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15-4-2011 - My poor Abbie

My mood while writing this blog: Scared/sad/stressed

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So At Abbie's one year check up she weighed 16 pounds 7 ozs. Tiny, but considering her previous health issues it was expected for her to be tiny and a welcome relief that she had gained some. She had a check up about 3 weeks ago-at 15 months. Weight check revealed she weighed 16 pounds 7 ozs. This concerned the Dr as she weighed the exact same 3 months later. Dr said although small, her growth patterns have shown her to gain at least an ounce or two and the fact she didn't gain at all was concerning. They switched her to a Soy formula and had us come back within a month for a weight check.
So her last Dr appointment was on Wednesday. In 3 weeks time she LOST 8ozs. Dr even had her weight checked again to be sure it was accurate. She still poops at least 3 times a day and they have yet to solidify. This concerned the Dr. She has sent a referal in to a Pediatric GI Dr at Children's Hosp in OKC. Her appointment there is on June 7th. In the meantime the Dr ordered blood work. the standard iron check of course. But she also ordered a full thyroid check. Thyroid was checked when she was hospitalized at 3 months of age but she is not a few days shy of 16 months and has yet to double her weight. Since she started showing improvements but then lost rapidly Dr wanted to recheck thyroid levels. They also ordered a food allergy test. I didn't know they could check for that thru the blood but they said it wlll show if your body is acting funky to a type of food, then if so they do a dif test to narrow it dwn to what the exact allergy is. The scariest test she ordered is to check for Ciliac Disease. ( sp?) Apparently Cilliac is hard to diagnose in small children but the blood test will reveal any sort of abnormality and potential for the disease. If the test comes back showing signs than further tests will be ordered. Cilliac Disease is basically where the child has an intolerance for wheat, gluton or spelt. Since those items are found in most everything, including ketchup it really limits the diet. there is no cure..all a person with this can do is watch their diet like a hawk. Celliac patients eat mainly fresh fruits and veggies, corn and rice. Unfortunately since the diet is so limited they have shorter life spans and the body can react to not having a proper diet. Essentailly their bodies end up shutting dwn from lack of nutrients if not managed. This scares the crap outta me.
I pray SOMETHING comes from these tests ( hopefully not Celiac). I dnt want my child to have anything wrong but at this point i pray something shows up positive so they know what is plaguing my sweet lil girl. If nothing else, it will reveal a clue to the GI Dr so he will know what to check for without having to put her through hours of tortureous tests. Its bad enuff she has to wait till June. In the meantime her reg pediatrician is checking for everything she can on her end that may reveal some sort of clue. Her labs had to be sent away as the ones ordered are not standard labs that that lab office checks. Since Abbie's lab are more complex they were sent to a dif lab, which means I won't get any result answers till Monday or tues. :-(

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3 Comments on My poor Abbie


HelluvaAngel - Saturday, 16 Apr
I also know people with Celliac Disease and it is not as bad as you are thinking or have been told. I'm sure there are extreme cases but I doubt Abby's would be because she would have been having alot more problems. The motto FRESH IS BEST is so true. Every since Rio turned 1 my whole household has switched our diet to trying to eat only fresh and nothing with preservatives or junk food and such. We have been doing very well. It has been awesome for me because I have lost 43 lbs since Jan. Rio has become addicted, as we all have to homemade greek salads. She loves the tomatoes and cucumbers out of them. We will have a greek salad, baby potatoes and some chicken breast. She had her 1 yr check up on the Apr. 13th so she was 15 months and and she is weighing in at 23 lbs and is 29 1/2 in tall. I hope that all Abby's test results come back with a clear answer and that it is something not very serious with an easy fix. Feel better Abby!

rls- I♥myfourbabies - Saturday, 16 Apr
I have a friend who is celiac and one of my daughters school friends is too, it's not all that ba if managed properly try not to worry too much.

hayley-france - Saturday, 16 Apr
Aww bless her. Good luck, hope you get some answers and it's not Ciliac Disease. x

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