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Comments on janice55`s Profile
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Comments 1-22 to janice55
| 1 | | Show comments older than 20 days

theomum - 5.3 hours ago
hi there, im from the uk so i thought i would send a message. Sorry to hear your having a time of it, hope everything turns out well x

krissiehoran - 31.2 hours ago
hi janice, hope everythign went well for you today, my thoughts are with you sweet heart xx here's to positive thinking :)

michellel27 - 31.6 hours ago
I've been thinking of you. Did you go for the MRI yet?

beanerz - 47.6 hours ago
I just wanted to let you know that my thoughts are with you and wishing you the best for the MRI. I know how scary this must be for you as a few weeks ago I had to undergo a series of tests when they thought that my baby was at high risk for neural tube defects. Hang in there and keep us posted! xox

turtlemom - Thursday, 19 November
I never had a MRI. I asked about it and our High Risk OB said that his Level 2 ultrasound was going to show us as much as the MRI would. It seems like most serious cases get the MRI, but we didn't. Holoprosencephaly is a scary condition. I bet it was just noted because of the cleft lip/patate. It is a good sign that the amnio was clear! Maybe the MRI will give you a better idea and hopefully eliminate this as a possibility.Please let me know how the MRI goes. My thoughts are with you. I know exactly how you feel.

turtlemom - Thursday, 19 November
I just wanted to check in with you. When is your next scan scheduled?

aholmes..plus4 - Friday, 13 November
added 22 week belly pic xxx

turtlemom - Tuesday, 10 November
Hi there,

I saw your comment on lindsaymorrow's blog page. My daughter was diagnosed with severe Hydrocephalus at my 18 week scan. You can read the details on my profile. She is now 14 months old and is developing normally.

It seems like the prognosis for similar cases in Europe is not as good as in the US. I'm not sure why that is. I have several friends on this site in England, Ireland, etc that received horrible advice from their doctors (termination, etc). In the US, the doctors seem to be a little more optimistic.

Did they see any other anomolies on the scan? Normally isolated cases have the best prognosis. My Godson is 3 and acquired Hydro as a result of a brain bleed because he was a preemie. I quickly became an expert on the subject and then it happened to me. I'm happy to answer any questions. I know exactly how you feel.

Blessings to you and yours!

michellel27 - Monday, 9 November
Still thinkin of you and ur little one all the time. I have a good feeling that with a little help, everything will be ok in the end. I'm not just saying that either....I really do think it will work out for you and your family.

lindsaymorrow - Monday, 9 November
hi i seen ur blog on here, my little girl has ventriculomegaly, was picked on my 20 week scan didnt know what to think when they said she had that cudnt even say it haha, well to cut it short my little girl had 25mm fluid on her brain was classed as severe they told us to termanate not a option, yes we have been thrugh hell she has had a operation 5 month ago and i am happy to say she is doin great it worked she is developing normally and defiently a miricale baby, i am thinking of u all and if u need to ask me anything wud be only happy to answer, take care x

babybrown2010 - Thursday, 5 November
Your lil girl is in my thoughts!!! As well as you..

krissiehoran - Tuesday, 3 November
hi! great to hear from you! i said the very same thing to dh and hesaid he thought it was only the umbilical cord, tsk! but i still think its a boy :) no i never found out with the other two but guessed right with both of them. i am delighted with how it went yesterday,very glad everything is ok. this lo is such a wriggler too! how are you keeping lately? hope all is well xx

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