Hi all :)

I Have 2 children a son brodie 4yrs and a daughter anya 2yrs. I am due to have another son in feb 2008.

My expected baby has just been diagnosed with tuberous sclorosis a rare genetic disorder. He already has 3 tumers in his heart and one on his brain and will grow more.

While I love him just the same as if he was normal I am scared of the unknowns of raising a child that is so sick and may be both physically and mentally challenged.

I would love to hear from other parents who have dealt with this disorder to learn what to expect and prepare for.