Hemangioma

This topic contains 16 replies, has 10 voices, and was last updated by  dolly2boyz 3 years, 4 months ago.

Viewing 15 posts - 1 through 15 (of 17 total)
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  • #10428901

    i-am-pregnant
    Keymaster

    Hemangioma

    #10428902

    stphnhuerta
    Member

    my son had a strawberry birthmark develop a couple of weeks after he was born and now im going to a specialist at the driscoll hospital because its been growing wish me luck

    #10428903

    knockoutmom
    Participant

    my daughter has 3. one big one on the side of her head and two on each shoulder. the one on her head looks like its gotten bigger and even changed in color. i dont know what to do about it!

    #10428904

    i-am-pregnant
    Keymaster

    At 8mo I noticed a lumpy bruise on my daughter’s upper arm. The doctor stated that it was a deep tissue hemangioma. It looks like someone ‘charlie-horsed’ her and is about 3/4′ in diameter. She will be 2 in october and the hemangioma is still there (although same size, the color has diminished a bit) The doctor instead of seeing us every 3 months, now said that we could go every 12 months unless it looks like it is getting bigger. I am just so thankful that what she has is benign!

    #10428905

    i-am-pregnant
    Keymaster

    just so you ladies know….I had one of these. I developed it when i was pregnant with my daughter. it was the only time i had ever had one. It grew rapidly due to the pregnancy hormones. I had issues with bleeding bc it was in an odd spot that kept getting irritated. I had to have it surgically removed. it left quite the scar on my chest. I;d suggest getting it removed if your child has one. they say they dont hurt, but i have to disagree. it wasnt pleasant. just thought you ladies might like some insight !

    #10428906

    The3Wolfes
    Member

    My son was born with 2 hemangioma’s. One on top of his head and one on his left cheek. Oral steroids are often used to try to stop the hemangioma’s from growing. After much thought, my husband & I decided to put our son on steroids and we really regret doing it. If your baby has a hemangioma and you have questions, please feel free to email me!

    #10428907

    Dee27
    Member

    Hi guys, Just thought Id share my experience with my daughters hemangioma. At birth she looked like she had a few burst blood vessels on the side of her face. Within the next 8 weeks it grew rapidly and was about about 15 cm long and 10 cm wide. Hers did not look like the one in this picture though, hers was more flat and patchy. If you would like a pic please leave me a message. We went to a pedeatrician who referred us onto a dermatologist. The dermatologist knew exactly what it was and started her on a high does of steriods. Within the next 24 hours we noticed a dramatic difference. The hemangioma was going over her eye and it was not opening properly, after 24 hours on the steriods the eye opened up completely. She was also put on a new medication called propranolol. She was on the steriods for 2 and a half months and has now been weened off them. We definately made the right decision. Apart from not sleeping as well as she probably should there were no side effects from the steriods and it made the world of difference. The hemangioma is now nearly gone and shes on 5 months old. Without medication it can take years.

    #10428908

    Dee27
    Member

    Also it is not a birthmark. Its not there at birth and it is NOT permanant 🙂

    #10428909

    hello my daughter has 2 of them one on her left lower lip and one under the skin on the back of her neck.the one on her lip has grown slightly sence birth gotton realy red and puffy.she turned 1 the other day and her first appnt at a derma.dr in nov.she has had no meds for this yet any suggestions or questions please contact me i have a picture of her on my profile u can see her lip.any advice will be much apprechiated.thank u.and add me to ur profiles.

    #10428910

    JaxsMommy
    Member

    Im not sure if this is what my son has or not please help. He has a red spot on his chin but it is not raised

    #10428911

    JaxsMommy
    Member

    I just added a photo of it on my profile

    #10428912

    i-am-pregnant
    Keymaster

    My son has a hemangioma on his tummy. We just got back from the ped because I found a lump on his neck that looked bruised also. Come to find out it is another hemangioma. The doctor said not to worry unless we find a third. Three is the cutoff point where they would then do labs to see if there are any internal disorders. Hoping we don’t find a third one!

    #10428913

    babyfarr
    Participant

    My little boy has one on the side of his forehead, just in the hairline. Its not small.. but its not disfiguring. We noticed it about 2 weeks after birth and it continued to get bigger and bigger. The pediatrician told us not to worry about it.. but it never stopped growing. So at 4 months I made him an appoinment with a pediatric derm. We do steriod injections every 6 weeks. For him the steriods cause no side effects. He is almost a year old now. Its getting better but it still looks like it may be a while before it is completly gone. My recommendation to any parent is to see the dermatologist IMMEDIATLY. They know how to handle a hemangioma and early treatment will stop the growth and start shrinking it before it has a chance to grow bigger.

    #10428914

    i-am-pregnant
    Keymaster

    My son developed one of these on top of his head about 2-3 weeks after birth. It started out looking like a strawberry in color and grew more red and raised with each week. The Dr told me exactly what it was and said it would grow bigger at first and then start to shrink after a year. Well, it did grow bigger…started out the size of a pea and grew to the size of a dime. I read and read…and decided the best thing was to leave alone based on what I read. They really are no threat and will go away on their own. I think I would have made a different decision if it had started growing towards any major facial part..like eyes, lips, ears etc… they are known for being on teh face..and can cause disfiguration with eyes etc… Putting a child on steriods is a big decision..especially for something that isn’t really hurting them. Obviously, everyone has to do their own research..but suggest doing that before you take extreme measures to remove. My son is 14 months now and you can’t even tell it was there. It started shrinking about 6 months on. It is scary, because they do grow at first…but, the ‘work themselves out’ and really don’t harm the baby.

    #10428915

    dolly2boyz
    Member

    hi,my daughter was born in june totally perfect.at 2 weeks old she developed a very small red blemish on her jaw line.we thought it would go away at 1st but our health visitor said it was an hemangioma.it has gone slightly bigger and bubbled up a bit.its a scary thing to go through as you dont know how bad it will get.it would be nice to chat to other mums who know what we r going through,please get in touch if you would like,im also on facebook :0)

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