Diaphragmatic-Hernia

This topic contains 7 replies, has 7 voices, and was last updated by  BabyCarter 1 year, 8 months ago.

Viewing 8 posts - 1 through 8 (of 8 total)
  • Author
    Posts
  • #10428842

    i-am-pregnant
    Keymaster

    Diaphragmatic-Hernia

    #10428843

    Margarita
    Member

    my baby girl has a diaphramic hernia i found out at 19 wks pregnant…..has anyone had this? i wana know if she will be completly normal after birth & surgery…its really worrying me 🙁

    #10428844

    my4thbaby
    Member

    Hello all
    I just thought i’d post to introduce myself. It seems very quiet in here- yet i know from meeting lots of other CDH mum’s that this condtion sadly isn’t rare. My son-Sam was diagnosed with CDH at our 20 weeks scan. His was thought to be very severe so we opted for inutero surgery. Sadly my lil boy was born on Christmas eve 07 and died aged 16 hours on Christmas day. If there is anyway i can support you, or answer any questions you might have- please message me
    Caroline
    Xxx

    #10428845

    i-am-pregnant
    Keymaster

    hi there all! i am 19 now and had my son at 17! the dyafagmatic hernia wasnt picked up on scans and was only found out after an x-ray once he was born, i was so worried, was told to preoare for the worst, he had the op at two days old, convincied he wasnt goin to make it a prayed for the best, we spent s number of weeks in hospital, watchin ur new born with with a big macine breathing for him is not something u want to see, he had to be paralysed for a number of weeks and we where told when they try to take him off it might not be good. luckily for us, he pulled through even after contracting the MRSA bug. i still remember the day he came round he herd me and his daddy talking to him and he opened his beautiful eyes again for the 1st time in weeks, i was so proud it was like he was born all over again, after that he just spiraled up and up! he is 20 months now and you would never know what he had been through apart from the scar above his just below his chest going half way across. he is such a beautiful boy and i love him dearly, i know how lucky i am to have him, and i just want to give u some hope if u are going through what we when through, just keep faith in ur little fighter. god bless x

    #10428846

    dispatcher33
    Member

    Hello all, I am a father to a baby that had a Diaphragmatic herinia. the hernia wasnt found till my wife was full term. The only thing we could do was watch and wait till the docotors worked on my son. Eventually the news was grim and survival was not an option. He lasted approx 3 hours after being born. Ladies I do know what you are going through but I can tell you that i traced this back from cat liter so if you have cats stay away from the litter.

    #10428847

    reaperswifey
    Member

    I am 19. I had my daughter at 16. We didn’t know that anything was wrong with her till i was 7months pregnant. at first they thought that she had a cyst on her heart. But after many more ultra sounds and visits to specialists, they found out that she had a diaphragmatic hernia. They said that she had a 50/50 chance of living. When she was born she was rushed to the nicu. She was 5 days old when they did surgery on her. She is now turning 4 this year. She is doing great and you couldn’t ever tell something was wrong with her looking at her. She goes back to get a check up every year till shes 5. But other than that she does everything any other kid does.

    Hope this helps.

    #10428848

    psychicx
    Member

    my grandson just died of the diaphragmatic hernia..he was just a week old..question..could he have been saved if they would have done the surgery while he was on a resperator ?…bren

    #10428849

    BabyCarter
    Member

    psychicx-I had an older sister with this who died an hour after birth. It was never detected, but she was born tn 1986 also. I did a medical research paper on this topic and the findings were inconclusive. There wasn’t enough evidence supporting surgery, vs. no surgery, vs. surgery while still in th ewomb, if diagnosed soon enough. I did my research 4 years ago, but I wanted to read up on this topic and came across your question. It’s been a long time since you wrote this and maybe you’ve got your answer, but what ifs won’t help your pain and there isn’t any proof that surgery would have helped you grandson.

Viewing 8 posts - 1 through 8 (of 8 total)

You must be logged in to reply to this topic.