• I think everyone needs to remember how scary it is to be pregnant with rageing hormones & being told the worst case senerio by all your doctors for your child you are carrying…It was a scary time me me I know, my BF & I were faced with the same option late in pregnancy…we did choose to contiue with pregnancy (thankfully) due to amnio results…[Read more]

  • micajovic – we had the similar case of being diagnosed with VM late in pregnancy like you are experiencing. We had the chromosomal testing done at 12 wks & the 2nd set done at 19 wks all came back clear, every US was fine till my US at 28 weeks & that is were they noticed my sons enlarged left vent at 14+mm, right one within normal range of…[Read more]

  • brad-and-amy – I had a fetal MRI at 29 weeks, it freaked me out because I am clausterphobic & dont like small spaces but thankfull it didnt last too long. It does make rather loud noises when they are doing the scanning & my son did jump around during that time but the tech warned me ahead of time that it may startle LO a bit during the…[Read more]

  • LDMusgrave – I would take a look at Turtlemoms profile…I think her daughters vents were around that measurement or higher & her little one is a success story & a blessing for sure…a little cutie as well. Our thoughts are with you & your little one.

  • Hi mommies, my son was watching the Disney Junior channel this morning while I was getting ready for work & I heard this poem being recited that almost brought me to tears…in all that we have gone thru for us who already have our little ones here, the newly diagnosed & all the future to be diagnosed out there, I think you will all appreciatie…[Read more]

  • dudua – my son was diagnosed with VM & Colpocephaly as well at 29 weeks…given poor prognosis if he survived birth & we were pressured to term. My son was born at 39 weeks healthy & CT Scan which cleared him of Colocephaly…his left vent barely enlarged above normal. now at 7 1/2 mo’s he shows no sign of any issues or disabilities. We are so…[Read more]

  • turtlemom – your little LO is just so precious…it looked like she was very much enjoying swimming! Such a little miracle 🙂

    dudua – I am sorry to hear you are going thru all this again with your second LO…I dont have any experience on ACC but I just wanted to send you good vibes that everything turns out ok for you & your LO, glad to hear…[Read more]

  • Keegan80 – I am so sorry for your loss of your LO last year & now being told this new LO on the way has VM has got to be tough. Our thoughts are with you & your LO…keep us posted on how LO is doing.

  • partyof5nowSonya replied to the topic in the forum Babies Forum 3 years, 4 months ago

    EmelC – your story sounds very similar to our story with my son…his left vent was dialated to 14mm when we were 1st diagnosed at 29 weeks when we were ordered a fetal MRI to get a clear pic, then it went down to 12mm over the next couple weeks of monitoring…level ll ultrasounds & by 35 weeks when we stopped monitoring it was measuring just…[Read more]

  • partyof5nowSonya replied to the topic in the forum Babies Forum 3 years, 4 months ago

    Thats great news!

  • partyof5nowSonya replied to the topic in the forum Babies Forum 3 years, 4 months ago

    Well we go for our last U/S today at the specialist office before he is born to check Kaden’s vent measurement & brain…hoping he co-operates this time & is laying in a way that makes it easy for doc to get a clear measurement this time & I am so hoping his enlarged vent size has decreased again like it did two weeks ago, it would so make the…[Read more]

  • Is it me or what…but it seems that more & more doctors (including mine) are just really pushing offering to terminate pregnancy once they find something wrong/not normal (to their standards) in our babies brain? Both my docs (OB & Specialist) offered on several occasions for us to term (even in 3rd trimester) which made my honey & I really…[Read more]

  • partyof5nowSonya replied to the topic in the forum Babies Forum 3 years, 4 months ago

    momto2 – we opted for the fetal MRI when we were told of our sons enlarged vent at 29 weeks plus had the amnio & infection screening. I opted for it because I wanted to know more of what was going on with my son & of course all tests/scans are clearer after baby is born & performed on them. My LO didnt much like the MRI cause of the noise so he…[Read more]

  • partyof5nowSonya replied to the topic in the forum Babies Forum 3 years, 4 months ago

    buckeyefan – We had his pediatrician come in & see him after he was born…she ordered a CT Scan then I had a neurosurgen that I trust come into the hospital to take a look at the results of the CT Scan & talk with us about it before he was released from hospital. The situation is frustrating & the only thing the docs tell you is you have to wait…[Read more]

  • partyof5nowSonya replied to the topic in the forum Babies Forum 3 years, 4 months ago

    A baby will make love stronger, days shorter, nights longer, bankroll smaller, home happier, clothes shabbier, the past forgotten and the future worth living for.” — Anonymous…I saw this quote & loved it the second i read it so I had to share it :o)

  • partyof5nowSonya replied to the topic in the forum Babies Forum 3 years, 4 months ago

    micajovic – They recommened it even tho those tests were all done & came up clear because there just wasnt any explaination for Kaden left vent to be enlarged…they found no cause, no other abnormalities & being that just the one left vent was the only one enlarged it gave the docs an even bigger cause for concern because typically VM presents…[Read more]

  • partyof5nowSonya replied to the topic in the forum Babies Forum 3 years, 4 months ago

    laila10 – my son was born natural delivery, I was worried about the same thing as you mentioned because I didnt want to put more pressure on his little brain going thru birth canal because I felt it may make things worse but doc said he would be fine…his head measured as it should not bigger like in some cases due to fluid, did not have…[Read more]

  • partyof5nowSonya replied to the topic in the forum Babies Forum 3 years, 4 months ago

    addisonl – is there 2 different docs your daughter is dealing with that is telling you guys 2 diff things? It the only reason I can see her being told so many diff things…unfortunately, as her docs have already said there isnt much they can do for her, they cant tell how serious it is going to be till after baby is born…it sucks, I know & we…[Read more]

  • Beautiful Bre – I think you have to be over like 25 yrs old & have more than one kid before you can have it done but not sure.

  • ok ladies I have a question…I had my tubal ligation 3 weeks ago, I didnt experience any of the shoulder & diaphram gas pains like my doc said I would from them blowing up my belly with air during surgery because I prepared for it & took Gas-x when I got home & then every 6hrs for 2 days…my doc checked my incision sites last week & said they…[Read more]

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