Epilepsy

This topic contains 40 replies, has 19 voices, and was last updated by  i-am-pregnant 3 years, 2 months ago.

Viewing 15 posts - 1 through 15 (of 41 total)
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  • #6768028

    i-am-pregnant
    Keymaster

    What should I know about epilepsy and pregnancy?

    #6928596

    KarenBG
    Member

    ms, that is great news!!!

    #6928597

    KarenBG
    Member

    I am so thrilled that this forum has been added. If anyone else has a seizure disorder, please contact me, I would like to talk more about this.

    #6928598

    BabyNMe
    Member

    Hi, this is the closest forum I could leave this message. My baby had a seizure on Dec 18 out of the blue while standing in her crib and another one in the emergency room bed in front of everyone. Nothing provoked her…no fever, all the tests were done, EEG, urinalysis, blood, spinal tap…nothing was found and she is acting just as normal as ever to this day. Doctors said this is actually not uncommon, but I’ve never heard of such a thing. Can this happen possibly by just her brain growing? Maybe because it’s still immature? Sounds strange, but I can’t think of anything else. Epilepsy does run in my family, but no signs of it were present on the EEG. Has anyone else’s child had this happen? Has it come back? I’m terrified she’s going to have another attack. It was the most horrible sight…I thought I was going to lose her…….

    #6928599

    Erin83
    Member

    KarenBG – Hi there, I have photosensitive epilepsy but have had it controlled for 8 years now. I only ever had 2 seizures however I have to take my medication for life now. I saw my doctor before my partner and I started to try. I have a prescription for double dosage of folic acid and he told me that it would not be worth me coming off of my medication as the chance of having a seizure and causing complications outweighed the baby having complications due to the medication. Apparently deformities occur in less than 6% of babies born to women with epilepsy and it’s about half that for women without it. He reassured me that he had a patient with epilepsy and on her medication going through pregnancy with no problems. I am on lamotrigine though which I think is a better med to be on during pregnancy and I believe that it’s quite a low dosage. Hope this helps but the best thing to do is speak to your doctor for reassurance. It put my mind at rest. Oh, after reading the little piece on this page about side effects of taking the meds I had never heard that miscarriage is a possibility and I had one in November. My doctor did not once mention that it could be related to my medication so I would really only go on the advice of your doctor. 🙂

    #6928600

    BoyStruckX2
    Member

    My 5 year old son has had seizures since he was a baby. Every test that has been done gives us no rhyme or reason. They were so severe he had stroke when he was 8 months old. They told me he would never walk or talk. Actually told me he was deaf. He has been on so many medications only for his seizures to change. Right after he turned 3 he had surgery and a VNS implant was placed. I have yet to find another mom with a child this small that has one of these implants. I think positive and only hope my son can become person they said he never would.

    #6928601

    kelly129
    Member

    i was diagnosed with epilepsy when i was 15 years old and i am now 23. fortunately, the type of seizures i have, grand mal or generalized seizures, are the easiest to treat…so my neurologist told me. i am 25 weeks pregnant (an unplanned pregnancy) and even though i am excited, i was very scared when i found out. i have only had 3 seizures, only one since i was diagnosed and prescribed meds. the only reason i had the third seizure is because i was non-compliant with my meds at the time. needless to say, when i was told i was pregnant, i became very compliant with my meds. two obstetricians told me that my biggest concern with the type of med i am on, valproic acid (epival), is spina bifida and heart abnormalities…fortunately, those defects have been pretty much ruled out due to ultrasound and mss (blood test). we’re so happy now and we’re expecting our little girl on or around april 27!

    #6928602

    KarenBG
    Member

    http://aedpregnancyregistry.org/ The AED Pregnancy Registry is dedicated to determine the safety of anticonvulsant medications that can be taken by women during pregnancy to treat disorders such as epilepsy, mood disorder, and chronic pain. The primary goal is to determine the frequency of major malformations, such as heart defects, spina bifida and cleft lip, in the infants exposed during pregnancy to anticonvulsant drugs.

    Who is eligible? Any woman who is currently pregnant and is taking AEDs (antiepileptic drugs) for any reason can enroll in the Registry. A woman enrolls herself by calling us toll-free at 1-888-233-2334. Participation involves only 3 brief telephone interviews. The first interview is at the time of enrollment, the second takes place in the 7th month of pregnancy, and the third is conducted a few months after delivery.

    #6928603

    KarenBG
    Member

    just thought I would share that I think this website is really informative: http://www.epilepsy.com there is an entire section devoted to pregnancy, and another devoted to diagnosis and treatment.

    #6928604

    DaydaysMom
    Member

    Well my daughter doesnt have Epi… but shes got parshall seizures. been dealing with them since Jan of 09 and they got worse in may. but shes on meds now so hopefully they will get better.

    #6928605

    richgirl
    Member

    I’m 29 & I’ve had epilepsy for most of my life. I believe I was diagnosed w/ epilepsy when I was 3. I remember asking my Mom when I was bout 5 why I had to take pills. ‘Cuz you shake,’ was her answer. I really had no clue what she was talking bout… til one day…. It was Oct 31st/96 & all of a sudden, I woke up, very sleepy… I was in math class & my gr 7 teacher (I was in gr 9 @ the time) looked down on me. He asked me if I knew what was going on…etc. I told him no. I didn’t even wanna talk I was so tired. All of a sudden these paramedics came in & pushed me on a stretcher. I was kinda scared. My teacher asked me if I wanted my sis to come w/ me. I said no, even when he asked if I was sure. I’ve been taking pills ever since. I got preg & took phenobarbitol throughtout my whole pregnancy. My son’s 20 mos old & very healthy. I’ve gone unconscious 2x that I’m aware of. The 2nd time was @ home & my sis & cuz thought that I was faking it. Even in hs my friend thought that I was faking it !!! :@ (N) I do get seizures (more than once a mo) I could control them better if I took better care of myself. Since I’m gonna be 30 in Oct I guess it’s too late to hope that I won’t need to take them on a daily basis for the rest of my life 🙁 I take 2 in the morning & 4 @ night. (30 mg each -low dose) Anywayz, I just thought that I’d share a lil bit bout my epilepsy.

    #6928606

    DaydaysMom
    Member

    Will seizures ever completely stop with meds?

    #6928607

    BoyStruckX2
    Member

    Mason’s have never stopped……..I still have hope that they will . . . .

    #6928608

    LeaMerre
    Member

    I’m 26 and epileptic with grand mal seizures since I was in 8th grade. I am on lamictal (300 mg in the morning and 200 mg at night) This med. seems to control the seizures well, I’ve only had around 10 seizures my whole life and lead a pretty normal life 🙂 I’m now almost 5 weeks preggo. My dr. wants to keep me on my meds. My ob/gyn has me on prenatal vitamins and 4 mg of folic acid and expecta lipil. She thinks with my epilepsy all the extra folic acid and expecta lipil it will help with the epilepsy and meds. risks. Anyone out there had a baby while on lamictal? How did it go? Any suggestions?

    #6928609

    sandistar03
    Member

    i have had 2 very healthly lil boys on lamictal i have been on it for years and it works great i also am right at 4.5 weeks pregnant with our third still on lamictal u should do fine being preg on it i did i have had epilepsy since i was 5 good luck to you and on the pregnancy

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