Endometriosis

This topic contains 49 replies, has 39 voices, and was last updated by  MELISSAGRAHAMCOLE 8 months, 2 weeks ago.

Viewing 15 posts - 1 through 15 (of 50 total)
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  • #6768026

    i-am-pregnant
    Keymaster

    What is endometriosis and how is it treated?

    #6928542

    Happyfam
    Member

    Hi ladies, I just wanted to say that every BODY is different and ANYthing can happen.

    I was diagnosed w/ endo when I was 16 yrs old (I’m 29 y/o now). I had 2 laporoscopies, and was told I’d ‘be lucky to get pregnant’. So, believing my docs, I didnt practice very safe sex – heh, used the pill but not always on time.
    Guess what?!! I had a beautiful baby boy (albeit, 10 yrs later)! He was born 5 yrs ago. I have had one early miscarriage (7 weeks along, or so) since, and am now 16 weeks pregnant. 🙂

    Don’t give up hope. Keep trying, keep praying, and have fun while you’re at it. 😉

    #6928543

    motherofone
    Member

    I have really painful periods, I mean to the point where I have to miss school or work. Sometimes the pain is so bad I have to go to Urgent Care or the ER. Last week I had my baby via c-section & while I was in surgery I remember the doctor telling my bf that I have two small tumors on my uterus. I’m sure he said uterus but my bf cant remember if he said my cervix or uterus. Could this mean that I might have Endo? My grandmother has it & my mother might have it. Any replies would help.
    My mom said tumor on uterus or cervix is cancer but not all tumors are cancerious & the doc said it was nothing to worry about. But I’m a little concerned considering I have a newborn child I have to take care of.

    #6928544

    hello i have endomitriosis and was told it was really bad i went through two laposcrapic surgerys and gave up hope of having children 3 months after my second surgery i was pregnant out of no where thankfully the horrible pain i was in almost dissapeared through pregnancy and after birth i really have very few signs of endomitriosis at all its amazing i do have a few small systs that are watched by my doctors so i assumed that if i wanted to have another child i would need another surgery before i even thought abot trying again well guess what it happened on its own i am so excited seriously i cannot describe the pain i was in before all this i mean i couldnt work go to school it was really bad the dr who did the first surgery told me that he has never seen such a horrible case and especially being i was soo young after years of mental and pysical stress i am almost pain free and have my second baby on the way dont give up there is hope

    #6928545

    StarrAngel
    Member

    Hi! I am new to this sight, but am enjoying hearing everyones stories. I was diagnosed with endometrisois in April of 2007. I had the Laproscopy surgery on Dec. 2007. We started trying for a baby that December and tried for a year with no luck. I finally convinced my doc to put me on clomid, and exactly a year after the surgery, Dec 1st I found out I was pregnant 🙂 I was starting to wonder if it were possible…I just want you all stuggling with endometriosis to not give up!! There is hope!!

    #6928546

    Ash96743
    Participant

    I am new to this site, but I just wanted to say to all those diagnosed with endo, please do not give up hope of having children!! I was diagnosed at age 16 with endo, doctor after doctor said ‘i was too young’or ‘it was in my head, everyone gets cramps’ but the pain never subsided. I was told after 3 surgeries, and 4 lupron treatments (which I had the worst side effects) I would be lucky to concieve. Well, almost 9 yrs later, I have 3 beautiful children, AND I am pregnant with twins! Have faith!!

    #6928547

    TristaC
    Member

    Well i was told that I had endometriosis when i was 18 but have been in and out of the hospital with severe pains since i was 10. I have had 6 surgeries to try to stop the pain it seemed to stop with the last one i had 2 years ago but i was told that i would never be able to get pregnant. So when I took a pregnancy test and it was positive i was very surprised. I am about 6 weeks along now and i am getting the severe pains back but before they were in my right side and now they are down in the lower center of my belly. My doctor said that he couldn’t tell me anything until 2 more weeks because i was to early in my pregnancy I was just wondering if anyone went through the same thing i am and if anyone could tell me anything to calm me down. Thanks!

    #6928548

    kdevine33
    Member

    Hello to all!! I have endometriosis and was told I would NEVER have children, well i am 19weeks pregnant. My doctor wanted to give me a historectomy @ 30 but I still thought I was to young. Thank god I didnt. Still in shock & cant convince myself @ times that i am pregnant. So to all who are suffering from this there is promise out there just when you least expect it :)….

    #6928549

    gamama31791
    Member

    wow- after reading all these stories, it just goes to show that dr’s don’t know everything. Its nice to hear that your preg after being told you never could. Im proud of you ladies!!

    #6928550

    Sassypants
    Member

    I am 27 and was diagnosed in Nov 2004 with Endo via laparoscopy. My husband and I tried for 2 years naturally then a fertility specialist did an insemination and 2 invitros and I still could not get pregnant. That took place over another year. I was pretty much sure I would not get pregnant, maybe a small possibility with invitro but never naturally. My husband and I have since divorced but I have been in a relationship for about 3 years now and knowing I could not get pregnant we hadn’t been taking precautions for a long time. Well, my last period I missed but I assumed something was just going on with my endometriosis. I noticed my stomach was no longer completely flat, but I assumed I had been eating too much so planned to watch how I ate. We went out of town with his family and while changing I noticed my breasts were a little sore and I said something to him about it. He said they also look bigger lol. Well, the thought popped into my head maybe I am pregnant… but after so many years I pushed it aside. Each day after I kept thinking about it, my stomach hadn’t gotten any smaller, and upon return home I found out I was 6 weeks pregnant (now 7 weeks). Mind you I have not had any treatment whatsoever for my endo other than the one laparoscopy from ’04. I won’t say its possible for everyone, all cases are different. So far for me it has been painful, I have had cramps everyday since my missed period. I have also been tired for what seems like atleast 18 hours of the day, I sleep constantly. But I will consider it worth it even if it lasts 9 months if I can carry it to term. I say don’t give up, but also try not to stress, because maybe once you stop thinking about it it will happen on it’s own.

    #6928551

    Queengirl79
    Member

    I was 16 when I wasdiagnosed with Endo, and I am now 29 years old. I have a severe case of Endo. I am in pain all the time, and struggle with this disease on a constant basis. I would like to have a child of my own, and fear the worst. Hearing all these stories helps me, and makes me a little more optimistic. Thank you. I have had no luck this far conceiving a child, but will continue trying. Thank you for allthe hints, and thoughts,

    #6928552

    Grazka
    Member

    I’m 32 (33in July) and have alws had painful cycles but everytime I go to OBGYN they tell me that many women have painful cycles and prescribeme a pain meds. Any tests you can advise me of I can ‘make’ them sent me for to make sure I don’t have endo?Please, if you can help. I’m trying to conceive 10 mths and I’ told I should wait a year before they will send me for any thests.
    Appreciate all your help!!!!

    #6928553

    the only way to get a definate diagnosis for endo is a laporoscopy. if your doc isnt doing what you think is enough change doctor. i did when i wasnt satisfied with mine when i was 17 and within a month was diagnosed. im now 30 and had been trying for 4 years to conceive without success. i am now 12 weeks pregnant with identical twins and couldnt be happier. had one session of accupuncture in jan and conceived in march, maybe a coincidence but i dont think so.

    #6928554

    kchia80
    Member

    Hi there, I wonder is someone can help I am 5 and half weeks pregnant but am petrified of miscarriage because of my endometriosis. I have had a few pains but today have bad diarrhea – does anyone know if this is a sign of ectopic or miscarriage? Don’t want to fuss my doctor again unnecessarily, I only went yesterday!!

    #6928555

    Hi. I haven’t been on here in a long time, but I have just been diagnosed with Endo. For me it seems to have happened a bit differently than all the other stories I’m reading. I had my first child 18 months ago and have had pain while having sex ever since. I thought it was birth pains since I’d never had it before and i figured it would go away. I was so wrong! i went to the doctor and they did a laparoscopy and cut out everything they could find. She told me that these next couple of months my fertility will go up and if we want to have another kid (which we have been trying for for 8 months now) that this is the time. Before having my son I had NO pain or signs that something was wrong. It was not until AFTER giving birth that the Endo surfaced. I am now just trying to learn as much as possible on the subject so if anyone has any input or advice feel free to share! Thanks!

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