see matthews story on this website: http://stopcmv.com/stories/matthew.php

My complete "drama or story" is in the 49 or so blogs, you can either click on the sides or up top where it says blogs, I NEED to get CMV out there.....my story is RARE....but oh my, I never heard a story like mine....if you hear your baby is affected by this virus cmv or cytomeglavirus....there is HOPE....I found Dr Stuart Adler.....he's a specialist with pregnant woman AND this virus...I had 2 Cytogam infusions per Dr Adler he gave the directions to my doctor, my baby did the 6 weeks (yes in the hospital) of gangcyclovir...there is hope..today 03/25/09 he is almost 7 mos, tomorrow is his 6 month hearing test, but he Can see, hear, laught sit up...he is just a lil smaller....please read my story or at the very least go to www.stopcmv.com (matthews story is there as well, the link at the very top!) GOD bless!!!

I am a very lucky woman, I am now 28 and have 2 beautiful children. My pregnancy with my little boy this past year has tested my faith, patience and will....I think that I was given the best gift ever....GOD allowed me to keep my little boy, when it was very obvious at one time he wanted his angel...however with prayer and me begging GOD to allow me to have my little boy, HE let me keep my son. He is currently 1 month old, he was born August 30, 2008 and will remain in the SCN (special care nursery) until his last dose of medication on October 15 2008. Hopefully he will come home that day or the next unless he has side effects from the medication. He is getting an IV drug called Gancyclovir 2 times a day through his veins, he has a PICC line which is a very long IV that goes from his left arm to the middle of his chest, so they dont have to continually poke him...he has weekly lab work done..he is truely a fighter...and I am so proud of him....my pregnancy story is in my blogs if intrested..

My name is Erin, and I am 27, I have a wonderful 6 1/2yr old daughter....I am currently on my 3rd pregnancy..1st ended very early with a miscarriage, my lil girl came around about 1 yr later...now here I am with my lil boy.

I have my entire "story" in my blog section, starting from before all the horrible news all the way back in April, which may I add seems like years ago....the U/S that changed my life was the one that let me see that I was having a beautiful little boy....exactly what mommy wanted...again! I got my girl the first time, and now I got my boy! He is already amazing me with his fighting...no words can explain how fragile this time is, so please enjoy it, no matter what, I took full advantage of my daughters pregnancy, granted it was hard to breath until I knew really knew that I wouldn't have another miscarriage, but after I just wanted her out and complained all the time, now I fully value and appreciate this time, because every week since week 19 my Matthew (gift of God) Aaron (mountain of strength) has been fighting for his mommy, and he's made me so very proud of him, there are absolutely no words....I cherish every kick, even the heartburn that keeps me up...because at one point this moment, wasn't going to happen, the drs pushed a medical termination, as I said the full story is in all the blogs....

words that I lived with until very recently were:

cytomeglavirus, olighydraminos, enlarged heart, enlarged spleen, enlarged liver, enlarged umbilica vein, severe anemia, newly added **hydrops**, echogenic bowels (which is what started all the testing), ascites (fluid in abdomen), and fluid around his heart...with the DNA testing for the CMV (cytomeglavirus) his chromosomes were normal, and he is a he...

I am very happy to say at week 33 now :):) my lil boy is still severely anemic :( but the only enlargements are his liver and spleen, the amniotic fluid has been normal for a month now, the nasty CMV did its number on my boy, but he's fighting, however still no calcifications or fluid in his brain...I had the Immunoglobulin (IV) thereapy thanks to a wonderful dr all the way in Virgina who specializes in this virus with pregnant women.. hopefully that can fix my boy....from what I am told he can have mild problems all the way to severely mentally disabled. I am petrified to see what this virus did, but I know now that I can deal with what I am handed...I have faith that he will be okay.