu!!!
~~~~weight: 4lbs 13.6oz lost another ounce =(going to be fortifying his feeds more...now to 24cal
~~~~feeds: 44ccs per feed...every 3 hours
well i got to kangaroo for a little over an hour...and he did so good...he is so so sweet...he also practiced breastfeeding and latched on really good like 4-5 times and got a little!!! everything is baby steps toward coming home!!! speaking of i have started setting up his stuff for when he comes home...i just think it is a little sad to look in and see that empty crib and swing and bouncy chair!!!
grandma shirley left yesterday...and morgan and addison are missing her terribly...so am i...it was so nice to have some help with the kids and have company going up to the nicu....and grandma shirley was a proud grandma!!!
but now i will learn to do it by myself with 3 kids here pretty soon!!! i cant wait to see my baby again tomorrow!!!
APRIL 29TH~~~
weight: 4lbs 14.3oz so gained a little again...yay
feeds: holding at 44ccs
fortifying: they up it to to 24cals
after talking to the nurse tonight they have decided that jacobi's "apnea spells" are actually being thought to be caused by reflux...she says it is very common for preemies to have...and he will grow out of it...so that is good...
and she also said she is goig to talk to the doc tomorrow morning about letting him wear clothes!!! oh i hope he can!!!
oh and adam and i signed up for the CPR class that they require us to take before leaving...my mom is going to take it too since she will be our babysitter!!! we signed up to take the class on may 7th at 7!!!
they havent really given us any kind of picture on when they think he will go home...but i am praying and crossing my fingers for mother's day!!! what a great present that will be!!! but if not that is fine...as long as he is good and strong when he comes home...
oh and this morning we got to practice breastfeeding and he latched on like a champ...he is just so great at everything...he has really proved to be a wonder ful child...i am just so excited to get him home...or more importantly let him meet big sister morgan...she is just dying to see him and touch him and give him kisses!!!
speaking of we have everything set up and waiting for him at home!!! i actually ended up putting little outfits in his crib and swing and bassinet so that way when i look into his room it doesnt look so empty...i can almost picture him sitting in there...i cannot wait till that day!!!
well headed to bed becasue will be up early and headed to the nicu in the morning for morning time kisses!!!!
thank you once again to everyone who has sent prayers and well wishes and to everyone who checks on us!!!! we love you all and cannot wait for you to meet this wonderful little man!!!
MAY 1ST~~~
DAY 17 IN NICU
weight:4lbs 15.3ozs ***almost 5 lbs yay***
still fortifying milk
he got to wear his own clothes!!! yay that means he is starting to hold his own body temp...
had a couple spells again last night..but the nurses are convinced it is reflux and so am i...so they might try out some zantac for him sometime today!!!
they drew some more blood...and everything thing came back perfect
and he nursed again today really well...in a week or so we may start feeding him by breast or bottle only...yayy that will be no more tubes on his face...i cant wait!!!!
he is doing so great!!!
MAY 2ND~~~
DAY 18 IN NICU
*****WE HAVE HIT 5 LBS!!!! *************
yay i am so so excited for my little man...finally in the 5lbs!!!
he weighed in at 5lbs 0.3oz
also he only had 2 spells last night and one was self corrected...the doc this morning said that his zantac might take a little while to kick in but they are stilll convinced that it is reflux so we will see...
also jacobi's isolette is set at 27.5 degrees celsies and to be approved to be moved to an open crib he has to be at 27!!! so we are so close even though they wont move him out right away becasue he will need to start feeding by mouth and in tiny preemies they have a hard time deciding what to put their energy towards...feeding vs. keeping their bodies warm...so after a couple of days of good oral feeds he will probably be moved to an open crib!!! and when that happens he will be working his way out the door!!!
Looks like mothers day could be a realistic goal!!!
he is doing so well the doc has now officially classified him as a "feeder and a grower" so now he wont be really poked or prodded anymore...we just have to get him eating and packing on the weight...which if he is anything like his brother it shouldnt be a problem!!!
i love seeing him in his little clothes...i dont know why but now he looks like a real baby!!! maybe becasue i cant see the cords and wires as much anymore!!!
the nurse also said the reason he is probably doing so well is becasue of all the time we have spent up there...
adam has gone back to work this week so it is harder to visit because we dont really have a babysitter...
but i go up in the morning and night around 730 and adam trys to go up in the afternoon!!!
thank you again to everyone...we couldnt have done this without all of you...and one day we will print this out and give it to jacobi so he will know how loved he was from day 1!!!!
MAY 3RD~~~
DAY 19 IN NICU
WEIGHT: 5LBS 1.5OZ...
well last night i went to the nicu and Jacobi was not cooperating...he was having desats(where his oxygen saturation drops) and then he would self correct but it was happening so often and getting down in the 60s so she had to put him back in his isolette...
but this evening he was doing much better...and his isolette no longer is warmed...he made it to 27!!! yay...so as soon as he starts doing a little better with the reflux then he will workon being in an open crib...and origanally he was getting zantac every 12 hours but now they are talking about giving it to him every 8 hours...because he has been in constant pain with the reflux...his feeds go in over 90min and then 90 mins after that they start again!!! i cant wait till he feels better!!!
oh and i figured i would share this...it is a blog from my myspace i posted on Feb 21st....
ok so i have this dream with all my kiddos...andin this dream i walk into this office and on the wall there is a pull off a day calendar...you know the ones that say the month day and year that you pull off daily... and anyway so for the other 2 kiddos i have had this same dream too...
with morgan i dream she came on dec 22ndshe was due jan 6th...well the little poop showed at 6am on dec 23rd...two weeks early...so my dream was 6 hours off...
then with addison i dreamt he came on sept 22 he was due oct 10...and addison arrived 2 days earlier then the dream said on sept 20th...
well for this baby, baby jacobi i have had this dream...and it says april 28th...this is not something i wanted to see i will be 33wks 5 days on that day!!! but i know i should not have been doubting these dreams but last night i had the 3rd dream telling me April 28th but in this one it was different...on the wall next to the calendar was a pic of jesus holding a baby and as i turned to leave the office in my dream i ran into my grandma pat (who i was very very close to, died in jan 07, and i havent dreamt of since but always felt like see was looking after me) anyway as i looked at her she said "will you stop trying to control everything, the big man(pointing to the pic of jesus) is the only one in control. so young lady stop trying to fight it and just know that we are looking out for you and baby jacobi and everything will be just fine"
i am a believer now...and i will not fight it anymore...i am now counting down to april 28th...and i have such a nice calm peace about the whole situation...i know it sounds crazy but if god was going to sent anyone to get my attention and get me to listen it was my grandma...so i am ready god...the cards are in your hand!!!
****So aunt linda when you made that comment, it made me think of that dream, and you are right, we have angels helping us out for sure!!! thank you for the wonderful comment...
and to all others...thank you so much for checking on us and thank you for the great messages...i know i've said in the past that i couldnt have done it without all of you...but it is the truth...this is the hardest thing i have ever been through...but just knowing everyone out there thinking and praying for jacobi makes it bearable...it helps me to be strong for him and not feel so alone in all of this...we are truly thankful for each and everyone of you!!!
oh and as a side note ...sorry for the long post!!!
MAY 6TH~~~
DAY 22 IN NICU
BIG NEWS
JACOBI IS IN AN OPEN CRIB!!!!
AND HE WEIGHS 5LB 6.6OZ...EXCATLY 1LB OVER HIS BIRTH WEIGHT!!!
HE IS DOING SO GREAT AND IS HOLDING HIS OWN TEMP AND HE IS EATING ORALLY 3-4 TIMES A DAY..AND NURSING LIKE A CHAMPION!!! THEY SAID THE ONLY THING THAT WILL PROBABLY HOLD HIM IN THE NICU IS THE DESATS/DESCELS SO I HAD A TALK WITH HIM TODAY AND TOLD HIM AS SOON AS HE STOPS HE CAN COME HOME...AND HE HAD A TINY SPELL TODAY THAT HE RECOVERED FROM HIMSSELF AND THEN WAS PERFECT FOR THE REST OF THE DAY (YAY 1 OF MY 3 KIDDOS ACTUALLY LISTEN) AND THEY HAVE TAKEN HIM OFF ZANTAC AND ARE PUSHING HIS FEEDS FROM 90MIN TO 60MIN TO SEE HOW HE HANDLES IT!!!
AND THE NP SAID THAT IF HE GETS TO WHERE THEY DONT HAVE TO MEDICALLY INTERVENE LIKE USE OXYGEN TO BRING HIS LEVELS UP THAT HE CAN BE SENT HOME WITH A MONITER!!! THAT IS GREAT NEWS!!!
LIGHT AT THE END OF THE TUNNEL
****AND WE ARE STARTING A FREE JACOBI CAMPAIGN...WE DID THIS FOR MY NEPHEW HENRY WHEN HE WAS IN THE NICU EXCEPT WE ALL GREW OUT HAIR...AND NOW THAT IT IS WARM AND I DOUBT PEOPLE WANT TO WALK AROUND FUZZY I AM PROPOSING THAT IF YOU WANT TO WRITE "FREE JACOBI" ON YOUR CAR WINDOW WITH WINDOW PAINT...IF YOU DO SEND ME A PIC
MAY 7TH~~~
DAY 23 IN NICU
weight 5lbs 8.1oz
he is doing great with feeds and body temp and only had 2 tiny desats yesterday and both of which he recovered from on his own!!! i am hoping to board in the ward tonight to try out a schedule with 5 consective oral feeds...and see how he handles it!!
and for those of you wishing to participate in the FREE JACOBI campaign but dont have a car window...here is an example of what you can do....(thanks matt)

4 Comments on 3 week updatemom3boys2out1in -
Thursday, 29 May your storys amazing i hope and pray that you'll get to take you lil man home very soon mamadimplez -
Thursday, 8 May Thank you for sharing your lil' angels journey:) He look beautiful:) stlmomof3 -
Thursday, 8 May Hi, I was just checking on you. I am so happy that thing are going well. I know it is only a short time and Jocobi will be home with you. I really enjoy reading your updates. Thanks for sharing. Take care and I will be checking back often. nmck -
Wednesday, 7 May I love reading your updates! Jaconi and michael are long lost brothers with their decels and reflux meds!! It really must be developmental, because these two are within days of doing the same things. Let's see who gets sprung first! I kinda hope they keep michael till he doesn't need a monitor. They rarely send kids home on them from Hershey. I love reading your updates! Free Jacobi!