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Comments on CyndRN`s Profile
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Comments 1-25 to CyndRN
| 1 2 3 4 5 | Next | Show comments newer than 20 days

triciah - Tuesday, 25 November
 oh my goodness what a wonderful picture!he has such a beautiful smile.

triciah - Tuesday, 25 November
 awes so adorable

triciah - Tuesday, 25 November
 what a face, he such a cutie!

dsryan - Tuesday, 25 November
 he is getting so big, wow!

turtlemom - Monday, 24 November
I've checked out your page to see how you were doing. Your case sounds different than the majority of the ones on the board. I hope they are able to find out whether or not there is a problem. God bless you and your little one!

triciah - Monday, 24 November
he is doing well. the last time we had an u/s the dr looked at the screen and said it looked as though it may have decreased a smidge but that the radioligist hadn't made any notes about it but that he definitely said it did not increase and it is not compressing. so he goes the first part of dec. for a month later u/s. but he is acting as a normal baby and very fussy in the eve. sometimes. i'm glad that josh is doing well on his new milk. hope he continues to do well.

triciah - Saturday, 22 November
oh my gosh, it seems like the drs are all over the board. wonder why the current one wants to shunt him and the other two do not. at least two are agreeing somewhat.did the 3rd dr say if the vents had increased or if his head is the size it should be? i hope he is doing ok, is he feeling ok since you changed formula?

turtlemom - Tuesday, 18 November
Thinking of you guys!

casey - Tuesday, 18 November
How did you appt go on the 17th?

triciah - Saturday, 15 November
it's so fustrating i bet for you to have to keep waiting. i hope josh is getting along ok and you as well. hopefully the 3rd opinion will give some insight as where to proceed from here.good luck!

jess2008 - Saturday, 15 November
How is Josh? I saw your post on my page....Gage is doing better today just alot of fluid in his little body and he slept alot today. The neurosurgeon did his shunt because his head started increasing more than it should have. The shunt is working great and he is healing quickly! Keep me posted on what is going on with Josh!

triciah - Friday, 14 November
how did the new neurosurgeon visit go? have you got any test results back?hope you and josh are doing fine.

turtlemom - Monday, 10 November
Good luck with your next appointment. I hope they are more organized!
I love the bathtime pics!!!

triciah - Sunday, 19 October
he seems to be getting good care.i'm so sorry that you are having to call and ask for help. hopefully you can find a neurologist that will make sure things are being looked at that need attention. maybe his muscle is tight and he will just need some therapy to loosen it up. i have a friend who's little 4 mo old has a neck muscle on his left side that is stiff and he is going through therapy right now. my reg ob told us about his personal experience at our second appt after finding out all of this. he is the one that spotted it on the u/s and sent us to a high risk ob, but anyway he told us that he went through the same thing we were going through...13 years ago, because his first son had dialated vents and he didn't know much about it and after his son was born he had a stroke and a brain bleed and was then diagnosed with cerebral palsy, i just thought it was very nice of him to share his personal experience, cause he explained to my husband that he went through the anger at drs too and with him being a dr didn't understand how they couldn't know what was wrong with their son, but he realized after doing his own research just like all of us,that everyone's outcome is different. i'm not sure if that is the norm for how hydro babies end up w/a stroke and bleed and are diagnosed w/cp or not but that was his experience, so maybe it will turn out to be just a tight muscle, i'll keep my fingers crossed for you and say a prayer.

triciah - Sunday, 19 October
it's sounds as though you need a second opinion since they seem unorganized and are not giving you follow up appts.hopefully the new dr will shed a different perspective on things and make sure everything is ok. all is well with our family,we go a week from this wed to have another u/s and see the neurologist to see if everything has remained stable. he seems to be doing very good right now, eating, sleeping, staying awake for periods of time,and his head only grew a cm, which they said is at a rate for a normal infant. children's hospital is sending a nurse out to our house twice a week for a couple of weeks on top of pediatrician, neurologist, and u/s appts. the first one comes this monday.

triciah - Friday, 17 October
i forgot to ask are they still doing the shunt surgery in nov. now that they have pushed back the u/s to dec?

triciah - Friday, 17 October
we don't go back for another ultrasound until 2 weeks now, they did another u/s and said everything is remaining stable (although i could see part of the screen and the measurement for one side was at 44mm and i couldn't see the other one my husband was closer and he didn't see what it said and i was feeding ryan so i could only look up a couple of times when the neurologist was explaining it and going over the results. but i think the other one said 20 something and previously after birth they were at 38mm each) they don't seem to like to tell you the size after birth, last time i asked this time i didn't cause they said it was stable and didn't give us any new info, and my husband said it doesn't seem to matter what size they are as long as they aren't compressing other parts of the brain. although for me if they aren't compressing anything then there must be areas of the brain that are missing for the fluid to be taking up space and not compressing anything. and the dr did say when i asked if it was partial or full agenesis, that it looks to be full agenesis, totally missing on the ct scan, but he said it also, is pretty much a wait and see situation if ryan is affected in any way.... he could have difficulty in learning, or have a high iq, or not have any effect at all from it missing, they just don't know until as he grows up and we see his progress.i'm still pumping breast milk, i'm trying to do it until i go back to work, however, i don't get much, so we supplement with similac advanced with iron, i'm too afraid he won't get enough if i just try to breast feed, and this way that we are doing i know exactly what he gets. he lost a little weight when we went back to his pediatrician today he had gotten up to 6 lb. 13 oz. and now he is back down to 6lb. 8 oz. we go next week for another appt to check his weight.

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