Epilepsy

This topic contains 40 replies, has 19 voices, and was last updated by  i-am-pregnant 3 years, 2 months ago.

Viewing 15 posts - 16 through 30 (of 41 total)
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  • #6928610

    MichelleW
    Member

    I’m 23 and was diagnosed with epilepsy when I was 11. I suffer from tonic-clonic seizures and probably have 1 every 1 -2 months. I take Lamictal daily. I am now 15 weeks and 4 days pregnant and have only had 1 fit throughout the pregnancy so far. I try not to think about the complications and effects that it could have on my baby but it is so worrying. Everything has been fine so far but I will have my 20 week scan on 6th aug and even though i’m really excited i’m also dreading it in a way, scared that he/she is going to have some kind of defect or abnormaility. Sandistar…u r on the same med i am…i hope i’m as lucky as u 🙂

    #6928611

    sandistar03
    Member

    they actually just added kepra and like i said both of my boys are healthy and no signs of epilepsy in either one yet i was diagnosed when i was 5 and my youngest will be 4 tomorrow so i hope that he does not get it we still have a while with the youngest before we would not n e thing but as far as meds i took lamictal both times and they are great happy arnory kids. machelle is this ur first

    #6928612

    MichelleW
    Member

    yeah this will be my first, 16 weeks 2day 🙂

    #6928613

    MichelleW
    Member

    whats kepra?

    #6928614

    sandistar03
    Member

    it is just an epileptic med i think it is pretty new they are calling it a new age med

    #6928615

    DaydaysMom
    Member

    daisy is on kepra. it didnt work even with triliptal. so shes not on topamax and kepra. topmax is a sprinkle you put on food. she takes that one good but hates kepra.

    shes having brain surgery on august 19th cause there is a spot on her brain that is causing the seizures.

    #6928616

    LeaMerre
    Member

    Sandistar & Michelle, sorry I didn’t see your responses sooner. You have made me feel much better taking my lamictal now. So far, I’m 10 weeks and things seem to be going well. My Dr. talked about putting me on Keppra about a yr. ago and I decided against it after reading all of the possible side effects. Lamictal seems to be doing well so far. I hope I’m lucky like you and your healthy little ones!

    #6928617

    lolligirl
    Member

    Do anyone take flintstone gummies for pregnancy? I’m 17 weeks, on 3mg. of folic acid, topamax and lamictal. I’ve been takeing the gummies because the regular prenatal make me puke. But now I am worried that baby may not be getting enough nutrion.

    #6928618

    sandistar03
    Member

    i took topamax before and it was in pill form but i did not do well on it so far so good with the kepra and lamiktal but u all know with seizures that can change in one day or less

    #6928619

    MichelleW
    Member

    Hi all, I had my 20 week scan and all was fine, no apparant effects from my med, lamictal. I did have quite a bad seizure however last week, i was in agony afterwards and bit most of my tongue away but that was the only one i have had so far and it was also in my sleep so not too bad, onbstretics doc said they were going to refer me to my specialist however i don’t want them to increase my med. I’m so happy all is going as it should be so far and if i can go another 20 weeks without having a fit i will be fine!

    #6928620

    sandistar03
    Member

    michelle i am sorry to hear about ur siezure that is not good but i am glad to here that the baby is doing good i wish my siezures would go away and the stress of our move is not going well for my siezures but baby is doing well

    #6928621

    LeaMerre
    Member

    I’m now 17 weeks and found out we are having a little boy. So far, everything looks good for our little one. I however, did develop hypothyroidism and am now on Synthroid for my thyroid but OB says the medicine is good for me and baby. My neurologist after a medicine level blood test said the baby was zapping most of my lamictal so he did increase it. Fortunately, the lamictal is still working good for me except the increased dose makes me a little nauseous for an hour or 2 after I take it. Michele, I hope you don’t have anymore seizures but am glad the baby is doing well. Sandistar, hopefully after your move your stress will ease up and your seizures will stop. Good luck to everyone!

    #6928622

    tamfrix
    Member

    I am 5 weeks pregnant. I have had seizures since I was about 13. I had brain surgury almost 2 years ago and no seizures since! I hope I will come off of my Tegratol XR. I am on 800 mg a day. Will this hurt the baby? Oh yeah…I am 33 now! LOL sorry bout that!

    #6928623

    sandistar03
    Member

    tamfrix i know that lamiktal and kepra r the safer meds but i am not sure about tegratol

    #6928624

    Emma85
    Member

    Hey everyone, new to the site & just been reading up on this section.
    I got diagnosed with epilepsy at thirteen years old (now 24), i am taking tegretol 600mg daily, have not had fit for ten years now.
    When i was preg with my first child, needless to say i was VERY frightened about my epilepsy & birth defects, i began having panic/.anxiety atacks….my son came 5 days early in a 3hr labour & is just perfect.
    Im ten weeks preg now with my 2nd child now & so far so good, as long as im monitored regularly im gonna try enjoy my pregnancy this time round & not let anxiety get me down

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