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10-6-2010 - CP

My mood while writing this blog: OK

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Hello all!

It has been a long time since I posted, but I visit and check in on the IAP pages here and there when my schedule allows it.

I have not posted an update on Michael in a while, and today seems like a good day with reason to update. He started walking independently a few months ago, but has yet to get proficient at it. He can only walk 15 feet or so independently at best. He runs when he has a push toy in front of him.

His language is through the roof, testing way beyond a typical 2 year old when we fill out his Early Intervention checklists. He says complete sentences like "Look! I swimmin like a fishie!" and many many others. We are very thankful that we do not have a single worry about his cognitive development. His fine motor is also good.

Today he had his second appointment with the orthopedic doctor she gave him the official diagnosis of Cerebral Palsy today. I have suspected this for more than 6 months, but it was still very difficult to hear it. Cerebral Palsy is not a progressive disease, so in other words it is what it is. We can help him learn to work through it. The good news is the therapies and exercises we have become very proficient at working in to our play are all the right treatments for his type of CP. The doctor praised our efforts and said she was pleased with his developments thus far. She expects that he will be able to progress to the point of living independently (physically) with learning to dress himself, etc. She remarked on his language abilities a couple of times during the appointment too, and pointed out how lucky we are to have no worries about his cognitive abilities.

His type of CP is called dyplegia (I think) which means it effects on the hips and below.

Despite it being difficult to hear, I am glad that we know, and I feel extremely blessed to have this little boy in my life.

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18 Comments on CP


Aiona - Thursday, 2 Dec
'Glad to hear he is doing well. We are so scared to have another one, because of the fibroids. Well, okay. *I* am scared to have another one. It was so many months of scariness, and even after the birth, wondering if he was going to be okay. Have you tried to have another one yet?

hillaryb - Monday, 14 Jun
You are so blessed to have your little Michael.All children are different and unique in their own little ways.take careHillary

2bBlessedw2 - Sunday, 13 Jun
I'm so sorry to hear about Michael's diagnosis as I know you were concerned a few months back when we last talked. He is so very smart and I have a feeling this bump in the road will not hold him back in any way! He has done so well and will continue to do so! You also have done a perfect job at being the best mommy to him! Keep up with all that you are doing and everything will be okay! xoxoxoxo

military~mommy - Sunday, 13 Jun
I am happy you have a diagnosis and that Michael has no cognitive barriers, he will thrive despite this I am sure, Hugs!

Amanda-is-Rebekahs-mommy - Friday, 11 Jun
I'm sorry about the diagnosis, you never want to hear your baby has extra hurdles to overcome, and putting a label on it can make it seem so much more scary. I'm so glad it's not a progressive disease and it sounds like he's doing great with the therapies you've been doing already, he's a strong boy and I'm sure he will overcome every hurdle. He's amazing with his talking! He's so smart! He's such a blessed boy to have such wonderful parents, he couldn't have more nurturing, supportive parents!

SunshineBaby1 - Friday, 11 Jun
Oh... I am so sorry to hear this. It is wonderful that all of your hard work has been paying off thus far and he is so cognitively advanced! I am sure all of your hard work as parents is going to help Michael continue to grow, develop and thrive!

shellie77 - Friday, 11 Jun
With a mom and dad like you guys, Michael will be a happy healthy little man that will be strong enough to push past his difficulties and conquer the world!

BraxtonsMommy0516 - Friday, 11 Jun
nmck! I'm so sorry to hear this. I'm sure Michael will do great in life. It sounds as if you have been doing the right things all along to help him. He has a wonderful mommy and daddy to help him and I am sure he will do just fine! xoxo :)

happymommee2kj - Thursday, 10 Jun
Sorry to hear that michael has cp. At least now it will be easier to treat him for what you know he has. it sounds like what he lacks physically he makes up for in cognitive skills which is a blessing.

colombianmama - Thursday, 10 Jun
He is so lucky to have you as parents. I'm sorry about the news but I'm glad he is doing great on other aspects, he is such a trooper and we are all proud of his and of course you for working so hard for him.

sherrybabydean - Thursday, 10 Jun
It has been a long time since you have posted!I'm so sorry to hear about Michael.I worry about Joshua being a preemie.He seemed to flow so fast at the beginning,but seems to be a little slow at things now.That and he only weighs about 25 pounds.His pediatrician said he was fine at his 2 year old appointment,but I think he's due for his 2 1/2 year appointment.I'm glad Michael is so strong in his other areas.He's a strong kid,always has been.Take care for now.I know the shock of it all has to still set in..It will take a little while.Parents worry so much about their precious ones.

heathert - Thursday, 10 Jun
so sorry about his diagnosis today but now you know for sure and can do everything possible to help him progress.

soon2be3 - Thursday, 10 Jun
Oh, nmck! I am very sorry that Michael has to go through all of this. I know that he has the best parents and support system and I predict that given these, he will achieve greatness.

Cherryb0m - Thursday, 10 Jun
I'm sorry to hear about the CP. Michael is a strong smart little guy though :-) he is very lucky to have such a wonderful mommy and daddy!

monkeymamma - Thursday, 10 Jun
Sorry about the news. What he lacks in his legs, he'll more than make up on the top half!

thebigtomato - Thursday, 10 Jun
I'm sorry to read that Michael has CP, but you are right that it is a blessing he is cognitively normal and has full use of his upper body. He has such a joyful personality that you can tell it doesn't get him down. I know it has to be hard to get the official diagnosis, but hopefully now that you know you will be able to work with it. I know you and B are determined to help Michael become as mobile as possible. Michael is blessed to have you and B as his mommy and daddy! *hug*

3girls2008 - Thursday, 10 Jun
oh sweety even though it is bitter sweet i am so happy he is thriving and give him time, he is a strong little boy who is going to over come this!! what a wonderful mom you are to being doing all of that for him you are a very strong woman!

Danetteplustwo - Thursday, 10 Jun
No one likes to hear that their kids have an extra challenge to face in life but I'm so happy for the most part it's positive information!